I've had problems with my periods since I was 13 and have been wrongfully diagnosed twice, first as IBS then PID I've had so many operations u can play dot to dot on my scars 😂.
In 2005 I was diagnosed with endometriosis, I have been passed from piller to post & had every combination of pain relief you can imagine that I'm running out of options!i
I've been suffering now 24yrs it's depressing, my symptoms consist of
*Constant severe/disabling abdominal pain. (worse when ovulating or on)
*Nausea /vomiting. (causing dental issues)
*constipation /diarrhoea *ovarian cysts.
*low immune system. *struggle to concentrate.
*Constantly getting infections. * Body aches.
*Persistent tiredness .* Lack of appetite .
*Insomnia. * Headaches.* Memory loss .
*Mood swings. * Low moods & Depression.
*Anxiety & panic attacks. * Itchy all over .
*Constant thirst /Dry mouth. *low sex drive.
*excessive sweating? (does anyone else have this problem?)
*extreme weight loss! Just to name a few.
I caught sepsis & encephalitis because my immune system is weak, I've gone from a dress size 10/12 to a 4/6 in under 6mths and I weigh 42.5kg! (I've been attempting to gain weight for 3 years now 😂)
I'm currently under the pain clinic who have put me on 30mg/ph butrans patches, 600mg of pregabalin, dyhdrocodine & anti-sickness tablet's, all have their own set of horrible side effects!
I smoke cannabis for pain as the pain clinic refuse to give me cbd oil on prescription?
It's the best pain relief I've found so far & thier are loads of studies on cannabis for pain relief.
I am on pip as I am unable to work, when I'm on I can't leave the house as I bleed through my clothes.
My daily life is being seriously effected, its put strain on my marriage and my Family, I'm 37 have 3 beautiful children and had my tubes tied, I asked for a hysterectomy and was refused? 😂 I'm now hunting for other ways to get the help I need as I'm out of idea's?!
Please help anyone 😊
Hi, I was just reading your post then and I have all those symptoms, I'm only 22 and my whole life has stopped. No one seems to be helping me I keep going to different doctors and they just put my on the pill and give me pain relief but neither are helping. They think I might have endometriosis but won't do a laparoscopy until I've been on the pill 6 months but it's horrible living in so much pain it's already been over a year since it started. Have you been diagnosed with Endometriosis?
Is your gyne a registered BSGE endometriosis specialist? Finding a doc who listens can really depend on their knowledge of endo, if they don't know enough they tend to fob you off xxx
No I don't think they are, how would I know who is? Can you request one?x
There's a website you can check, Google "BSGE registered endometriosis" and you'll find a website where you can put your postcode in then just jot down the names of the nearest hospitals and the consultant names. I did some research on mine and actually went with one who is further away because he was more qualified and had a really good reputation. You can also then search and find if they have an NHS practice, then just take that info to your GP and request a referral to them. That's what I did after my local hospital messed me around, it's in the NICE guidelines that we have the right to request a second opinion at our hospital of choice, as long as its in England. So stick to your guns babe you're perfectly entitled to it xxx
I did pay to have an initial private appointment with the gynecologist, so I could make sure I would be happy with him. He agreed to put me on his NHS list and wrote to my GP to request it, so if you're in a position to do that it can speed things up xxx
thank you I will look into that today xxxx
Right okay I will do that thank you xx
I'm sorry that ur suffering hun, unfortunately it took over 10 yrs but I was diagnosed in 2005, I found hormonal treatments to be useless, if anything I believe it sped up the process? the best pain relief by far is cannabis the other options the hospital give you are so bad for ur liver and kidneys, if I'm honest my body became addicted to the opiates & other meds they had me on, because I build up a tolerance to them I have to detox from them once a month & withdrawal on top of pain is horrific! I really hope that you get the help u need keep pushing for it, no one should live like this xxx ps if you want to chat with someone who understands let me know xx
Yeah it's horrible, I'm in so much pain 24/7 haven't been out of pain once in nearly a year. I'm on Zapain and Naproxen but I know you shouldn't be on them long term but that's all I'm being offered been on them 7 months now. I've been put on the Pill and told to see how I go for 6 months but I can't handle it it's to horrific x
wow they don't get how it can completely fcuk your day to day life not to mention ur relationships. have they put you on stomach protectors? eg omeprazol? they had me on naproxen and diclofenic for 5yrs and no stomach protectors so I ended up with 3 gastric ulcers all fun xx
No I'm not on any stomach protectors should I ask my doctor to put me on them?xx
yes hun ask, stomach ulcers are horrible it felt like a heart attack! omeprazol stops the Ibuprofen eating at your stomach lining, xxx
Okay I will do, that sounds awful, don't want that on top of everything else xx