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Immunosuppressants
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August's Blog - Anna's experience of travelling with lupus
As the Summer starts to come to a close, we've got the second blog post for the topic - holidays and travelling. This month's blog has been written by Anna about her charity work in Ghana. Thank you Anna for taking the time to write this for us.
I was diagnosed with lupus in 2004 and after six
As the Summer starts to come to a close, we've got the second blog post for the topic - holidays and travelling. This month's blog has been written by Anna about her charity work in Ghana. Thank you Anna for taking the time to write this for us.
I was diagnosed with lupus in 2004 and after six
Paul_Howard
LUPUS UK
in
LUPUS UK
10 years ago
MMR vaccine
Grandaughter had MMR live vaccine I am immunosuppressed do I need to stay awAy from her and if so how long?
Grandaughter had MMR live vaccine I am immunosuppressed do I need to stay awAy from her and if so how long?
Hidden
in
Vasculitis UK
10 years ago
Work, side effects & fatigue
Hey everyone - happy Friday :) I just wanted to share that I have the best employers in the world - I've kept them informed and called a meeting with them last week about my diagnosis and immunosuppressant etc. They were so awesome - ordered me a fleece for the office, suggested those expensive gloves
Hey everyone - happy Friday :) I just wanted to share that I have the best employers in the world - I've kept them informed and called a meeting with them last week about my diagnosis and immunosuppressant etc. They were so awesome - ordered me a fleece for the office, suggested those expensive gloves
Hidden
in
Scleroderma & Raynaud's UK (SRUK)
10 years ago
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Low red blood cell counts
In some cases it is the medication that is prescribed such as the
immunosuppressants
which can cause a fall in the red blood cell count. In my case my mean blood cell count averages about 82% of normal while all other parts of the blood are satisfactorily well within their normal range.
In some cases it is the medication that is prescribed such as the
immunosuppressants
which can cause a fall in the red blood cell count. In my case my mean blood cell count averages about 82% of normal while all other parts of the blood are satisfactorily well within their normal range.
Albasain
in
Vasculitis UK
10 years ago
PBC/AIH overlap, anyone else with this diagnosis and on Steroids plus immunosuppressants, I would be interested to hear from you
I am about to start my
immunosuppressants
next month and am a bit concerned about what to expect the specialist has explained the pros and cons but I would be interested to hear from anyone experiencing this medication whilst I realise that we are all different and react thus it would be helpful to hear
I am about to start my
immunosuppressants
next month and am a bit concerned about what to expect the specialist has explained the pros and cons but I would be interested to hear from anyone experiencing this medication whilst I realise that we are all different and react thus it would be helpful to hear
MrsworryGuts
in
PBC Foundation
10 years ago
Membraneous nephropathy
My dad has membraneous nephropathy. I was jus wondering if there is anyone that can tell me how this disease progresses and if anyone went into remission with out taking an immunosuppressant or any other drug for it. My dad couldn't tolerate any of the medicine besides blood pressure diuretic and cholesterol
My dad has membraneous nephropathy. I was jus wondering if there is anyone that can tell me how this disease progresses and if anyone went into remission with out taking an immunosuppressant or any other drug for it. My dad couldn't tolerate any of the medicine besides blood pressure diuretic and cholesterol
Jnlnah
in
Early CKD Support
10 years ago
Liver biopsy results
I know that this small histology info, is not really enough to go by, but does this mean, no
immunosuppressants
for me now ???
I know that this small histology info, is not really enough to go by, but does this mean, no
immunosuppressants
for me now ???
Hidden
in
LUpus Patients Understanding and Support
10 years ago
Happy Holidays! Holidaying abroad?...... or not....(as the case may be)........please consider your Hepatitis A and Hepatitis B vaccinations
Hi there! With the thought of overseas Summer holidays, please bear in mind your immunisations. (You may need full courses, or possibly some booster doses). Anyone with a compromised liver function must make sure that they are vaccinated against the relevant diseases where appropriate, and even if you
Hi there! With the thought of overseas Summer holidays, please bear in mind your immunisations. (You may need full courses, or possibly some booster doses). Anyone with a compromised liver function must make sure that they are vaccinated against the relevant diseases where appropriate, and even if you
L4LSarah
in
Liver4Life
10 years ago
[Blog] Sweet's syndrome triggered by azathioprine.
LJBentley27 developed Sweet's syndrome as a result of taking the immunosuppressant drug azathioprine for ulcerative colitis. Read her blog 'My IBD Story: I Almost Died This Year' @ http://lisatalksabout.com/2014/05/19/my-ibd-story-i-almost-died-this-year/
LJBentley27 developed Sweet's syndrome as a result of taking the immunosuppressant drug azathioprine for ulcerative colitis. Read her blog 'My IBD Story: I Almost Died This Year' @ http://lisatalksabout.com/2014/05/19/my-ibd-story-i-almost-died-this-year/
Shell567
Sweet's Syndrome UK
in
Sweet's Syndrome UK
10 years ago
latest results, do they look ''fine' to those of you with more knowledge/experience?
signed me off, says I can see the doctor from now on for 3 monthly reviews, says I am not hypothyroid, my levels are "fine"but keeping me on 25mg of levothyroxine a day because of the TED, she cannot explain the lethargy/exhaustion but says it's nothing to do with my thyroid, and thinks maybe its the
immunosuppressants
signed me off, says I can see the doctor from now on for 3 monthly reviews, says I am not hypothyroid, my levels are "fine"but keeping me on 25mg of levothyroxine a day because of the TED, she cannot explain the lethargy/exhaustion but says it's nothing to do with my thyroid, and thinks maybe its the
immunosuppressants
catalonia
in
Thyroid UK
10 years ago
I have SLE, diagnosed in April 2000. I have no-one looking after me for my Lupus. What blood tests should I be having if any, and how often?
I have a kidney transplant, this is due to Lupus 'killing off' my kidneys, eye troubles - light sensitivity and multiple episodes over many years of scleritis, rarely iritis too. I have highly sensitive, itchy skin, and quite fatigued mostly, often feel completely rubbish, systemically just not right
I have a kidney transplant, this is due to Lupus 'killing off' my kidneys, eye troubles - light sensitivity and multiple episodes over many years of scleritis, rarely iritis too. I have highly sensitive, itchy skin, and quite fatigued mostly, often feel completely rubbish, systemically just not right
MandaM
in
LUPUS UK
10 years ago
Gas exchange low end of normal on lung function test
I guess being on
immunosuppressants
it will take a while to get over. I asked the technician if that would affect the results and he said no the machine was top of the range. Surely no matter how good the machine is if you arent fully functioning as normal it will affect the results.
I guess being on
immunosuppressants
it will take a while to get over. I asked the technician if that would affect the results and he said no the machine was top of the range. Surely no matter how good the machine is if you arent fully functioning as normal it will affect the results.
lollipop
in
Scleroderma & Raynaud's UK (SRUK)
10 years ago
Has anyone out there with PBC/AIH had to have a blood test done for TB I am waiting results for mine before I can start immunosuppressants?
MrsworryGuts
in
PBC Foundation
10 years ago
I have been denied IVIG by NHS England . I have been prescribed immunosuppressant medication instead .
I feel bad on them after only three days of taking them. I am dragging myself about feeling lethargic. Dizzy: low mood: and tearful. I wonder if anybody else has had experience of a similar drug to suppress the immune system ? Thanks in advance.
I feel bad on them after only three days of taking them. I am dragging myself about feeling lethargic. Dizzy: low mood: and tearful. I wonder if anybody else has had experience of a similar drug to suppress the immune system ? Thanks in advance.
Hidden
in
Scleroderma & Raynaud's UK (SRUK)
10 years ago
2 weeks ago I stopped taking Methotrexate 25mg by s/c injection ( it was wearing off after 5 days ) and have switched to mycophenolate.
Has anyone else changed
immunosuppressants
and how did you manage your symptoms until your new drug started working? I don't have a definitive diagnosis other than auto immune inflamatory.
Has anyone else changed
immunosuppressants
and how did you manage your symptoms until your new drug started working? I don't have a definitive diagnosis other than auto immune inflamatory.
Hidden
in
Vasculitis UK
10 years ago
Has anyone used DermaSilk theraputic socks and clothing for itching and skin abrasions?
Like many others who suffer from liver disease I suffer from itching and needless to say I am aware of and have tried many of the anti itch topical creams and gels with some being more effective than others . However being a fairly active individual I also suffer from frequent scratches,bruises and
Like many others who suffer from liver disease I suffer from itching and needless to say I am aware of and have tried many of the anti itch topical creams and gels with some being more effective than others . However being a fairly active individual I also suffer from frequent scratches,bruises and
findasolution
in
British Liver Trust
10 years ago
TED - dental work, awful dentist, now terrified
Hi everyone, I'm currently on
immunosuppressants
for the TED, had a tooth infection 10 days ago, walk-in clinic gave me 7 days of antibiotics, pain and swelling all now gone, went to see new dentist yesterday (old one retired) and am now feeling absolutely devastated. aside from he said he won't be
Hi everyone, I'm currently on
immunosuppressants
for the TED, had a tooth infection 10 days ago, walk-in clinic gave me 7 days of antibiotics, pain and swelling all now gone, went to see new dentist yesterday (old one retired) and am now feeling absolutely devastated. aside from he said he won't be
catalonia
in
Thyroid UK
10 years ago
Worried after visit to doctor today
My GP weighed me and said I had put on a stone in 3 months. Then he tested my blood via finger prick and found my glucose levels were pre-diabetic. Next, my blood pressure had gone up. He said I had been reducing the steroids much too slowly, which I disagree with as I don't think from 20 mg to 12.5
My GP weighed me and said I had put on a stone in 3 months. Then he tested my blood via finger prick and found my glucose levels were pre-diabetic. Next, my blood pressure had gone up. He said I had been reducing the steroids much too slowly, which I disagree with as I don't think from 20 mg to 12.5
Badgergirl
in
PMRGCAuk
10 years ago
Advice please at my wits end here so low have RA
I have Rheumatoid, Psoriatic and osteo arthritis. I am currently on these medications Sertraline 100mg 1 Bedranolol 160mg, Cyclizine 50mg twice daily, Folic acid 5mg, Tramadol 50mg 8 caps daily, sulfasalazine 500mg 6 tablets daily, Leflunomide 10mg, Lansoprazole 30mg, Methotrexate 15mg, Golimumab 2
I have Rheumatoid, Psoriatic and osteo arthritis. I am currently on these medications Sertraline 100mg 1 Bedranolol 160mg, Cyclizine 50mg twice daily, Folic acid 5mg, Tramadol 50mg 8 caps daily, sulfasalazine 500mg 6 tablets daily, Leflunomide 10mg, Lansoprazole 30mg, Methotrexate 15mg, Golimumab 2
stiffenlady
in
NRAS
10 years ago
Drugs refused funding...
Six years after diagnosis of Takayasu's Arteritis I seem to have gone through all the
immunosuppressants
(aza, mycophenolate, cyclo, MTX) all of which I've either not tolerated or haven't satisfactorily kept it under control.
Six years after diagnosis of Takayasu's Arteritis I seem to have gone through all the
immunosuppressants
(aza, mycophenolate, cyclo, MTX) all of which I've either not tolerated or haven't satisfactorily kept it under control.
JElsom
in
Vasculitis UK
10 years ago
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