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Busy, busy, busy!
Hello,, everyone! Just thought I'd pop in and say 'Hello!' as i've been really busy lately and not getting much chance to look in at the Forum. I sometimes get chance to read but not much time to respond - only to very few! I had COVID again a few weeks ago which has left me with an aversion to certain
Hello,, everyone! Just thought I'd pop in and say 'Hello!' as i've been really busy lately and not getting much chance to look in at the Forum. I sometimes get chance to read but not much time to respond - only to very few! I had COVID again a few weeks ago which has left me with an aversion to certain
MoyB
in
Lung Conditions Community Forum
6 months ago
Pneumonia vaccination
Hi all. I have recently returned to Spain for the foreseeable future and managed to get my covid vaccination shortly after my arrival a few weeks ago. I had my flu vaccination in the UK just before we came out. I have to say that I have responded well to both vaccinations with no adverse side effects
Hi all. I have recently returned to Spain for the foreseeable future and managed to get my covid vaccination shortly after my arrival a few weeks ago. I had my flu vaccination in the UK just before we came out. I have to say that I have responded well to both vaccinations with no adverse side effects
Elispeth
in
PMRGCAuk
6 months ago
Rituximab
does anyone have any advice about the effect of the COVID vaccine on Rituximab. I had my first infusion in July which has been successful for me and given me a pain free life. So don’t want to ‘mess it up by risking Covid vaccine if it has a negative effect. thanks
does anyone have any advice about the effect of the COVID vaccine on Rituximab. I had my first infusion in July which has been successful for me and given me a pain free life. So don’t want to ‘mess it up by risking Covid vaccine if it has a negative effect. thanks
Welshwomanprestatyn
in
NRAS
6 months ago
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unintended weight loss
hello, I have tapered from 30mg to 2mg over 26 months where I am stuck because my cortisol levels are stubbornly low ( 58 -80) I have now got a very itchy raised skin problem which my doctor cannot diagnose.I also had Covid in October. So, my question in has anyone had weight loss , 5 pounds since
hello, I have tapered from 30mg to 2mg over 26 months where I am stuck because my cortisol levels are stubbornly low ( 58 -80) I have now got a very itchy raised skin problem which my doctor cannot diagnose.I also had Covid in October. So, my question in has anyone had weight loss , 5 pounds since
Crochetgardener
in
PMRGCAuk
6 months ago
Flu and Covid vaccine
I was diagnosed with lupus in March this year. I dont know if I should take the flu and covid vaccine. I am scared it will make my lupus worse. Has anyone here take the vaccine?
I was diagnosed with lupus in March this year. I dont know if I should take the flu and covid vaccine. I am scared it will make my lupus worse. Has anyone here take the vaccine?
kali9
in
LUPUS UK
6 months ago
Advice re covid jab
I had Covid in early September. Not sure when to go for booster. I think I should wait for a few months. Any thoughts ?
I had Covid in early September. Not sure when to go for booster. I think I should wait for a few months. Any thoughts ?
Ana-16
in
PMRGCAuk
6 months ago
Covid vaccine during tapering down PMR?
Thanks so much for the valuable responses, which I am studying ongoing,to my previous posts. I was dubious about the Covid vaccine possibly bringing back my PMR symptoms. Having read the posts here I am largely reassured, but I would like to check for my own circumstances. I have never had a problem
Thanks so much for the valuable responses, which I am studying ongoing,to my previous posts. I was dubious about the Covid vaccine possibly bringing back my PMR symptoms. Having read the posts here I am largely reassured, but I would like to check for my own circumstances. I have never had a problem
kangaroojohn
in
PMRGCAuk
6 months ago
Rising PSA last Lutetium 177 December 2022
My husband finished his 6th treatment of Lutetium 177, December 2022 PSA 1, PSA starting to rise May 4.6 September 8.4, the Oncologist can only offer Chemo, can refer him for R223 to another hospital, what are his choices now, chemo nearly killed him in 2010 Got COVID at Easter had 7 vaccinations,
My husband finished his 6th treatment of Lutetium 177, December 2022 PSA 1, PSA starting to rise May 4.6 September 8.4, the Oncologist can only offer Chemo, can refer him for R223 to another hospital, what are his choices now, chemo nearly killed him in 2010 Got COVID at Easter had 7 vaccinations,
Janhpr
in
Advanced Prostate Cancer
6 months ago
Should I suspend my methotrexate and hydroxychloroquine until my covid is over?
I have RA and take methotrexate and hydroxychloroquine. Today I tested positive for Covid. Should I stop taking them until I'm better?
I have RA and take methotrexate and hydroxychloroquine. Today I tested positive for Covid. Should I stop taking them until I'm better?
Hellerup
in
NRAS
6 months ago
Lunch chat about vaccines
I've just been out to lunch with a u3a group, all getting on in years and many with various medical complaints. Some at my end of the table were saying that they are [i]not[/i] having any more Covid jabs as 'they had had enough' now and had declined the appointments that they had been offered. I tried
I've just been out to lunch with a u3a group, all getting on in years and many with various medical complaints. Some at my end of the table were saying that they are [i]not[/i] having any more Covid jabs as 'they had had enough' now and had declined the appointments that they had been offered. I tried
oldtimer2
in
NRAS
6 months ago
tips on covid and newborn
so i found out i have Covid day after my son was born. I v been so scared to pass it on to him, iv been sleeping in a different room and cleaning up and washing real well before breastfeeding. With all the postpartum pain Covid symptoms and lack of sleep is making everything harder. Anyone been in a
so i found out i have Covid day after my son was born. I v been so scared to pass it on to him, iv been sleeping in a different room and cleaning up and washing real well before breastfeeding. With all the postpartum pain Covid symptoms and lack of sleep is making everything harder. Anyone been in a
Chantysal
in
Pregnancy and Parenting Support
6 months ago
Preventing COVID-19 & Other Respiratory Infections in Those with CLL / SLL During Peak Winter Months Tuesday, December 5, 2023 12:30 PM ET
Preventing COVID-19 and Other Respiratory Infections in Those with CLL / SLL During Peak Winter Months Tuesday, December 5, 2023 12:30 PM ET – 2 PM ET / 9:30 AM PT – 11 AM PT / 10:30 AM MT – 12 PM MT / 11:30 AM CT – 1 PM CT https://cllsociety.org/preventing-covid-19-and-other-respiratory-infections-in-those-with-cll-sll-during-peak-winter-months
Preventing COVID-19 and Other Respiratory Infections in Those with CLL / SLL During Peak Winter Months Tuesday, December 5, 2023 12:30 PM ET – 2 PM ET / 9:30 AM PT – 11 AM PT / 10:30 AM MT – 12 PM MT / 11:30 AM CT – 1 PM CT https://cllsociety.org/preventing-covid-19-and-other-respiratory-infections-in-those-with-cll-sll-during-peak-winter-months
lankisterguy
Volunteer
in
CLL Support
7 months ago
Covid and platelets
I’ve been on treatment for triple negative ET for almost three years now., taking Hydroxycarbomide (2 one day snd 3 the next) plus aspirin. Over the last year my platelets have come down to 540. However, since my last test three months ago, I have had Covid and a Covid vaccine. My blood test result
I’ve been on treatment for triple negative ET for almost three years now., taking Hydroxycarbomide (2 one day snd 3 the next) plus aspirin. Over the last year my platelets have come down to 540. However, since my last test three months ago, I have had Covid and a Covid vaccine. My blood test result
EdwinaJ
in
MPN Voice
7 months ago
New to PMR
Hi everyone -- I am new here and have had PMR for about five months now. I can't help wondering if the last Covid vaccine I received may have possibly triggered it, since my symptoms started less than a month after that. (I had already had five previous Covid vaccines.) I was also going through a period
Hi everyone -- I am new here and have had PMR for about five months now. I can't help wondering if the last Covid vaccine I received may have possibly triggered it, since my symptoms started less than a month after that. (I had already had five previous Covid vaccines.) I was also going through a period
Charlotteab
in
PMRGCAuk
7 months ago
managing anxiety
I’ve tested COVID positive. Feeling pretty crap but not as badly as the first couple times. Strangely no one else in the house has caught it. Just me. Initially I was feeling quite panicky about it but I’m managing pretty well. I just hope being quarantined won’t make me slip back into a place of comfort
I’ve tested COVID positive. Feeling pretty crap but not as badly as the first couple times. Strangely no one else in the house has caught it. Just me. Initially I was feeling quite panicky about it but I’m managing pretty well. I just hope being quarantined won’t make me slip back into a place of comfort
MindfulMoment
in
Anxiety and Depression Support
7 months ago
Covid advice
Has anybody got any advice on how to deal with Covid when on combination therapy? I've just gone down with it for the first time and I'm wondering if I should just continue as normal. Have a pretty high fever and heart rate...wd the T3 exacerbate this?
Has anybody got any advice on how to deal with Covid when on combination therapy? I've just gone down with it for the first time and I'm wondering if I should just continue as normal. Have a pretty high fever and heart rate...wd the T3 exacerbate this?
SilverSavvy
in
Thyroid UK
7 months ago
Covid 19 booster and pneumonia vaccine
Hi has any one had any flares after these vaccines. GP Practice slow so will have to chase. Had the flu one OK had to go to pharmacy as Gp had stopped doing them. Bit concerned about Covid one and RA flares.
Hi has any one had any flares after these vaccines. GP Practice slow so will have to chase. Had the flu one OK had to go to pharmacy as Gp had stopped doing them. Bit concerned about Covid one and RA flares.
welsh12
in
NRAS
7 months ago
covid booster causing PMR flare?
I’d welcome any thoughts/advice please. Had covid booster, 4th, last Friday. Modena same as last year but under its new name, Spikway. Sore arm, very, very tired…done virtually nothing for last two and a half days. Yesterday and today all PMR pains very sore. Bilateral hips, shoulders, neck and biceps
I’d welcome any thoughts/advice please. Had covid booster, 4th, last Friday. Modena same as last year but under its new name, Spikway. Sore arm, very, very tired…done virtually nothing for last two and a half days. Yesterday and today all PMR pains very sore. Bilateral hips, shoulders, neck and biceps
Hulotsholiday
in
PMRGCAuk
7 months ago
tinnitus after covid
Hi, Has anyone suffered tinnitus for a long time after covid or did it eventually go? If so, how long before it cleared up? Thanks
Hi, Has anyone suffered tinnitus for a long time after covid or did it eventually go? If so, how long before it cleared up? Thanks
Rabb5
in
Tinnitus UK
7 months ago
Isn’t this so true?
In today’s newspaper…….Not getting better During the pandemic, virtually every GP surgery in the land closed its doors as people were told to stay away from the NHS. The reason was purportedly to stop the hospitals overflowing but it effectively put the entire system out of reach for those who did not
In today’s newspaper…….Not getting better During the pandemic, virtually every GP surgery in the land closed its doors as people were told to stay away from the NHS. The reason was purportedly to stop the hospitals overflowing but it effectively put the entire system out of reach for those who did not
AgedCrone
in
NRAS
7 months ago
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