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How often do we need bone scans if we are taking Low Molecular Weight Heparin ?
Also have any of you had significant bone loss. I take the calcium tablets that have Ben subscribed. I haven't been to see my consultant in London for a couple of years mainly because of the cost. I will go later this year though. I could get gp to refer me for dexa scan before then if I should be
Also have any of you had significant bone loss. I take the calcium tablets that have Ben subscribed. I haven't been to see my consultant in London for a couple of years mainly because of the cost. I will go later this year though. I could get gp to refer me for dexa scan before then if I should be
Annslack
in
Hughes Syndrome APS Forum
11 years ago
I am wondering about long term effects of Group B Strep
My son was born on April 4, 2013. He seemed totally normal and healthy. Within hours he was grunting, crying and wouldn't latch. He was evaluated and admitted to the NICU. The GBS culture grew positive in 8 hours (this is crazy to me because he is my 3rd child and every GBS test I received with each
My son was born on April 4, 2013. He seemed totally normal and healthy. Within hours he was grunting, crying and wouldn't latch. He was evaluated and admitted to the NICU. The GBS culture grew positive in 8 hours (this is crazy to me because he is my 3rd child and every GBS test I received with each
elizap123
in
Group B Strep Support
11 years ago
Just been diagnosed.
My story is that in February this year, 2013 I experienced a full feeling in my ear and some loss of hearing. After suffering from excesive ear wax in previous years I thought that may have been the problem. It wasn't. Soon after the hearing loss I noticed a lack of balance, generally feeling 'tipsy
My story is that in February this year, 2013 I experienced a full feeling in my ear and some loss of hearing. After suffering from excesive ear wax in previous years I thought that may have been the problem. It wasn't. Soon after the hearing loss I noticed a lack of balance, generally feeling 'tipsy
robert77
in
Acoustic Neuroma Support
11 years ago
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Is it worth me asking for a trial of heparin?
I'm seeing Prof K a week on Friday and was wondering whether he would consider alternatives,
heparin
maybe, or whether this is something I just have to put up with.
I'm seeing Prof K a week on Friday and was wondering whether he would consider alternatives,
heparin
maybe, or whether this is something I just have to put up with.
Paleosooze
in
Hughes Syndrome APS Forum
11 years ago
Any success stories out there? Newly diagnosed.
I also had thrombophlebitis during the pregnancy too that was treated with
heparin
. Sadly I also needed aspirin as this apparently crosses the placenta so will need that in future pregnancies as well. Last weekend I woke up with visual disturbance.
I also had thrombophlebitis during the pregnancy too that was treated with
heparin
. Sadly I also needed aspirin as this apparently crosses the placenta so will need that in future pregnancies as well. Last weekend I woke up with visual disturbance.
Hidden
in
Hughes Syndrome APS Forum
11 years ago
Trying for another baby
I had
Heparin
injections daily and a 75g aspirin but he still had to be delivered early. I am overweight and I know that losing weight will hopefully help and we have been told that they would give me a higher dose of
heparin
. thoughts welcomed....
I had
Heparin
injections daily and a 75g aspirin but he still had to be delivered early. I am overweight and I know that losing weight will hopefully help and we have been told that they would give me a higher dose of
heparin
. thoughts welcomed....
Gembob27
in
Hughes Syndrome APS Forum
11 years ago
We won't be defeated yet...
We went to my sons routine hearing test today due to the meningococcal meningitis that he had and the results weren't as good as I hoped, my son has glue ear in both ears and has to go back in 3months to see if his hearing has improved if not he will be refereed. Has anyone had hearing loss/problems
We went to my sons routine hearing test today due to the meningococcal meningitis that he had and the results weren't as good as I hoped, my son has glue ear in both ears and has to go back in 3months to see if his hearing has improved if not he will be refereed. Has anyone had hearing loss/problems
kat12
in
Meningitis Now
11 years ago
Is so proud of her little fighter...
My 13month old son has recently recovered from meningococcal meningitis and has his hearing test tomorrow!! I'm feeling pretty positive about this...
My 13month old son has recently recovered from meningococcal meningitis and has his hearing test tomorrow!! I'm feeling pretty positive about this...
kat12
in
Meningitis Now
11 years ago
Do I need more than aspirin for flight to Cyprus? Advice greatly received
I know long haul US etc requires
heparin
, but Cyprus isn't just a 2 hour flight to Europe but isn't long haul either, so hat should I do???? Help
I know long haul US etc requires
heparin
, but Cyprus isn't just a 2 hour flight to Europe but isn't long haul either, so hat should I do???? Help
HWickers
in
Hughes Syndrome APS Forum
11 years ago
What to expect?
The idea that maybe the headpain might be reduced by
heparin
is one that I cling to, as right now it's my only hope of relief. I normally take a list of symptoms with me, but have seen people mention on here a kind of brief history/meds/specialists which I plan to get written up shortly.
The idea that maybe the headpain might be reduced by
heparin
is one that I cling to, as right now it's my only hope of relief. I normally take a list of symptoms with me, but have seen people mention on here a kind of brief history/meds/specialists which I plan to get written up shortly.
Fairypies
in
Hughes Syndrome APS Forum
11 years ago
GP who does not agree with Prof Hughes.
The Prof wants a 2 week trial of
heparin
as plavix has not helped. GP does not understand APS and as the prof has not written that he is sure it is APS then GP is worried. Says have to ask all GPs in practice if they agree to giving
heparin
as NICE do not prescribe it for APS.
The Prof wants a 2 week trial of
heparin
as plavix has not helped. GP does not understand APS and as the prof has not written that he is sure it is APS then GP is worried. Says have to ask all GPs in practice if they agree to giving
heparin
as NICE do not prescribe it for APS.
Jade
in
Hughes Syndrome APS Forum
11 years ago
APS Borderline,Hyperplasia womb , trying to conceive :-( HELP !!
Injected
heparin
1st 6 weeks then was put on baby aspirin until 37 weeks ... Result my Beautiful 12 yr old . my problem is now is that I was diagnosed with Hyperplasia of the womb in 2002 and was put on norethisterone and had the mirena coil inserted .
Injected
heparin
1st 6 weeks then was put on baby aspirin until 37 weeks ... Result my Beautiful 12 yr old . my problem is now is that I was diagnosed with Hyperplasia of the womb in 2002 and was put on norethisterone and had the mirena coil inserted .
JoJo75
in
Hughes Syndrome APS Forum
11 years ago
clotting problems during all pregnancies/trouble now 10 years later
It only states on my C-Section report that I was on
Heparin
prenatally for elevated antiplasmin levels and increased risk of thrombosis. Does this sound familiar to anyone? Next steps?? Any help would be greatly appreciated.
It only states on my C-Section report that I was on
Heparin
prenatally for elevated antiplasmin levels and increased risk of thrombosis. Does this sound familiar to anyone? Next steps?? Any help would be greatly appreciated.
Hidden
in
Hughes Syndrome APS Forum
11 years ago
Graham Hughes' blog February 2013
Heparin
, antiphospholipid antibodies and the brain. LUPUS Vol 21 pp 1039-1040
Heparin
, antiphospholipid antibodies and the brain. LUPUS Vol 21 pp 1039-1040
Hidden
in
Hughes Syndrome APS Forum
11 years ago
jst diagnosed in shock HELP!!!!
hi all, i was seen by prof hughes lst wed and he finally rediagnosed me with aps after 8 yrs told i had ms. my INR is 0.8 and the prof says he wants me to start
heparin
injections asap any tips for me b4 i start anyone?!
hi all, i was seen by prof hughes lst wed and he finally rediagnosed me with aps after 8 yrs told i had ms. my INR is 0.8 and the prof says he wants me to start
heparin
injections asap any tips for me b4 i start anyone?!
shirleygirl
in
Hughes Syndrome APS Forum
11 years ago
Is 325mg Aspirin enough?
I've seen some of you talk about Warfarin and
Heparin
. I'd appreciate any input.
I've seen some of you talk about Warfarin and
Heparin
. I'd appreciate any input.
aid1117
in
Hughes Syndrome APS Forum
11 years ago
Dental issues with aps
Also doctors have took my off aspirin and
heparin
since I've had the baby and I'm getting really fatigued and very bad headaches and I ache all over?
Also doctors have took my off aspirin and
heparin
since I've had the baby and I'm getting really fatigued and very bad headaches and I ache all over?
hartnell5
in
Hughes Syndrome APS Forum
11 years ago
Humira
I'm on a bunch of meds including steroids (40mg) and injections of
heparin
. I have vasculitis in my nervous system too causing loads of weird sensations, fits and brain problems. I have arthritis, skin problems and bowel problems.
I'm on a bunch of meds including steroids (40mg) and injections of
heparin
. I have vasculitis in my nervous system too causing loads of weird sensations, fits and brain problems. I have arthritis, skin problems and bowel problems.
homeschoolmama
in
Behçet's UK
11 years ago
CLOT IN ARM DESPITE WARFARIN AND HEPARIN
Hello well yesterday all day at hospital having scan on arm where discovered a clot have to up the warfarin, they say must have happended when warfarin inr levels were low two weeks ago. Does anyone know if other medication is used?
Hello well yesterday all day at hospital having scan on arm where discovered a clot have to up the warfarin, they say must have happended when warfarin inr levels were low two weeks ago. Does anyone know if other medication is used?
daisy11
in
Hughes Syndrome APS Forum
11 years ago
Life after the death of Meningicoccal Septicemia :-(
I lost my beautiful 91/2mth old son to Meningicoccal Septicemia 181/2yrs ago. He was a big, blue eyed boy and always smiling and contented. The day before his death my Health Visitor did his hearing test and general check up, she said he was grand. However to me he wasn't himself so I got some paracetamol
I lost my beautiful 91/2mth old son to Meningicoccal Septicemia 181/2yrs ago. He was a big, blue eyed boy and always smiling and contented. The day before his death my Health Visitor did his hearing test and general check up, she said he was grand. However to me he wasn't himself so I got some paracetamol
RhondaR
in
Meningitis Now
11 years ago
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