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Gorlin syndrome
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what isthmus usual maintenance dose of the Neupro patch?
Hi all! I am back again after quite a few years. I am trying Neupro patches as a last resort after trying absolutely everything else over time. I was actually doing fine on Oxycodone but my new GP was insistent that I came off them. So my London consultant has suggested Neupro patches. I have just
Hi all! I am back again after quite a few years. I am trying Neupro patches as a last resort after trying absolutely everything else over time. I was actually doing fine on Oxycodone but my new GP was insistent that I came off them. So my London consultant has suggested Neupro patches. I have just
Sheelaghj
in
Restless Legs Syndrome
4 years ago
What to do????
Hi I was initially on Benepali biologic for a year, it proved bery beneficial, changing my life really, however, stopped reaching therapeutic effect. Then px Adalimumab , which didnt seem to work. It took me a long time to recieve biologics, so i am reluctant to change to other meds. My doc wants me
Hi I was initially on Benepali biologic for a year, it proved bery beneficial, changing my life really, however, stopped reaching therapeutic effect. Then px Adalimumab , which didnt seem to work. It took me a long time to recieve biologics, so i am reluctant to change to other meds. My doc wants me
Cheryl20
in
NRAS
4 years ago
How long does it take to receive 12 week Down syndrome screening blood test
I think I’m going to tell my employer after I receive integrated screening test result. How long does it take to receive 12 week Down syndrome screening blood test?
I think I’m going to tell my employer after I receive integrated screening test result. How long does it take to receive 12 week Down syndrome screening blood test?
LondontoSeoul
in
Pregnancy and Parenting Support
4 years ago
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Amniocentesis?
I am 35 years old and on my third pregnancy. I have had an abnormal test result indicating a high risk for the baby to be born with spina bifida. At my last ultrasound (done at 22 weeks) they found the baby has fluid in both kidneys. This is a slight indication of spina bifida as well. Should I have
I am 35 years old and on my third pregnancy. I have had an abnormal test result indicating a high risk for the baby to be born with spina bifida. At my last ultrasound (done at 22 weeks) they found the baby has fluid in both kidneys. This is a slight indication of spina bifida as well. Should I have
Simsta
in
Pregnancy and Parenting Support
4 years ago
hi could anyone advise on natural remedies that have worked for their restless legs syndrome
Hi friend of mine has rls but would like to try dietary adjustments or natural remedies that provide relief first . Oh and also sorry what blood deficiencies that can exacerbate it would be helpful thankyou . Any suggestions greatly appreciated . Thank you .
Hi friend of mine has rls but would like to try dietary adjustments or natural remedies that provide relief first . Oh and also sorry what blood deficiencies that can exacerbate it would be helpful thankyou . Any suggestions greatly appreciated . Thank you .
poppppy
in
Restless Legs Syndrome
4 years ago
Lupus and Sjogrens- and angular cheilitis
Hi all, it looks like I have secondary Sjogrens to my lupus sle. My hair is thinning at a rapid pace (😞) and now due to dry mouth I have mouth cuts (angular cheilitis I think it’s called) I’m not due to see my consultant rheumatologist until later in the year (but I did speak to a registrar last
Hi all, it looks like I have secondary Sjogrens to my lupus sle. My hair is thinning at a rapid pace (😞) and now due to dry mouth I have mouth cuts (angular cheilitis I think it’s called) I’m not due to see my consultant rheumatologist until later in the year (but I did speak to a registrar last
Sin123
in
LUPUS UK
4 years ago
Horizant
I am a long term rls sufferer and I need help dealing with my condition. I was on gabapentin for about 9 years but the condition just steadily got worse. After a neurological consult, I was given ropinirol & clonazapan. Results were variable at best. Due to side effects, I stopped taking clonazapan.
I am a long term rls sufferer and I need help dealing with my condition. I was on gabapentin for about 9 years but the condition just steadily got worse. After a neurological consult, I was given ropinirol & clonazapan. Results were variable at best. Due to side effects, I stopped taking clonazapan.
Earlyriser13
in
Restless Legs Syndrome
4 years ago
Endo with Ehlers Danlos
Does anyone here have endometriosis along with Ehlers Danlos Syndrome? What treatments have you had and have they been beneficial?
Does anyone here have endometriosis along with Ehlers Danlos Syndrome? What treatments have you had and have they been beneficial?
Endoendo
in
Endometriosis UK
4 years ago
Steriods for ivf
So I’ve had 5 previous ivf fails. All with good quality embryos. Only on my last attempt I was told about steriods to help with implantation. Unfortunately it was a failed attempt too but I strongly believe I should of been offered these a long time before. I am just starting my next fresh round to
So I’ve had 5 previous ivf fails. All with good quality embryos. Only on my last attempt I was told about steriods to help with implantation. Unfortunately it was a failed attempt too but I strongly believe I should of been offered these a long time before. I am just starting my next fresh round to
Ruthie82
in
Fertility Network UK
4 years ago
Little Embie on board! - what supplements to stop? / tips
Firstly thank you all so much for your responses yesterday!. Little embie now on board! Out of my 4 , i had one 5aa that has been put in. Two others that are close but not quite there yet to freeze ( they are letting me know tomorrow) my lining just made it at 6.5! Hopefully thick enough! I do have
Firstly thank you all so much for your responses yesterday!. Little embie now on board! Out of my 4 , i had one 5aa that has been put in. Two others that are close but not quite there yet to freeze ( they are letting me know tomorrow) my lining just made it at 6.5! Hopefully thick enough! I do have
kathgibson22
in
Fertility Network UK
4 years ago
3 days with no Pramiperoxle, what now?
Could someone advise me how long it takes to withdraw from Pramiperoxile fully and finally. The last 3 days of no Pramiperoxle have been better/easier that I thought it would be but still get periods of being extremely uncomfortable with RLS symptoms. I am taking Cannabis oil two drops twice a day
Could someone advise me how long it takes to withdraw from Pramiperoxile fully and finally. The last 3 days of no Pramiperoxle have been better/easier that I thought it would be but still get periods of being extremely uncomfortable with RLS symptoms. I am taking Cannabis oil two drops twice a day
kelirock
in
Restless Legs Syndrome
4 years ago
Quitting Pramipexole
Has anybody successfully quit Pramipexole after being hooked to it for years? How? When I started Pramipexole (Mirapex) in 2011, with 0.125mg a day, I guess nobody knew yet about this Augmentation shit, and my doctor told me to just increase the dosage if the current dosage doesn't work anymore. Now
Has anybody successfully quit Pramipexole after being hooked to it for years? How? When I started Pramipexole (Mirapex) in 2011, with 0.125mg a day, I guess nobody knew yet about this Augmentation shit, and my doctor told me to just increase the dosage if the current dosage doesn't work anymore. Now
RestlessRR
in
Restless Legs Syndrome
4 years ago
Negative bloods
Hi I am new here and new to these symptoms of extremely dry mouth and dry eyes, I have weight loss and fatigue also. I recently had blood tests which came back negative. The doctors receptionist told me over the phone and no mention of needing to see the doctor again or have other tests....I have just
Hi I am new here and new to these symptoms of extremely dry mouth and dry eyes, I have weight loss and fatigue also. I recently had blood tests which came back negative. The doctors receptionist told me over the phone and no mention of needing to see the doctor again or have other tests....I have just
Pyxie
in
The Australian Sjögren's Syndrome Association
4 years ago
Day 31 in the ICU. I’m having a hard time trying to cope...
Again we spoke to the doctors and they are not rooting for my dad to make it. He is at 55% on the vent with peep of 10. We discussed if the next step would be the trach. But she also said that that may bring more problems to my Dad and it doesn’t guarantee that he will make it. She talked about considering
Again we spoke to the doctors and they are not rooting for my dad to make it. He is at 55% on the vent with peep of 10. We discussed if the next step would be the trach. But she also said that that may bring more problems to my Dad and it doesn’t guarantee that he will make it. She talked about considering
Garbagestar34
in
ICUsteps
4 years ago
Bariatric surgery and scleroderma
Has anyone with diffuse scleroderma had Bariatric surgery to help with reflux and weight loss?
Has anyone with diffuse scleroderma had Bariatric surgery to help with reflux and weight loss?
Steph
in
Scleroderma & Raynaud's UK (SRUK)
4 years ago
I’d be interested if this works for anyone else
I read that histamine intolerance can cause restless legs so I looked up foods with much histamine. I’ve cut out bananas, avocado, yoghourt, citrus fruits, tomatoes and spinach. After a few days my RLS disappeared. I am still taking my dopamine agonists but have not increased the dose as I was planning
I read that histamine intolerance can cause restless legs so I looked up foods with much histamine. I’ve cut out bananas, avocado, yoghourt, citrus fruits, tomatoes and spinach. After a few days my RLS disappeared. I am still taking my dopamine agonists but have not increased the dose as I was planning
LoisTonya
in
Restless Legs Syndrome
4 years ago
Flare-up not under control and just don't know what to do
Hi everyone Bit of background: Had PMR for 3 years in October but only diagnosed 2 years ago in October. Been on a steroid reduction scheme but developed steroid myopathy in December 2019 (when I had a flare-up and increased steroids) which was only diagnosed in April 2020. Was advised to reduce 1mg
Hi everyone Bit of background: Had PMR for 3 years in October but only diagnosed 2 years ago in October. Been on a steroid reduction scheme but developed steroid myopathy in December 2019 (when I had a flare-up and increased steroids) which was only diagnosed in April 2020. Was advised to reduce 1mg
EscapedtoWales
in
PMRGCAuk
4 years ago
Aspartam!!!
For some months I've liked to drink Coke but always chose light to avoid calories. My RLS became an awful hell with severe pain. Now I stopped to drink it and am free of pain! I still have RLS and need Pramipexol at night but the hell of pain during the day is gone. Seems I'm very sensible to Aspartam
For some months I've liked to drink Coke but always chose light to avoid calories. My RLS became an awful hell with severe pain. Now I stopped to drink it and am free of pain! I still have RLS and need Pramipexol at night but the hell of pain during the day is gone. Seems I'm very sensible to Aspartam
silkyreg
in
Restless Legs Syndrome
4 years ago
Success with Suboxone?
Hi all - I’m new (posting) here. Thanks for being a community, I’ve read so many posts and found comfort from all of you!! Quick background - I have suffered with RLS at least 20 years - but probably my whole life. Started pramipexole .25 in 2000 and in 2018 was taking 2.75mg due to general lack of
Hi all - I’m new (posting) here. Thanks for being a community, I’ve read so many posts and found comfort from all of you!! Quick background - I have suffered with RLS at least 20 years - but probably my whole life. Started pramipexole .25 in 2000 and in 2018 was taking 2.75mg due to general lack of
erinjee
in
Restless Legs Syndrome
4 years ago
Flare?
Ridiculously tired and headaches, thought it was heatstroke but now my knees are throbbing and my hand joints hurt I’m thinking it’s a flare?! Anyone else get similar, only diagnosed in January..
Ridiculously tired and headaches, thought it was heatstroke but now my knees are throbbing and my hand joints hurt I’m thinking it’s a flare?! Anyone else get similar, only diagnosed in January..
LLH76
in
Fibromyalgia Action UK
4 years ago
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