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IVIG: Wondering if it's right for me? Your experience?
Had anyone with CLL and on ibrutinib had IVIG treatment? I'm thinking about it -- but would like more information; eg side effects, duration of benefits, etc. (Iwas inthe ICU rhis summer with viral pneumonia after a trip to Israel).
Had anyone with CLL and on ibrutinib had IVIG treatment? I'm thinking about it -- but would like more information; eg side effects, duration of benefits, etc. (Iwas inthe ICU rhis summer with viral pneumonia after a trip to Israel).
suz02
in
CLL Support
4 years ago
Vegan Healing Soup
Well made some vegan healing soup and my flat smells amazing, thank to StarLight75 for the fantastic recipe š White onion Leek Garlic Mushrooms ... sautĆ©ed then add herbs of choice I will use basil thyme salt and black pepper then add in veg stock Tin of chopped tomatoes then Mixed beans Mixed lentils
Well made some vegan healing soup and my flat smells amazing, thank to StarLight75 for the fantastic recipe š White onion Leek Garlic Mushrooms ... sautĆ©ed then add herbs of choice I will use basil thyme salt and black pepper then add in veg stock Tin of chopped tomatoes then Mixed beans Mixed lentils
Lilly1986
in
Weight Loss Support
4 years ago
Hello I'm having lots of problem that is causing me great anxiety
I feel no pleasure from orgasm which is causing me a little stress as I can ejaculate normally. I'm getting pain in my perineum and sometimes I feel like there is a leak there. It's hard to explain but I keep getting like a shooting tickle sensation there which also travels to the penis and just like
I feel no pleasure from orgasm which is causing me a little stress as I can ejaculate normally. I'm getting pain in my perineum and sometimes I feel like there is a leak there. It's hard to explain but I keep getting like a shooting tickle sensation there which also travels to the penis and just like
CM_09
in
Men's Health Forum
4 years ago
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Researchers Are Starting to Study the COVID-19 Vaccine in Autoimmune and Immunocompromised Patients
CreakyJoints and the Global
Healthy
Living
Foundation will be following this and other research closely and will share more information as we have it.
Sources
COVID-19 Vaccination Considerations for Persons with Underlying Medical Conditions. COVID-19. U.S.
CreakyJoints and the Global
Healthy
Living
Foundation will be following this and other research closely and will share more information as we have it.
Sources
COVID-19 Vaccination Considerations for Persons with Underlying Medical Conditions. COVID-19. U.S.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
4 years ago
Post 717 Positively is the only way to look at ms 12 Dec 2020
Good Saturday Morning my ms Sisters and Brothers. I slept well, last, night well but a little cold. 70 Fahrenheitish, which is on the cooler side for Phoenix. I guess it is winter so it is better than 110F but I am born English so it is understood that I have to complain about the weather. Massive
Good Saturday Morning my ms Sisters and Brothers. I slept well, last, night well but a little cold. 70 Fahrenheitish, which is on the cooler side for Phoenix. I guess it is winter so it is better than 110F but I am born English so it is understood that I have to complain about the weather. Massive
RoyceNewton
in
My MSAA Community
4 years ago
Butternut squash salad with dolcelatte/ veg quiche
This is what I made for my sonās family for tea tonight. The butternut squash recipe is from Ottolenghiās book, Simple. Halve the bns lengthwise, scoop out the seeds and cut into 1cm thick half moons. Mix in a bowl with red onion wedges, pinch sea salt, sage leaves, 2tbsp olive oil. Roast for about 40
This is what I made for my sonās family for tea tonight. The butternut squash recipe is from Ottolenghiās book, Simple. Halve the bns lengthwise, scoop out the seeds and cut into 1cm thick half moons. Mix in a bowl with red onion wedges, pinch sea salt, sage leaves, 2tbsp olive oil. Roast for about 40
monday1957
10 kg
in
Weight Loss Support
4 years ago
healthy meals?
hi new to this
healthy
living
actually first day on this journey but fed up of looking and feeling way I do the now. looking for healthy family meals ideas please.
hi new to this
healthy
living
actually first day on this journey but fed up of looking and feeling way I do the now. looking for healthy family meals ideas please.
Eddie2704
in
Healthy Eating
4 years ago
A Lovely Pork Chop
Dear Fellow Foodies, Tonight I had a lovely Pork Chop, one with some Kidney attachedš. I cooked this with, a few, New Potatoes- cooked with the skin on. I also cut a Largish onion into 'rings' and gently fried them, in butter. In addition I made some Gravy, from the meat 'juices'- having removed most
Dear Fellow Foodies, Tonight I had a lovely Pork Chop, one with some Kidney attachedš. I cooked this with, a few, New Potatoes- cooked with the skin on. I also cut a Largish onion into 'rings' and gently fried them, in butter. In addition I made some Gravy, from the meat 'juices'- having removed most
AndrewT
in
Healthy Eating
4 years ago
Helioplex test
Hey yāall!!! Itās been a while. Things over yonder are friggin crazy if you havenāt heard. šš«š Got 3 IVIG infusions and they helped tremendously with swallowing and cranial neuropathy. However, the effects are not sustained so Iām back to square one. Neuro-optho is pushing rheum for a plan and rheum
Hey yāall!!! Itās been a while. Things over yonder are friggin crazy if you havenāt heard. šš«š Got 3 IVIG infusions and they helped tremendously with swallowing and cranial neuropathy. However, the effects are not sustained so Iām back to square one. Neuro-optho is pushing rheum for a plan and rheum
Jmiller623
in
LUPUS UK
4 years ago
People of HU ā Where are they now?
Sixteen years following that diagnosis and having become quite a Resource Detective (a concept I discovered within a course originating out of Stanford University in the States called Take Charge:
Living
a
Healthy
Life with a Chronic Illness) by that time I exercised my right under the Freedom of Information
Sixteen years following that diagnosis and having become quite a Resource Detective (a concept I discovered within a course originating out of Stanford University in the States called Take Charge:
Living
a
Healthy
Life with a Chronic Illness) by that time I exercised my right under the Freedom of Information
SaskiaHU
HealthUnlocked
in
HealthUnlocked Blog
4 years ago
Flu shot ?
Are people with APS or compromised immune system not suppose to get the flu shot? My dr says I should as I also have IGA deficiency (barely have this in my system). I was doing IVIG infusions until a few years later I had a bad reaction - so I stopped them. Iām a lil confused as I read different things
Are people with APS or compromised immune system not suppose to get the flu shot? My dr says I should as I also have IGA deficiency (barely have this in my system). I was doing IVIG infusions until a few years later I had a bad reaction - so I stopped them. Iām a lil confused as I read different things
Youmi111
in
Hughes Syndrome APS Forum
4 years ago
How Chronic Illness Patients Can Cope with Seasonal Affective Disorder and Depression During COVID-19
āItās hard to distinguish the differences between SAD and the winter blues by yourself,ā says clinical psychologist Laurie Ferguson, PhD, Director of Education Development for the Global
Healthy
Living
Foundation (GHLF). āWith the winter blues, you can shake yourself out of it.
āItās hard to distinguish the differences between SAD and the winter blues by yourself,ā says clinical psychologist Laurie Ferguson, PhD, Director of Education Development for the Global
Healthy
Living
Foundation (GHLF). āWith the winter blues, you can shake yourself out of it.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
4 years ago
Alprostadil injection
Looking for any feedback or guidance on using Alprostadil injections for ED. After hifu and radiation, cialis and viagra don't work for me so doc gave me the option of injecting directly into my penis. Any one done that?
Looking for any feedback or guidance on using Alprostadil injections for ED. After hifu and radiation, cialis and viagra don't work for me so doc gave me the option of injecting directly into my penis. Any one done that?
rf3rf3
in
Prostate Cancer Network
4 years ago
Dal (soup off challenge)
So, itās not technically soup more a curry, but as I ate mine with a spoon this evening, I reckon it can sneak in as an entry for the soup off š Fry an onion in oil for a few minutes then add 3 dried red chilli peppers. Continue to fry until onions are starting to brown. Add a cup of red split lentils
So, itās not technically soup more a curry, but as I ate mine with a spoon this evening, I reckon it can sneak in as an entry for the soup off š Fry an onion in oil for a few minutes then add 3 dried red chilli peppers. Continue to fry until onions are starting to brown. Add a cup of red split lentils
monday1957
10 kg
in
Weight Loss Support
4 years ago
Experience with aprotinin injection?
After the failed HIFU and then radiation with Cyberknife, the cialis and viagra don't work very well for me. Doc gave me aprotinin injection prescription but I am afraid of injecting into the penis. Any one have experience with these?
After the failed HIFU and then radiation with Cyberknife, the cialis and viagra don't work very well for me. Doc gave me aprotinin injection prescription but I am afraid of injecting into the penis. Any one have experience with these?
rf3rf3
in
Prostate Cancer Network
4 years ago
Learn as much as possible...even if it happens to contradict what Dialysis staff tells you!
But remember, if you aren't also
living
a
healthy
lifestyle, you can't expect them to follow your lead! Dialysis can be very easy to deal with. It just comes down to what foods and fluids go into the body, ..will result to how the patient ends up feeling.
But remember, if you aren't also
living
a
healthy
lifestyle, you can't expect them to follow your lead! Dialysis can be very easy to deal with. It just comes down to what foods and fluids go into the body, ..will result to how the patient ends up feeling.
Lifealysis
in
Parents of Children with Kidney Disease
4 years ago
Recent De-fibrillator fitted
After
living
a very active and
healthy
lifestyle at the age of 56 i have had to have a de-fibrillator fitted. This happened after my hr went up to 260bpm after exercise. I was subsequently told that at some stage in the last 25 years i had suffered a heart attack.
After
living
a very active and
healthy
lifestyle at the age of 56 i have had to have a de-fibrillator fitted. This happened after my hr went up to 260bpm after exercise. I was subsequently told that at some stage in the last 25 years i had suffered a heart attack.
Tiny775
in
British Heart Foundation
4 years ago
Bite the bullet
I often wonder how much I DID weigh at my heaviest? š¦ I know that in 2013 I wouldn't have photos taken or go near the scales!! š± And that, when my lovely little Grandson had his naming day, I had cut back a lot and lost 'some' .... But don't know how much because no scales or photos were allowed!!
I often wonder how much I DID weigh at my heaviest? š¦ I know that in 2013 I wouldn't have photos taken or go near the scales!! š± And that, when my lovely little Grandson had his naming day, I had cut back a lot and lost 'some' .... But don't know how much because no scales or photos were allowed!!
Vale57
2020 March
in
Weight Loss Support
4 years ago
Delicious Lunch
My husband and I enjoyed lunch out today. My Maple Roasted Pumpkin and Freekah salad was divine, served with some smoked salmon. The salad contained pumpkin, fetta, barley, rocket, mint, basil, parsley, red onion, olives, tomato and a Chilli maple dressing. I love discovering new ingredient combinations
My husband and I enjoyed lunch out today. My Maple Roasted Pumpkin and Freekah salad was divine, served with some smoked salmon. The salad contained pumpkin, fetta, barley, rocket, mint, basil, parsley, red onion, olives, tomato and a Chilli maple dressing. I love discovering new ingredient combinations
Kaz747
Star
in
Healthy Eating
4 years ago
CAULIFLOWER BASED PIZZA
All of the good stuff and not too much of the bad stuff and all made by my granddaughter's fair hand. We've included a picture of the base too, to give an idea of what it looks like. Ours was a family share pizza, hence all the different toppings. :) This recipe is for a basic cheese pizza with cauliflower
All of the good stuff and not too much of the bad stuff and all made by my granddaughter's fair hand. We've included a picture of the base too, to give an idea of what it looks like. Ours was a family share pizza, hence all the different toppings. :) This recipe is for a basic cheese pizza with cauliflower
moreless
7 stone
in
Weight Loss Support
4 years ago
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