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Hello 👋🏿
Hi everyone! My name is Taress (rhymes with caress). I was diagnosed with Multiple Sclerosis 6 months ago. It's been a long time coming. I have had symptoms of it, on and off, since 2005. I am one of three of my family members whose been diagnosed with it. My main symptoms are fatigue, dizziness, neuropathy
Hi everyone! My name is Taress (rhymes with caress). I was diagnosed with Multiple Sclerosis 6 months ago. It's been a long time coming. I have had symptoms of it, on and off, since 2005. I am one of three of my family members whose been diagnosed with it. My main symptoms are fatigue, dizziness, neuropathy
RessieBare02
in
My MSAA Community
3 months ago
Is it just me?
Wondering if anyone else isn't sold on the concept of taking a sledgehammer to the immune system to treat RRMS. I am looking forward to these meds finishing clinical trials: * Vidofludimus calcium [It's both anti-EBV and neuroprotective effect] (Link: https://multiplesclerosisnewstoday.com
Wondering if anyone else isn't sold on the concept of taking a sledgehammer to the immune system to treat RRMS. I am looking forward to these meds finishing clinical trials: * Vidofludimus calcium [It's both anti-EBV and neuroprotective effect] (Link: https://multiplesclerosisnewstoday.com
By-Design-1000
in
My MSAA Community
6 months ago
No thyroid
Hi, all the posts are about thyroid problems and taking levo for underactive thyroid, I'm taking levo 50mg and 75mg on alternate days. Can anyone tell me if taking tiromel or the unipharma tablets would be any use fo r someone who has had a total thyroidectomy. At the moment I feel as though I'm sleeping
Hi, all the posts are about thyroid problems and taking levo for underactive thyroid, I'm taking levo 50mg and 75mg on alternate days. Can anyone tell me if taking tiromel or the unipharma tablets would be any use fo r someone who has had a total thyroidectomy. At the moment I feel as though I'm sleeping
Sleepyasf--k
in
Thyroid UK
3 months ago
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b12 liver stores
Hi everyone, Just a quick question for those of us with PA. When we have b12 loading doses I have read this replenishes liver stores. Can anyone tell me does this b12 always successfully make it into the liver stores? I ask because my body does not reflect this. Loading doses did nothing to alleaviate
Hi everyone, Just a quick question for those of us with PA. When we have b12 loading doses I have read this replenishes liver stores. Can anyone tell me does this b12 always successfully make it into the liver stores? I ask because my body does not reflect this. Loading doses did nothing to alleaviate
brenanddave
in
Pernicious Anaemia Society
6 months ago
Medication not working
I’ve had rheumatoid arthritis for nearly 20years. I’ve tried, methotrexate, Arava, adalimimab, entanercept, ruituxan, filgotinib, baracitinib and a few others that aren’t biologics. The problem is, they don’t work for me. Has anyone else had this issue and if so what are you taking now. I’m at my wits
I’ve had rheumatoid arthritis for nearly 20years. I’ve tried, methotrexate, Arava, adalimimab, entanercept, ruituxan, filgotinib, baracitinib and a few others that aren’t biologics. The problem is, they don’t work for me. Has anyone else had this issue and if so what are you taking now. I’m at my wits
Lornap1
in
NRAS
3 months ago
Telephone Consultation
I have a telephone consultation with the Cardio team this Thursday, my first one. I have had a 24 hour heart monitor, an ECG and a chest x-ray all of which have come back as normal, yet the palpitations have become much worse in the last month that when I'm having one, I can barely speak and it feels
I have a telephone consultation with the Cardio team this Thursday, my first one. I have had a 24 hour heart monitor, an ECG and a chest x-ray all of which have come back as normal, yet the palpitations have become much worse in the last month that when I'm having one, I can barely speak and it feels
CavendishCool
in
LUPUS UK
1 month ago
Ablate and pace
I started with left sided atrial flutter which responded well to cardioversion and kept me symptom free for nearly two years. I have stage one heart block so when I started to get occasional further episodes I had a pacemaker fitted so my dose of Bisoprolol could be increased from 1.25mg to 5mg daily
I started with left sided atrial flutter which responded well to cardioversion and kept me symptom free for nearly two years. I have stage one heart block so when I started to get occasional further episodes I had a pacemaker fitted so my dose of Bisoprolol could be increased from 1.25mg to 5mg daily
Borderterriorist
in
Atrial Fibrillation Support
1 month ago
biologics
hi all! I have rheumatoid arthritis I’m currently injecting 15 mg of Metratrexate but just had all my screening including TB all come back clear so now I have the green light to start Himera but I’m really nervous of this medication!🤦🏽‍♀️I’m staying on the metratrexate but adding in the biologic as
hi all! I have rheumatoid arthritis I’m currently injecting 15 mg of Metratrexate but just had all my screening including TB all come back clear so now I have the green light to start Himera but I’m really nervous of this medication!🤦🏽‍♀️I’m staying on the metratrexate but adding in the biologic as
Mybirthday1975
in
NRAS
3 months ago
Heat does it cause problems
Hi allBoth ankles and knees swollen does this often happen with underactive thyroid I am on 75 to 100mg daily which I alternate as recommended by you lovely lot which has helped me become stable and feel better for last year I do have inflammatory arthritis also and am on DMARS for Any advise tips will
Hi allBoth ankles and knees swollen does this often happen with underactive thyroid I am on 75 to 100mg daily which I alternate as recommended by you lovely lot which has helped me become stable and feel better for last year I do have inflammatory arthritis also and am on DMARS for Any advise tips will
Castroll
in
Thyroid UK
3 months ago
feeling down
This morning, my blood pressure spiked to over 180/90 again, and so I went back to the hospital. This time, I had to go to the GP assessment unit. My blood pressure came down to 152/85, so they let me go home, with a prescription for Ramipril 2.5gm to take, if my blood pressure stays at 180 or above
This morning, my blood pressure spiked to over 180/90 again, and so I went back to the hospital. This time, I had to go to the GP assessment unit. My blood pressure came down to 152/85, so they let me go home, with a prescription for Ramipril 2.5gm to take, if my blood pressure stays at 180 or above
Sixtychick
in
Atrial Fibrillation Support
1 month ago
Ultrasound/Biopsy show cirrhosis, but fibroscan score is 7.4
I’m somewhat perplexed… since my diagnosis I’ve been told I have cirrhosis, because of my biopsy and ultrasound results. A recent fibroscan score was 7.4, which is fibrosis. Although some parts of the fibroscan were as high as 8. Can someone explain this? My dr. was very vague in his explanation. Thank
I’m somewhat perplexed… since my diagnosis I’ve been told I have cirrhosis, because of my biopsy and ultrasound results. A recent fibroscan score was 7.4, which is fibrosis. Although some parts of the fibroscan were as high as 8. Can someone explain this? My dr. was very vague in his explanation. Thank
Danteskid
in
PBC Foundation
6 months ago
My girlfriend
My girlfriend had a tbi last July which she had a subdural hematoma and a subarachnoid hemorrhage after a bicycle accident and she making great progress with out the help of specialists because of the government health care insurance. I was just wondering if anyone had some tips that could help with
My girlfriend had a tbi last July which she had a subdural hematoma and a subarachnoid hemorrhage after a bicycle accident and she making great progress with out the help of specialists because of the government health care insurance. I was just wondering if anyone had some tips that could help with
bbaker84_
in
Headway
6 months ago
SFGR MCDA Twins
Hi I am currently 21 weeks pregnant with mcda twin boys , I have selective fetal growth restriction , one twin is much smaller and getting little of the placenta , the other has abnormal blood flow through the ambilical cord which they said could turn to ttts. We have been told our best case scenario
Hi I am currently 21 weeks pregnant with mcda twin boys , I have selective fetal growth restriction , one twin is much smaller and getting little of the placenta , the other has abnormal blood flow through the ambilical cord which they said could turn to ttts. We have been told our best case scenario
Choccypie90
in
Pregnancy and Parenting Support
2 months ago
so. Is Undifferentiated Connective Tissue Disease latent lupus or lupus?
diagnosed with UCTD in October 2023. Fatigue, weird blood results which sent down rabbit hole for heart, liver. Scans showed all okay… fatigue, dry eyes, dry mouth, ulcers on parotid glands, thyroid, testes, mouth ulcers, Yesterday taken into hospital for suspected brain bleed, aneurism. One protein
diagnosed with UCTD in October 2023. Fatigue, weird blood results which sent down rabbit hole for heart, liver. Scans showed all okay… fatigue, dry eyes, dry mouth, ulcers on parotid glands, thyroid, testes, mouth ulcers, Yesterday taken into hospital for suspected brain bleed, aneurism. One protein
Bigdave79
in
LUPUS UK
3 months ago
Is there a “recovery sheet” on what to do/not do after a cardioversion.
had first cardioversion in December 2024, which lasted 5 days. Next cardioversion is booked for next Thursday, hospital advice was rest for 24 hours, no alcohol or caffeine, no driving. After 48 hours back to normal. Any suggestions to try and prolong sinus rhythm would be appreciated
had first cardioversion in December 2024, which lasted 5 days. Next cardioversion is booked for next Thursday, hospital advice was rest for 24 hours, no alcohol or caffeine, no driving. After 48 hours back to normal. Any suggestions to try and prolong sinus rhythm would be appreciated
mear1957
in
Atrial Fibrillation Support
2 months ago
Magnesium as ozonated magnesium oxides
Hello again. Slow Dragon said that there needs to be 4 hours after T4 or T3 before taking Magnesium. I take magnesium from ozonated magnesium oxides with 3% potassium before bed to help with any constipation that still lingers a little. I asked the company about their product and they said they don't
Hello again. Slow Dragon said that there needs to be 4 hours after T4 or T3 before taking Magnesium. I take magnesium from ozonated magnesium oxides with 3% potassium before bed to help with any constipation that still lingers a little. I asked the company about their product and they said they don't
Lottyplum
in
Thyroid UK
6 months ago
Results from blood tests
These is what my blood results came back has. I'm been treated for underactive . But to be told I'm hyperthyroidism instead
These is what my blood results came back has. I'm been treated for underactive . But to be told I'm hyperthyroidism instead
Salsybar73
in
Thyroid UK
3 months ago
Disease remission achieved in SLE with dual-target CAR T-cell therapy
Disease remission achieved in SLE with dual-target CAR T-cell therapy Nearly all patients in small trial see long-term medication-free remission Nearly all people with systemic lupus erythematosus (SLE) treated with iCell Gene Therapeutics’ dual-target CAR T-cell therapy achieved medication-free
Disease remission achieved in SLE with dual-target CAR T-cell therapy Nearly all patients in small trial see long-term medication-free remission Nearly all people with systemic lupus erythematosus (SLE) treated with iCell Gene Therapeutics’ dual-target CAR T-cell therapy achieved medication-free
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 months ago
Feeling rubbish
Hi been feeling achy, exhausted,can sleep 12 hrs but wake up groggy & tired. Everything hurts. Have plantar fasciatis. Patella deformity in knee, spondylitis in my back giving me sciatica. Herniated discs both sides of neck. Causing numbess & pain. Chronic pain syndrome. Cfs/fybro/me. Arthritis in some
Hi been feeling achy, exhausted,can sleep 12 hrs but wake up groggy & tired. Everything hurts. Have plantar fasciatis. Patella deformity in knee, spondylitis in my back giving me sciatica. Herniated discs both sides of neck. Causing numbess & pain. Chronic pain syndrome. Cfs/fybro/me. Arthritis in some
bellemia
in
Thyroid UK
3 months ago
NRAS Live: How Important is Nutrition & Diet when Managing Rheumatoid Arthritis?
Join us for our next NRAS Live which will be taking place on Wednesday 26th June at 7pm. This month, we delve into the important role of nutrition and diet when managing a healthy lifestyle living with rheumatoid arthritis. Ailsa will be sitting down with Elena Nikiphorou, Rheumatologist Consultant and
Join us for our next NRAS Live which will be taking place on Wednesday 26th June at 7pm. This month, we delve into the important role of nutrition and diet when managing a healthy lifestyle living with rheumatoid arthritis. Ailsa will be sitting down with Elena Nikiphorou, Rheumatologist Consultant and
Aribah-NRAS
NRAS
in
NRAS
3 months ago
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