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Update- I no longer take Dipyridamole
I have been meaning to update the group on this. I have stopped taking Dipyridamole for over a month now, closer to two months. I took Dipyridamole for two years. I was nearing the end of my Dipyridamole supply. I was wondering how much it was helping. So I stopped abruptly. Since then I have
I have been meaning to update the group on this. I have stopped taking Dipyridamole for over a month now, closer to two months. I took Dipyridamole for two years. I was nearing the end of my Dipyridamole supply. I was wondering how much it was helping. So I stopped abruptly. Since then I have
WideBody
in
Restless Legs Syndrome
10 months ago
Your best adjunct therapy pick
If you could only continue with just one alternative PD therapy, what would it be? (My rather gauche attempt to pick your brains and not re-invent the wheel.) For me, it's MCT oil. What about you?
If you could only continue with just one alternative PD therapy, what would it be? (My rather gauche attempt to pick your brains and not re-invent the wheel.) For me, it's MCT oil. What about you?
Dabaa
in
Cure Parkinson's
1 month ago
The Sun and I
10 years ago I was on my porch in the sun one spring and was sick to my stomach and thought " Oh that is just the sun" Then I concluded that the sun should not make one sick. I then went over my life and concluded that when I was the happiest was when I had enough sun and the worse when I did not. (At
10 years ago I was on my porch in the sun one spring and was sick to my stomach and thought " Oh that is just the sun" Then I concluded that the sun should not make one sick. I then went over my life and concluded that when I was the happiest was when I had enough sun and the worse when I did not. (At
WIZARD6787
in
Pernicious Anaemia Society
10 months ago
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Anyone have hypercalcemia?
Hi, All! I've been doing pretty well since my diagnosis and b12 injections for 5 months or so. I still had some lingering symptoms that I felt were not related to pernicious anemia. Anyway, the other day I ended up in the ER with kidney stones and hyponephrosis (urine backing up into kidney, swollen
Hi, All! I've been doing pretty well since my diagnosis and b12 injections for 5 months or so. I still had some lingering symptoms that I felt were not related to pernicious anemia. Anyway, the other day I ended up in the ER with kidney stones and hyponephrosis (urine backing up into kidney, swollen
Iheartb12
in
Pernicious Anaemia Society
10 months ago
enlarged heart
Hi I’ve had AF for a number of years now but it seems to be controlled by bisoprolol apart from my Apple Watch telling me I’m in AF which I wouldn’t have realised. Anyway blood tests have shown I’m very low in B12 and vit d and anaemic and I’ve been feeling dizzy, tired and my ankles and feet swelling
Hi I’ve had AF for a number of years now but it seems to be controlled by bisoprolol apart from my Apple Watch telling me I’m in AF which I wouldn’t have realised. Anyway blood tests have shown I’m very low in B12 and vit d and anaemic and I’ve been feeling dizzy, tired and my ankles and feet swelling
Deezy24
in
AF Association
10 months ago
Starting Levothyroxine tomorrow - tips?
Hi all, Finally managed to get a trial of 50mcg of Levothyroxine. Do you guys have any tips? The box just says to it before breakfast, and to avoid caffeinated fluids for 30 minutes after taking it. The thing is, I also take 50mg of sertraline. When should I take that? I also take vitamin D, b12
Hi all, Finally managed to get a trial of 50mcg of Levothyroxine. Do you guys have any tips? The box just says to it before breakfast, and to avoid caffeinated fluids for 30 minutes after taking it. The thing is, I also take 50mg of sertraline. When should I take that? I also take vitamin D, b12
Griffo_
in
Thyroid UK
10 months ago
help please new results in
Please help New results in Extreme water retention On thyroxine 125mcg taking 112mcg and t3 30 and 35 4 days 24 hours after t4 and 12 exactly for t3 TSH less 0.01 T4 19.2 (12 to 22) T3 5 (4.1 to 6.8) B12 1279 ( told to stop b12 ) Folate <20 Ferritin 60 Vitamin D was 90 last time
Please help New results in Extreme water retention On thyroxine 125mcg taking 112mcg and t3 30 and 35 4 days 24 hours after t4 and 12 exactly for t3 TSH less 0.01 T4 19.2 (12 to 22) T3 5 (4.1 to 6.8) B12 1279 ( told to stop b12 ) Folate <20 Ferritin 60 Vitamin D was 90 last time
Chouchou1234
in
Thyroid UK
10 months ago
latest test results- how to get GP to run full screen thyroid?
Been on thyroxine many years - was under medicated, finally up to 50mcg 5 months ago! Bloods requested- results above! Take as prescribed early morning etc Bloods done 24hours after last dose. How do i get more than TSH measured by GP? I requested increase & after many attempts got it with promise
Been on thyroxine many years - was under medicated, finally up to 50mcg 5 months ago! Bloods requested- results above! Take as prescribed early morning etc Bloods done 24hours after last dose. How do i get more than TSH measured by GP? I requested increase & after many attempts got it with promise
Robinface
in
Thyroid UK
10 months ago
Please help with advice on Levo dose and vitamin levels.
Hello.I was started on Levo at 75mg about 10 days ago. My doctor wants to do a blood test after 8 weeks. Last time I was given a 2 month trial and because my TSH came down ( they don't care about antibodies so those weren't checked ! ) they took me off the Levo. Now I've gone to a different, much more
Hello.I was started on Levo at 75mg about 10 days ago. My doctor wants to do a blood test after 8 weeks. Last time I was given a 2 month trial and because my TSH came down ( they don't care about antibodies so those weren't checked ! ) they took me off the Levo. Now I've gone to a different, much more
ChickieBaker
in
Thyroid UK
10 months ago
Talzenna approved by FDA
FDA Approves Talzenna for Metastatic, Castration-Resistant Prostate Cancer Significant radiographic progression-free survival seen for homologous recombination repair gene mutation, including with BRCA mutation HealthDay MONDAY, June 26, 2023 (HealthDay News) -- The U.S. Food and Drug Administration
FDA Approves Talzenna for Metastatic, Castration-Resistant Prostate Cancer Significant radiographic progression-free survival seen for homologous recombination repair gene mutation, including with BRCA mutation HealthDay MONDAY, June 26, 2023 (HealthDay News) -- The U.S. Food and Drug Administration
Magnus1964
in
Prostate Cancer Network
1 year ago
Safe to take Gabapentin for life?
I haven’t been able to find any reliable info on whether Gabapentin is safe to take for life (30+ years), specifically for severe PLMD with pain. My husband has this and has not started it yet, as his neurology visit isn’t until later this week. His case seems to be different than any we have read about
I haven’t been able to find any reliable info on whether Gabapentin is safe to take for life (30+ years), specifically for severe PLMD with pain. My husband has this and has not started it yet, as his neurology visit isn’t until later this week. His case seems to be different than any we have read about
Nightbird11
in
Restless Legs Syndrome
10 months ago
preservatives in B12
I have been reacting to subcutaneous SI and looking at what is in Panpharma B12 there is acetic acid sodium chloride sodium acetate. This is hydro. I have bought a lot of these and worry first if I can’t use them and secondly if all have this in them. Any advice please?
I have been reacting to subcutaneous SI and looking at what is in Panpharma B12 there is acetic acid sodium chloride sodium acetate. This is hydro. I have bought a lot of these and worry first if I can’t use them and secondly if all have this in them. Any advice please?
smg1950
in
Pernicious Anaemia Society
1 year ago
Cortisol and stomach acid influencing calcium absorption
I've been wondering about the main reasons of my severe osteoporosis, and have recently come accross two possible contributions: 1) High levels of cortisol due to long term psychological stress, and 2) Low levels of stomach acid that has impaired the calcium absorption. I took the test with natron
I've been wondering about the main reasons of my severe osteoporosis, and have recently come accross two possible contributions: 1) High levels of cortisol due to long term psychological stress, and 2) Low levels of stomach acid that has impaired the calcium absorption. I took the test with natron
Indian_Summer
in
Osteoporosis Support
10 months ago
Help with results please and any advice what to do
Hi, Can anyone advise me on these results please - what they mean/what to do next. I have included some history, but I am not feeling well at the moment so apologise if it is all over the place and a bit patchy. I have just rejoined the forum so have had lots of useful information about testing and
Hi, Can anyone advise me on these results please - what they mean/what to do next. I have included some history, but I am not feeling well at the moment so apologise if it is all over the place and a bit patchy. I have just rejoined the forum so have had lots of useful information about testing and
JoJoloveschocolate
in
Thyroid UK
10 months ago
Elevated Creatine Kinase (CK) on blood tests
Hi All, Wondering if anyone can help please. Over the last few months I have been experiencing increased muscle pain, especially in my legs. Stiffness and pain in my hips which then radiates in my thigh muscles. I have reduced mobility in my left hip. I am due to see orthopaedic end of aug, but in
Hi All, Wondering if anyone can help please. Over the last few months I have been experiencing increased muscle pain, especially in my legs. Stiffness and pain in my hips which then radiates in my thigh muscles. I have reduced mobility in my left hip. I am due to see orthopaedic end of aug, but in
BeeVel
in
Thyroid UK
10 months ago
Blood Results Help
Hi Everyone i posted a while back and my results from thriva showed low transferrin saturation. since then i have tried ferrochel then i have swapped to simply Heme iron to my supplements. i initially took 2 per day and gradually increased it but i didnt feel right on them so took them back to 2 a
Hi Everyone i posted a while back and my results from thriva showed low transferrin saturation. since then i have tried ferrochel then i have swapped to simply Heme iron to my supplements. i initially took 2 per day and gradually increased it but i didnt feel right on them so took them back to 2 a
Holeintheriver1
in
Thyroid UK
10 months ago
Are my vitamins at optimal levels ??
Hello. My last medichecks results for vitamins are Folate - 40.7 ( range is 8.83-60.8 ) B12 active - >150 ( range is 37.5-188 ) Vitamin D - 139 ( range is 50-250 ) Ferritin - 272 ( range is 30-150 ) I'm wondering what I should be aiming for as I keep reading that the thyroid medication don't be
Hello. My last medichecks results for vitamins are Folate - 40.7 ( range is 8.83-60.8 ) B12 active - >150 ( range is 37.5-188 ) Vitamin D - 139 ( range is 50-250 ) Ferritin - 272 ( range is 30-150 ) I'm wondering what I should be aiming for as I keep reading that the thyroid medication don't be
ChickieBaker
in
Thyroid UK
10 months ago
Urgent help needed. Extremely severe RLS, cannot identify cause.
It's so goddamn severe that at this point, I either have the most severe case of RLS in medical history or it's something else. I rate it 9 on the severity scale. Did every possible test related to RLS (iron, vitamin D, etc) except for for transferrin saturation and serum iron because it wasn't available
It's so goddamn severe that at this point, I either have the most severe case of RLS in medical history or it's something else. I rate it 9 on the severity scale. Did every possible test related to RLS (iron, vitamin D, etc) except for for transferrin saturation and serum iron because it wasn't available
RestlessDaily
in
Restless Legs Syndrome
10 months ago
potassium / lo salt / rampiril
also whilst NHS says avoid low sodium salt if on rampiril - as too much potassium but all other food ok - I have seen other sources saying avoid bananas and things - any info on that at all - thanks
also whilst NHS says avoid low sodium salt if on rampiril - as too much potassium but all other food ok - I have seen other sources saying avoid bananas and things - any info on that at all - thanks
Lowe1066
in
High Blood Pressure Support
1 year ago
Vit D spot test results via NHS Birmingham postal
I’ve been away but finally had my vitamin d tested ( thanks for info SlowDragon), a quick and efficient test I did at home. My overall D is lower than formerly, even though I have had sun and have been supplementing with oral spray Better Life + K2 X 2 sprays daily. I looked at the one recommended
I’ve been away but finally had my vitamin d tested ( thanks for info SlowDragon), a quick and efficient test I did at home. My overall D is lower than formerly, even though I have had sun and have been supplementing with oral spray Better Life + K2 X 2 sprays daily. I looked at the one recommended
Calceolaria
in
Thyroid UK
10 months ago
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