Wondering if I should get a Partial T... - Thyroid Cancer Su...

Thyroid Cancer Support

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Wondering if I should get a Partial Thyroidectomy?

happycamper143 profile image
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I have a nodule on the left side of my thyroid which grew from 11 x 5 x 7 mm to 14 x 9 x 7 mm over the last 6 months. My endocrinologist and ENT believe it’s cancer. No impact on my lymph nodes. My surgery is in a few days and I’m just nervous I’m removing a part of my body that could be fine.

Any advice would be helpful and much appreciated. Did anyone regret their partial thyroidectomy?

Thank you in advance for any advice you have to offer, I’m not sure what to do :(

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happycamper143
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Didntexpectthis profile image
Didntexpectthis

did the do an fna to check if cancerous? I have had thyroid cancer & tbh when I had my first ultrasound they seemed to know immediately but confirmed via a fna, mine had spread to my lymph nodes. I had a full thyroidectomy so cannot advise on a partial one - has your consultant not explained it all to you or can you have a conversation with your GP about your concerns.

In reality my only option was removal but I explored other options as like you I didn’t wasnt to remove part of me unless absolutely necessary and discussed with my GP.

May be it is the risk the module could be cancerous in the future if it keeps growing.

Good luck

JOY2THEWORLD49 profile image
JOY2THEWORLD49

Hi

Get a biopsy. I did on a shadow on thyroid during a carotid scan.

Any tumour can change.

Yes, have it fully out. Mine tumour was 19mm. Papillary Cancer. Passing the sca around oe surgery found a bit in other lobe. During surgery surgeon took 12 lymphs ....and 2 were affected! On the side of the tumour.

Easier to keeo TSH steady if all out and one AF on here had one side out only to have to return have the other side out.

If Papillary cancer and removed you will be LOW RISK for return.

Post they discussed RAI with me. Radio Active Iodine. No THanx I said. You need to feel that you have to trust the surgeon.

I was also concerned about being in toxic thyroid having the TSH below .5. There is risk of more heart problems and it is not good to do in older patients. I got as low as .7 and felt terrible.

So I told my Surgeon No. It was the Endocrinologist who was trying to dictate. what should done.

I was already anti her because she told my Surgeon that I had to wait 6. mths until I could have a thyroidectomy. The Surgeon and Anaesthetist said a.s.a.p. I was done at 4 months and 2 lymphs infected.

I follow Surgeon and we follow Gary Clayman top US Thyreoid surgeon.

TSH 1.5-2.5

T3 is 4.0

T4 23 but 1 point over I couldn't care a less because I am trying to keep it as a level.

Also now research says that those with cancer should not take an anti-co.angulant because of bleeding.

I took mine and I had no bleeding instances.

You have a lot to take in but check out your thyroid functions. Its a very important organ and without it you will take the synthetic med thyroxin daily.

It's based on your weight. I take 125mg and weigh 87kg. But I need to have only 100mg Synthroid on 3-4 days. At 95kg it was the other way took 125mg but on 3-4 days I took an extra 25mg so 150mg.

TSH rises when you do not take enough of Synthroid.

TSH falls when you take more Synthroid.

It is important to have it early morning and no food for 1 hour. No milk or iron for 4 hours.

There is no other safe meds to control your TSH.

I hope this helps as I knew nothing.

My TSH on Friday was 1.7

T3. 4.0

T4 total 23. ( to 22)

Cheri joy 74. (NZ)

Balou23 profile image
Balou23

Hi, I regret it in any way! Eyebrow loss, painful, dry eyes, eye bags, sleeplessness,… If I complain my endocrinologist asks if I can prove it is thyroid related 😡

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