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Update - I saw rheumologist today
Hello all, I saw the rheumatologist today after being referred by respiratory consultant last week. The ‘take home ‘ was in a nutshell the rheumatologist has ‘low concerns but not zero’ . He believes I have had pneumonia from a covid infection at Christmas I didn’t realise I’d had! He’s reassured that
Hello all, I saw the rheumatologist today after being referred by respiratory consultant last week. The ‘take home ‘ was in a nutshell the rheumatologist has ‘low concerns but not zero’ . He believes I have had pneumonia from a covid infection at Christmas I didn’t realise I’d had! He’s reassured that
Bronte007
in
Lung Conditions Community Forum
1 year ago
Covid vaccine number 7
Hello everyone, I’m going to have my seventh covid vaccine next week, I take the Jak inhibitor Filgotinib. My white cells and neutrophils occasionally dip but nothing spectacular. My question to the community is, is there a limit to the number of covid vaccines one can have? Thanks everyone:)
Hello everyone, I’m going to have my seventh covid vaccine next week, I take the Jak inhibitor Filgotinib. My white cells and neutrophils occasionally dip but nothing spectacular. My question to the community is, is there a limit to the number of covid vaccines one can have? Thanks everyone:)
Pastels
in
NRAS
1 year ago
COVID and/or vaccine-induced PMR
Hi everyone, I met with my rheumatologist recently and she said some interesting things about what she and other rheumys in her department are seeing with regards to COVID-induced (and COVID vaccine-induced) myalgias, including PMR. Basically, what she said is that the patients she sees who present
Hi everyone, I met with my rheumatologist recently and she said some interesting things about what she and other rheumys in her department are seeing with regards to COVID-induced (and COVID vaccine-induced) myalgias, including PMR. Basically, what she said is that the patients she sees who present
sferios
in
PMRGCAuk
1 year ago
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I don’t believe it!!
I was all set for a speed run this morning; only 3 long runs away from HM. I don’t usually run on Fridays but my Thursday run had to be postponed because of a friend’s funeral. She was a lovely gracious human dynamo of a lady from church who won the Queen’s Award for volunteering. She didn’t run, but
I was all set for a speed run this morning; only 3 long runs away from HM. I don’t usually run on Fridays but my Thursday run had to be postponed because of a friend’s funeral. She was a lovely gracious human dynamo of a lady from church who won the Queen’s Award for volunteering. She didn’t run, but
Beachcomber66
Half Marathon
in
Fun Beyond 10K & Race Support
1 year ago
1st full blown flare on Tocilizumab….😞
Yesterday at about 10am I started to get mild pain in my left foot, cuboid/metatarsal joint. It became more and more painful as the day progressed, till I was limping badly. I have been getting very minor flares for months, the roaming pain kind of thing where it hits a joint, hurts for a wee while
Yesterday at about 10am I started to get mild pain in my left foot, cuboid/metatarsal joint. It became more and more painful as the day progressed, till I was limping badly. I have been getting very minor flares for months, the roaming pain kind of thing where it hits a joint, hurts for a wee while
Brushwork
in
NRAS
1 year ago
CDC OKs COVID-19 vaccine, allows older adults and immunocompromised adults to get second dose Bi Valent vaccine on Wednesday, April 19, 2023
CDC simplifies COVID-19 vaccine recommendations, allows older USA adults and immunocompromised adults to get second dose of the updated vaccine U.S. DEPARTMENT OF HEALTH AND HUMAN SERVICES Media Statement For Immediate Release: Wednesday, April 19, 2023 - (
All my nearby CVS pharmacies had stock
CDC simplifies COVID-19 vaccine recommendations, allows older USA adults and immunocompromised adults to get second dose of the updated vaccine U.S. DEPARTMENT OF HEALTH AND HUMAN SERVICES Media Statement For Immediate Release: Wednesday, April 19, 2023 - (
All my nearby CVS pharmacies had stock
lankisterguy
Volunteer
in
CLL Support
1 year ago
covid vaccine
hi have been informed to have my spring covid vaccination has anyone else on methotrexate injections had it
hi have been informed to have my spring covid vaccination has anyone else on methotrexate injections had it
Shaza123
in
PMRGCAuk
1 year ago
Covid
Hi there, just wanted to double check, im 2 days into positive result for covid, feel absolutely awful, im hoping all the aches are covid related and /or my upper body is the recovery of my first yoga class in 3 years, last Friday!Im on 4mg pred apparently according to endo with adrenal insufficiency
Hi there, just wanted to double check, im 2 days into positive result for covid, feel absolutely awful, im hoping all the aches are covid related and /or my upper body is the recovery of my first yoga class in 3 years, last Friday!Im on 4mg pred apparently according to endo with adrenal insufficiency
Lovetobe
in
PMRGCAuk
1 year ago
New: Health and Social Care Secretary statement on Covid-19 vaccination of at-risk children aged 6 months to 4 years
Following advice from the Joint Committee on Vaccination and Immunisation (JCVI) on Covid-19 vaccinations of at-risk children aged 6 months to 4 years, the Health and Social Care Secretary Steve Barclay has issued a statement formally accepting it. The JCVI advises that children aged 6 months to 4 years
Following advice from the Joint Committee on Vaccination and Immunisation (JCVI) on Covid-19 vaccinations of at-risk children aged 6 months to 4 years, the Health and Social Care Secretary Steve Barclay has issued a statement formally accepting it. The JCVI advises that children aged 6 months to 4 years
Nicola-NRAS
Partner
in
JIA-at-NRAS
1 year ago
Covid Injections reactivated RA
Having spent the past 11+ years with my RA in remission being managed by 17.5 Mtx and Hydroxychloroquine. The Constant Covid Jabs of the past 2years have reactivated my crazy immune system to a point where my medication has had to be changed. (Which has as yet failed to bring it back under control)
Having spent the past 11+ years with my RA in remission being managed by 17.5 Mtx and Hydroxychloroquine. The Constant Covid Jabs of the past 2years have reactivated my crazy immune system to a point where my medication has had to be changed. (Which has as yet failed to bring it back under control)
Baileyparklands
in
NRAS
1 year ago
loss of taste
been a while i have been having some changes. still having leg pains and cramps mainly at night. muscle relaxants help some. starting to have some swallowing problems, i have to keep a drink nearby at all times. sleep problems a big problem. some nights i don't sleep at all, but on average I don't sleep
been a while i have been having some changes. still having leg pains and cramps mainly at night. muscle relaxants help some. starting to have some swallowing problems, i have to keep a drink nearby at all times. sleep problems a big problem. some nights i don't sleep at all, but on average I don't sleep
horseandwolf
in
PSP Association
1 year ago
Covid brings me panic attacks
Hello people. My name is George. I am from Bulgaria. I am 39 years old. English is not my mother's language, so sorry if i sound rude or impolite, it's because of my English level. I have never had a problem with my mental health in my life. 2 years ago i was sick from Coronavirus . Than i started to
Hello people. My name is George. I am from Bulgaria. I am 39 years old. English is not my mother's language, so sorry if i sound rude or impolite, it's because of my English level. I have never had a problem with my mental health in my life. 2 years ago i was sick from Coronavirus . Than i started to
Jazzpunkbass
in
Anxiety and Depression Support
1 year ago
I've got Covid - any suggestions on when I can do a Thyroid Function Test?
My Covid has been confirmed with a swab test. I've got a test kit for a standard finger-prick TFT (Thyroid Function Test) i.e. TSH + Free T4 + Free T3. I want to do it ASAP without Covid interfering too much with the results (or at all, if possible). When would be a good time to do it after recovery
My Covid has been confirmed with a swab test. I've got a test kit for a standard finger-prick TFT (Thyroid Function Test) i.e. TSH + Free T4 + Free T3. I want to do it ASAP without Covid interfering too much with the results (or at all, if possible). When would be a good time to do it after recovery
humanbean
in
Thyroid UK
1 year ago
COVID positive 21 days
Hi there, Brief History: I am currently being treated for relapsed CLL. A year into a 2 year course of Venetoclax and already had 6 months of Rituximab. Bloods are all fine and within normal ranges as the CLL responded well and very quickly at the start of treatment and I achieved (treatment
Hi there, Brief History: I am currently being treated for relapsed CLL. A year into a 2 year course of Venetoclax and already had 6 months of Rituximab. Bloods are all fine and within normal ranges as the CLL responded well and very quickly at the start of treatment and I achieved (treatment
Rich316
in
CLL Support
1 year ago
6th Covid jab
Just had my 6th Covid jab this morning, and it was called Vidprevtyn beta. Anyone else had this version?
Just had my 6th Covid jab this morning, and it was called Vidprevtyn beta. Anyone else had this version?
Purplegloss
in
PMRGCAuk
1 year ago
Issue when reverting back to NSR
Hello everyone I had tachycardia / SVT from teenage years. Earliest episodes awful as little info available (groups like this were unimaginable then!). Over the years I had an on / off battle with "an irregular heartbeat" and I think most drugs were tried. But it seemed to become less of a problem as
Hello everyone I had tachycardia / SVT from teenage years. Earliest episodes awful as little info available (groups like this were unimaginable then!). Over the years I had an on / off battle with "an irregular heartbeat" and I think most drugs were tried. But it seemed to become less of a problem as
Garaidh
in
AF Association
1 year ago
Covid Immersion
Not specifically MPN related, but evidence my immune system is still intact. My bucket list post-trauma was to visit my parents at their retirement home. Success, but perfectly timed to their 1st Covid infection. I spent an afternoon in a small poorly ventilated room close and personal. According
Not specifically MPN related, but evidence my immune system is still intact. My bucket list post-trauma was to visit my parents at their retirement home. Success, but perfectly timed to their 1st Covid infection. I spent an afternoon in a small poorly ventilated room close and personal. According
EPguy
in
MPN Voice
1 year ago
Covid finally got me
I've managed to avoid covid for 3 years, I think due to being extremely careful and having 6 vaccines. Hubby and I have only had some 2 or 3 day breaks to Dumfries, North Yorks, Morpeth and Durham since November 2021.He was away down to mid Wales at a fishing competition last week and came home on Friday
I've managed to avoid covid for 3 years, I think due to being extremely careful and having 6 vaccines. Hubby and I have only had some 2 or 3 day breaks to Dumfries, North Yorks, Morpeth and Durham since November 2021.He was away down to mid Wales at a fishing competition last week and came home on Friday
Circledancer
in
NRAS
1 year ago
Benipali and Covid injection
I can't remember if I stopped my weekly Benipali before I had a previous Covid jab. Senior moment
I can't remember if I stopped my weekly Benipali before I had a previous Covid jab. Senior moment
Jackie1947
in
NRAS
1 year ago
Covid Pneumonia - Recovery!
This is maybe my final post, and its now around 18 months since I was landed in hospital with covid pneumonia. Please read my other posts for my journey. I was recently featured on BBC look north, so hope the message gets out there that you can recover. Since Christmas i've been cycling and doing lots
This is maybe my final post, and its now around 18 months since I was landed in hospital with covid pneumonia. Please read my other posts for my journey. I was recently featured on BBC look north, so hope the message gets out there that you can recover. Since Christmas i've been cycling and doing lots
natswright
in
Lung Conditions Community Forum
1 year ago
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