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First time Ruxolitinib and what to make note of, from Vietnam - a case of interest/study
I am writing on behalf of my mother who was diagnosed with PV back in 2002. The symptoms started with her in 2001 but it took over 1 year for my mother to get to the right hospital, a specialized Hematologic hospital of the Ho Chi Minh City and she was put on HU since then, until recently, as a BMB showed
I am writing on behalf of my mother who was diagnosed with PV back in 2002. The symptoms started with her in 2001 but it took over 1 year for my mother to get to the right hospital, a specialized Hematologic hospital of the Ho Chi Minh City and she was put on HU since then, until recently, as a BMB showed
Cranston3x
in
MPN Voice
1 year ago
myocarditis
I have long covid and for months I’ve suffered debilitating symptoms of arhythmia and breathlessness and exhaustion on exercise Finally after an MRI scan of heart I have been told I have myocarditis. Does anyone have experience of this being caused by covid? I don’t know how it can be treated but am
I have long covid and for months I’ve suffered debilitating symptoms of arhythmia and breathlessness and exhaustion on exercise Finally after an MRI scan of heart I have been told I have myocarditis. Does anyone have experience of this being caused by covid? I don’t know how it can be treated but am
Midnight2022
in
British Heart Foundation
1 year ago
Covid Recovery - Exhausted
Hi, I tested positive for Covid on July 15. Symptoms were mild at first, felt more like allergies. On July 15 I lost my sense of taste and smell, then the tightest in my chest and exhaustion hit. I took Paxlovid and have had a round of antibiotics and steroids to get rid of this virus, but it’s
Hi, I tested positive for Covid on July 15. Symptoms were mild at first, felt more like allergies. On July 15 I lost my sense of taste and smell, then the tightest in my chest and exhaustion hit. I took Paxlovid and have had a round of antibiotics and steroids to get rid of this virus, but it’s
Utballa
in
AF Association
1 year ago
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does half a mg make so much difference
about three weeks ago I started to feel the familiar aches associated with pmr. Prior to this I had dropped from 3.5 to 3. I contacted my rheumatologist department and had a blood test which showed cpr <5 cor but I had symptoms. I’ve arranged a further blood test next week and was advised to stay with
about three weeks ago I started to feel the familiar aches associated with pmr. Prior to this I had dropped from 3.5 to 3. I contacted my rheumatologist department and had a blood test which showed cpr <5 cor but I had symptoms. I’ve arranged a further blood test next week and was advised to stay with
Rosina1871
in
PMRGCAuk
1 year ago
What preparation for my first FET and I have Lupus?
Hello ladies, I have been diagnosed with Lupus in Feb 2020 and I haven’t been well since I had the Pfizer booster injection Dec 2021 which caused tightness in my chest, feeling lightheaded and palpitations. 5 months later being triple vaccinated and I had Covid last year and it has triggered some
Hello ladies, I have been diagnosed with Lupus in Feb 2020 and I haven’t been well since I had the Pfizer booster injection Dec 2021 which caused tightness in my chest, feeling lightheaded and palpitations. 5 months later being triple vaccinated and I had Covid last year and it has triggered some
Sunflowers_2020
in
Fertility, Miscarriage & IVF Support
1 year ago
Covid-19 Vaccination?
This may provoke a tirade from people who feel very strongly one way or another, but I felt it was worth flagging up - please try to be polite! There has been previous discussion on here about whether to go for further booster vaccinations against Covid-19 now it is no longer ‘NEWS’ . Currently [i]most
This may provoke a tirade from people who feel very strongly one way or another, but I felt it was worth flagging up - please try to be polite! There has been previous discussion on here about whether to go for further booster vaccinations against Covid-19 now it is no longer ‘NEWS’ . Currently [i]most
oldtimer2
in
NRAS
1 year ago
Be Careful
Morning everyone, hope you are all well. I have pernicious anaemia and through the years have managed with self injections, resting, eating as well as I could (within reason), watching my weight and exercising as well as I can. In general I thought I was doing not too badly at all. Albeit tingling,
Morning everyone, hope you are all well. I have pernicious anaemia and through the years have managed with self injections, resting, eating as well as I could (within reason), watching my weight and exercising as well as I can. In general I thought I was doing not too badly at all. Albeit tingling,
Miss-guineapig
in
Pernicious Anaemia Society
1 year ago
Ah...I am breathing easier
This is for everyone (though it is old news for most) but I haven't ordered Pan Pharma hydroxy for a year...in fact I believe I got the end of the lot and when it finally came it had a very short expiration. It also took 6 nail-biting weeks to get here. I was worried but have noticed the trend of it
This is for everyone (though it is old news for most) but I haven't ordered Pan Pharma hydroxy for a year...in fact I believe I got the end of the lot and when it finally came it had a very short expiration. It also took 6 nail-biting weeks to get here. I was worried but have noticed the trend of it
EiCa
in
Pernicious Anaemia Society
10 months ago
🟨 Making Yellow Card Reports 🟨
🟨🟨🟨🟨🟨🟨🟨🟨🟨🟨🟨🟨🟨🟨🟨🟨🟨🟨🟨🟨 In the UK, the
Medicines and Healthcare products Regulatory Agency (MHRA)
operates the Yellow Card scheme for reporting issues with medicines. They have slightly different approaches to: 🟡 Side Effects 🟡 Defective medicines 🟡 Counterfeit or
🟨🟨🟨🟨🟨🟨🟨🟨🟨🟨🟨🟨🟨🟨🟨🟨🟨🟨🟨🟨 In the UK, the
Medicines and Healthcare products Regulatory Agency (MHRA)
operates the Yellow Card scheme for reporting issues with medicines. They have slightly different approaches to: 🟡 Side Effects 🟡 Defective medicines 🟡 Counterfeit or
helvella
Thyroid UK
in
Thyroid UK
1 year ago
covid
I wonder if anyone can help me out on this So I have Cirrhosis and Iam on holiday been feeling rubbish with high temperatures Just done a covid test and it’s positive The temperature is bad at 39 .3 would you advise taking paracetamol 4 hourly ? many thanks
I wonder if anyone can help me out on this So I have Cirrhosis and Iam on holiday been feeling rubbish with high temperatures Just done a covid test and it’s positive The temperature is bad at 39 .3 would you advise taking paracetamol 4 hourly ? many thanks
Liver007123
in
British Liver Trust
1 year ago
Third run after Covid: run cut short but that’s ok
I did my third run this morning, after getting back on the wagon after a break due to Covid. My hubby still seems to test positive, I negative since a week now, but I can tell my little workouts (runs and rows) do take it out of me. The little 20 minute hill runs and 15 minutes rows all feel great
I did my third run this morning, after getting back on the wagon after a break due to Covid. My hubby still seems to test positive, I negative since a week now, but I can tell my little workouts (runs and rows) do take it out of me. The little 20 minute hill runs and 15 minutes rows all feel great
CBDB
Graduate10
in
Bridge to 10K
1 year ago
I hate Covid!
So here I am AGAIN with Covid. The last bout was in October last year, so I've had a few clear months this time. When I've had it before, I know that it depletes my B12 and makes me feel awful, and each and every time, I know that I need extra jabs. So, when I came down with it 10 days ago, why didn't
So here I am AGAIN with Covid. The last bout was in October last year, so I've had a few clear months this time. When I've had it before, I know that it depletes my B12 and makes me feel awful, and each and every time, I know that I need extra jabs. So, when I came down with it 10 days ago, why didn't
topazrat
in
Pernicious Anaemia Society
1 year ago
Covid
I tested positive for covid yesterday. It's not in my chest yet but I have all the other symptoms. I feel pretty rotten. I have NASH cirrhosis, diabetes, high BP high cholesterol, GERD. I take medications for all except cirrhosis. My hepatologist says it's ok to take that drug that's for covid. I
I tested positive for covid yesterday. It's not in my chest yet but I have all the other symptoms. I feel pretty rotten. I have NASH cirrhosis, diabetes, high BP high cholesterol, GERD. I take medications for all except cirrhosis. My hepatologist says it's ok to take that drug that's for covid. I
skay1957
in
British Liver Trust
1 year ago
Covid vac
Had Covid twice , all I suffered from was a light sniffle- to -no symptoms. Had two jabs of Astra zenica sick as a dog ! Refused both third vax and booster. I only got jab because of work.
Had Covid twice , all I suffered from was a light sniffle- to -no symptoms. Had two jabs of Astra zenica sick as a dog ! Refused both third vax and booster. I only got jab because of work.
Khami
in
Thyroid UK
1 year ago
fatigue article
not sure this link will work as this comes via my Apple News, if not this article was written in The Atlantic. It’s about Long Covid and other fatigue disorders and a good chunk of it is a great crossover to what we experience in PBC. I recall when we first started hearing about Long Covid telling
not sure this link will work as this comes via my Apple News, if not this article was written in The Atlantic. It’s about Long Covid and other fatigue disorders and a good chunk of it is a great crossover to what we experience in PBC. I recall when we first started hearing about Long Covid telling
CeeCee101
in
PBC Foundation
1 year ago
How often and duration of the Tass gloves?
Just completed the build. Wife used first time for 2 hrs with improved gait was able to walk in house without walker. Used walking sticks just due to fear of falling. Hand printing improved. However today after 2 hrs she said she felt very jittery, kind of like a residual feeling of vibratio So she
Just completed the build. Wife used first time for 2 hrs with improved gait was able to walk in house without walker. Used walking sticks just due to fear of falling. Hand printing improved. However today after 2 hrs she said she felt very jittery, kind of like a residual feeling of vibratio So she
Furch
in
Cure Parkinson's
10 months ago
anyone live in (or know well) France?
morning all I’m going on holiday to France soon and fretting about Covid. Specifically whether you can access a sotrovimab (monoclonal antibodies) infusion. I am reasonably confident that the paxlovid pills are available but really wouldn’t want them if i succumbed to Covid whilst away due to having
morning all I’m going on holiday to France soon and fretting about Covid. Specifically whether you can access a sotrovimab (monoclonal antibodies) infusion. I am reasonably confident that the paxlovid pills are available but really wouldn’t want them if i succumbed to Covid whilst away due to having
Bon1
in
NRAS
1 year ago
Liver detox after chemo?
I am starting Taxotere next week and received some advice from a friend fighting serious colon cancer. He told me how he detoxed his liver after each cycle. He used TUDCA Bile salts and PectaSol from ECONugenics Company. https://econugenics.com/collections/pectasol?Wickedsource=Microsoft&Wickedid
I am starting Taxotere next week and received some advice from a friend fighting serious colon cancer. He told me how he detoxed his liver after each cycle. He used TUDCA Bile salts and PectaSol from ECONugenics Company. https://econugenics.com/collections/pectasol?Wickedsource=Microsoft&Wickedid
V10fanatic
in
Advanced Prostate Cancer
10 months ago
First run after Covid (the 3rd time): a deliciously drizzly, cloudy run
Mightily proud that I managed to adhere to my plan and get out there today, for a first little run after recovering from Covid. I ran for 21 minutes, including 4 min warmup walk and 2 min cool down walk. I chose NRC 15 min Head Starts, which was perfectly timed. I took the nearest route from my
Mightily proud that I managed to adhere to my plan and get out there today, for a first little run after recovering from Covid. I ran for 21 minutes, including 4 min warmup walk and 2 min cool down walk. I chose NRC 15 min Head Starts, which was perfectly timed. I took the nearest route from my
CBDB
Graduate10
in
Bridge to 10K
1 year ago
Risks for in person working apart from COVID
Hi, this might be a slightly odd one. Both I and my partner work mostly work from home. However for my partner this is very formal and she has to get a special working arrangement agreed to get allow more than the normal number of days each week working from home. She needs to renew this arrangement
Hi, this might be a slightly odd one. Both I and my partner work mostly work from home. However for my partner this is very formal and she has to get a special working arrangement agreed to get allow more than the normal number of days each week working from home. She needs to renew this arrangement
AchyCorazon
in
British Heart Foundation
1 year ago
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