Can anyone tell me what my notes mean?

[pink-elephant]

I have recently been sent my notes from previous laparoscopys for endo. I have for the past 10 years been fobbed off and told I don't have endo, i'm too young etc etc. (was diagnosed at 17, amd now 34). turns out that my old Dr had not passed my medical notes onto the new dr so they just thought I was making a fuss over nothing and basically wouldn't refer me or do anything of use. Anyway after sobbing down the phone to one poor Dr I finally got referred to a new consultant who is just a general gynae. She sent me for ultrasounds that showed ovaries are frozen (don't move) and i'm booked in for an MRI to see the extent of the damage, with a view to performing a full hysterectomy which is absolutely fine with me!! In the mean time i'm on Zoladex and Tibolone.

Having found my notes, can anyone please decipher them for me into English I understand, and then tell me whether I should be with a general Gynae, of a more specialised Endo consultant.

They are from 3 seperate laparoscopys

[635703]

I think you should always see a specialist Endo Gynaecologist - I believe that is your right as someone with Endo. Period. (Pardon the pun).

[Pinkmice]

Hi

Hope you are okay- an endo specialist- Will help[ answer your concerns.

Endo even with having- the major op still causes scar tissue- which Main Cause of pain.

So be aware possible future problems - ref some-one with endo.

Keep well, and maybe try some natural products- tablets mask pain/also cause other

types of illness. Which us ladies have to bear.

[Pixie_Pumpin35]

Hello Pink-Elephant,

If you don’t understand your three summaries from your laparoscopies and you can’t speak to a specialist. I suggest you google the words you don’t understand or google a Women’s pelvic anatomy to see where they are located.

I also suggest that you speak to your GP and get a referral to a BSGE centre.

All the best

Pixie x💛x

[Marcia71]

Yes you need to ask your gp to refer you to a bsge centre and an endo specialist. Even if not that a gynae with special interest in endo. It seems from your notes you have had a lot of endo around the pouch of Douglas (pod) and ligaments - which is assuming means uterosacral ligaments which run front to back and support the uterus. Endo there is often rectovaginal endo and severe so you do need to be seen at bsge centres. Also as you’ve had various laps and helica is ablation then you also qualify as endo has responded to treatment. GPS often don’t know that referral to the endo centres is to the centre directly and via nhs England.

And just to say you much have endo excised at time of hysterectomy else it won’t help the endo and can leave you in a worse position. I had this happen to me and would hate it to happened to anyone else.