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Any advice
Hi I’ve gone down a very long road of years of pain swelling but Ana negative. Over a year ago I started with pleural effusion bilateral then pericardial effusion, respiratory kept saying connective tissue disease. February rheumatologist got involved and started me on 20mg prednisone, I’m now on 10mg
Hi I’ve gone down a very long road of years of pain swelling but Ana negative. Over a year ago I started with pleural effusion bilateral then pericardial effusion, respiratory kept saying connective tissue disease. February rheumatologist got involved and started me on 20mg prednisone, I’m now on 10mg
Numptybrain
in
NRAS
5 months ago
Scan shows spreading despite chemo but surgery going ahead..confused 🤔
Hello alI I have stage 4 clear cell carcinoma, had a scan this week and got the results today. My gynae nurse said she could only tell me what was written on a scrap bit of paper which left me with more questions than answers (not impressed with this). I will call again next week but meantime wondered
Hello alI I have stage 4 clear cell carcinoma, had a scan this week and got the results today. My gynae nurse said she could only tell me what was written on a scrap bit of paper which left me with more questions than answers (not impressed with this). I will call again next week but meantime wondered
Kazzh
in
My Ovacome
7 months ago
low b12 - When will this improve?
I have low B12 - 188 Iron Serum- 11 ( just under normal) Folate is 3.6 Iron serum 110 Vitamin D - 65 Went to doctor due to pins and needles in feet and hands and some fatigue, some headaches and waves of sadness . Suspected it was low Vitamin d or b12 as I had low b12 back in 2021 ( 101)
I have low B12 - 188 Iron Serum- 11 ( just under normal) Folate is 3.6 Iron serum 110 Vitamin D - 65 Went to doctor due to pins and needles in feet and hands and some fatigue, some headaches and waves of sadness . Suspected it was low Vitamin d or b12 as I had low b12 back in 2021 ( 101)
Damacian
in
Pernicious Anaemia Society
5 months ago
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New member here. Looking to commiserate with other IBS sufferers about how they are dealing with symptoms. I’ve been told that a lot of this (bloating, constipation) is brought on by stress. But then you start “doomscrolling” to better understand your symptoms and you see all kinds of stories of people
New member here. Looking to commiserate with other IBS sufferers about how they are dealing with symptoms. I’ve been told that a lot of this (bloating, constipation) is brought on by stress. But then you start “doomscrolling” to better understand your symptoms and you see all kinds of stories of people
AgateGuy
in
IBS Network
5 months ago
confused
Hi ladies So….. I had my scan results from 23rd December yesterday . I was told by Onc nurse that the cancer was stable ( it is inoperable) My CA125 at diagnosis back in March 23 was 9000 but during chemo treatment there was a steady decline and prior to the scan it stood at 2000. I don’t understand
Hi ladies So….. I had my scan results from 23rd December yesterday . I was told by Onc nurse that the cancer was stable ( it is inoperable) My CA125 at diagnosis back in March 23 was 9000 but during chemo treatment there was a steady decline and prior to the scan it stood at 2000. I don’t understand
Beaver54
in
My Ovacome
7 months ago
QoL: Moonrise at a liminal place No. 2
I painted three versions of this mixed media work, being drawn repeatedly to the reference photograph. It is a place called Cwmtudu (pronounced Coom-ti-di to my American and, I imagine, most of my English friends here), and here we are looking down jnto the valley from a rocky outcrop on some clifftops
I painted three versions of this mixed media work, being drawn repeatedly to the reference photograph. It is a place called Cwmtudu (pronounced Coom-ti-di to my American and, I imagine, most of my English friends here), and here we are looking down jnto the valley from a rocky outcrop on some clifftops
BrentW
in
Advanced Prostate Cancer
5 months ago
B12 Side effects
At my last blood take the Serum & Folate B12 reading was 278 ng/L and have been prescribed Cyanoco B12 100mcg tablets one per day Since taking B12 my skin has been alive with irritation, in particular my back - is this usual?
At my last blood take the Serum & Folate B12 reading was 278 ng/L and have been prescribed Cyanoco B12 100mcg tablets one per day Since taking B12 my skin has been alive with irritation, in particular my back - is this usual?
LONGEATON
in
Thyroid UK
5 months ago
Intrinsic factor
I seem to be at a sticking point with the findings of the intrinsic factor test. This is due to the way they now interpret the test results. My test result was Au/ml 1.63 ... Which I jumped with joy over as I thought "at last, this proves I have been telling the truth". How wrong I was. It is no longer
I seem to be at a sticking point with the findings of the intrinsic factor test. This is due to the way they now interpret the test results. My test result was Au/ml 1.63 ... Which I jumped with joy over as I thought "at last, this proves I have been telling the truth". How wrong I was. It is no longer
Allywales8663
in
Pernicious Anaemia Society
4 months ago
Itchy red rash on stomach under breasts on back and hips
Hi there I'm still waiting on thyroid bloods, but just so I if anyone has ever experienced this? I have had this happen to me alot over the past 2 years as recently as yesterday.. Its starting to fade now. Some are spots like hives but mostly red itchy rash. Thanks x
Hi there I'm still waiting on thyroid bloods, but just so I if anyone has ever experienced this? I have had this happen to me alot over the past 2 years as recently as yesterday.. Its starting to fade now. Some are spots like hives but mostly red itchy rash. Thanks x
madeline05
in
Thyroid UK
7 months ago
ANA test results
Hi, I’m reaching out in the hope someone is able to help me translate my ANA blood tests. I’ve had symptoms for over a year, predominantly fatigue/exhaustion, painful joints, mouth sores, feet that turn purple when cold (I also have a coeliac disease diagnosis from 2015). My results are back on
Hi, I’m reaching out in the hope someone is able to help me translate my ANA blood tests. I’ve had symptoms for over a year, predominantly fatigue/exhaustion, painful joints, mouth sores, feet that turn purple when cold (I also have a coeliac disease diagnosis from 2015). My results are back on
PurpleKoala24
in
LUPUS UK
4 months ago
Sacituzumab govitecan
I recently had more scans and unfortunately my cancer has spread to my lungs and more in my liver.My bone mets are not to bad but two active ones in my T2 and Right hip even though I had recently had radiotherapy on them again for palliative pain relief. I have been on four lines of treatment in 17 months
I recently had more scans and unfortunately my cancer has spread to my lungs and more in my liver.My bone mets are not to bad but two active ones in my T2 and Right hip even though I had recently had radiotherapy on them again for palliative pain relief. I have been on four lines of treatment in 17 months
Cherry38
in
SHARE Metastatic Breast Cancer
7 months ago
Xeloda Anxiety
I was supposed to begin Xeloda today. For some reason, I am paranoid. First, I'm thinking my dose is too high. I weigh 168 pounds, 5’4” and my team has me scheduled to take 2000 mg twice a day. I think that’s a lot. Anyone else similar in size to me taking this high of a dose? Am I just paranoid. I
I was supposed to begin Xeloda today. For some reason, I am paranoid. First, I'm thinking my dose is too high. I weigh 168 pounds, 5’4” and my team has me scheduled to take 2000 mg twice a day. I think that’s a lot. Anyone else similar in size to me taking this high of a dose? Am I just paranoid. I
CTGirl1962
in
SHARE Metastatic Breast Cancer
7 months ago
Polyps and IUI
At my baseline scan last week a 3mm polyp was found on my lining, it wasn't there on my first round of IUI, which resulted in a BFN, but has appeared this time round. I am now in the difficult position of deciding whether to carry on with round two, due to surge tomorrow or Saturday, or to stop and investigate
At my baseline scan last week a 3mm polyp was found on my lining, it wasn't there on my first round of IUI, which resulted in a BFN, but has appeared this time round. I am now in the difficult position of deciding whether to carry on with round two, due to surge tomorrow or Saturday, or to stop and investigate
Lostinmaze
in
Fertility Network UK
5 months ago
Heartburn
I know that PPIs are taboo but what about famotidine and it's cousins? I am in need of something longer lasting than Gaviscon. Thanks.
I know that PPIs are taboo but what about famotidine and it's cousins? I am in need of something longer lasting than Gaviscon. Thanks.
Whippetmama
in
Restless Legs Syndrome
5 months ago
treatment for rectal bleeding/hemorrhoids?
It’s now May 2024 and I’ve had a total of two colonoscopies and one sigmoidoscopy since 2020 and they have found the following: hypertrophic anal papillae(basically a benign fibrous polyp that many gi doctors regard as a skin tag), internal hemorrhoids and one external friable hemorrhoid, small divericula
It’s now May 2024 and I’ve had a total of two colonoscopies and one sigmoidoscopy since 2020 and they have found the following: hypertrophic anal papillae(basically a benign fibrous polyp that many gi doctors regard as a skin tag), internal hemorrhoids and one external friable hemorrhoid, small divericula
digar
in
Colon Cancer Connected
5 months ago
B1 Thiamine
Current Trial (7 Days); 1.5mg methylcobalamin 3mg/ml, 1.5mg adenosylcobalamin 3mg/ml, 1mg hydroxocobalamin 1mg/ml. SC injection 5-6 times a day including setting an alarm to inject at night if warranted. 50 mg B6 in the form of P-5-P three times a day or pain from peripheral nephropathy returns. Benfotiamin
Current Trial (7 Days); 1.5mg methylcobalamin 3mg/ml, 1.5mg adenosylcobalamin 3mg/ml, 1mg hydroxocobalamin 1mg/ml. SC injection 5-6 times a day including setting an alarm to inject at night if warranted. 50 mg B6 in the form of P-5-P three times a day or pain from peripheral nephropathy returns. Benfotiamin
WIZARD6787
in
Pernicious Anaemia Society
5 months ago
NOT SURE
Hey all, I am new to this forum. I have had a lot of health issues over the last 4 years with my heart. During a PET scan of the heart the tests showed a "hot spot" on my ovary. The SUV is 3.9, the mass is on a 3.5cm ovarian cyst and is 1.5 cm soft tissue. I also had a CT back in 2020 that revealed
Hey all, I am new to this forum. I have had a lot of health issues over the last 4 years with my heart. During a PET scan of the heart the tests showed a "hot spot" on my ovary. The SUV is 3.9, the mass is on a 3.5cm ovarian cyst and is 1.5 cm soft tissue. I also had a CT back in 2020 that revealed
Gigioffour
in
My Ovacome
7 months ago
Feeling a greasy taste
I have been feeling greasy taste in my mouth for about a week now, I'm taking Ciprotab. Please can it cause it and what should I do to resolve it
I have been feeling greasy taste in my mouth for about a week now, I'm taking Ciprotab. Please can it cause it and what should I do to resolve it
ToniaC
in
PMRGCAuk
5 months ago
Mother Diagnosed with Stage 4 OC, recurrence, now liver traces
Hi everyone, looking for advice/suggestions: My Mother currently fighting stage 4 Ovarian Cancer recurrence (high grade Serous Carcinoma) first diagnosed in January 2022. Started Chemo in Feb, 2022, got a Full Hysterectomy surgery and received Hipec chemotherapy, was free of cancer by August only
Hi everyone, looking for advice/suggestions: My Mother currently fighting stage 4 Ovarian Cancer recurrence (high grade Serous Carcinoma) first diagnosed in January 2022. Started Chemo in Feb, 2022, got a Full Hysterectomy surgery and received Hipec chemotherapy, was free of cancer by August only
akhilsalwan
in
My Ovacome
7 months ago
Mother Diagnosed with Stage 4 OC - Recurrence, now Liver traces
Hi everyone, looking for advice/suggestions: My Mother currently fighting stage 4 Ovarian Cancer recurrence (high grade Serous Carcinoma) first diagnosed in January 2022. Started Chemo in Feb, 2022, got a Full Hysterectomy surgery and received Hipec chemotherapy, was free of cancer by August only to
Hi everyone, looking for advice/suggestions: My Mother currently fighting stage 4 Ovarian Cancer recurrence (high grade Serous Carcinoma) first diagnosed in January 2022. Started Chemo in Feb, 2022, got a Full Hysterectomy surgery and received Hipec chemotherapy, was free of cancer by August only to
akhilsalwan
in
OvaCare
7 months ago
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