Experiences with

Graves' disease

I was diagnosed with Graves disease today after a blood test to check my thyroid functions (I was experiencing hives and facial swelling whenever I get ill for 2 years now so GP suggest a blood test) I'm slightly confused and worried about what's to come and expect.

I have just been diagnosed with Hyperthyroidism (Graves disease) and I'm confused as how advocate for myself.I need pointers as to questions to ask the consultant when next I see him What are the issues associated with the condition?

Does anyone have any experience with improved Graves disease linked with diet changes?

I am a 29 year old female with Graves Disease and have recently been diagnosed with a thyroid nodule with a-typical cells. I have previously had thyroid eye disease when first diagnosed 4 years ago although this appears okay now.

Know Your Options: Thyroidectomy for Graves Disease. It’s lengthy, and a pretty good discussion of options, including their frustration that they are only treating the results, not the cause of Graves.

I was eventually diagnosed with Graves disease post covid after been repeatedly told by GP that I had long covid.I had to go private through spire healthcare, thinking I had a heart problem, but was referred to endocrinology after blood test results.

I read that it can be from pernicious anemia (my levels were low but normal now), autoimmune gastritis (i did an endoscopy and have mild gastritis) or from thyroid disease and I do have graves’ disease. Just wondering if others had a positive test along with thyroid disease. Thanks!

Hi all I’m writing for help with a family member she was diagnosed with ‘graves’ disease around 2020! She is currently been told by endo to take 5mgs Carbimazole every other day. Her symptoms include losing hair again! Fatigue tiredness no energy and sleeping in the afternoon and then all night!

Diagnosis Graves’ disease, currently taking methimazole 5 mg twice daily. Also have AFib from high heart rate. mostrecent blood tests show t4 is now normal14. At worst was 53. T3 is 5.7 was 11.8. Problem is the the tsh is still .01. Ferritin only 24. How to increase Tsh ?

is it possible to have grave’s disease with negative TRAb but positive TPO?

Hello, I have recently been diagnosed with Graves disease 5 months postpartum. I have no symptoms other than the GP noticing a goiter in my neck and subsequently taking bloods that resulted in the diagnosis.

In the last 2 years, I've had a frozen shoulder (treated), graves disease (now in remission) this face thing and extreme fatigue along with knuckle and knee pain. I'm being treated with hydroxychloroquine via rheumatology, but my bloods are negative for lupus and scleroderma.

Hi, I have just been diagnosed with Graves Disease/hyperthyroidism and been prescribed Carbimazole. Can anybody tell me if they've had any side effects? I'm concerned about taking them because I have a holistic approach to everything, I can't remember the last time I took pharmaceuticals.

Hi All - I was diagnosed with Graves Disease in June 2023 and prescribed Carbimazole 20mg plus Propranolol 80mg Sustained Release. I have never actually met my endocrinologist owing to NHS strikes, so as a 60yo man I feel pretty alone with this condition as I don't know anyone else who has it.

Hi guys,I am new to this site and was wondering if anyone can tell me if a person can have graves disease even I f blood test at doctors came back as normal.am waiting to see an endocrinologist but was surprised when there was no mention of graves disease.my ultrasound showed a neck mass on right of

Hi guys, so I was diagnosed with graves disease causing hyperthyroidism and celiac disease in June last year. I have been on 40mg carbimazole per day and 80mg propanalol per day since. I had a consultation with my endocrinologist yesterday, she has now reduced my dose to 30mg carbimazole per day.

They said I have hyperthyroidism, likely caused by Graves disease. I have symptoms of Thyroid Eye Disease. My results came back in range! So, do I not have Graves disease after all?! After feeling like I was finally getting a handle on things, I'm now utterly lost again. What now?

Good morning all, I have been recently diagnosed with Hyperthyroidism (Graves disease) and attached is the result. Do I need second medical opinion? Should I request further tests? If so, what tests? Do I need change of diet? If so, what kind of diet?

Hi everyone, my son was diagnosed with Graves disease, he is 15 years old, he also has thyroid eye disease.

Hi, I was diagnosed with hyperthyroidism in April with the underlying cause being Graves Disease diagnosed in July, Still trying to manage the right meds and decision on next treatment, but I regularly feel nauseous after eating, just wondered if anyone else experiences this.