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Lupus questions
Good afternoon, My doctor has been helping me with some ongoing symptoms, and following a positive ANA test has now referred me to a rheumatologist, theorising I may have Lupus. Anti-nuclear factor level POSITIVE - Titre > 1:640 ANA PATTERN SPECKLED My symptoms are: - mild arthritis in my neck, back
Good afternoon, My doctor has been helping me with some ongoing symptoms, and following a positive ANA test has now referred me to a rheumatologist, theorising I may have Lupus. Anti-nuclear factor level POSITIVE - Titre > 1:640 ANA PATTERN SPECKLED My symptoms are: - mild arthritis in my neck, back
EllsBells591
in
LUPUS UK
6 months ago
Buprenorphine side effects
I have successfully blocked my long standing RLS by use of buprenorphine at the cost of quite severe nausea and whilst I have had good sound advice from Joolsg, 707twitcher, Lotte M and others on this matter I am interested to know of other peoples experiences on this problem My main problems are Nausea
I have successfully blocked my long standing RLS by use of buprenorphine at the cost of quite severe nausea and whilst I have had good sound advice from Joolsg, 707twitcher, Lotte M and others on this matter I am interested to know of other peoples experiences on this problem My main problems are Nausea
davchar23
in
Restless Legs Syndrome
3 months ago
Urso Calculator
https://www.pbcfoundation.org.uk/what-is-pbc/urso-calculator/ Urso dosage is ONLY based on your body weight - [u][i]
never
[/i][/u] lab results or increase of symptoms. It is so important to take the right dose. This can often be a reason for no decrease in elevated liver enzymes. Look to see
https://www.pbcfoundation.org.uk/what-is-pbc/urso-calculator/ Urso dosage is ONLY based on your body weight - [u][i]
never
[/i][/u] lab results or increase of symptoms. It is so important to take the right dose. This can often be a reason for no decrease in elevated liver enzymes. Look to see
DonnaBoll
Administrator
in
PBC Foundation
4 months ago
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Two recent FDA Approvals
Hi everyone, I just wanted to share about two recent approvals. Sorry for my delaying in posting this. On October 11th the FDA made an approval for those with stage IV NSCLC with a BRAF V600E mutation. Here is a link to read more: https://go2.org/blog/fda-approves-combination-braftovi-and-mektovi-for-metastatic-non-small-cell-lung-cancer-for-individuals-with-a-braf-v600e-mutation
Hi everyone, I just wanted to share about two recent approvals. Sorry for my delaying in posting this. On October 11th the FDA made an approval for those with stage IV NSCLC with a BRAF V600E mutation. Here is a link to read more: https://go2.org/blog/fda-approves-combination-braftovi-and-mektovi-for-metastatic-non-small-cell-lung-cancer-for-individuals-with-a-braf-v600e-mutation
Miranda_GO2
Partner
in
Lung Cancer Support
8 months ago
Post COVID UC flare - Mezavant probs
Hi I'm new, feeling a bit scared as it's Christmas time and my gastro not back til 8 January. I had COVID mid November, very nauseous and some diahhrea and very soft sticky stool. Mild proctosigmoiditis (low down UC) for 30 years. Been off meds for 20 years until now. Following COVID my bowel symptoms
Hi I'm new, feeling a bit scared as it's Christmas time and my gastro not back til 8 January. I had COVID mid November, very nauseous and some diahhrea and very soft sticky stool. Mild proctosigmoiditis (low down UC) for 30 years. Been off meds for 20 years until now. Following COVID my bowel symptoms
Bunnygirl1
in
Crohn's and Colitis Support
6 months ago
cancer marker 15-3
My moms marker went up from 163 to 332 . She started her second line treatment about 7 weeks ago after being on Ibrance and Femara for around 2 and half years. She is now on faslodex and anfintor. Does this mean its not working ? And if it’s not will they change both meds or just one of them? Thank
My moms marker went up from 163 to 332 . She started her second line treatment about 7 weeks ago after being on Ibrance and Femara for around 2 and half years. She is now on faslodex and anfintor. Does this mean its not working ? And if it’s not will they change both meds or just one of them? Thank
Flower1513
in
SHARE Metastatic Breast Cancer
8 months ago
Curcumin Interactions with Abiraterone
Curcumin has so many good benefits that would help to cope with ADT side effects. Does Curcumin interefers with ADT (Lupron+Zytiga)? Does anyone taking Curcumin while on Hormone Therapy? Please, share the information. Thank you.
Curcumin has so many good benefits that would help to cope with ADT side effects. Does Curcumin interefers with ADT (Lupron+Zytiga)? Does anyone taking Curcumin while on Hormone Therapy? Please, share the information. Thank you.
FightCancer101
in
Advanced Prostate Cancer
7 months ago
Alverine and/or Simalvia - (which is alverine citrate with simethicone.) Side effects.
I have recently been put on these. I have found that both the standard alverine citrate, which I had tried first, now the Simalvia, cause feelings of extreme anxiety about an hour after taking the tablet! Weird and not listed in the side effects. So far it seems ineffective on the pain anyway. Would
I have recently been put on these. I have found that both the standard alverine citrate, which I had tried first, now the Simalvia, cause feelings of extreme anxiety about an hour after taking the tablet! Weird and not listed in the side effects. So far it seems ineffective on the pain anyway. Would
emmjay77
in
IBS Network
6 months ago
Not where I expected to be
Hello to all, After my recent dx...shock...I decided to read other posts before I shared my story. I appreciate hearing about the travelling and CTGirl1962 mentioned handling this like a chronic illness... I have been a breast cancer survivor since 2010. That year my birthday present was having a
Hello to all, After my recent dx...shock...I decided to read other posts before I shared my story. I appreciate hearing about the travelling and CTGirl1962 mentioned handling this like a chronic illness... I have been a breast cancer survivor since 2010. That year my birthday present was having a
Hoehn
in
SHARE Metastatic Breast Cancer
8 months ago
Update - friend with bronchogenic adenocarcinoma
Hello all, Thanks again for your replies to my original post as a newbie for a friend. She saw her rad/onc today and the PET results are encouraging! No cancer showed up outside the lungs. He recommends she see a thoracic surgeon for her 5 cm mass (golf-tennis ball size) to see if she is a candidate
Hello all, Thanks again for your replies to my original post as a newbie for a friend. She saw her rad/onc today and the PET results are encouraging! No cancer showed up outside the lungs. He recommends she see a thoracic surgeon for her 5 cm mass (golf-tennis ball size) to see if she is a candidate
marcyh
in
Lung Cancer Support
8 months ago
IBS meds not working....
Hello, I have been struggling with an IBS flare for 3 months, I'm taking Alverine and Peppermint capsules. My GP has checked for celiac disease which thankfully was normal, had my poo checked twice, bloods are fine except for inflammation markers slightly raised, checked my thyroid but it's fine as
Hello, I have been struggling with an IBS flare for 3 months, I'm taking Alverine and Peppermint capsules. My GP has checked for celiac disease which thankfully was normal, had my poo checked twice, bloods are fine except for inflammation markers slightly raised, checked my thyroid but it's fine as
Kooks
in
IBS Network
6 months ago
looking for reassurance or advice
Hello warriors, After exactly 2 years of happily dropping PSA numbers on triplet therapy, my husbands PSA went up this month from .91. To .94 I know MO will say to wait for 3 months of rising PSA before we should panic, but that’s easy for him to say… looking for reassurance as we wait for next months
Hello warriors, After exactly 2 years of happily dropping PSA numbers on triplet therapy, my husbands PSA went up this month from .91. To .94 I know MO will say to wait for 3 months of rising PSA before we should panic, but that’s easy for him to say… looking for reassurance as we wait for next months
Bspouse
in
Advanced Prostate Cancer
8 months ago
Cutie Capers
Hello EveryoneI thought it was time for a fun cutie pic and i hope you all agree it delivers. This was my expression when my local hospital rang to offer me a gallbladder cancellation for 15/3 which is this coming friday!!. Just couldn't believe it really as been waiting so long. 🤞it isn't changed
Hello EveryoneI thought it was time for a fun cutie pic and i hope you all agree it delivers. This was my expression when my local hospital rang to offer me a gallbladder cancellation for 15/3 which is this coming friday!!. Just couldn't believe it really as been waiting so long. 🤞it isn't changed
misty14
in
LUPUS UK
4 months ago
Wife getting MMR vaccine booster - isolate or not?
I'm an SLL patient, 55 years old, now about 2.5 years into remission after 6 FCR treatments. I just recovered from a recent (and thankfully mild) bout of shingles. My shingles was so mild that my GP wasn't convinced it actually was shingles! She had me tested for herpes zoster antibodies, and for good
I'm an SLL patient, 55 years old, now about 2.5 years into remission after 6 FCR treatments. I just recovered from a recent (and thankfully mild) bout of shingles. My shingles was so mild that my GP wasn't convinced it actually was shingles! She had me tested for herpes zoster antibodies, and for good
xpro3
in
CLL Support
4 months ago
Stronger sense of taste on Urso
Has anyone here noticed a stronger sense of taste whilst taking Urso? Specifically sweet and salty tastes seem much stronger since I have been taking them.
Has anyone here noticed a stronger sense of taste whilst taking Urso? Specifically sweet and salty tastes seem much stronger since I have been taking them.
MSJT
in
PBC Foundation
6 months ago
interesting Xeloda trial
Hi friends, I listened to a presentation summarizing reports from ASCO 2023 related to MBC, and what really interested me was that for Xeloda, a fixed dose taken one week on/one week off, produced as good results as current standard of care with fewer side effects. Also: cream form of Voltaren/diclofenac
Hi friends, I listened to a presentation summarizing reports from ASCO 2023 related to MBC, and what really interested me was that for Xeloda, a fixed dose taken one week on/one week off, produced as good results as current standard of care with fewer side effects. Also: cream form of Voltaren/diclofenac
HelenWi
in
SHARE Metastatic Breast Cancer
8 months ago
Biopsy 8-month Change - progression or sampling differences?
2/2023, MRI showed 1 large (2.4cm) lesion pirads 5. Gleason 6 in 8 of 12 systemic cores and 4 of 4 targeted cores. 10/2023 Repeat MRI-Biopsy: MRI showed lesion #1 same as previous. Also new lesion #2 0.8mm pirads 4-5. Biopsy with bilateral gleason 3+4 in 5 of 12 systemic cores, 1 of these gleason
2/2023, MRI showed 1 large (2.4cm) lesion pirads 5. Gleason 6 in 8 of 12 systemic cores and 4 of 4 targeted cores. 10/2023 Repeat MRI-Biopsy: MRI showed lesion #1 same as previous. Also new lesion #2 0.8mm pirads 4-5. Biopsy with bilateral gleason 3+4 in 5 of 12 systemic cores, 1 of these gleason
adventure4me
in
Prostate Cancer Network
8 months ago
Clinical Trial Considerations??
I’ve been presented with a clinical trial and I’m open to feedback. Background: I’m 71 and in pretty good health. I was diagnosed with two Gleason 6 lesions in late 2021 and went on AS. At that point, PSA was in the low 4’s. Earlier this year, PSA rose to 6.7. MRI and guided biopsy uncovered one Gleason
I’ve been presented with a clinical trial and I’m open to feedback. Background: I’m 71 and in pretty good health. I was diagnosed with two Gleason 6 lesions in late 2021 and went on AS. At that point, PSA was in the low 4’s. Earlier this year, PSA rose to 6.7. MRI and guided biopsy uncovered one Gleason
CubFan
in
Prostate Cancer Network
8 months ago
Functional B12 problem, advice wanted
Hi Over the last 20 odd years I got very sick with lots of the typical PA symptoms. I was virtually housebound and incapable of any physical activity, with lots of neurological problems, muscle wasting, anemia etc. These were so pronounced that I received a preliminary (incorrect) diagnosis of motor
Hi Over the last 20 odd years I got very sick with lots of the typical PA symptoms. I was virtually housebound and incapable of any physical activity, with lots of neurological problems, muscle wasting, anemia etc. These were so pronounced that I received a preliminary (incorrect) diagnosis of motor
Uluru72
in
Pernicious Anaemia Society
6 months ago
PT-112 Immunotherapy Trial
Hi fellow travelers, Maxone73posted this sumary of interesting developments yesterday: https://healthunlocked.com/advanced-prostate-cancer/posts/150097372/new-hopes-we-all-need-them-on-a-monday So I thought that I would raise my my hand and say “I’m on the trial!” It’s NCT02266745, and here’s the
Hi fellow travelers, Maxone73posted this sumary of interesting developments yesterday: https://healthunlocked.com/advanced-prostate-cancer/posts/150097372/new-hopes-we-all-need-them-on-a-monday So I thought that I would raise my my hand and say “I’m on the trial!” It’s NCT02266745, and here’s the
TeleGuy
in
Advanced Prostate Cancer
8 months ago
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