The association of MVP with nonorgan-specific autoantibodies indicates that MVP may also be an autoimmune disease. It is possible that patients with AITD who also have MVP may be at an increased risk to develop systemic autoimmunity.
Like you, I had MVP diagnosed at similar time as hashimoto’s (30 years ago) …..and MVP never been assessed since
Thanks for the reply. I am certain that I was hypothyroid as an older teenager and that the MVP is linked. I used to be anxious for no reason at all and Levothyroxine ( many years later) changed that.
Same here! I was diagnosed with MVP after birth of my daughter. I was having lots of panic attacks and after an echocardiogram was told I had MVP. Ten years later diagnosed with hypothyroidism. When my thyroid is where it should be my anxiety lessens greatly when it’s too low for me it’s increased and I feel nervous about everything
In week before blood test, when you stop vitamin B complex, you might want to consider taking a separate folate supplement (eg Jarrow methyl folate 400mcg) and continue separate B12
Post discussing how biotin can affect test results
Hi Slow Dragon, Sorry for the late reply. I have been taking Thorne Vit B , Magnesium Citrate and Vit D with K2 spray. I have included lots of folate rich food to my diet- Spinach, Kale, Avocado etc., I sprinkle Pumpkin seeds on salads and have a few Walnuts or Brazil Nuts each day. Plus, lots of Blueberries and Kiwi. I am paying more attention to diet than ever before.
I was tested for gluten some years ago and it was negative. However, I am very careful with what I eat and if I eat out I always select a gluten free item from the menu.
I had a Monitor My Health test in June. I need to do another Medichecks but I have spent so much on private treatment this year it will have to wait a few more weeks ( unrelated condition)
OK with lactose
The Medichecks results from June 2023 are:
TSH 0.31 ( 3.1-6.8)
FT4 22. ( 12-22)
FT3 4 ( 3.1-6.8)
The FT3 is the highest it has ever been.
I followed all the advice.
I need to get a yearly Dr test soon so hope they don’t check the T4 and start trying to change my dose again because that is right at the top.
I will have a Medichecks test before that.
I have wondered for a while about the MVP link.
Thanks for all your excellent advice.
PS - for the first time in my life I have long, strong nails!!! So, something is having an effect.
was test done as recommended with last dose levothyroxine 24 hours before test
FT4: 22 pmol/l (Range 12 - 22) 100.00%
FT3: 4 pmol/l (Range 3.1 - 6.8)
Ft3 only 24.32% through range
So very poor conversion rate
Are you on strictly gluten free/dairy free diet
Check vitamin levels at next test
If vitamins are optimal then unlikely conversion rate will improve and likely to benefit from 12.5mcg or 25mcg less Levothyroxine per day and T3 prescribed alongside (typically 3 x 5mcg ….but only starting SLOWLY on just 5mcg ….then increasing to 2 x 5mcg ……then to 3 x 5mcg …roughly equal 8 hour intervals)
Hi SlowDragon, thanks for the reply. I will try a more focused gluten free diet.
I will have a Medichecks and go armed with evidence to the Dr’s. The main problem is that you can only discuss one problem and I have issues with my eyes and knee. However, I will try. I just worry they will see the top of range FT4 and try to reduce the dose with lots of scare stories about high levels.
I followed all the advice about timing and Biotin.
1) You will consider it only at a referral to endocrinologist of your choice for addition of Liothyronine prescription alongside (slightly reduced) levothyroxine
List of thyroid specialists and endocrinologists who will prescribe T3
If GP says " I have to reduce your dose because the guidelines say i can't let you have a below range TSH" .....
The first paragraph in the NICE (NHS) Thyroid Disease, Assessment and Management guidelines says :
nice.org.uk/guidance/ng145
"Your responsibility
The recommendations in this guideline represent the view of NICE, arrived at after careful consideration of the evidence available. When exercising their judgement, professionals and practitioners are expected to take this guideline fully into account, alongside the individual needs, preferences and values of their patients or the people using their service. It is not mandatory to apply the recommendations, and the guideline does not override the responsibility to make decisions appropriate to the circumstances of the individual, in consultation with them and their families and carers or guardian. "
Can’t speak about MVP but hypo has some very odd symptoms associated with heart stuff and I would not be at all surprised if MVP was also associated. Most doctors are unaware of the breadth of connections which can be brought about by hypothyroidism.
Personal experience. Knew someone with MVP. He had the slightly bulging eyes and other thyroid signs but was never treated for it.
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