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Palliative care - medications and routine
While most of our forum is focused on treatment, I thought it would be helpful for others to post our palliative care routine. Our current treatment has made a huge difference and greatly improved quality of life. My dad declined very suddenly with PCa on July 17. He has a unique situation with daily
While most of our forum is focused on treatment, I thought it would be helpful for others to post our palliative care routine. Our current treatment has made a huge difference and greatly improved quality of life. My dad declined very suddenly with PCa on July 17. He has a unique situation with daily
ArabianNights
in
Advanced Prostate Cancer
3 years ago
Feels like thin ice....
Yesterday I cut my Prednisone by 10mg. I've taken injections of Actemra on the 5th, 12th and yesterday. Last night I noticed bleeding in my left (blind) eye. It was a bit worse this a.m. so I made an appointment with the ophthalmologist. Not GCA-related, just severely dry eyes so I picked up another
Yesterday I cut my Prednisone by 10mg. I've taken injections of Actemra on the 5th, 12th and yesterday. Last night I noticed bleeding in my left (blind) eye. It was a bit worse this a.m. so I made an appointment with the ophthalmologist. Not GCA-related, just severely dry eyes so I picked up another
Grammy80
in
PMRGCAuk
3 years ago
Technology - a source of massive stress
Anyone else having this issue? I’m 78, a former university art instructor, and am finding myself increasingly stressed when having to deal with technology to get anything done - especially health care! Everything requires passwords, sign in IDs, and if you mess up you often have to go through the whole
Anyone else having this issue? I’m 78, a former university art instructor, and am finding myself increasingly stressed when having to deal with technology to get anything done - especially health care! Everything requires passwords, sign in IDs, and if you mess up you often have to go through the whole
Mstiles
in
PMRGCAuk
3 years ago
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More ?diagnosises more testing - no light at the end of the tunnel just yet.
Hey everyone! Sooo lots has happened since last coming online. Seen rheumatology who was happy to discharge me based on bloods returning back to normal. Then saw dermatology who took one look at my photos and my eyes that were currently in a bad flare and wanted to start me to hydroxy because she’s
Hey everyone! Sooo lots has happened since last coming online. Seen rheumatology who was happy to discharge me based on bloods returning back to normal. Then saw dermatology who took one look at my photos and my eyes that were currently in a bad flare and wanted to start me to hydroxy because she’s
BabyOleg
in
LUPUS UK
3 years ago
Graves & TED - RAI or Thyroidectomy
Hi, I have had Grave Disease for around 5 years now and in the beginning had high doses of Carbimazole, but for the last 3 1/2 years been on 5 mg per day and my thyroid has been completely stable. just as they were about to reduce Carbimazole further (3 years ago) I got Thyroid eye disease, which in
Hi, I have had Grave Disease for around 5 years now and in the beginning had high doses of Carbimazole, but for the last 3 1/2 years been on 5 mg per day and my thyroid has been completely stable. just as they were about to reduce Carbimazole further (3 years ago) I got Thyroid eye disease, which in
Darto76
in
Thyroid UK
3 years ago
The thyroid hormone converting enzyme human deiodinase 1 is inhibited by gold ions from inorganic salts, organic substances, ...
All that glisters… Not in the least clear whether this is likely to be of interest or significance to anyone. But I do think that the impact of anything on thyroid-related enzymes is an important avenue. [i]Chem Biol Interact . 2021 Oct 15;109709. doi: 10.1016/j.cbi.2021.109709. Online ahead of print
All that glisters… Not in the least clear whether this is likely to be of interest or significance to anyone. But I do think that the impact of anything on thyroid-related enzymes is an important avenue. [i]Chem Biol Interact . 2021 Oct 15;109709. doi: 10.1016/j.cbi.2021.109709. Online ahead of print
helvella
Thyroid UK
in
Thyroid UK
3 years ago
Fibro fog conundrum
Hi all. I'm having a difficult time at the moment. I've lost 3 family members directly from covid and 2 more indirectly due to delays and lack of services available. Anyways, suffice it to say the fibro is kicking my ass right now! I work for a company with ZERO confidentiality, that the majority of
Hi all. I'm having a difficult time at the moment. I've lost 3 family members directly from covid and 2 more indirectly due to delays and lack of services available. Anyways, suffice it to say the fibro is kicking my ass right now! I work for a company with ZERO confidentiality, that the majority of
Lizangellus
in
Fibromyalgia Action UK
3 years ago
Worried
Have just had narrow angle glaucoma diagnosed with came as a real shock as I have no family history (identical twin also does not have it) and I lead a healthy life style. I do have dry eyes, and have been prescribed Latanoprost. This product has been really problematic for me and has exacerbated the
Have just had narrow angle glaucoma diagnosed with came as a real shock as I have no family history (identical twin also does not have it) and I lead a healthy life style. I do have dry eyes, and have been prescribed Latanoprost. This product has been really problematic for me and has exacerbated the
Gaulloise
in
Glaucoma UK
3 years ago
Generally feeling down
Hello. I haven't popped in here for ages. I received my TBI in 2005, when I fell off my bicycle in France. After 18 nonths off work, I went back to my job as a university lecturer, and I was happy there for 10 years, but then the department closed down. I tried to move into school teaching, but as I
Hello. I haven't popped in here for ages. I received my TBI in 2005, when I fell off my bicycle in France. After 18 nonths off work, I went back to my job as a university lecturer, and I was happy there for 10 years, but then the department closed down. I tried to move into school teaching, but as I
Flumptious
in
Headway
3 years ago
What a lovely Saturday it is for October..........
Well good morning(well it was still morning when i started tyoing this) ANd how are we all on this warm October day. It is so unseasonal for the time of the year isn't it. Well this morning Bob dropped me up the village while he went down the allotment and did some digging. I got the shopping and came
Well good morning(well it was still morning when i started tyoing this) ANd how are we all on this warm October day. It is so unseasonal for the time of the year isn't it. Well this morning Bob dropped me up the village while he went down the allotment and did some digging. I got the shopping and came
sylvi
in
NRAS
3 years ago
Any help or advice please
Thank you to everyone who answered my first post on here I'm sorry I didn't answer you all . I have been having a lot of different health problems for a long time, years, a lot of which overlap each other, with various different diagnosis and various different specialists and to be honest I am feeling
Thank you to everyone who answered my first post on here I'm sorry I didn't answer you all . I have been having a lot of different health problems for a long time, years, a lot of which overlap each other, with various different diagnosis and various different specialists and to be honest I am feeling
Lucy5555
in
PMRGCAuk
3 years ago
We want to hear from YOU! - Understanding Palliative Care for Cancer Patients
Palliative care is an incredibly important approach that improves the quality of life for patients with life-threatening illnesses. SHARE will be publishing a two part series in which Dr. Josef Hannah, Palliative Medical Doctor at Stanford Health Care, and Ilene Kaminsky, patient advocate, MBC endurer
Palliative care is an incredibly important approach that improves the quality of life for patients with life-threatening illnesses. SHARE will be publishing a two part series in which Dr. Josef Hannah, Palliative Medical Doctor at Stanford Health Care, and Ilene Kaminsky, patient advocate, MBC endurer
alisha_share
in
SHARE Uterine Cancer Support
3 years ago
We want to hear from YOU! - Understanding Palliative Care for Cancer Patients
Palliative care is an incredibly important approach that improves the quality of life for patients with life-threatening illnesses. SHARE is publishing a 2-part series in which Dr. Josef Hannah, Palliative Medical Doctor at Stanford Health Care, and Ilene Kaminsky, patient advocate, MBC endurer, healing
Palliative care is an incredibly important approach that improves the quality of life for patients with life-threatening illnesses. SHARE is publishing a 2-part series in which Dr. Josef Hannah, Palliative Medical Doctor at Stanford Health Care, and Ilene Kaminsky, patient advocate, MBC endurer, healing
alisha_share
in
SHARE Ovarian Cancer Support
3 years ago
We want to hear from YOU! - Understanding Palliative Care for Cancer Patients
Palliative care is an incredibly important approach that improves the quality of life for patients with life-threatening illnesses. SHARE is publishing a 2-part series in which Dr. Josef Hannah, Palliative Medical Doctor at Stanford Health Care, and Ilene Kaminsky, patient advocate, MBC endurer, healing
Palliative care is an incredibly important approach that improves the quality of life for patients with life-threatening illnesses. SHARE is publishing a 2-part series in which Dr. Josef Hannah, Palliative Medical Doctor at Stanford Health Care, and Ilene Kaminsky, patient advocate, MBC endurer, healing
alisha_share
in
SHARE Metastatic Breast Cancer
3 years ago
We want to hear from YOU! - Understanding Palliative Care for Cancer Patients
Palliative care is an incredibly important approach that improves the quality of life for patients with life-threatening illnesses. In this two part series Dr. Josef Hannah, Palliative Medical Doctor at Stanford Health Care, and Ilene Kaminsky, patient advocate, MBC endurer, healing circles practitioner
Palliative care is an incredibly important approach that improves the quality of life for patients with life-threatening illnesses. In this two part series Dr. Josef Hannah, Palliative Medical Doctor at Stanford Health Care, and Ilene Kaminsky, patient advocate, MBC endurer, healing circles practitioner
alisha_share
in
SHARE Breast Cancer Support
3 years ago
Does anyone know where I can get advice/help/support specific to 'Bile Acid Malabsorption' (aside from Online Sites)?
I am struggling very badly and it is destroying my life alongside with my other health conditions. Am I allowed to ask for personal recommendations? (ignore if not) There are various conflicts with diet regarding diabetes and BAM and my stress is also increased re other conditions. Is there a helpline
I am struggling very badly and it is destroying my life alongside with my other health conditions. Am I allowed to ask for personal recommendations? (ignore if not) There are various conflicts with diet regarding diabetes and BAM and my stress is also increased re other conditions. Is there a helpline
Houseofpain
in
IBS Network
3 years ago
Problems with cataract replacement in 1 eye with multi focal lens …
Hello, I’m new to this community as I usually post on the NRAS as I have rheumatoid arthritis and the lovely souls there’s signposted me to you 😊 I’m hoping to find some shared experiences/ help please… I had a multifocal lens replacement 4 weeks ago in my right eye. The left eye has the starts of
Hello, I’m new to this community as I usually post on the NRAS as I have rheumatoid arthritis and the lovely souls there’s signposted me to you 😊 I’m hoping to find some shared experiences/ help please… I had a multifocal lens replacement 4 weeks ago in my right eye. The left eye has the starts of
Rosie_rabbit
in
Macular Society
3 years ago
Disorientated after cataract replacement in 1 eye with multifocal lens
Very off topic here but hoping to find some shared experiences/ help please… I had a multifocal lens replacement 4 weeks ago in my right eye. The left eye has the starts of a cataract but isn’t impairing my vision right now so the surgeon said that as I’m young for a cataract replacement, 53yrs, it increases
Very off topic here but hoping to find some shared experiences/ help please… I had a multifocal lens replacement 4 weeks ago in my right eye. The left eye has the starts of a cataract but isn’t impairing my vision right now so the surgeon said that as I’m young for a cataract replacement, 53yrs, it increases
Rosie_rabbit
in
NRAS
3 years ago
How are you ?
Hello all my friends on here, are you all keeping well ? My eyesight was slightly blurred pre trab surgery, still is, only a bit worse with the odd ache, dry eye which I am taking drops for, it feels like the eye ball has a slightly obscure film over it, but apart from that quite well, so no real problems
Hello all my friends on here, are you all keeping well ? My eyesight was slightly blurred pre trab surgery, still is, only a bit worse with the odd ache, dry eye which I am taking drops for, it feels like the eye ball has a slightly obscure film over it, but apart from that quite well, so no real problems
floki7
in
Glaucoma UK
3 years ago
Pressure on eye while reading and watching tv , is common in GCA ?
My wife 71 on actemra and prednisone from last 3 months for GCA . On watching tv or reading , she get pressure on eye and ear . Eye are checked by two eye dr it seems normal . Is this can be due to GCA ? Is this normally experienced by GCA patients ? What other main irritable symptoms continue and experience
My wife 71 on actemra and prednisone from last 3 months for GCA . On watching tv or reading , she get pressure on eye and ear . Eye are checked by two eye dr it seems normal . Is this can be due to GCA ? Is this normally experienced by GCA patients ? What other main irritable symptoms continue and experience
Rajuguide
in
PMRGCAuk
3 years ago
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