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thank you for the help! ❤️
I recently posted asking if anyone had pancreatitis issues with lupus (just been diagnosed with cutaneous lupus) and I got some advise & help & support. I spoke to the hepatobillary clinic who removed my gallbladder & they agree it’s most likely the pancreatitis is being caused by an autoimmune issue
I recently posted asking if anyone had pancreatitis issues with lupus (just been diagnosed with cutaneous lupus) and I got some advise & help & support. I spoke to the hepatobillary clinic who removed my gallbladder & they agree it’s most likely the pancreatitis is being caused by an autoimmune issue
Loobie72
in
LUPUS UK
3 months ago
Strange definition of pernicious anemia
Found this questionable definition of pernicious anemia on a Johns Hopkins web page about gastritis: [i]
Pernicious anemia
. This is a form of anemia that happens when your stomach can't digest vitamin B-12.[/i] Even the best seem to get it wrong. https://www.hopkinsmedicine.org/health/conditions-and-diseases
Found this questionable definition of pernicious anemia on a Johns Hopkins web page about gastritis: [i]
Pernicious anemia
. This is a form of anemia that happens when your stomach can't digest vitamin B-12.[/i] Even the best seem to get it wrong. https://www.hopkinsmedicine.org/health/conditions-and-diseases
palmier
in
Pernicious Anaemia Society
3 months ago
Once I start supplementing B12, will my B12 blood tests still be accurate?
I would like to know if blood tests will still be a useful measure of my B12 levels, once I have started supplementing B12. I would be testing active B12. The reason I ask is that I have read pernicious anemia people saying that once they start injections (and supplements too maybe), that the B12 blood
I would like to know if blood tests will still be a useful measure of my B12 levels, once I have started supplementing B12. I would be testing active B12. The reason I ask is that I have read pernicious anemia people saying that once they start injections (and supplements too maybe), that the B12 blood
Carrie234
in
Thyroid UK
3 months ago
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Ramipril, diarrhoea and pred
After doubling my dose of amlodipine due to my BP still being too high, I suffered from poor sleep quality - my fitbit recorded very little if any, deep sleep. I dropped back to 5mg and immediately my sleep improved. But now they've put me on ramipril 2.5mg to try, in addition to the 5mg amlodipine.
After doubling my dose of amlodipine due to my BP still being too high, I suffered from poor sleep quality - my fitbit recorded very little if any, deep sleep. I dropped back to 5mg and immediately my sleep improved. But now they've put me on ramipril 2.5mg to try, in addition to the 5mg amlodipine.
Broseley
in
PMRGCAuk
2 months ago
Lupus toothpaste reaction
Hi all, I have had Lupus for a long time but it never affected my mouth before. After a very stressful few weeks/months, I now have a mouth full of ulcers. Cracks on my tongue, lips and the skin around my mouth. I was putting the ulcers down to the Lupus. But everytime I brush my teeth now, my mouth
Hi all, I have had Lupus for a long time but it never affected my mouth before. After a very stressful few weeks/months, I now have a mouth full of ulcers. Cracks on my tongue, lips and the skin around my mouth. I was putting the ulcers down to the Lupus. But everytime I brush my teeth now, my mouth
LupusMigraineetc
in
LUPUS UK
3 months ago
biologic medication and possible side effects
Wondering if anyone has had something similar happen. I’ve had severe p since 2020 and PA soon after and started the biologic adalimumab in January 2020 after systemic treatments failed/side effects became to bad. In June this month my adalimumab was swapped as it want working wellto ustekinumab which
Wondering if anyone has had something similar happen. I’ve had severe p since 2020 and PA soon after and started the biologic adalimumab in January 2020 after systemic treatments failed/side effects became to bad. In June this month my adalimumab was swapped as it want working wellto ustekinumab which
katienewland
in
NRAS
2 months ago
A Fib
I had an ablation done on 12/23, now I have no palpitations, my Dr. says I can go off the Eliquis is there something natural I can take to thin my blood?
I had an ablation done on 12/23, now I have no palpitations, my Dr. says I can go off the Eliquis is there something natural I can take to thin my blood?
Ddserj
in
Atrial Fibrillation Support
2 months ago
Newly diagnosed
Hello. I felt unwell for a long time. I've been diagnosed with underactive thyroid and started treatment. My symptoms have been severe and I've really struggled. I feel like every part of my body has been effected and yet from the outside no one can tell and it's hard for people to understand how bad
Hello. I felt unwell for a long time. I've been diagnosed with underactive thyroid and started treatment. My symptoms have been severe and I've really struggled. I feel like every part of my body has been effected and yet from the outside no one can tell and it's hard for people to understand how bad
Plumbobmummyreads
in
Thyroid UK
3 months ago
Wet AMD and Eliquis
Has anyone with Wet AMD then put on Eliquis for Afib seen an increase in bleeding in the eyes since being on the Eliquis?
Has anyone with Wet AMD then put on Eliquis for Afib seen an increase in bleeding in the eyes since being on the Eliquis?
nyla668
in
Macular Society
2 months ago
Eliquis and Wet AMD
My mom has been getting injections for Wet AMD for 13 years. They have worked well and her vision has been stable. She was diagnosed with Afib in April and put on Eliquis. Since then she has been having more bleeding in her eyes at her eye doctor appointments. It probably didn’t occur to her to mention
My mom has been getting injections for Wet AMD for 13 years. They have worked well and her vision has been stable. She was diagnosed with Afib in April and put on Eliquis. Since then she has been having more bleeding in her eyes at her eye doctor appointments. It probably didn’t occur to her to mention
nyla668
in
Atrial Fibrillation Support
2 months ago
sun sensitivity
curious question- does Levothyroxine effect you in the sun?? I’ve never had any issues before being in the sun- and today I’ve been out maybe for an hour or so and my skin is so sore and itchy?? I know with having a underactive thyroid you get dry skin etc but this is bizzare?
curious question- does Levothyroxine effect you in the sun?? I’ve never had any issues before being in the sun- and today I’ve been out maybe for an hour or so and my skin is so sore and itchy?? I know with having a underactive thyroid you get dry skin etc but this is bizzare?
Lisalee123456
in
Thyroid UK
3 months ago
Protein c protein s
Hi I have a question looking back over all my blood tests I've gone back years lol my protein c and s have always been slightly elevated anyone found this?
Hi I have a question looking back over all my blood tests I've gone back years lol my protein c and s have always been slightly elevated anyone found this?
DonnaD123
in
LUPUS UK
2 months ago
Dam Lupus
I have only one thing to say about this dam Lupus tonight! "I Want My Mammy" 😒
I have only one thing to say about this dam Lupus tonight! "I Want My Mammy" 😒
Will1408
in
LUPUS UK
3 months ago
Thyroidectomy
Diagnosed with
Graves
disease
in Sept 2018 and have been taking Carbimazole ever since. My Endo suggests avoiding surgery for a couple of years and revisiting if there is still the need.
Diagnosed with
Graves
disease
in Sept 2018 and have been taking Carbimazole ever since. My Endo suggests avoiding surgery for a couple of years and revisiting if there is still the need.
Clairem147
in
Thyroid UK
2 years ago
rheumatoid nodules
I was diagnosed with Adult Onset Stills disease aged 17 in 1979 which is autoimmune RA. I’m experiencing bilateral nodules (Dip) in the tip joint of both idex fingers. Numbness, stiffness, redness, soreness, stiffness and itchiness, really weird . Anyone else?
I was diagnosed with Adult Onset Stills disease aged 17 in 1979 which is autoimmune RA. I’m experiencing bilateral nodules (Dip) in the tip joint of both idex fingers. Numbness, stiffness, redness, soreness, stiffness and itchiness, really weird . Anyone else?
Stills
in
NRAS
3 months ago
Underactive thyroid and Peri menopause
Hi, I have started perimenopause and having symptons e.g heat palpatations (tests done but no other medical issues found) mood swings, aches and pains etc… and I am trying to find solutions to help. Have started taking viticulture supplements but it seems really confusing as to which ones are safe
Hi, I have started perimenopause and having symptons e.g heat palpatations (tests done but no other medical issues found) mood swings, aches and pains etc… and I am trying to find solutions to help. Have started taking viticulture supplements but it seems really confusing as to which ones are safe
Tracey8
in
Thyroid UK
3 months ago
PIP listing health conditions
Hi, I received the forms to apply for PIP today. on the question asking about health conditions, dqo you list everything going on? Or just the most debilitating ones?I have seronegative inflammatory arthritis, fibromyalgia and osteoarthritis which affect me severely on a daily basis. But I also have
Hi, I received the forms to apply for PIP today. on the question asking about health conditions, dqo you list everything going on? Or just the most debilitating ones?I have seronegative inflammatory arthritis, fibromyalgia and osteoarthritis which affect me severely on a daily basis. But I also have
hazelcats
in
NRAS
3 months ago
Gel nails and lupus/raynauds
Hi everyone 🌸 May sound like a silly question but Im just curious if anyone here has regular gel nail polish? Is it considered safe when nails are delicate due to lupus and raynauds? Ive had gel polish before, but I found the removal of the gel painful with the scraping technique the nail technician
Hi everyone 🌸 May sound like a silly question but Im just curious if anyone here has regular gel nail polish? Is it considered safe when nails are delicate due to lupus and raynauds? Ive had gel polish before, but I found the removal of the gel painful with the scraping technique the nail technician
Shann07
in
LUPUS UK
3 months ago
General Update - I got lost in the site
Sorry everyone, I managed to get totally confused again, and I think I've posted duplicate replies, then lost other replies and now I can't find all the replies that were left for me so I think I've managed to delete them. Trouble is my hands shake so much these days that I keep pressing wrong buttons
Sorry everyone, I managed to get totally confused again, and I think I've posted duplicate replies, then lost other replies and now I can't find all the replies that were left for me so I think I've managed to delete them. Trouble is my hands shake so much these days that I keep pressing wrong buttons
Blondgrassblowing
in
PMRGCAuk
2 months ago
3year Updates w/PSA Graph
Hi Everyone, I'd like to report my 3 year journey. Initial PSA 27 in 6/20. Diagnosed w/PC 10/20. Gleason score is 3+4 (high-risk). My T-stage is T2a/T2b. CT Scan showed no lymph node & Bone Scan showed some indication of met. PSMA/PET in 1/12/21 showed no met outside. Started ADT (Lupron
Hi Everyone, I'd like to report my 3 year journey. Initial PSA 27 in 6/20. Diagnosed w/PC 10/20. Gleason score is 3+4 (high-risk). My T-stage is T2a/T2b. CT Scan showed no lymph node & Bone Scan showed some indication of met. PSMA/PET in 1/12/21 showed no met outside. Started ADT (Lupron
brucesam
in
Advanced Prostate Cancer
6 months ago
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