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Post Transplant Issues
I had a kidney transplant on 2/11/21 and at the same time I was diagnosed with Parkinsons. Is there anyone out there who is on both anti-rejection drugs and carbidopa/levodopa. I have been struggling to feel better for 17+ months. I get so agitated and my quality of life just isn’t there.
I had a kidney transplant on 2/11/21 and at the same time I was diagnosed with Parkinsons. Is there anyone out there who is on both anti-rejection drugs and carbidopa/levodopa. I have been struggling to feel better for 17+ months. I get so agitated and my quality of life just isn’t there.
Mesabi
in
Kidney Transplant
2 years ago
Pace and Ablate - Symptoms of Heart Failure after pacemaker and AV node ablation
My pacemaker was inserted three weeks ago for symptomatic persistent a-fib that no longer responds to meds, cardioversion, or ablation. I had to wait for the AVN ablation since I am sensitive to silicone and the pacemaker parts are coated with it. I haven't had any rejection symptoms therefore my AV
My pacemaker was inserted three weeks ago for symptomatic persistent a-fib that no longer responds to meds, cardioversion, or ablation. I had to wait for the AVN ablation since I am sensitive to silicone and the pacemaker parts are coated with it. I haven't had any rejection symptoms therefore my AV
Heartbeat2022
in
Atrial Fibrillation Support
2 years ago
surgery question for anyone who has had mini-sternotomy/ open heart surgery.
hello, I am 32 years old and im due to go for open heart surgery next week for aortic valve replacement. I have an enlarged heart and im experiencing some significant burning pain in my left side, gnawing pain in left ankle and collarbone area too. What should I expect post surgery (praying
hello, I am 32 years old and im due to go for open heart surgery next week for aortic valve replacement. I have an enlarged heart and im experiencing some significant burning pain in my left side, gnawing pain in left ankle and collarbone area too. What should I expect post surgery (praying
AdamJames157
in
British Heart Foundation
2 years ago
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Psychological and counselling support
My family has just had a very impactful experience, my son who is 22, had open heart surgery twice in the same month and we nearly lost him the second time around. He was in the hospital for 9 weeks all in total, but within that 9 weeks what he went through and what he saw day in day out, was patients
My family has just had a very impactful experience, my son who is 22, had open heart surgery twice in the same month and we nearly lost him the second time around. He was in the hospital for 9 weeks all in total, but within that 9 weeks what he went through and what he saw day in day out, was patients
Never-give-up22
in
British Heart Foundation
2 years ago
Update
Spoken to GP at length this morning regarding this awful fatigue I am suffering from, and how awful I’ve felt since starting Amlodipine. He agreed reluctantly that as I’ve been slightly better since stopping Amlodipine a week ago he would remove it from my prescription, but has increased Cozar (Losartan
Spoken to GP at length this morning regarding this awful fatigue I am suffering from, and how awful I’ve felt since starting Amlodipine. He agreed reluctantly that as I’ve been slightly better since stopping Amlodipine a week ago he would remove it from my prescription, but has increased Cozar (Losartan
Florence-Nightingale
in
AF Association
2 years ago
Rapamycin
I have friends using low doses of this drug and I have an appointment with a doctor that prescribes it. When I asked my Hematologist at Mayo about it they said this drug may be get approved sooner than later for MPN’s. Has anyone researched this or used it. It is a drug used for organ transplants but
I have friends using low doses of this drug and I have an appointment with a doctor that prescribes it. When I asked my Hematologist at Mayo about it they said this drug may be get approved sooner than later for MPN’s. Has anyone researched this or used it. It is a drug used for organ transplants but
MDI55
in
MPN Voice
2 years ago
pregnancy post transplant
I am currently taking tacrolimus and mycophenolate, are these drugs healthy for a baby? What have other experienced with pregnancy after a kidney transplant?
I am currently taking tacrolimus and mycophenolate, are these drugs healthy for a baby? What have other experienced with pregnancy after a kidney transplant?
Yolie_85
in
Kidney Transplant
2 years ago
Reapplying for enhanced personal independent payment
I am currently receiving standard PIP. Unfortunately following heart surgery I am now under care of heart failure team. My mobility made worse by breathlessness. I am on a waiting list for a different style of pacemaker Can I now apply for enhanced PIP before my new re assessment date?
I am currently receiving standard PIP. Unfortunately following heart surgery I am now under care of heart failure team. My mobility made worse by breathlessness. I am on a waiting list for a different style of pacemaker Can I now apply for enhanced PIP before my new re assessment date?
Jamaica21
in
LUPUS UK
2 years ago
A quieter week this week!
My husband's very first attempt at baking and it was delicious! I Pottered about flower arranging, and a goodly haul of conkers. Meds still helping cough and breathlessness but stink of deep heat cuz have a very bad pain just above my pelvis on the left side. Yoga in half an hour so some deep stretches
My husband's very first attempt at baking and it was delicious! I Pottered about flower arranging, and a goodly haul of conkers. Meds still helping cough and breathlessness but stink of deep heat cuz have a very bad pain just above my pelvis on the left side. Yoga in half an hour so some deep stretches
Karenanne61
in
Lung Conditions Community Forum
2 years ago
Read this before you get your spleen removed
https://www.pdsa.org/products-a-publications/e-news/2018-enews/item/1613-pdsa-enews-032818.html Rapamycin is being tested as a longevity drug.. It is not "approved" as an IPT drug, but it is available by prescription. I have heard of people ordering it from off shore sources. It is a generic drug
https://www.pdsa.org/products-a-publications/e-news/2018-enews/item/1613-pdsa-enews-032818.html Rapamycin is being tested as a longevity drug.. It is not "approved" as an IPT drug, but it is available by prescription. I have heard of people ordering it from off shore sources. It is a generic drug
SurferDude
in
ITP Support Association
2 years ago
Kidney Transplant
😊On Friday, I received a call call from my transplant nurse that I was identified for a kidney coming available the next morning. I accepted and my husband drove me to the hospital 2 hours away. Next day I had the 4 - 6 hour surgery and the new kidney began to work right away. I am less than 48
😊On Friday, I received a call call from my transplant nurse that I was identified for a kidney coming available the next morning. I accepted and my husband drove me to the hospital 2 hours away. Next day I had the 4 - 6 hour surgery and the new kidney began to work right away. I am less than 48
Hidden
in
Kidney Dialysis
2 years ago
Can Bradycardia trigger AF? and Bisoprolol !
3 weeks ago I started to get long runs of AF after being AF free for 6 years after Ablation. After almost constant runs of AF and Ectopics for 2 weeks, it settled for a few days, but has come back now 3 days. But what's happening is I have a slow heart rate, its averaging between 50 - 60. I have
3 weeks ago I started to get long runs of AF after being AF free for 6 years after Ablation. After almost constant runs of AF and Ectopics for 2 weeks, it settled for a few days, but has come back now 3 days. But what's happening is I have a slow heart rate, its averaging between 50 - 60. I have
wendy6
in
AF Association
2 years ago
heart scare
hi I suffered a mild heart attack last week ,now I find I have blocked artiey and some calcium in other was let home last sat, now taking loads of meds will ,I be okay on meds until triple heart bypass
hi I suffered a mild heart attack last week ,now I find I have blocked artiey and some calcium in other was let home last sat, now taking loads of meds will ,I be okay on meds until triple heart bypass
Charl70
in
British Heart Foundation
2 years ago
Kidney Transplant
Has anyone else here had more than one transplant?
Has anyone else here had more than one transplant?
Leekee
in
Kidney Transplant
2 years ago
ablation report
So, I arrived at the Golden Jubilee Hospital in Glasgow at 0730 this morning. I was called in to a room in ward 2c where I donned a rather fetching but rather revealing gown and filled out all the required forms. The staff were warm and welcoming and very reassuring. Around 0800 the surgeon who also
So, I arrived at the Golden Jubilee Hospital in Glasgow at 0730 this morning. I was called in to a room in ward 2c where I donned a rather fetching but rather revealing gown and filled out all the required forms. The staff were warm and welcoming and very reassuring. Around 0800 the surgeon who also
Kennyb1968
in
Atrial Fibrillation Support
2 years ago
heart bypass
hi guys I’m new here , I’m due to go on the waiting list for heart bypass and mitral valve repair . But I need to get an appointment for a dental check up but it’s a long time since I’ve seen one and can’t get an appointment anywhere Does anyone know what happens now , or will I have to go private
hi guys I’m new here , I’m due to go on the waiting list for heart bypass and mitral valve repair . But I need to get an appointment for a dental check up but it’s a long time since I’ve seen one and can’t get an appointment anywhere Does anyone know what happens now , or will I have to go private
Lawnmower22
in
British Heart Foundation
2 years ago
People of HealthUnlocked - COPD: Preparing for a Double Lung Transplant
COVID-19 disproportionately impacted some more than others. Although we were all thrust into uncertainty when the pandemic hit, arguably, those with lung conditions were at the forefront of concern. Today, Bernadette tells us about her story of living with chronic obstructive pulmonary disease (COPD)
COVID-19 disproportionately impacted some more than others. Although we were all thrust into uncertainty when the pandemic hit, arguably, those with lung conditions were at the forefront of concern. Today, Bernadette tells us about her story of living with chronic obstructive pulmonary disease (COPD)
SaskiaHU
HealthUnlocked
in
HealthUnlocked Blog
2 years ago
Not suicidal anymore
When I first posted on here 2 months ago I wrote about feeling devastated at the news that i had to have a triple heart bypass, The news sent me into a depression ive never ever known before, Why, How, No, Its Impossible, Cant be true, All these things went through my mind, Im a very fit guy, eat clean
When I first posted on here 2 months ago I wrote about feeling devastated at the news that i had to have a triple heart bypass, The news sent me into a depression ive never ever known before, Why, How, No, Its Impossible, Cant be true, All these things went through my mind, Im a very fit guy, eat clean
Johnnl
in
British Heart Foundation
2 years ago
Fatigue
Does anyone else suffer with extreme tiredness even after sleeping well all night? I have felt tired all the time recently . I am 71 years old and have been in permanent AF for some years and chose not to go down the ablation route. I have been putting it down to the heat but not sure it is. I take
Does anyone else suffer with extreme tiredness even after sleeping well all night? I have felt tired all the time recently . I am 71 years old and have been in permanent AF for some years and chose not to go down the ablation route. I have been putting it down to the heat but not sure it is. I take
Florence-Nightingale
in
AF Association
2 years ago
How to become an advocate for kidney health
NKF advocates have won a number of policy campaigns both in Congress and state capitals across the country - but we're not done yet. We discussed some recent wins and upcoming challenges for the kidney advocate community with Jeff Currey, a Connecticut State Representative and kidney transplant recipient
NKF advocates have won a number of policy campaigns both in Congress and state capitals across the country - but we're not done yet. We discussed some recent wins and upcoming challenges for the kidney advocate community with Jeff Currey, a Connecticut State Representative and kidney transplant recipient
JackieJ_NKF
Partner
in
Kidney Donation
2 years ago
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