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Take part in the PLAN-HERACLES survey
Researchers at Cardiff University are looking for people living with Rheumatoid Arthritis to provide thoughts on a proposed weekly disease activity monitoring tool that they hope to develop through future funded research. They would like you to complete the survey in the link below. For more information
Researchers at Cardiff University are looking for people living with Rheumatoid Arthritis to provide thoughts on a proposed weekly disease activity monitoring tool that they hope to develop through future funded research. They would like you to complete the survey in the link below. For more information
Aribah-NRAS
NRAS
in
NRAS
1 month ago
Specialist appointment
Hi I was diagnosed with compensated cirrhosis in August last year and ended up in ICU for due to contracting sepsis while being admitted to hospital and as such had intensive care for sepsis and lmy liver. I have had 2 visits to the specialist luver nurse and was reassessed to compensated irrhodis
Hi I was diagnosed with compensated cirrhosis in August last year and ended up in ICU for due to contracting sepsis while being admitted to hospital and as such had intensive care for sepsis and lmy liver. I have had 2 visits to the specialist luver nurse and was reassessed to compensated irrhodis
Oasisman
in
British Liver Trust
6 months ago
Father with Stage 4 prostate cancer in 8 bones.
On 10/25/22 I took my dad (79 at the time) to the ER at the VA for escalating back pain and we walked out with a stage 4 prostate cancer diagnosis. When I brought him to the ER I expected them to tell me he had lung cancer as he is a lifelong smoker. Additionally, I had been worried about him all year
On 10/25/22 I took my dad (79 at the time) to the ER at the VA for escalating back pain and we walked out with a stage 4 prostate cancer diagnosis. When I brought him to the ER I expected them to tell me he had lung cancer as he is a lifelong smoker. Additionally, I had been worried about him all year
lgutman
in
Advanced Prostate Cancer
6 months ago
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I think I have Lupus but not diagnosed yet
hello everyone. I have always been a really active person. I consider myself athletic and constantly keep myself busy. But have been struggling with fatigue for a few years and put this down to IBS and getting older (late 30’s) but despite my IBS being well controlled now, recently my symptoms have
hello everyone. I have always been a really active person. I consider myself athletic and constantly keep myself busy. But have been struggling with fatigue for a few years and put this down to IBS and getting older (late 30’s) but despite my IBS being well controlled now, recently my symptoms have
Zephyrspurple
in
LUPUS UK
1 month ago
PSORIATIC ARTHRITIS
I supposedly have psoriatic arthritis/tendinopathy however there is no evidence in my blood. My tendons attaching to elbows and feet become extremely painful. I was put on MTX 15ml injections for 8 months but stopped as my blood cells were slightly enlarged and the jury is out if it was even working
I supposedly have psoriatic arthritis/tendinopathy however there is no evidence in my blood. My tendons attaching to elbows and feet become extremely painful. I was put on MTX 15ml injections for 8 months but stopped as my blood cells were slightly enlarged and the jury is out if it was even working
Cheylann
in
NRAS
1 month ago
CBD AND GRAVES
I have
Graves
’
disease
and thyroid eye disease. It’s currently well managed and I am on 10mg of carbimozole per day. I am also recovering from treatment for oestrogen reactive breast cancer - still undergoing reconstructive surgeries and taking oestrogen blocking medication.
I have
Graves
’
disease
and thyroid eye disease. It’s currently well managed and I am on 10mg of carbimozole per day. I am also recovering from treatment for oestrogen reactive breast cancer - still undergoing reconstructive surgeries and taking oestrogen blocking medication.
Millea
in
Graves Disease Support
1 year ago
Successful Pluvicto Treatment
I completed six Pluvicto treatments in December 2023 and returned to Mayo in Rochester on January 31, 2024 for a Choline Pet scan to see if it would reveal any non-PSMA PCa. My doctor reviewed the report and scans and informed me that my cancer appears to be in complete remission. The findings of the
I completed six Pluvicto treatments in December 2023 and returned to Mayo in Rochester on January 31, 2024 for a Choline Pet scan to see if it would reveal any non-PSMA PCa. My doctor reviewed the report and scans and informed me that my cancer appears to be in complete remission. The findings of the
Skifanatic
in
Advanced Prostate Cancer
6 months ago
Post Transplant Fatigue
Hello, I had my liver transplant just over 6 years ago now and apart from an issue right at the beginning, I have been well. I’ve not even had covid! Recently though I’ve begun to feel very tired again, almost as if I’d never had the transplant at all. My question is, has anyone else experienced chronic
Hello, I had my liver transplant just over 6 years ago now and apart from an issue right at the beginning, I have been well. I’ve not even had covid! Recently though I’ve begun to feel very tired again, almost as if I’d never had the transplant at all. My question is, has anyone else experienced chronic
Dawnejoy
in
British Liver Trust
6 months ago
Treatment for low-PSA mHSPCa
Does anyone have a clue for treatment of low-PSA metastatic PCa? For neuroendocrine PCa? The only study I can find on treatment for low-PSA: "Mortality Risk for Docetaxel-Treated, High-Grade Prostate Cancer With Low PSA Levels: A Meta-Analysis | Oncology | JAMA Network Open" | indicates that
Does anyone have a clue for treatment of low-PSA metastatic PCa? For neuroendocrine PCa? The only study I can find on treatment for low-PSA: "Mortality Risk for Docetaxel-Treated, High-Grade Prostate Cancer With Low PSA Levels: A Meta-Analysis | Oncology | JAMA Network Open" | indicates that
Purple-Bike
in
Advanced Prostate Cancer
6 months ago
Mets to lungs and lymph nodes need some advice
Hi there, i was diagnosed with oligometastatic pca 6 years ago,51 yo psa was 25, tried to go on a curative path and went for prostatectomy followed with radiotherapy +sbrt to ilium bone suspicion for bone met and pelvic lymph nodes +adt and abiraterone for 24 months.I have refused to chemo along
Hi there, i was diagnosed with oligometastatic pca 6 years ago,51 yo psa was 25, tried to go on a curative path and went for prostatectomy followed with radiotherapy +sbrt to ilium bone suspicion for bone met and pelvic lymph nodes +adt and abiraterone for 24 months.I have refused to chemo along
Niso
in
Advanced Prostate Cancer
6 months ago
How long does a coeliacs blood test take to come back?
Exactly that! I had bloods done on Friday lunch time, including a FBC, B12, folate, and ferritin. Also Coeliac screen (TTG). All the others are back but not the coeliac screen yet. Is that usual?
Exactly that! I had bloods done on Friday lunch time, including a FBC, B12, folate, and ferritin. Also Coeliac screen (TTG). All the others are back but not the coeliac screen yet. Is that usual?
WitchingHour2point0
in
Thyroid UK
1 month ago
Thyroid tests
I have
Graves
disease
since 2007 and had thyroidectomy in 2019. I have felt fine for the last 4 years on levothyroxine (75mcg Monday to Saturday, 50mcg on Sundays). I've recently developed digestive issues with some indigestion and morning diarrhea or loose stool at best.
I have
Graves
disease
since 2007 and had thyroidectomy in 2019. I have felt fine for the last 4 years on levothyroxine (75mcg Monday to Saturday, 50mcg on Sundays). I've recently developed digestive issues with some indigestion and morning diarrhea or loose stool at best.
Sophitje
in
Thyroid UK
10 months ago
Breakthrough with the cause of IBD - may lead to similar discoveries with other autoimmune diseases?
Just spotted this on my BBC News notifications. BBC News - Major cause of inflammatory bowel disease found https://www.bbc.com/news/articles/c1wwdd6v2wjo It's written in layman's language, but seems to say they have found that there is a genetic link and that they have drugs already that might treat
Just spotted this on my BBC News notifications. BBC News - Major cause of inflammatory bowel disease found https://www.bbc.com/news/articles/c1wwdd6v2wjo It's written in layman's language, but seems to say they have found that there is a genetic link and that they have drugs already that might treat
Broseley
in
PMRGCAuk
2 months ago
Northern Ireland Lupus Group and LUPUS UK Virtual Volunteering Event - 26th June 7pm!
Do you live in Northern Ireland and want to get involved in volunteering? The Northern Ireland Lupus Group and LUPUS UK National Office are hosting an online volunteer information event on Wednesday 26th June, from 7pm until 9pm. This is a brilliant opportunity to learn about the charity and the many
Do you live in Northern Ireland and want to get involved in volunteering? The Northern Ireland Lupus Group and LUPUS UK National Office are hosting an online volunteer information event on Wednesday 26th June, from 7pm until 9pm. This is a brilliant opportunity to learn about the charity and the many
michaellasmith
Administrator
in
LUPUS UK
2 months ago
Investigational MS Med Nearly Eliminates Disease Activity on MRI
NASHVILLE, TENNESSEE — A second-generation anti-CD40L monoclonal antibody suppresses multiple sclerosis (MS) disease activity on MRI to an uncommonly high degree, new trial data suggested.
https://www.mdedge.com/neurology/article/269463/multiple-sclerosis/investigational-ms-med-nearly-eliminates-disease
NASHVILLE, TENNESSEE — A second-generation anti-CD40L monoclonal antibody suppresses multiple sclerosis (MS) disease activity on MRI to an uncommonly high degree, new trial data suggested.
https://www.mdedge.com/neurology/article/269463/multiple-sclerosis/investigational-ms-med-nearly-eliminates-disease
BettysMom
in
My MSAA Community
2 months ago
Scared and Feeling Helpless
Let me start by saying that it was my intention to wait for an official diagnosis for my dad before I started posting here. I found this group recommended on the Prostate Cancer Reddit Forum. I’ve been really struggling lately with absolute utter fear and lack of control (more on that later). My dad
Let me start by saying that it was my intention to wait for an official diagnosis for my dad before I started posting here. I found this group recommended on the Prostate Cancer Reddit Forum. I’ve been really struggling lately with absolute utter fear and lack of control (more on that later). My dad
Cafu6
in
Advanced Prostate Cancer
6 months ago
Indapamide & Potassium
Hi guys, i had a blood test on Monday as doctor wanted to test U&Es. Was born with one kidney & have high blood pressure also underactive thyroid Serum sodium level 135 mmol/L [133.0 - 146.0] Serum potassium level 3.5 mmol/L [3.5 - 5.3] Serum urea level 3.2 mmol/L [2.5 - 7.8] Serum creatinine level 74
Hi guys, i had a blood test on Monday as doctor wanted to test U&Es. Was born with one kidney & have high blood pressure also underactive thyroid Serum sodium level 135 mmol/L [133.0 - 146.0] Serum potassium level 3.5 mmol/L [3.5 - 5.3] Serum urea level 3.2 mmol/L [2.5 - 7.8] Serum creatinine level 74
yewotc23
in
Thyroid UK
2 months ago
still anxious about pancreatic cancer
hey, so I've been told I have Gilbert syndrome as although my bloods have shown elevated bilirubin (23 u/mol and then 2nd blood test 32 u/mol) my liver function is fine, I have also had a clear ultrasound. have been having middle to upper back ache on and off for months and I'm now worried again that
hey, so I've been told I have Gilbert syndrome as although my bloods have shown elevated bilirubin (23 u/mol and then 2nd blood test 32 u/mol) my liver function is fine, I have also had a clear ultrasound. have been having middle to upper back ache on and off for months and I'm now worried again that
Megaaalee
in
British Liver Trust
2 months ago
KIDNEY EQUITY FOR ALL
In honor of Black History Month we'd like to highlight KIDNEY EQUITY FOR ALL. This is a patient-focused, community-minded movement dedicated to ensuring that ALL kidney patients have access to high-quality, patient-centered kidney care from the moment of diagnosis to transplantation. To learn more about
In honor of Black History Month we'd like to highlight KIDNEY EQUITY FOR ALL. This is a patient-focused, community-minded movement dedicated to ensuring that ALL kidney patients have access to high-quality, patient-centered kidney care from the moment of diagnosis to transplantation. To learn more about
JackieJ_NKF
Partner
in
Kidney Dialysis
6 months ago
self-inject intramuscular vitamin B12
Hi all,I often read these posts but not very often write in. I was diagnosed with PA in 2000 using the schillings test. I have been having IM injections every 3 months ever since. However since COVID I have been self injecting. My surgery does not really support that, so I just buy supplies from Germany
Hi all,I often read these posts but not very often write in. I was diagnosed with PA in 2000 using the schillings test. I have been having IM injections every 3 months ever since. However since COVID I have been self injecting. My surgery does not really support that, so I just buy supplies from Germany
Tonyworks
in
Pernicious Anaemia Society
2 months ago
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