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Just found out I need a kidney transplant
Hello, I just found out I need a kidney transplant. I developed kidney disease from taking a medicine that scarred and damaged my kidneys and they’ve just gotten worse and worse. After a biopsy, we discovered that my kidneys are even worse than the numbers show. I am so overwhelmed. My mom could possibly
Hello, I just found out I need a kidney transplant. I developed kidney disease from taking a medicine that scarred and damaged my kidneys and they’ve just gotten worse and worse. After a biopsy, we discovered that my kidneys are even worse than the numbers show. I am so overwhelmed. My mom could possibly
Spaghetto
in
Kidney Transplant
1 year ago
Holter ecg again 3rd one
All this has put liver my
transplant
on hold as the consultant said until my
heart
issues are sorted I'm classed as not stabled for the
transplant
list .
All this has put liver my
transplant
on hold as the consultant said until my
heart
issues are sorted I'm classed as not stabled for the
transplant
list .
Corrie12
in
AF Association
8 months ago
Leadless pacemakers
I live in North Carolina and I have sick sinus syndrome and afib as well as Takotsubo Cardiomyopathy. I just learned a few weeks ago about the newer leadless pacemakers. I understand they are becoming the standard as compared to the wired versions with leads. I had a dual chamber pacemaker implanted
I live in North Carolina and I have sick sinus syndrome and afib as well as Takotsubo Cardiomyopathy. I just learned a few weeks ago about the newer leadless pacemakers. I understand they are becoming the standard as compared to the wired versions with leads. I had a dual chamber pacemaker implanted
Jeekee9
in
AF Association
1 year ago
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have you had trouble getting approved for stem cell transplant?
I have had a wild ride last year beginning with a sudden decline in weight from 240 lbs - 165 lbs. accompanying the weight loss has also been an alarming increase in fatigue, cognitive ability, pain in my arms and legs, some times to the point where I can hardly feel my legs not to mention the
I have had a wild ride last year beginning with a sudden decline in weight from 240 lbs - 165 lbs. accompanying the weight loss has also been an alarming increase in fatigue, cognitive ability, pain in my arms and legs, some times to the point where I can hardly feel my legs not to mention the
Plasmapool
in
MPN Voice
6 months ago
Creatinine increasing
Hi I am 6 yers post kidney transplant non related living donor. My Cr has increased from a baseline of 1.0 to 1.7(3 mo ago) and today 2.4 My Tacro was elevated 3 months ago to 8.3, but now dropped to 6.1. Is this normal for a Cr? I am scared I am going into rejection. I am waiting to hear from
Hi I am 6 yers post kidney transplant non related living donor. My Cr has increased from a baseline of 1.0 to 1.7(3 mo ago) and today 2.4 My Tacro was elevated 3 months ago to 8.3, but now dropped to 6.1. Is this normal for a Cr? I am scared I am going into rejection. I am waiting to hear from
kidneymom09
in
Kidney Transplant
1 year ago
Home Oxygen is a game changer
Afternoon all! Mindful that it has been a fair while since my last post - much longer than intended. However, in many ways it's a good thing as it means I've got more to update you all on. First and foremost, I'm still on the lung transplant list and have yet to get another call since being re-added
Afternoon all! Mindful that it has been a fair while since my last post - much longer than intended. However, in many ways it's a good thing as it means I've got more to update you all on. First and foremost, I'm still on the lung transplant list and have yet to get another call since being re-added
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
1 year ago
GP appointment postponed
My GP appointment has been postponed until 18th July, I wasn't offered an appointment with another doctor. This means I have to postpone the private endo appointment too as it required me to get a referral from my GP. I will do a full thyroid blood tests when I've been on my meds fior 6 weeks. Is there
My GP appointment has been postponed until 18th July, I wasn't offered an appointment with another doctor. This means I have to postpone the private endo appointment too as it required me to get a referral from my GP. I will do a full thyroid blood tests when I've been on my meds fior 6 weeks. Is there
66olives
in
Thyroid UK
1 year ago
Post Ablation Diagnosis
I have been very fortunate and had my Afib ablation in Leicester in May. I had excellent treatment with very minimal side effects from the procedure and am back doing exercise and best of all, no episodes of Afib - so all very positive even though it is very early days. My follow up appointment is in
I have been very fortunate and had my Afib ablation in Leicester in May. I had excellent treatment with very minimal side effects from the procedure and am back doing exercise and best of all, no episodes of Afib - so all very positive even though it is very early days. My follow up appointment is in
Nakesero
in
Atrial Fibrillation Support
1 year ago
Low Blood Pressure and Heart Rate
Hello All. Does anyone have any advice on this? My EP agreed I could come off Flecainide and just use it as PIP. However, he said I should stay on Apixaban. I had thought it was Flecainide causing the unpleasant side effects of dizziness, breathlessness and lightheadedness as well as stiff aching legs
Hello All. Does anyone have any advice on this? My EP agreed I could come off Flecainide and just use it as PIP. However, he said I should stay on Apixaban. I had thought it was Flecainide causing the unpleasant side effects of dizziness, breathlessness and lightheadedness as well as stiff aching legs
MKG50
in
AF Association
1 year ago
Elevated creatinine from tacrolimus?
I am 19 months out from my kidney transplant from a deceased donor. Was doing well and my creatinine was actually within the normal range at about a year post transplant. However, since then my creatinine has been creeping up and now is 1.74. Have tried lowering my protein intake, and more hydration
I am 19 months out from my kidney transplant from a deceased donor. Was doing well and my creatinine was actually within the normal range at about a year post transplant. However, since then my creatinine has been creeping up and now is 1.74. Have tried lowering my protein intake, and more hydration
Hawk12
in
Kidney Transplant Patient Support
1 year ago
Kidney Transplant help
Hi everyone! Hope everyone is having a wonderful Sunday. I got a call from a gentleman who’s been trying to test as a living donor for me. Mayo Clinic has approved him. We are so excited, grateful, thankful, humbled and yet nervous at the same time. ****Can anyone tell me what they have experienced
Hi everyone! Hope everyone is having a wonderful Sunday. I got a call from a gentleman who’s been trying to test as a living donor for me. Mayo Clinic has approved him. We are so excited, grateful, thankful, humbled and yet nervous at the same time. ****Can anyone tell me what they have experienced
Highgfr
in
Kidney Disease
1 year ago
Liver Transplant Assessment
I attended a two day liver transplant assessment on 22nd May which was hard work but I gave it everything to keep going and do my best. They promised a result on the Friday after by phone. Eventually i got the call after waiting anxiously all day to say they had been to be busy to discuss my case and
I attended a two day liver transplant assessment on 22nd May which was hard work but I gave it everything to keep going and do my best. They promised a result on the Friday after by phone. Eventually i got the call after waiting anxiously all day to say they had been to be busy to discuss my case and
Mitmab
in
British Liver Trust
1 year ago
Calling all patients who have had a heart valve surgery or a TAVI
Hello lovely ones! Some of you may know me already - I had a 2x CABG last Jan, aged 34. Well today is my 36th birthday! I am happy and healthy :D The reason I am posting is that I am hopefully moving in to the world of cardio industry, I was previously in clinical nutrition and artifical feeding.
Hello lovely ones! Some of you may know me already - I had a 2x CABG last Jan, aged 34. Well today is my 36th birthday! I am happy and healthy :D The reason I am posting is that I am hopefully moving in to the world of cardio industry, I was previously in clinical nutrition and artifical feeding.
MarmiteB
in
British Heart Foundation
1 year ago
Tachycardia- update
thank you all for the advice it really helped as I was getting a bit panicked about the high heart rate and not sure what to do. I haven’t taken myself to A&E yet! I took a Kardia ecg this morning and sent it to the hospital - came up as unclassified- just had a call back to say it is A-flutter- I
thank you all for the advice it really helped as I was getting a bit panicked about the high heart rate and not sure what to do. I haven’t taken myself to A&E yet! I took a Kardia ecg this morning and sent it to the hospital - came up as unclassified- just had a call back to say it is A-flutter- I
Tako2009
in
Atrial Fibrillation Support
1 year ago
Mitral Valve Prolapse and Hypothyroidism
Is Mitral Valve Prolapse associated with Hypothyroidism? If so, Is the condition common? I was diagnosed with a mild MVP 30 years ago and Hypothyroidism . 15 years later. Until I started taking Levothyroxine I had panic attack type episodes. I have never had any check ups for the MVP. Thanks
Is Mitral Valve Prolapse associated with Hypothyroidism? If so, Is the condition common? I was diagnosed with a mild MVP 30 years ago and Hypothyroidism . 15 years later. Until I started taking Levothyroxine I had panic attack type episodes. I have never had any check ups for the MVP. Thanks
Conniegirl
in
Thyroid UK
1 year ago
Tacycardia - how long before I go to A and E?
Well this is a new problem for me. I have AF and in the past year episodes have become much more frequent to the point where the ‘A’ word has been discussed and I am now on the waiting list for an ablation. During all the years with AF I have rarely had a problem with a fast heart beat - up to now
Well this is a new problem for me. I have AF and in the past year episodes have become much more frequent to the point where the ‘A’ word has been discussed and I am now on the waiting list for an ablation. During all the years with AF I have rarely had a problem with a fast heart beat - up to now
Tako2009
in
Atrial Fibrillation Support
1 year ago
seeking advice
I was diagnosed with PAT and mitro valve prolapse years ago and have been on Betapace for over 30 years with no problems. I suffer with anxiety and bouts of depression and now a psychiatrist said I need antidepressants to help me. Which I agree but all interactions checkers say severe interaction causing
I was diagnosed with PAT and mitro valve prolapse years ago and have been on Betapace for over 30 years with no problems. I suffer with anxiety and bouts of depression and now a psychiatrist said I need antidepressants to help me. Which I agree but all interactions checkers say severe interaction causing
Grammquilter
in
AF Association
1 year ago
Short pulse like pain in chest
occasionally ( say once a month at most) I get a short spell of pulse like ripples of discomfort in chest ( normally left side). They last 2/3 seconds at most and over say a 10 min period. They aren’t always associated with just having eaten/drink and are t accompanied by sternum pain. I have had an
occasionally ( say once a month at most) I get a short spell of pulse like ripples of discomfort in chest ( normally left side). They last 2/3 seconds at most and over say a 10 min period. They aren’t always associated with just having eaten/drink and are t accompanied by sternum pain. I have had an
Robfromwales
in
Acid Reflux Support
1 year ago
Actual appointment face to face with an actual human!
After being sent to A&E last November by GP, diagnosed with AF and discharged with meds, then an echocardiogram beginning of March, I have an actual appointment booked with an arrythmia nurse end of July! Still a little bit in shock that I'll get to talk to someone! Came about because my GP wanted to
After being sent to A&E last November by GP, diagnosed with AF and discharged with meds, then an echocardiogram beginning of March, I have an actual appointment booked with an arrythmia nurse end of July! Still a little bit in shock that I'll get to talk to someone! Came about because my GP wanted to
Indigrow
in
AF Association
1 year ago
pulsing discomfort in chest
I have been diagnosed with oesophagitis following a endoscopy. From time to time I get what I can only describe as uncomfortable ( not hugely painful) radiating pulses in my chest ( normally left side but not exclusively). They last say 2/3 seconds but in waves of about elapsed time of say 10–15 mins
I have been diagnosed with oesophagitis following a endoscopy. From time to time I get what I can only describe as uncomfortable ( not hugely painful) radiating pulses in my chest ( normally left side but not exclusively). They last say 2/3 seconds but in waves of about elapsed time of say 10–15 mins
Robfromwales
in
Oesophageal & Gastric Cancer
1 year ago
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