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Immunodeficiencies and defective immune system
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Seeking anyone familiar with aggressive small cell neuroendocrine prostate cancer and/or with lurbinectedin as 2nd line chemotherapy.
A needle biopsy Oct 15, 2023 revealed that at least some of my metastatic prostate cancer in a lymph node had mutated to an aggressive small cell neuroendocrine prostate cancer. (notable for CDK N1B, RB1, Tp53 mutations. MSS, TMB low) I had 4 cycles of carboplatin/etoposide chemotherapy, which ended
A needle biopsy Oct 15, 2023 revealed that at least some of my metastatic prostate cancer in a lymph node had mutated to an aggressive small cell neuroendocrine prostate cancer. (notable for CDK N1B, RB1, Tp53 mutations. MSS, TMB low) I had 4 cycles of carboplatin/etoposide chemotherapy, which ended
silver5
in
Advanced Prostate Cancer
5 months ago
Weighing the pros and possible risks of treatment holiday.
I am looking for reliable articles (not too scientific please). We will be discussing w oncologist this week and again with his clinical trial people next month. My husband's only treatment has been 1st & 2nd generation hormone therapy (Eligard & Darolutamide) for 20 months. He reached >.1 nadar
I am looking for reliable articles (not too scientific please). We will be discussing w oncologist this week and again with his clinical trial people next month. My husband's only treatment has been 1st & 2nd generation hormone therapy (Eligard & Darolutamide) for 20 months. He reached >.1 nadar
Decktime
in
Advanced Prostate Cancer
5 months ago
Radiotherapy
I’ve just finished a 3 week course of Radiotherapy and I feel dreadful. I’ve been very sick and it feels like flu. I’m very tired and sleeping a lot. Complete loss of appetite. I didn’t find chemotherapy as bad as this. Has anyone else had this experience ?
I’ve just finished a 3 week course of Radiotherapy and I feel dreadful. I’ve been very sick and it feels like flu. I’m very tired and sleeping a lot. Complete loss of appetite. I didn’t find chemotherapy as bad as this. Has anyone else had this experience ?
Hota
in
My Ovacome
5 months ago
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Cancerous thyroid nodules. Are they painful sometimes?
Id be really grateful for thoughts on this please. I'm awaiting surgery on a nodule that's suspicious for follicular cancer but obviously as we know, they can't be certain until its taken out. What i want to know is, has anyone had a painful nodule that can be really sore consistently (8 months now
Id be really grateful for thoughts on this please. I'm awaiting surgery on a nodule that's suspicious for follicular cancer but obviously as we know, they can't be certain until its taken out. What i want to know is, has anyone had a painful nodule that can be really sore consistently (8 months now
Aoifel73
in
Thyroid UK
5 months ago
musician - hearing loss after surgery
Hi, I am a 49 year old musician and I was diagnosed with an Acoustic Neuroma in December 2023 and had to have surgery a few weeks later due to the size of the tumour and how ill I was. Since then I have been in recovery trying to get back all my functions (balance, stamina etc). Unfortunately the tumour
Hi, I am a 49 year old musician and I was diagnosed with an Acoustic Neuroma in December 2023 and had to have surgery a few weeks later due to the size of the tumour and how ill I was. Since then I have been in recovery trying to get back all my functions (balance, stamina etc). Unfortunately the tumour
domforr
in
Acoustic Neuroma Support
5 months ago
2ND Opinion by Radiologist
I recently had mpMRI and PSMA/PET scans that indicate I have cancer in the Seminal Vesicles and Lymph Nodes. I want to have the slides sent to a radiologist for a 2nd opinion. Can anyone recommend a good radiologist that can complete this task.
I recently had mpMRI and PSMA/PET scans that indicate I have cancer in the Seminal Vesicles and Lymph Nodes. I want to have the slides sent to a radiologist for a 2nd opinion. Can anyone recommend a good radiologist that can complete this task.
Jimbo47
in
Advanced Prostate Cancer
5 months ago
bleeding 3 years after total hysterectomy
Hello guys , has anyone experienced this at all ? I had total hysterectomy in 2021 out my cervix and uterus taken out . The two ovaries were left because it was stuck to bladder and would cause more complications since bladder specialist wasn’t in the room . I was put on triptorelin on and off till last
Hello guys , has anyone experienced this at all ? I had total hysterectomy in 2021 out my cervix and uterus taken out . The two ovaries were left because it was stuck to bladder and would cause more complications since bladder specialist wasn’t in the room . I was put on triptorelin on and off till last
Fela1113
in
Endometriosis UK
5 months ago
Saxon clinical trial
Hello all, I was recently enrolled in the Saxon clinical trial combining Xofigo with SBRT. Is anyone else in that trial? Diagnosed with prostate Cancer July 2014, Gleason 7 (4+3) in 6 of 12 . After Radiation treatments my PSA was undetectable until July 2019. It rose to 3.9 in January 2020
Hello all, I was recently enrolled in the Saxon clinical trial combining Xofigo with SBRT. Is anyone else in that trial? Diagnosed with prostate Cancer July 2014, Gleason 7 (4+3) in 6 of 12 . After Radiation treatments my PSA was undetectable until July 2019. It rose to 3.9 in January 2020
58Willys
in
Advanced Prostate Cancer
5 months ago
Does having CLL really make you 3 times more likely to get (another) cancer, and does CLL treatment add to the risk? - Part 1
1. The risk of developing a Secondary Primary Malignancy
"[i]The higher risk of SPM associated with CLL has been recognized for many years, well prior to the modern therapy era. Manosow and Weinerman in 1975 demonstrated a three-fold increase of SPM and an eight-fold increase of SC in CLL[/i]
1. The risk of developing a Secondary Primary Malignancy
"[i]The higher risk of SPM associated with CLL has been recognized for many years, well prior to the modern therapy era. Manosow and Weinerman in 1975 demonstrated a three-fold increase of SPM and an eight-fold increase of SC in CLL[/i]
bennevisplace
in
CLL Support
5 months ago
Mild TI inflammation
Hi, I've just had my third colonoscopy and I found it very painful. I was in agony during various times of it being done. I managed to get a report (some pictures this time too!) On the report they wrote for the procedure discomfort: Mild: More than 2 episodes of discomfort without distress. On my report
Hi, I've just had my third colonoscopy and I found it very painful. I was in agony during various times of it being done. I managed to get a report (some pictures this time too!) On the report they wrote for the procedure discomfort: Mild: More than 2 episodes of discomfort without distress. On my report
Sunita77
in
Bowel Disease Support
3 months ago
Upcoming TTALC Workshop 3/23/24
Did you know? Clinical trials provide new treatment options, especially if existing treatments have not worked. You may also receive more attentive care in a clinical trial study because it requires close observation and follow-up from a team of doctors. Join our live interactive workshop to learn more
Did you know? Clinical trials provide new treatment options, especially if existing treatments have not worked. You may also receive more attentive care in a clinical trial study because it requires close observation and follow-up from a team of doctors. Join our live interactive workshop to learn more
AllysonBlueFaery
Community Ambassador
in
Blue Faery Liver Cancer
5 months ago
NUV-1511 drug-drug conjugate (DDC) to enter the clinical stage: phase 1
"Dosing the first patient with NUV-1511 marks a significant milestone for our proprietary DDC platform, from which we are developing potent oncology-focused chimeric small molecules designed to selectively deliver anti-cancer therapeutics to cancer cells, while mitigating effects on healthy non-target
"Dosing the first patient with NUV-1511 marks a significant milestone for our proprietary DDC platform, from which we are developing potent oncology-focused chimeric small molecules designed to selectively deliver anti-cancer therapeutics to cancer cells, while mitigating effects on healthy non-target
Maxone73
in
Advanced Prostate Cancer
5 months ago
NGS Test/Next-Generation Sequencing Important to have done.
Hello friends. I just wanted to make sure that if you are able to have this testing done, it is really important for your health and treatments that are given for your TYPE of BC. I was dx in 2016 and MBC in 2019. Ibrance and Fasoldex lated aobut 2 years. I was and still am ER/PR + and HER2low, but
Hello friends. I just wanted to make sure that if you are able to have this testing done, it is really important for your health and treatments that are given for your TYPE of BC. I was dx in 2016 and MBC in 2019. Ibrance and Fasoldex lated aobut 2 years. I was and still am ER/PR + and HER2low, but
Hopeful4Cure
in
SHARE Metastatic Breast Cancer
5 months ago
INSURANCE DENIED - STAGE 4 BREAST CANCER
HI everyone, my mother is diagnosed with stage 4 breast cancer and doctor to give phesgo ( pertuzumab and transtuzumab) but insurance people told its a immunotheraphy so they wont apporve, but my oncologist told its a targeted therapy not immuno. my insurance is new india insurance under tpa being mediassist.Did
HI everyone, my mother is diagnosed with stage 4 breast cancer and doctor to give phesgo ( pertuzumab and transtuzumab) but insurance people told its a immunotheraphy so they wont apporve, but my oncologist told its a targeted therapy not immuno. my insurance is new india insurance under tpa being mediassist.Did
Srikalakm
in
Breast Cancer India
5 months ago
Has anyone been taking Verzenio for more than 2 years?
I was diagnosed with ILC stage 3, HER2 negative, ER positive, PR positive in November 2020. I had a mastectomy, chemo and radiatin and my scans showed no further evidence of cancer. I have been on anastrazole and in May 2021 I was started on Verzenio. They said it is only approved to be used for 2
I was diagnosed with ILC stage 3, HER2 negative, ER positive, PR positive in November 2020. I had a mastectomy, chemo and radiatin and my scans showed no further evidence of cancer. I have been on anastrazole and in May 2021 I was started on Verzenio. They said it is only approved to be used for 2
alwayslearningmore
in
SHARE Metastatic Breast Cancer
5 months ago
Need Help Interpreting My PSMA/PET SCAN
About a month ago I posted the results of my Prostate MRI and got some very good advice through this forum. The Prostate MRI report recommended that I get a PSMA PET/CT. I had the Pet Scan done at City of Hope and received the results today. The ONCOLOGIC AND POTENTIALLY ONCOLOGIC FINDINGS are as follows
About a month ago I posted the results of my Prostate MRI and got some very good advice through this forum. The Prostate MRI report recommended that I get a PSMA PET/CT. I had the Pet Scan done at City of Hope and received the results today. The ONCOLOGIC AND POTENTIALLY ONCOLOGIC FINDINGS are as follows
Jimbo47
in
Advanced Prostate Cancer
5 months ago
Hi! I'm new and excited to meet others and learn about your journey
Good afternoon. I'm new to the group. I already posted an item, but thought I should introduce myself. I was diagnosed with Stage 1 breast cancer in 2010. Had a mastectomy. Went on tamoxifen for 2 years, then quit because it made me feel miserable. No chemo. In 2022, I was once again diagnosed
Good afternoon. I'm new to the group. I already posted an item, but thought I should introduce myself. I was diagnosed with Stage 1 breast cancer in 2010. Had a mastectomy. Went on tamoxifen for 2 years, then quit because it made me feel miserable. No chemo. In 2022, I was once again diagnosed
Sueforshare
in
SHARE Metastatic Breast Cancer
5 months ago
Docs who prescribe mebendazole and metformin
HI! I am currently taking letrozole for metastatic breast cancer. I am also doing the COC protocol, but only with mebendazole and metformin. Just curious, are any of you getting mebendazole or metformin from any other docs than COC? Thanks! Sue
HI! I am currently taking letrozole for metastatic breast cancer. I am also doing the COC protocol, but only with mebendazole and metformin. Just curious, are any of you getting mebendazole or metformin from any other docs than COC? Thanks! Sue
Sueforshare
in
SHARE Metastatic Breast Cancer
5 months ago
It's all about delivery (not PC related but worth reading): Car T cell therapy used for brain tumors
“This suggests to us that there is important interaction between CAR-T cell therapy and the host immune system,” Brown said. Future changes to CAR-T cell therapies could be designed to further optimize the treatment, Badie added. “We could deliver agents into the tumor microenvironment to engage the
“This suggests to us that there is important interaction between CAR-T cell therapy and the host immune system,” Brown said. Future changes to CAR-T cell therapies could be designed to further optimize the treatment, Badie added. “We could deliver agents into the tumor microenvironment to engage the
Maxone73
in
Advanced Prostate Cancer
5 months ago
my prostate cancer
Diagnosed in November 2022. Favorable intermediate with Gleason 6 & Gleason 7 (3+4), with 4 less than 5%, and low Decipher score. On AS. 13 months later, one year MRI showed “concerning” images, with irregular capsule (visible), and extra capsular extension probable (interpretation from radiologist).
Diagnosed in November 2022. Favorable intermediate with Gleason 6 & Gleason 7 (3+4), with 4 less than 5%, and low Decipher score. On AS. 13 months later, one year MRI showed “concerning” images, with irregular capsule (visible), and extra capsular extension probable (interpretation from radiologist).
woolcotton
in
Prostate Cancer Network
5 months ago
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