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Immunodeficiencies and defective immune system
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Extremely bad acid heartburn
hi, On here about my mum again. She is suffering really bad with acid reflux. She hasn’t had chemo for 4 weeks but they did attempt debulking surgery which didn’t work. So we are not sure if it’s something to do with the blood thinners or she’s worried it is the cancer. has anyone else suffered
hi, On here about my mum again. She is suffering really bad with acid reflux. She hasn’t had chemo for 4 weeks but they did attempt debulking surgery which didn’t work. So we are not sure if it’s something to do with the blood thinners or she’s worried it is the cancer. has anyone else suffered
Holsgram
in
My Ovacome
3 months ago
Could it be B12 deficiency?
I have been guided to this forum from Thyroid Uk and I’m hoping that, with your help, I can make sense of the fatigue and weakness I have been experiencing. In October last year I experienced what I can only describe as a crash. I am normally fit and active and had a lovely summer with many trips camping
I have been guided to this forum from Thyroid Uk and I’m hoping that, with your help, I can make sense of the fatigue and weakness I have been experiencing. In October last year I experienced what I can only describe as a crash. I am normally fit and active and had a lovely summer with many trips camping
SpringerMom
in
Pernicious Anaemia Society
3 months ago
Just diagnosed, need recommendations
Hi all! I just learned this morning that I have BC. Biopsy diagnosis DCIS in situ. Now I must find a breast oncology surgery practice. I live in Central Florida (Orlando) and am hoping I can get some recommendations of where to consider going for treatment. Thank you!
Hi all! I just learned this morning that I have BC. Biopsy diagnosis DCIS in situ. Now I must find a breast oncology surgery practice. I live in Central Florida (Orlando) and am hoping I can get some recommendations of where to consider going for treatment. Thank you!
MidModer
in
SHARE Breast Cancer Support
6 months ago
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If the metastasis is not severe (ie widespread) why not surgery first?
Hi All, I was just wondering why surgery is not more a conventional method in stage 4 metastatic breast cancer? If one has a breast tumor, and only a few areas of metastasis - why isn't surgery to remove the breast tumor, and then radation/targetted treatment on the areas of metastasis? Any insight
Hi All, I was just wondering why surgery is not more a conventional method in stage 4 metastatic breast cancer? If one has a breast tumor, and only a few areas of metastasis - why isn't surgery to remove the breast tumor, and then radation/targetted treatment on the areas of metastasis? Any insight
JustFoundOut51
in
SHARE Metastatic Breast Cancer
6 months ago
Rectal pain
Hi, I had hemmies years ago which I had banded and also injected which seemed to solve the problem but then got an anal fissure and after struggling with it for years finally got surgery. Fast forward to now and I have constant pain in the rectum and am waiting for colonoscopy, my question is, does
Hi, I had hemmies years ago which I had banded and also injected which seemed to solve the problem but then got an anal fissure and after struggling with it for years finally got surgery. Fast forward to now and I have constant pain in the rectum and am waiting for colonoscopy, my question is, does
Boresum
in
Bowel Disease Support
3 months ago
Grumbling oesophagus?
Several days ago I had general anaesthetic for the first time (cardioversion). It was all fine, but I soon noticed a grumbling oesophagus -- first when I put in earplugs on the morning after (noisy neighbour). Then last night, 72hrs later, the noises (in my oesophagus) were audible to me as I sat on
Several days ago I had general anaesthetic for the first time (cardioversion). It was all fine, but I soon noticed a grumbling oesophagus -- first when I put in earplugs on the morning after (noisy neighbour). Then last night, 72hrs later, the noises (in my oesophagus) were audible to me as I sat on
Redactrice
in
Atrial Fibrillation Support
3 months ago
Decision time!
After finding out I had progression to my liver in July and acute side effects to Everolimus after only 6 weeks, I have been advised there is further progression to my liver. So I now face the dilemma of no treatment and at best 6 months, or choice of chemo. My oncologist has given me 3 options, oral
After finding out I had progression to my liver in July and acute side effects to Everolimus after only 6 weeks, I have been advised there is further progression to my liver. So I now face the dilemma of no treatment and at best 6 months, or choice of chemo. My oncologist has given me 3 options, oral
Rafflesbabe
in
SHARE Metastatic Breast Cancer
6 months ago
Small bowel intestinal overgrowth
I have been diagnosed by my gastroenterologist with sibo after a breath test. The treatment prescribed is xifaxan. I’m waiting for approval by insurance. I’m also in treatment for CLL with Zanubrutinib which I began in May last year. I have had stomach issues, sometimes really severe, since beginning
I have been diagnosed by my gastroenterologist with sibo after a breath test. The treatment prescribed is xifaxan. I’m waiting for approval by insurance. I’m also in treatment for CLL with Zanubrutinib which I began in May last year. I have had stomach issues, sometimes really severe, since beginning
Bethsaida
in
CLL Support
3 months ago
Thyroid private blood tests - new company
Hi - A couple weeks ago someone posted a new company offering thyroid tests that have blood drawing clinics in London and is very reasonably priced. I have just had an unfortunate experience with Medichecks as the clinic I chose in London had no appointments for over a month. I am being issued a refund
Hi - A couple weeks ago someone posted a new company offering thyroid tests that have blood drawing clinics in London and is very reasonably priced. I have just had an unfortunate experience with Medichecks as the clinic I chose in London had no appointments for over a month. I am being issued a refund
Libuse
in
Thyroid UK
3 months ago
Suspected B12 deficiency
Hello everyone I found this group via thyroid UK group. It was there that they helpfully made me aware of my low b12 results. Please see results from November attached. I have lots of symptoms which I initially thought was thyroid issues but am now looking into B12 deficiency. I have an appt on
Hello everyone I found this group via thyroid UK group. It was there that they helpfully made me aware of my low b12 results. Please see results from November attached. I have lots of symptoms which I initially thought was thyroid issues but am now looking into B12 deficiency. I have an appt on
RedOne1
in
Pernicious Anaemia Society
3 months ago
Varying side effects or formulations?
I started on exemestane in September. Since then, the side effects keep morphing. The first month it was pretty good. My mouth was really dry, odd. I had some fatigue. (I wasn't taking anything else.) The sore joints I had on anastrazole weren't gone, but much improved. I thought this was going to be
I started on exemestane in September. Since then, the side effects keep morphing. The first month it was pretty good. My mouth was really dry, odd. I had some fatigue. (I wasn't taking anything else.) The sore joints I had on anastrazole weren't gone, but much improved. I thought this was going to be
TammyCross
in
SHARE Metastatic Breast Cancer
6 months ago
I have my colonoscopy this Thursday
hi all I have been request by my gp to go for a colonoscopy after my fit test came back with a score of 129… at the time I didn’t really ask what the score meant because my mind was racing after being told that individual stool sample was positive. My symptoms started at the start of January, going
hi all I have been request by my gp to go for a colonoscopy after my fit test came back with a score of 129… at the time I didn’t really ask what the score meant because my mind was racing after being told that individual stool sample was positive. My symptoms started at the start of January, going
Villaboy76
in
Colon Cancer Connected
3 months ago
Sigmoidoscopy
Hi Had a sigmoidoscopy on Saturday, which I had under sedation, I found it a bit uncomfortable. Diverticulosis found, which I already knew about from a colonoscopy a few years ago. Biopsies taken. Yesterday bowel felt fine, however today I am in quite a bit of lower bowel pain. Just wondering why I
Hi Had a sigmoidoscopy on Saturday, which I had under sedation, I found it a bit uncomfortable. Diverticulosis found, which I already knew about from a colonoscopy a few years ago. Biopsies taken. Yesterday bowel felt fine, however today I am in quite a bit of lower bowel pain. Just wondering why I
heartmatters1
in
IBS Network
3 months ago
Diet?
I now realise that many if not all, who have hypothyroidism, also have gut problems. When I first started trying to inform myself about all this, I got into a stalemate regarding diet - I’d always loved broccoli, cabbage, swede mash, kimchi etc, not to excess but whenever I felt like having them. But
I now realise that many if not all, who have hypothyroidism, also have gut problems. When I first started trying to inform myself about all this, I got into a stalemate regarding diet - I’d always loved broccoli, cabbage, swede mash, kimchi etc, not to excess but whenever I felt like having them. But
Calceolaria
in
Thyroid UK
3 months ago
Vitamin D level of 174 😱
Am I overdoing it with my vitamin D spray!!? 😬😬
Am I overdoing it with my vitamin D spray!!? 😬😬
ThyroidObsessed
in
Thyroid UK
3 months ago
When to test?
Good morning.....I have PA diagnosed in 2016. My younger daughter has Sapho Syndrome (autoimmune) and has also suffered Endometriosis (?autoimmune) for nearly 30 years....She is about to have an endoscopy, also several bi opsies. I keep feeling that a lot of her symptoms could be PA...I have eventually
Good morning.....I have PA diagnosed in 2016. My younger daughter has Sapho Syndrome (autoimmune) and has also suffered Endometriosis (?autoimmune) for nearly 30 years....She is about to have an endoscopy, also several bi opsies. I keep feeling that a lot of her symptoms could be PA...I have eventually
edeuweed
in
Pernicious Anaemia Society
3 months ago
May be deciding between Afinitor and Enhertu. Thoughts?
Hi! I had a mixd scan, so may be moving on from Orserdu. A shame as I feel great. I am on the fence between Afinitor and Enhertu. I am HER2Low. I know Enhertu is supposed to be very effective, but I am concerned about side effects (nausea, fatigue, hair loss etc.) so thought I would try one last
Hi! I had a mixd scan, so may be moving on from Orserdu. A shame as I feel great. I am on the fence between Afinitor and Enhertu. I am HER2Low. I know Enhertu is supposed to be very effective, but I am concerned about side effects (nausea, fatigue, hair loss etc.) so thought I would try one last
Pbsoup
in
SHARE Metastatic Breast Cancer
6 months ago
PSMA RESULTS
I’m five years Post surgery including removal of prostate & lymph nodes. Gleason 8 with Intraductal. Sepsis, DVT/PE after surgery which left me with chronic fatigue, brain fog and bad overactive bladder with incontinence. Four years post stereotactic radiotherapy to the left iliac area following a PSMA
I’m five years Post surgery including removal of prostate & lymph nodes. Gleason 8 with Intraductal. Sepsis, DVT/PE after surgery which left me with chronic fatigue, brain fog and bad overactive bladder with incontinence. Four years post stereotactic radiotherapy to the left iliac area following a PSMA
Bcgkelly
in
Advanced Prostate Cancer
6 months ago
Metastasis Pain
Hello Brothers and Sisters , as I will be having a PSMA-Pet , Pyl coming up at my 2 yr mark soon I was wondering at what size a metastasis starts to cause pain . I had a pain under my my left rib cage at about 7 o'clock off and on for 14 months . I had a X-ray , ct-scan and a MRI all negative . The
Hello Brothers and Sisters , as I will be having a PSMA-Pet , Pyl coming up at my 2 yr mark soon I was wondering at what size a metastasis starts to cause pain . I had a pain under my my left rib cage at about 7 o'clock off and on for 14 months . I had a X-ray , ct-scan and a MRI all negative . The
reconjj
in
Advanced Prostate Cancer
6 months ago
Betaine Hydrochloride and ACV-low stomach acid
Hi there, I have a hiatus hernia, jus a small one by all accounts. Recently I have been having tests for thyroid problems due to finding a Nodulars on my thyroid with 1 dominate one 2.6cm. Also all vits and iron in bloods extremely low. Anyway in the past 2 weeks my GERD has been so so bad, its
Hi there, I have a hiatus hernia, jus a small one by all accounts. Recently I have been having tests for thyroid problems due to finding a Nodulars on my thyroid with 1 dominate one 2.6cm. Also all vits and iron in bloods extremely low. Anyway in the past 2 weeks my GERD has been so so bad, its
madeline05
in
Thyroid UK
3 months ago
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