Put on Waiting list for hysterectomy - Endometriosis UK

Endometriosis UK

70,542 members52,085 posts

Put on Waiting list for hysterectomy

7 Replies

Hello Ladies I hope your all keeping strong. I finally got to see my consultant yesterday woohoo and he has put me on the waiting list for hysterectomy either full or partial depending on how i get on with Prostap and put on HRT for next 3 months. Do any of you have any advice and tips regarding the HRT as I'm nervous to try it ? I've already been on Prostap in Dec so I know I get hot flushes and headaches but can put up that because it help the endos/adenomyosis . Sorry everyone I'm not good at spelling . Any help would be greatly appreciated xx

Read more about...
7 Replies
Lou93 profile image
Lou93

Sent you a reply to your message ☺️😘

AllthatGlitters profile image
AllthatGlitters

I am on HRT as currently on months 3 of decepeptyl injections. Also got HRT patches 2 weeks ago. No more night sweats, some hot flushes but not as bad as before. I would definitely recommend HRT, have a look at the “Balance” app by Dr Louise Newson, there is a chat forum on there too as well as lots of information if you have endometriosis x

in reply to AllthatGlitters

Thank you so much I will have a look at that as I don't know much about HRT, It's good to hear your doing well on both 😀 xx

Jude07- profile image
Jude07-

Hi Bubbles,I had my full hysterectomy in February. I feel absolutely fantastic its the best thing thats ever happened to me. Im not on any medication, HRT as im 53 i think I had nearly gone through the change. Im Having hot flushes and insomnia but i can cope with all that especially what i had to go through, suffering with endometriosis and Adenomyosis for years. It will change your life ive never been so happy and healthier no pains no bleeding out constantly. Make sure you rest no lifting pulling give your body time to heal inside and out. Good luck x

in reply to Jude07-

Thank you for your reply I appreciate that, Oh that's fantastic news you are feeling pain free so happy for you. I need to stop thinking of the what ifs and be brave and get on with it, May I ask did you have a vaginal hysterectomy if so how painfull was it down there im super scared 😱 ( I hope they give me lots of pain relief xx

Jude07- profile image
Jude07- in reply to

Hi, i had key hole surgery, uterus removal through virgina. Its not painful down there at all a tiny bit sore where they removed my cervix but apart from that i was fine. My belly button was painful for months only just feeling better. I couldn't wear my jeans I've been in leggings for a while, you don't want any thing tight around your waist, Try and Wear lose clothing. I didn't have morphine after my operation only paracetamol 8 do have a high pain threshold after suffering with Endometriosis for years. Morphine does makes me feel sick anyway. was literally up on my feet the next day showered myself was discharged the next afternoon 24 hrs after op. Please take it easy at home don't push yourself listen to your body my insides have taken longer to heal. Good luck, please don't worry, it will be all fine you will be a new woman afterwards x

Hi Thank you for your lovely reply so glad it wasn't painful on the most seneative area 😌, I have got 6 months to wait but little things keep popping up in my head so i thought i'd ask instead of worrying lol. It will be so brilliant to not have any pain there anymore xx

You may also like...

On waiting list for hysterectomy !

gynae yesterday and she has decided hysterectomy I'm 30 and I'm so worried but know there is nothing

Now on the waiting list for hysterectomy!

that my endo is once again back and severe I've decided to go down the route of a hysterectomy!...

Northern Ireland waiting list for hysterectomy.

of them who take people from the top of the list. Any help would be very much appreciated 🙂

Prostap, hrt and waiting on hysterectomy!!

consultant to say im still in pain. I was started on prostap back in oct, whichin all fairness...

Waiting List

waiting to see (following my MRI, which has shown endo on my left side) had a cancellation so seen...