My son was born on April 4, 2013. He seemed totally normal and healthy. Within hours he was grunting, crying and wouldn't latch. He was evaluated and admitted to the NICU. The GBS culture grew positive in 8 hours (this is crazy to me because he is my 3rd child and every GBS test I received with each child was negative) Everything was done for him that could be done there. He was transferred to a higher level facility that could do ECMO. ECMO was the last resort to save his life and it worked.
He is 7 weeks old tomorrow. He received a full course (two weeks) of Ampicillin and an additional 3rd week of Ampicillin to treat possible Meningitis. He was never stable enough to get a lumbar puncture to confirm Meningitis.
His final diagnosis was Group B Strep with Pneumonia, Sepsis and PPHN. He never had any bleeding in the brain. He passed all of his ultrasounds perfectly. He passed a normal MRI and a normal EEG. My doctors were honestly amazed! They couldn't believe he survived. He passed the hearing test given in the NICU before discharge and it seems right now that he is seeing things.
I have asked many many times to many different doctors and no one is willing to give me any idea of what possible long term effects he may encounter other than hearing and vision. Everyone says it is a good sign that he has passed all of the tests and we just have to wait and see.
Can anyone give me more information or tell me what to look out for?