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Retinal Toxcity &Hydroxychloroquine
HI Everyone ,I haven't posted in a while just been jogging along quietly taking each day as it comes. I was diagnosed with Lupus in 1999 along with sjgreons .I have taken Hydroxychloriquine since diagnosis along with all the other meds associated with this disease. When first diagnosed I was being
HI Everyone ,I haven't posted in a while just been jogging along quietly taking each day as it comes. I was diagnosed with Lupus in 1999 along with sjgreons .I have taken Hydroxychloriquine since diagnosis along with all the other meds associated with this disease. When first diagnosed I was being
Mrsdoozer
in
LUPUS UK
2 years ago
50yr old smoker just quit have some questions
hi everyone and Merry Christmas/Happy Holidays. I’m a 50yr 1/2 a pack a day smoker (smoked more when I was in my 20’s) and now former smoker for a week still finding it difficult to not smoke but trying. I’ve been diagnosed with Gerd, Barrett’s Esophagus and a 5cm. Hiatal Hernia. About 6 months ago
hi everyone and Merry Christmas/Happy Holidays. I’m a 50yr 1/2 a pack a day smoker (smoked more when I was in my 20’s) and now former smoker for a week still finding it difficult to not smoke but trying. I’ve been diagnosed with Gerd, Barrett’s Esophagus and a 5cm. Hiatal Hernia. About 6 months ago
B0ugatsa
in
Lung Conditions Community Forum
2 years ago
Introduction
Hi there, I've been suffering from MDD, PTSD and GAD since I was a child due to a traumatic event. I don't like the way medication makes me feel so I have been on and off certain ones before they can medically take affect. So far I prefer Prozac because it has been around for a while. I don't trust newly
Hi there, I've been suffering from MDD, PTSD and GAD since I was a child due to a traumatic event. I don't like the way medication makes me feel so I have been on and off certain ones before they can medically take affect. So far I prefer Prozac because it has been around for a while. I don't trust newly
MichelleMGalvan
in
Major Depressive Disorder (MDD) Support
1 year ago
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After Trab worry
Hello fellow people who have had trabeculectomies. It has been 4 months since my right eye had a Trabeculectomy. Things are pretty good with a pressure of 9 which is very nice for me. I am thinking now about surgery in the other eye BUT am not keen on a Trabeculectomy. I'm afraid of the risks of
Hello fellow people who have had trabeculectomies. It has been 4 months since my right eye had a Trabeculectomy. Things are pretty good with a pressure of 9 which is very nice for me. I am thinking now about surgery in the other eye BUT am not keen on a Trabeculectomy. I'm afraid of the risks of
stephanie1977
in
Glaucoma UK
2 years ago
LUPUS
My mum suffers with Lupus. She has tried using Zerobase, several Steroid creams, and Mepocrim tablets. She suffers with this on her face, neck, hands and arms. Please can anyone suggest anything that she can use or take that doesn't cost too much money? Thank you.
My mum suffers with Lupus. She has tried using Zerobase, several Steroid creams, and Mepocrim tablets. She suffers with this on her face, neck, hands and arms. Please can anyone suggest anything that she can use or take that doesn't cost too much money? Thank you.
Shorty09
in
LUPUS UK
2 years ago
Need help/support/advice for healing relationships with adult children and dealing with the guilt of unintentional damage done to them by me
I’ve been trying to catch up on posts on here and end up talking about myself too much so I thought I’d try to put my own post out here. I need support concerning my guilt over messing up my relationships with my adult children. I used to have very close relationships with all three of my kids. They
I’ve been trying to catch up on posts on here and end up talking about myself too much so I thought I’d try to put my own post out here. I need support concerning my guilt over messing up my relationships with my adult children. I used to have very close relationships with all three of my kids. They
Mumbutterfly
in
Anxiety and Depression Support
1 year ago
Sjogrens
Hi, has anyone experienced the loss of taste in there food with Sjogrens ? Any feed back would be grateful x
Hi, has anyone experienced the loss of taste in there food with Sjogrens ? Any feed back would be grateful x
Swanfull
in
NRAS
2 years ago
Coughing up blood and CT scan results
Hello, I'm new here. I'm wondering if anyone can advise me if possible. I've been coughing up some blood and bloody mucus over the last couple of months. Went to the GP and they referred me on the 2 week pathway. I had a chest x-ray last week which came back clear. I had a chest CT scan yesterday and
Hello, I'm new here. I'm wondering if anyone can advise me if possible. I've been coughing up some blood and bloody mucus over the last couple of months. Went to the GP and they referred me on the 2 week pathway. I had a chest x-ray last week which came back clear. I had a chest CT scan yesterday and
Col178
in
The Roy Castle Lung Cancer Foundation
2 years ago
Pneumonia update
So have been on antibiotics for two weeks and have been resting...as best I can. At weekend I felt worse again. Had a routine rheumy appointment Monday morning. (New consultant, not been seen by any consultant in 18mths ish). He obviously knew I'd had problems, first he says you don't look very well
So have been on antibiotics for two weeks and have been resting...as best I can. At weekend I felt worse again. Had a routine rheumy appointment Monday morning. (New consultant, not been seen by any consultant in 18mths ish). He obviously knew I'd had problems, first he says you don't look very well
wilbertjellyfish
in
NRAS
2 years ago
Rutin
Apparently Rutin is very rich in flavinoids which can help health in many ways. My husband and I ( both over 70) used to get leg cramps every week or two especially at night, since taking rutin we no longer have cramps. I think it took several months to really make a difference. It is also supposed
Apparently Rutin is very rich in flavinoids which can help health in many ways. My husband and I ( both over 70) used to get leg cramps every week or two especially at night, since taking rutin we no longer have cramps. I think it took several months to really make a difference. It is also supposed
muddledme
in
Glaucoma UK
2 years ago
Drusen/CRVO reporting to DVLA
Ive recently developed a central retinal vein occlusion in my right eye and also been told I have Drusen in both eyes. I believe this has to be reported to the DVLA. Vision in my right eye with glasses si 6/7.5 so not bad. My husband is arguing that no one has told me to report this so I don't need
Ive recently developed a central retinal vein occlusion in my right eye and also been told I have Drusen in both eyes. I believe this has to be reported to the DVLA. Vision in my right eye with glasses si 6/7.5 so not bad. My husband is arguing that no one has told me to report this so I don't need
Ecki
in
Macular Society
2 years ago
Steroid dose after operation
I am having an eye operation next week. It involves a retina peel because of a perimedial retina and an cataract operation. For a number of reasons, I am having it done under general anaesthetic. I know it will involve a steroid injection. At the moment, I am on 6.5 m . The anaesthetist has said I
I am having an eye operation next week. It involves a retina peel because of a perimedial retina and an cataract operation. For a number of reasons, I am having it done under general anaesthetic. I know it will involve a steroid injection. At the moment, I am on 6.5 m . The anaesthetist has said I
Hidcote
in
PMRGCAuk
2 years ago
It Never Rains
What an absolute few months I've had. Have been on a constant heavy period, where I'm losing blood clots for the past 5 months, plus having really bad issues with breathing, which added to all my comorbidities is an absolute bugger. Due for a chest x-ray and an ultrasound this week. Then to top it all
What an absolute few months I've had. Have been on a constant heavy period, where I'm losing blood clots for the past 5 months, plus having really bad issues with breathing, which added to all my comorbidities is an absolute bugger. Due for a chest x-ray and an ultrasound this week. Then to top it all
Sher78
in
Hughes Syndrome APS Forum
2 years ago
How to defer DVLA test?
I have a DVLA test arranged for the 24th of this month and I have an appointment at my local SpecSavers as my eye prescription has changed since my last eye test in May. I was due to have my DVLA test last August but contacted the SpecSavers DVLA Team explaining I was having treatment for a corneal
I have a DVLA test arranged for the 24th of this month and I have an appointment at my local SpecSavers as my eye prescription has changed since my last eye test in May. I was due to have my DVLA test last August but contacted the SpecSavers DVLA Team explaining I was having treatment for a corneal
Windflower
in
Glaucoma UK
2 years ago
Article on steroid side effects (dated Nov 2018)
Albeit not a new paper but in context still significant. (??) The diagnosis of cataracts in steroid users may be because those on steroids tend to have more eye exam. (Which reminds me to book my next.) https://www.practicalpainmanagement.com/resources/news-and-research/polymyalgia-rheumatica-steroid-side-effects-new-findings
Albeit not a new paper but in context still significant. (??) The diagnosis of cataracts in steroid users may be because those on steroids tend to have more eye exam. (Which reminds me to book my next.) https://www.practicalpainmanagement.com/resources/news-and-research/polymyalgia-rheumatica-steroid-side-effects-new-findings
Exflex
in
PMRGCAuk
2 years ago
Possible UTI at time of Lucentis Injection
Hi guys, I am due to have my lucentis injection tomorrow (right eye WMD, left dry MD). I also have the symptoms of a UTI. I get them regularly due a kidney disease I have. I'll tell the hospital of course, and see my GP, but I wondered if anyone had any experience of turning up with a systemic
Hi guys, I am due to have my lucentis injection tomorrow (right eye WMD, left dry MD). I also have the symptoms of a UTI. I get them regularly due a kidney disease I have. I'll tell the hospital of course, and see my GP, but I wondered if anyone had any experience of turning up with a systemic
Sianana
in
Macular Society
2 years ago
day 2 after bypass surgery
hi all, my hubby had his triple bypass yesterday)finally after 3 cancellations in 6 weeks!) thr op went well the surgeon said snd he was recovering well. This morning just before they were moving him from ICU to high dependency his oxygen levels dropped and so they kept him in icu and gave him extra
hi all, my hubby had his triple bypass yesterday)finally after 3 cancellations in 6 weeks!) thr op went well the surgeon said snd he was recovering well. This morning just before they were moving him from ICU to high dependency his oxygen levels dropped and so they kept him in icu and gave him extra
Finmum
in
British Heart Foundation
2 years ago
Pilocarpine
I am already using Cosopt (twicde a day) and Monopost (once a day) but pressure still a bit too high so have been prescribed pilocarpine in addition (four times a day). Interested to hear from anyone who isusing Pilocarpine especially re side effects. Bit worried to read that it can cause retinal detachment
I am already using Cosopt (twicde a day) and Monopost (once a day) but pressure still a bit too high so have been prescribed pilocarpine in addition (four times a day). Interested to hear from anyone who isusing Pilocarpine especially re side effects. Bit worried to read that it can cause retinal detachment
Machicado
in
Glaucoma UK
2 years ago
COVID ... held it off as long as I could.
We came home from Sweden ..(to US). the only ones masked on the plane or in the airport save for a few people I gazed at like kindred spirits... and my husband, whose eyes were not covered by glasses. dang that cataract surgery got covid a week ago. the Sword of Damocles hung over me all week as we went
We came home from Sweden ..(to US). the only ones masked on the plane or in the airport save for a few people I gazed at like kindred spirits... and my husband, whose eyes were not covered by glasses. dang that cataract surgery got covid a week ago. the Sword of Damocles hung over me all week as we went
yogabonnie
in
PMRGCAuk
2 years ago
Hydroxychloroquine staining
I was prescribed a daily dose of hydroxychloroquine, alongside weekly methotrexate, when I was diagnosed with RA and Sjogrens 7 years ago. Two years ago I developed grey patches on the skin of my shins, which look like bruises but aren't tender to touch. I contacted my rheumatologist and sent photos
I was prescribed a daily dose of hydroxychloroquine, alongside weekly methotrexate, when I was diagnosed with RA and Sjogrens 7 years ago. Two years ago I developed grey patches on the skin of my shins, which look like bruises but aren't tender to touch. I contacted my rheumatologist and sent photos
DoraBracken
in
NRAS
2 years ago
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