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Hypomyelination and congenital cataract
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Antidepressants
Hi all, Increased anxiety has become one of my worst symptoms of B12 deficiency and (possible*) PA. I’m on 4 weekly B12 injections (Hydrocobalamin 1mg) on the NHS but I’ve not noticed any improvements so far. I’ve had the 6 loading doses and 2 further injections so far. I’m taking D3/K2 (3000iu/100ug
Hi all, Increased anxiety has become one of my worst symptoms of B12 deficiency and (possible*) PA. I’m on 4 weekly B12 injections (Hydrocobalamin 1mg) on the NHS but I’ve not noticed any improvements so far. I’ve had the 6 loading doses and 2 further injections so far. I’m taking D3/K2 (3000iu/100ug
Pa234aw
in
Pernicious Anaemia Society
6 months ago
Bladder Cancer Another Update.
I went for my 11th BCG treatment at hospital this afternoon, am feeling tired and fed up, Eye injection Monday - Today 11am ECG . 2PM this afternoon I went for BCG Treatment number 12 of 15. So got to hospital South end, nowhere to park, went to main North end - A queue for no parking space - 10
I went for my 11th BCG treatment at hospital this afternoon, am feeling tired and fed up, Eye injection Monday - Today 11am ECG . 2PM this afternoon I went for BCG Treatment number 12 of 15. So got to hospital South end, nowhere to park, went to main North end - A queue for no parking space - 10
Ern007
in
Lung Conditions Community Forum
8 months ago
After 25 days back on prednisone...
Thank you to all who advised on my previous post. I have almost completed the first month back on 20mg day of prednisone. The effect was immediate, pain gone, stiffness gone, fatigue better, am motivated and catching up with chores I had neglected for months. I feel more positive now, even started
Thank you to all who advised on my previous post. I have almost completed the first month back on 20mg day of prednisone. The effect was immediate, pain gone, stiffness gone, fatigue better, am motivated and catching up with chores I had neglected for months. I feel more positive now, even started
Biba5
in
PMRGCAuk
5 months ago
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thanks for all your replies. so much more than i’ve been dreading and thinking. doc and dentist got me worried sending me for the biopsy sans i saw the word cancer on the sheet too. i sat there in shock. but all your problems sound so similar to each other
thanks for all your replies. so much more than i’ve been dreading and thinking. doc and dentist got me worried sending me for the biopsy sans i saw the word cancer on the sheet too. i sat there in shock. but all your problems sound so similar to each other
Junny123
in
Pain Concern
8 months ago
4 years down the road
It is now 4yrs since by MRI, I was diagnosed with HCC and Prostate Cancer (unrelated)Since that time the prostate cancer has been Controlled by Zolodex hormone suppressant. In February 2020 a large tumour was removed from my liver by open resection. Later in the year it returned and was treated by ablation
It is now 4yrs since by MRI, I was diagnosed with HCC and Prostate Cancer (unrelated)Since that time the prostate cancer has been Controlled by Zolodex hormone suppressant. In February 2020 a large tumour was removed from my liver by open resection. Later in the year it returned and was treated by ablation
Churchill2020
in
Blue Faery Liver Cancer
8 months ago
In hospital again over oxygen levels & new happening Dizzy spells & panic attacks
Well dear friends Here I am back in hospital after just 3 weeks of discharge This time pains in the chest have started & I'm having panic attacks when I stand up to get on the commode or if at home then toilet This is something I've not had before so I ll be talking to the Docs when they come round
Well dear friends Here I am back in hospital after just 3 weeks of discharge This time pains in the chest have started & I'm having panic attacks when I stand up to get on the commode or if at home then toilet This is something I've not had before so I ll be talking to the Docs when they come round
Sara_2611
in
Lung Conditions Community Forum
3 months ago
Fennel Seeds
Hi everyone, I've recently done some research into fennel seeds, and I've read that apparently it contains a compound called Anethole, which helps to relax the muscles in your digestive tract. I was just wondering if anyone here has eaten fennel seeds before and can verify this. I am looking for ways
Hi everyone, I've recently done some research into fennel seeds, and I've read that apparently it contains a compound called Anethole, which helps to relax the muscles in your digestive tract. I was just wondering if anyone here has eaten fennel seeds before and can verify this. I am looking for ways
Crescendo251
in
IBS Network
5 months ago
Incomplete Evacuation and Diarrhoea
Hi there, 26yo female suffering with debilitating daily morning diarrhoea followed by incomplete evacuation, where it feels like my muscles just stop moving and there's an obstruction. I was diagnosed with IBS in 2020 when symptoms started, tried fodmap diet, mebeverine, linseeds, anitbiotics for suspected
Hi there, 26yo female suffering with debilitating daily morning diarrhoea followed by incomplete evacuation, where it feels like my muscles just stop moving and there's an obstruction. I was diagnosed with IBS in 2020 when symptoms started, tried fodmap diet, mebeverine, linseeds, anitbiotics for suspected
UnroolyGut
in
IBS Network
6 months ago
I have my GP appt to discuss getting a diagnosis..... But do I ask for ANA tedt or referral to specialist???
Hi all, you were all so helpful when i first posted at the beginning of Feb! Finally the day is so close to discuss my possible lupus diagnosis (weds). I have took advice from your chats ,and written my symptoms down since start of Feb,and I'm ready to hopefully try to find a way forwards! But I guess
Hi all, you were all so helpful when i first posted at the beginning of Feb! Finally the day is so close to discuss my possible lupus diagnosis (weds). I have took advice from your chats ,and written my symptoms down since start of Feb,and I'm ready to hopefully try to find a way forwards! But I guess
Gingernat20
in
LUPUS UK
5 months ago
Had a 5 day transfer 14/2 boobs no longer hurt does this mean it’s failed?
hi guys I’m 3 days post transfer and my boobs have stopped hurting and I feel less bloated does this mean it’s not worked . I had a 5 day blasocyst transferred Wednesday 14th and test is due next Friday . All my back ache bloating and constipation is all fading now .
hi guys I’m 3 days post transfer and my boobs have stopped hurting and I feel less bloated does this mean it’s not worked . I had a 5 day blasocyst transferred Wednesday 14th and test is due next Friday . All my back ache bloating and constipation is all fading now .
Lemons1986
in
Fertility Network UK
6 months ago
Help Needed! Have I got Pernicious Anaemia?
I hope this isn't too long and/or too boring. I suspect I have PA but as with a lot of people here, no-one seems to take B12 deficiency seriously. I also have hypothyroidism so as my symptoms got increasingly worse over the past few years, I blamed my thyroid - the two conditions have many symptoms
I hope this isn't too long and/or too boring. I suspect I have PA but as with a lot of people here, no-one seems to take B12 deficiency seriously. I also have hypothyroidism so as my symptoms got increasingly worse over the past few years, I blamed my thyroid - the two conditions have many symptoms
Grannypants
in
Pernicious Anaemia Society
6 months ago
SIBO and antibiotics
l am now feeling so out of my depth. Having been screened and cleared for obvious causes I have seen an NHS Consultant who says I am positive for SIBO. I have tried to work with low fodmap diet previously but without much success. My test with lactose was “equivocal” but a following one with glucose
l am now feeling so out of my depth. Having been screened and cleared for obvious causes I have seen an NHS Consultant who says I am positive for SIBO. I have tried to work with low fodmap diet previously but without much success. My test with lactose was “equivocal” but a following one with glucose
Skyline4
in
IBS Network
6 months ago
HT weight gain
My husband will be starting hormone therapy <HT> prior to radiation treatment <RT>.The weight gain associated with HT is a concern. Any suggestions? Any medication available to assist with weight loss during HT? Inquisitive One
My husband will be starting hormone therapy <HT> prior to radiation treatment <RT>.The weight gain associated with HT is a concern. Any suggestions? Any medication available to assist with weight loss during HT? Inquisitive One
Inquisitive_one
in
Advanced Prostate Cancer
8 months ago
Update: post-radiation and New meds
Hello Friends and warriors! Dragonfly is updating the latestest treatment... Radiation to the sacrum and L5 (10 treatments) ended on Dec 4th but since then I've had a rollercoaster of side effects...mostly stiffness and muscle spasms that catch me unawares when I get up or sit down. I truly thought
Hello Friends and warriors! Dragonfly is updating the latestest treatment... Radiation to the sacrum and L5 (10 treatments) ended on Dec 4th but since then I've had a rollercoaster of side effects...mostly stiffness and muscle spasms that catch me unawares when I get up or sit down. I truly thought
Dragonfly2
in
SHARE Metastatic Breast Cancer
8 months ago
Avastin
Hi Has anyone been prescribed Avastin on the NHS? I'm paying 30000 a year for it and I don't understand why I have to pay I was diagnosed with peritoneal / tube cancer in 2021 stage 3c
Hi Has anyone been prescribed Avastin on the NHS? I'm paying 30000 a year for it and I don't understand why I have to pay I was diagnosed with peritoneal / tube cancer in 2021 stage 3c
Rosehannah7
in
My Ovacome
8 months ago
Seeking advise
Hi all, I have been diagnosed with MBC HER2 negative (mets to bones and lymph nodes). I am awaiting a brain CT scan and also another lymph node biopsy. Can anyone advise if they have heard of the below treatments or have had these treatments ( Chemoembolization and Dendritic cell therapy LANEX-DC
Hi all, I have been diagnosed with MBC HER2 negative (mets to bones and lymph nodes). I am awaiting a brain CT scan and also another lymph node biopsy. Can anyone advise if they have heard of the below treatments or have had these treatments ( Chemoembolization and Dendritic cell therapy LANEX-DC
Amk31
in
SHARE Metastatic Breast Cancer
8 months ago
Why would Active B12 blood test not be recognised by GP when I have lots of symptoms?
I had previously had a blood test for B12 which was apparently normal if a little low. I was told that no treatment was required.I continued to have most of the symptoms of a B12 deficiency so after 4 months and some research I paid for an Active B12 test which showed I was low. I took this to my doctor
I had previously had a blood test for B12 which was apparently normal if a little low. I was told that no treatment was required.I continued to have most of the symptoms of a B12 deficiency so after 4 months and some research I paid for an Active B12 test which showed I was low. I took this to my doctor
GSDLover17
in
Pernicious Anaemia Society
6 months ago
Advice moving forward?
So I recently had blood tests that showed low b12, iron and vit D. Was prescribed tablets for the iron and vit D. And put on a course of B12 loading doses. 6 injections over 2 weeks. it's now been 2 weeks after the last b12 injection and none of my symptoms have improved. When I talked to the gp,
So I recently had blood tests that showed low b12, iron and vit D. Was prescribed tablets for the iron and vit D. And put on a course of B12 loading doses. 6 injections over 2 weeks. it's now been 2 weeks after the last b12 injection and none of my symptoms have improved. When I talked to the gp,
Dan444
in
Pernicious Anaemia Society
6 months ago
fiddle mum- adrenals???
hi- diagnosed 12/21. Currently 2mg pred. Struggled through winter 2 lots antibiotics for chest infections. Finally think chest stuff is resolving. Stopped the 10mg maintenance dose of paroxetine (ssri) 6 weeks ago. Started well but now struggling a bit with anxiety and terrible nervous stomach- leading
hi- diagnosed 12/21. Currently 2mg pred. Struggled through winter 2 lots antibiotics for chest infections. Finally think chest stuff is resolving. Stopped the 10mg maintenance dose of paroxetine (ssri) 6 weeks ago. Started well but now struggling a bit with anxiety and terrible nervous stomach- leading
Fiddlemum
in
PMRGCAuk
6 months ago
B12 deficiency v. Ferritin deficiency
Hi everyone. Some of you may have come across one of my posts this week and may have interacted, but if not, hi 😊 I’ve been going through a lot of the posts on here looking for answers to my query before I post this, but haven’t seen anything that covers it. Is there anybody here that has suffered
Hi everyone. Some of you may have come across one of my posts this week and may have interacted, but if not, hi 😊 I’ve been going through a lot of the posts on here looking for answers to my query before I post this, but haven’t seen anything that covers it. Is there anybody here that has suffered
MLJ2024
in
Pernicious Anaemia Society
6 months ago
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