Prostap v periods: Hi does anybody else... - Endometriosis UK

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Prostap v periods

Cayrie1992 profile image
Cayrie1992

Hi does anybody else feel like by having prostap injections ,you’ve swapped painful periods,heavy bleeding,back pain,bloating etc,for hot flushes painful joints,sleepless nights,brain fog,I’m on a break from it at mo but periods are back with a vengeance,feel like don’t no where to go from hear,consultant says I will need bone density scans if I go back down prostap route,I’m wondering now if I should accept I need hysterectomy

19 Replies

Hello! I feel exactly the same way. We have to choose the lesser evil. How many injections did you get? Were you on HRT with prostrap? I am 32 so doing my best to hold on as long as possible before a hysterectomy... Xoxo

Cayrie1992 profile image
Cayrie1992 in reply to Gilena

Yes I was put on hrt after 3injection ,it didn’t do much at all if I’m honest

Also I’m 47 so that’s why I’m trying to hold out but finding it so difficult x

Gilena profile image
Gilena in reply to Cayrie1992

I totally understand. No matter our age, it is difficult to lose an organ. It is traumatic, to say the least. But hey, if there is anyone on earth that can deal with difficult situations, it is women with endometriosis. We have been through the darkest of times so hopefully what is to come will be happier and lighter. Xoxo

Gilena profile image
Gilena in reply to Cayrie1992

Were you on tibolone? I had HRT for first 5 injections and then doctor asked me to stop the HRT for injections 6 , 7, 8,9 and 10.

Cayrie1992 profile image
Cayrie1992 in reply to Gilena

No I was on the prostap ,started hrt after 3 mnths after I had mirena coul removed

Gilena profile image
Gilena in reply to Cayrie1992

Tibolone is a form of HRT that is commonly prescribed along with Prostrap. Which HRT were you taking: a patch, birth control pill, progesterone?

Cayrie1992 profile image
Cayrie1992 in reply to Gilena

Sorry yes it was patch as I want offered anything else 🤷🏾‍♀️

Gilena profile image
Gilena in reply to Cayrie1992

If you decide to retake the injections, you can ask your doctor to try different forms of HRT. Maybe you can find a better balance to maximize no pain effects of injections and minimize side effects. Wishing you peace and better health. Xoxo

Hello Cayrie1992,

I have 2 prostap injections and they made me feel absolutely awful. I couldn’t have tolerated anymore. As Gilena asked, how many injections have you had? Are you currently taking HRT? I took HRT from the first day of Prostap, to protect my bones more than anything. I’m currently contemplating a total hysterectomy as I’ve had 2 excision surgeries in 3 years and I’m now left with adhesion pain as well as endo pain. My theory of thinking is I’d probably be in less pain if I removed everything inside that could be aggravating the adhesions. I’m not sure if it’s a logical way to think or just hope, hope of relieving some of the pain I’m in so I can reduce the medication I take.

Only you can mar the decision to have a hysterectomy. If you’d like to chat, please feel free to DM me anytime.

Pixie x💛x

Aaw Thankx for your reply it’s good to no so many others suffer ,I had 6 injections,in total,every 12 weeks,it does make us think hysterectomy is our only hope of being rid of this ,even tho it’s not deffo but I had no pain at all whilst on the prostap so chances are I’d be pain free,I just worry what surgical menapause will bring x

Hi, im currently on Prostap I understand your situation they said the same to me about bone density scans I've decided to be put on waiting list for hysterectomy then be free of the pain i think that seems to be the general route injections then operation but remember its your body xx

So hard to decide what to do x

That’s how I feel too ,just want it all to go away x

I was exactly the same I’m now back on Depo Prevera which I’m still cycling on even tho I’ve reduced my time between injections to 10 weeks. Currently uterus feels like a lead weight with toothache! I was trying to hold off a hysterectomy but think on my next review I’m just going to ask for one

Cayrie1992 profile image
Cayrie1992 in reply to Lilyjack

So hard isn’t x

Oh my god I’m at this crossroad now 🥺🥺 I’m due to have my 4th prostap in a few days and we’ll, I’ve been in such aweful pain from these injections. Most days my finger joints hurt to much I can’t even pick up a glass of water in order to take my pain killers!! That was such a low point for me I can’t even describe. Im on tibolone too and not sure if it’s doing anything for me tbh. All I’ve ever wanted is to be a biological mother, it’s all I’ve ever ever wanted and I just keep wondering where do I go from here? I still have bowel problems and uterus pain even with the injections so it’s not helping my Endo pain either. Currently having both Endo and prostap pains make me bed ridden on my days off work. I just think what quality of life is this 😭😭

Cayrie1992 profile image
Cayrie1992 in reply to RB24

That’s what I keep weighing up ,my quality of life at mo is draining me,I feel like I have 1 whole week where I feel somewhat normal b4 the whole process of ovulating starts again ☹️

Hello Cayrie1992,

I'm in exactly the same boat after having Prostap3 - feel like I've been hit by a bus, to be honest. Since last week my pelvic pain has returned but no bleeding. I'm seeing my consultant next Tuesday but had a consultation with me GP yesterday as I was concerned about this pelvic pain. He said I shouldn't have pelican pain whilst on Prostap3, but he was satisfied that nothing sinister was going on like appendicitis. I'm really concerned though, as I'm in pain. Hope you're feeling better soon xx

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