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Bowel glued together and severe stricture in colon.
I'm reaching out to ask about pain relief and help with debilitating bowel issues. My bowel is completely glued together with adhesions and I have significant narrowing of my colon. Here's my story ... I had a complete hysterectomy and ovaries removed about 13 years ago (age 36) due to stage 4 endometriosis
I'm reaching out to ask about pain relief and help with debilitating bowel issues. My bowel is completely glued together with adhesions and I have significant narrowing of my colon. Here's my story ... I had a complete hysterectomy and ovaries removed about 13 years ago (age 36) due to stage 4 endometriosis
Barnyowl
in
Bowel Disease Support
3 years ago
Help! No more surgical options for bowel adhesions. Any advice appreciated x
Dear Fellow Endo Warriors, I'm reaching out to ask about pain relief and help with debilitating bowel issues. Is anyone else post-hysterectomy and Endo adhesions still compromising your life? If so, I really need your help xx Here's my story ... I had a complete hysterectomy and ovaries removed about
Dear Fellow Endo Warriors, I'm reaching out to ask about pain relief and help with debilitating bowel issues. Is anyone else post-hysterectomy and Endo adhesions still compromising your life? If so, I really need your help xx Here's my story ... I had a complete hysterectomy and ovaries removed about
Barnyowl
in
Endometriosis UK
3 years ago
Can anyone tell me what my notes mean?
I have recently been sent my notes from previous laparoscopys for endo. I have for the past 10 years been fobbed off and told I don't have endo, i'm too young etc etc. (was diagnosed at 17, amd now 34). turns out that my old Dr had not passed my medical notes onto the new dr so they just thought I
I have recently been sent my notes from previous laparoscopys for endo. I have for the past 10 years been fobbed off and told I don't have endo, i'm too young etc etc. (was diagnosed at 17, amd now 34). turns out that my old Dr had not passed my medical notes onto the new dr so they just thought I
pink-elephant
in
Endometriosis UK
3 years ago
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24 yrs and still struggling!
I've had problems with my periods since I was 13 and have been wrongfully diagnosed twice, first as IBS then PID I've had so many operations u can play dot to dot on my scars 😂. In 2005 I was diagnosed with endometriosis, I have been passed from piller to post & had every combination of pain relief
I've had problems with my periods since I was 13 and have been wrongfully diagnosed twice, first as IBS then PID I've had so many operations u can play dot to dot on my scars 😂. In 2005 I was diagnosed with endometriosis, I have been passed from piller to post & had every combination of pain relief
dodgeviperdiva
in
Endometriosis UK
3 years ago
6 months after hysterectomy
So I had an abdominal hysterectomy 6 months ago and wow the difference is amazing. To be told I may never walk again and be stuck like that to exercising (which was my aim). Just taking everyday as it comes as I do still have endo flare ups once a month and know this disease won't stay away forever but
So I had an abdominal hysterectomy 6 months ago and wow the difference is amazing. To be told I may never walk again and be stuck like that to exercising (which was my aim). Just taking everyday as it comes as I do still have endo flare ups once a month and know this disease won't stay away forever but
Thecrazypugglelady
in
Endometriosis UK
3 years ago
I'm back post-op and going to do it again!
So I did couch to 5k with support on here from Sept '20 to Jan '21. Was lifechanging for me and I was still enjoying running 5-6k twice a week and got sub 40 mins for the first time. Then was diagnosed with fibroids and had a total abdominal hysterectomy on 24th May. Just had my 6 week sign off to start
So I did couch to 5k with support on here from Sept '20 to Jan '21. Was lifechanging for me and I was still enjoying running 5-6k twice a week and got sub 40 mins for the first time. Then was diagnosed with fibroids and had a total abdominal hysterectomy on 24th May. Just had my 6 week sign off to start
Vogueskater
Graduate
in
Couch to 5K
3 years ago
Please any advice
Hi all, I had a full hysterectomy on Sept 2019 due to re occurring endometriosis and ovarian cysts. I had many key hole surgeries to remove both. The last key hole before my hysterectomy was performed by a lady doctor who I specifically had said I didn't want her to touch me as she had told me she wasn't
Hi all, I had a full hysterectomy on Sept 2019 due to re occurring endometriosis and ovarian cysts. I had many key hole surgeries to remove both. The last key hole before my hysterectomy was performed by a lady doctor who I specifically had said I didn't want her to touch me as she had told me she wasn't
Loopylouolliffe1
in
Menopause and Perimenopause Support
3 years ago
Prostap v periods
Hi does anybody else feel like by having prostap injections ,you’ve swapped painful periods,heavy bleeding,back pain,bloating etc,for hot flushes painful joints,sleepless nights,brain fog,I’m on a break from it at mo but periods are back with a vengeance,feel like don’t no where to go from hear,consultant
Hi does anybody else feel like by having prostap injections ,you’ve swapped painful periods,heavy bleeding,back pain,bloating etc,for hot flushes painful joints,sleepless nights,brain fog,I’m on a break from it at mo but periods are back with a vengeance,feel like don’t no where to go from hear,consultant
Cayrie1992
in
Endometriosis UK
3 years ago
Bowel Endo Symptoms ** UPDATE **
Just an update to say I had the results of the MRI today. Stage 4 endo, everywhere. Particularly around the rectum, bowel, on my C Section scar... ovaries, inbetween vagina and rectum, I think he said bladder too. It was all a bit of a shock. I also have adeno. Lap booked in 2 weeks as I am so so
Just an update to say I had the results of the MRI today. Stage 4 endo, everywhere. Particularly around the rectum, bowel, on my C Section scar... ovaries, inbetween vagina and rectum, I think he said bladder too. It was all a bit of a shock. I also have adeno. Lap booked in 2 weeks as I am so so
Rose153
in
Endometriosis UK
3 years ago
Long Covid
Hi I’m a 53 year old lady that had a full hysterectomy in august 2019 then got Covid 19 in March 2020 and a year on still suffering with Long Covid systems. My hormones are all over the place and the fatigue is impossible at times. I have also put on 4 stone in weight due to my inability to be able to
Hi I’m a 53 year old lady that had a full hysterectomy in august 2019 then got Covid 19 in March 2020 and a year on still suffering with Long Covid systems. My hormones are all over the place and the fatigue is impossible at times. I have also put on 4 stone in weight due to my inability to be able to
donnamichelle1
in
Women's Health
3 years ago
Hysterectomy
Hi all. I am writing from my hospital bed. Had a full abdominal hysterectomy today at 10.30 to remove my large fibroid. Good riddens! Also removed cervix and ovaries to prevent further complications. I'm very sore but managed with pain relief. Consultant is going to speak to me tomorrow. Wish me luck
Hi all. I am writing from my hospital bed. Had a full abdominal hysterectomy today at 10.30 to remove my large fibroid. Good riddens! Also removed cervix and ovaries to prevent further complications. I'm very sore but managed with pain relief. Consultant is going to speak to me tomorrow. Wish me luck
Fcake
in
Women's Health
3 years ago
Put on Waiting list for hysterectomy
Hello Ladies I hope your all keeping strong. I finally got to see my consultant yesterday woohoo and he has put me on the waiting list for hysterectomy either full or partial depending on how i get on with Prostap and put on HRT for next 3 months. Do any of you have any advice and tips regarding the
Hello Ladies I hope your all keeping strong. I finally got to see my consultant yesterday woohoo and he has put me on the waiting list for hysterectomy either full or partial depending on how i get on with Prostap and put on HRT for next 3 months. Do any of you have any advice and tips regarding the
Hidden
in
Endometriosis UK
3 years ago
Advice needed
Hey everyone out there Need some advice I’ve had my bloods come back and GP has dropped my meds from 100 mcg to 75 mcg I’ve been taking 75 mcg for a couple of months now I’ve been feeling a bit emotional and my brain a bit more foggy than usual I’m 54 had a hysterectomy at 32 years and I’ve been diagnosed
Hey everyone out there Need some advice I’ve had my bloods come back and GP has dropped my meds from 100 mcg to 75 mcg I’ve been taking 75 mcg for a couple of months now I’ve been feeling a bit emotional and my brain a bit more foggy than usual I’m 54 had a hysterectomy at 32 years and I’ve been diagnosed
traceyvinall
in
Thyroid UK
3 years ago
"Focus" has left the room. How to get it back?
Hi! I just agreed with my consultant a couple of days ago that I'll have a "full pelvic clearance" surgery for endometriosis. I was pretty much obsessively worried about Endo before the appointment, and if anything could be done for me, and what that might be. And now that I have an answer, I just can't
Hi! I just agreed with my consultant a couple of days ago that I'll have a "full pelvic clearance" surgery for endometriosis. I was pretty much obsessively worried about Endo before the appointment, and if anything could be done for me, and what that might be. And now that I have an answer, I just can't
Hidden
in
Endometriosis UK
3 years ago
Mid York’s BSGE referral and more
Hello fellow endo warriors, Has anyone any experience of getting referred to the mid York’s trust BSGE centre at Pinderfields? My consultant gynaecologist (at Bradford) wants to do a diagnostic laparoscopy to confirm stage 4 endo and bowel implications. She won’t just perform a hysterectomy despite me
Hello fellow endo warriors, Has anyone any experience of getting referred to the mid York’s trust BSGE centre at Pinderfields? My consultant gynaecologist (at Bradford) wants to do a diagnostic laparoscopy to confirm stage 4 endo and bowel implications. She won’t just perform a hysterectomy despite me
Astro_kat
in
Endometriosis UK
3 years ago
adenomyosis Diagnosis
I was diagnosed with endo 5 years ago and diagnosed with adenomyosis on Friday. The consultant told me I have good egg reserve for the moment so to take my coil out and try and get pregnant straight away because I will need a hysterectomy in a few years! I’m 34, single, no children and now I feel numb
I was diagnosed with endo 5 years ago and diagnosed with adenomyosis on Friday. The consultant told me I have good egg reserve for the moment so to take my coil out and try and get pregnant straight away because I will need a hysterectomy in a few years! I’m 34, single, no children and now I feel numb
A1987
in
Endometriosis UK
3 years ago
Chest pain
Hi all, its been a little while since I have posted anything on here. I'm currently waiting to have a hysterectomy, but the daily pain /struggle I am in, I feel so lost and trapped I don't know where to turn. Whilst I am lucky I have supportive family and friends, I feel like no one fully understands
Hi all, its been a little while since I have posted anything on here. I'm currently waiting to have a hysterectomy, but the daily pain /struggle I am in, I feel so lost and trapped I don't know where to turn. Whilst I am lucky I have supportive family and friends, I feel like no one fully understands
Cardiff87
in
Endometriosis UK
3 years ago
What is the maximum time you can be on prostap 3 injections?
I have been on prostap 3 since October 2020, with add-back HRT, Tibolone, since January 2021, almost 8 months. I'm due to have the next prostap 3 injection next month. I'm on the waiting list for an "urgent" (been waiting almost 9 months); hysterectomy, cyst and ovary removal, with bowel involvement
I have been on prostap 3 since October 2020, with add-back HRT, Tibolone, since January 2021, almost 8 months. I'm due to have the next prostap 3 injection next month. I'm on the waiting list for an "urgent" (been waiting almost 9 months); hysterectomy, cyst and ovary removal, with bowel involvement
77yellow
in
Endometriosis UK
3 years ago
Please help - pain after hysterectomy
Hi Can anyone help me hysterectomy 4 years ago today have got right ovary. Approx 1 year ago admitted with excessive pain endometriosis all over pelvis endometrioma on right ovary They say I have so much nerve damage I get regular UTI I am on prostap, tibilone, codeine, pregablin about to start sertraline
Hi Can anyone help me hysterectomy 4 years ago today have got right ovary. Approx 1 year ago admitted with excessive pain endometriosis all over pelvis endometrioma on right ovary They say I have so much nerve damage I get regular UTI I am on prostap, tibilone, codeine, pregablin about to start sertraline
emma422
in
Endometriosis UK
3 years ago
Hysterectomy 4 years ago and pain - need some support
Hi Can anyone help me hysterectomy 4 years ago today have got right ovary. Approx 1 year ago admitted with excessive pain endometriosis all over pelvis endometrioma on right ovary They say I have so much nerve damage I get regular UTI I am on prostap, tibilone, codeine, pregablin about to start sertraline
Hi Can anyone help me hysterectomy 4 years ago today have got right ovary. Approx 1 year ago admitted with excessive pain endometriosis all over pelvis endometrioma on right ovary They say I have so much nerve damage I get regular UTI I am on prostap, tibilone, codeine, pregablin about to start sertraline
emma422
in
Pelvic Pain Support Network
3 years ago
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