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Waiting on test results is often the hardest part
My Jeff had labs and a palliative care appointment. We are still reeling from the brain mets diagnosis, but I’m grateful to report that his pain is still reasonably managed. I’m typically the most vocal in his palliative care appointments as I strongly advocate for Jeff. As we waited for the doctor,
My Jeff had labs and a palliative care appointment. We are still reeling from the brain mets diagnosis, but I’m grateful to report that his pain is still reasonably managed. I’m typically the most vocal in his palliative care appointments as I strongly advocate for Jeff. As we waited for the doctor,
Pancake_Lefse
in
Advanced Prostate Cancer
3 years ago
Dry eyes & Vitamin B12
Hi, I have just come across an article online which I thought may be of interest to anyone who suffers from dry eyes as I do: [i]Vitamin B12 is a water-soluble vitamin that helps the body make DNA and nerve cells. Deficiency of this nutrient is associated with severe dry eye disease and eye pain, according
Hi, I have just come across an article online which I thought may be of interest to anyone who suffers from dry eyes as I do: [i]Vitamin B12 is a water-soluble vitamin that helps the body make DNA and nerve cells. Deficiency of this nutrient is associated with severe dry eye disease and eye pain, according
Moggy1234
in
Pernicious Anaemia Society
3 years ago
COLLAGEN POWDER
Hi I have SLE and have been trying to reduce my MTX and prednisolone doses, with some success. Our local health food store was suggesting a collagen supplement. Has anyone heard of adding collagen powder to smoothies or sprinkling on cereal as an aid to building connective tissue? I bought some anyway
Hi I have SLE and have been trying to reduce my MTX and prednisolone doses, with some success. Our local health food store was suggesting a collagen supplement. Has anyone heard of adding collagen powder to smoothies or sprinkling on cereal as an aid to building connective tissue? I bought some anyway
wallock
in
LUPUS UK
3 years ago
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PRESSURE IN HEAD & POSS. TED -Thyroid Eye Disease
Can too much or too little levothyroxine cause a pressure pain in your head & stiffness in your neck aswell as tinnitus & ear problems? Also if one eye is showing larger than the other on a regular basis with piercing pain can this be TED ? Thyroid Eye Disease ? I am at the moment on levothyroxine
Can too much or too little levothyroxine cause a pressure pain in your head & stiffness in your neck aswell as tinnitus & ear problems? Also if one eye is showing larger than the other on a regular basis with piercing pain can this be TED ? Thyroid Eye Disease ? I am at the moment on levothyroxine
Toto88
in
Thyroid UK
3 years ago
Dry eye gel for night time
After having had an awful week with my right eye, managed to get an appointment yesterday at the eye clinic, but only with a senior nurse. After lots of tests and a scan, she seems to think there isn't anything to worry about. The reflections around the eye that I have been experiencing, particularly
After having had an awful week with my right eye, managed to get an appointment yesterday at the eye clinic, but only with a senior nurse. After lots of tests and a scan, she seems to think there isn't anything to worry about. The reflections around the eye that I have been experiencing, particularly
Engima
in
Glaucoma UK
3 years ago
So upset
After 18 months of in an out of hospital and for tests and scans etc because they suspected SLE/ some autoimmune problem Recently went for bloods and on the slip it states :diagnosis: undifferentiated inflammatory condition. Today I receive a letter from rheumatology to say this.... Dear Jemma Diagnosis
After 18 months of in an out of hospital and for tests and scans etc because they suspected SLE/ some autoimmune problem Recently went for bloods and on the slip it states :diagnosis: undifferentiated inflammatory condition. Today I receive a letter from rheumatology to say this.... Dear Jemma Diagnosis
BabyOleg
in
LUPUS UK
3 years ago
Flecainide with Afib and LBBB?
Hello, In a bid to stop me going into Afib my electrophysiologist has stopped my very low dose of bisop for what I think says Diltiazen ER and flecainide 100mg bd. I was previously told by my cardiologist I should not take flecainide due to my LBBB. I did mention this to the EP, who said my heart function
Hello, In a bid to stop me going into Afib my electrophysiologist has stopped my very low dose of bisop for what I think says Diltiazen ER and flecainide 100mg bd. I was previously told by my cardiologist I should not take flecainide due to my LBBB. I did mention this to the EP, who said my heart function
IsobelBrown54
in
Atrial Fibrillation Support
3 years ago
LAMP test for SARS-CoV-2 being Piloted in UK Hospitals and students to reduce asymptomatic transmission.
"A technical and clinical evaluation has confirmed OptiGene RT-LAMP tests to be accurate and sensitive enough to be used for COVID-19 testing, including for those without symptoms." Loop-mediated isothermal amplification (LAMP) is a single-tube technique for the amplification of DNA and a low-cost, rapid
"A technical and clinical evaluation has confirmed OptiGene RT-LAMP tests to be accurate and sensitive enough to be used for COVID-19 testing, including for those without symptoms." Loop-mediated isothermal amplification (LAMP) is a single-tube technique for the amplification of DNA and a low-cost, rapid
Jm954
Administrator
in
CLL Support
3 years ago
Venetoclax and Stelara
Hello everyone, hope all is well? Just putting it out there if anyone has been on Venetoclax for their CLL and Stelara for Ulcerative Colitis at the sametime? Or can anyone recommend medication for Ulcerative Colitis while taking Venetoclax?
Hello everyone, hope all is well? Just putting it out there if anyone has been on Venetoclax for their CLL and Stelara for Ulcerative Colitis at the sametime? Or can anyone recommend medication for Ulcerative Colitis while taking Venetoclax?
Driverps1
in
CLL Support
3 years ago
A journey to come home
Around 3 weeks ago I put a post up asking for prayers. I want to thank you all for your thoughtful comments and keeping us in mind. I pray for you all daily. As an update, my dad is currently in palliative care at home. I wanted to provide a bit of back story on the situation - both the bad and good
Around 3 weeks ago I put a post up asking for prayers. I want to thank you all for your thoughtful comments and keeping us in mind. I pray for you all daily. As an update, my dad is currently in palliative care at home. I wanted to provide a bit of back story on the situation - both the bad and good
ArabianNights
in
Advanced Prostate Cancer
3 years ago
Routine Follow Up
I've had my AMD treated with Eylea injections, and recently I've not needed more injections, but I was still regularly followed up in outpatients (OPD). I was last seen in Feb/ 21, but since then I seemed to have fallen off their radar. I understood in Feb. I would be seen in 6 months, but to date
I've had my AMD treated with Eylea injections, and recently I've not needed more injections, but I was still regularly followed up in outpatients (OPD). I was last seen in Feb/ 21, but since then I seemed to have fallen off their radar. I understood in Feb. I would be seen in 6 months, but to date
fed13
in
Macular Society
3 years ago
Eylea injections as a maintenance therapy for Myopic CNV
Hi all, I have been having Lucentis injection for myopic CNV that I developed in May, I got 3 so far, at check in this week FA showed that my retina has dried up and there is no leakage/bleeding, however, my doctor suggested I do a maintenance series of injections with Eylea every two months. He wants
Hi all, I have been having Lucentis injection for myopic CNV that I developed in May, I got 3 so far, at check in this week FA showed that my retina has dried up and there is no leakage/bleeding, however, my doctor suggested I do a maintenance series of injections with Eylea every two months. He wants
Miss_Luce
in
Macular Society
3 years ago
Dry Eye drops
Didn't get much sleep last night due to my right eye burning and water pouring out for quite a while resulting in a wet face! I had a cataract op almost 8 weeks ago in that eye and it has ached ever since, plus keeps going blurry and have light reflection from the lamps in my house at night time. Rang
Didn't get much sleep last night due to my right eye burning and water pouring out for quite a while resulting in a wet face! I had a cataract op almost 8 weeks ago in that eye and it has ached ever since, plus keeps going blurry and have light reflection from the lamps in my house at night time. Rang
Engima
in
Glaucoma UK
3 years ago
My mother Irina
Hi all, My name is Roman and I'm from Melbourne Australia. I haven't posted much but have followed the forum since my mum being diagnosed with stage 3 high grade serious ovarian cancer in 2017. I think I've read every post since joining and feel as though I know many of the ladies on here. I can't tell
Hi all, My name is Roman and I'm from Melbourne Australia. I haven't posted much but have followed the forum since my mum being diagnosed with stage 3 high grade serious ovarian cancer in 2017. I think I've read every post since joining and feel as though I know many of the ladies on here. I can't tell
RomanZ
in
My Ovacome
3 years ago
Monopost/Latanaprost & palpitations at night
Hi everyone, I was prescribed Monopost eye drops for raised pressure behind the eyes, which I've had for years. I had an Iridotomy several years ago which kept the pressures under control for a while, then they increased again. Visual field tests always seem fine. In March this year the consultant
Hi everyone, I was prescribed Monopost eye drops for raised pressure behind the eyes, which I've had for years. I had an Iridotomy several years ago which kept the pressures under control for a while, then they increased again. Visual field tests always seem fine. In March this year the consultant
littlewren52
in
Glaucoma UK
3 years ago
Primary open-angle glaucoma
Hi everyone, I have just joined this group as I have very recently been diagnosed with the above and told I have a left disc haemorrhage. I have been looking on the internet, as you do, and have managed to terrify myself! I am also about to have cataracts removed from both eyes. Would love to hear from
Hi everyone, I have just joined this group as I have very recently been diagnosed with the above and told I have a left disc haemorrhage. I have been looking on the internet, as you do, and have managed to terrify myself! I am also about to have cataracts removed from both eyes. Would love to hear from
Spanieldoglover
in
Glaucoma UK
3 years ago
Lecicarbon A suppositories
I`ve been diagnosed with evacuatory dysfunction and last week saw a colorectal surgeon privately who has referred me for a proctogram but in the meantime suggested I should try Lecicarbon suppositories instead of glycerol. He didn`t give me a prescription but said I can buy them over the counter. Looking
I`ve been diagnosed with evacuatory dysfunction and last week saw a colorectal surgeon privately who has referred me for a proctogram but in the meantime suggested I should try Lecicarbon suppositories instead of glycerol. He didn`t give me a prescription but said I can buy them over the counter. Looking
janke
in
IBS Network
3 years ago
Surgical sperm retrieval recovery
Hi, My husband had SSR last week where they had to make an incision into both testicles. He’s still in pain but the clinic said yesterday that it’s quite normal and to monitor over the next week. Today we noticed on one side there is a lump under the stitches and the testicle on that side isn’t dropping
Hi, My husband had SSR last week where they had to make an incision into both testicles. He’s still in pain but the clinic said yesterday that it’s quite normal and to monitor over the next week. Today we noticed on one side there is a lump under the stitches and the testicle on that side isn’t dropping
JJSwansea
in
Fertility Network UK
3 years ago
Follow up care was NOT scheduled
Sooo … when I was looking at Jeff’s upcoming appointments, I was really concerned there was no sense of urgency in his follow up care for the brain metastasis. I couldn’t shake my concern and pleaded with Jeff to let me message his care team to find out why there was such a delay. Jeff finally consented
Sooo … when I was looking at Jeff’s upcoming appointments, I was really concerned there was no sense of urgency in his follow up care for the brain metastasis. I couldn’t shake my concern and pleaded with Jeff to let me message his care team to find out why there was such a delay. Jeff finally consented
Pancake_Lefse
in
Advanced Prostate Cancer
3 years ago
VERY WORRYING!
Cannot believe it. But on Monday when I had my cataract op in my left eye, one set of eye drops were not available. Was told they would be delivered on Wednesday, meaning I would miss a day. They did not arrive. Tried in vain to ring the pharmacy at the hospital yesterday afternoon and again this
Cannot believe it. But on Monday when I had my cataract op in my left eye, one set of eye drops were not available. Was told they would be delivered on Wednesday, meaning I would miss a day. They did not arrive. Tried in vain to ring the pharmacy at the hospital yesterday afternoon and again this
Engima
in
Glaucoma UK
3 years ago
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