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lung ca and Crizotinib
hi I had been actually diagnosed with leimyosarcoma in calf muscle two years ago and successfully it was surgically removed and later no chemo was given. However in my scans there was a lung lesion that was there is scans but it was missed and left untreated till it reached stage 4. Now that I have been
hi I had been actually diagnosed with leimyosarcoma in calf muscle two years ago and successfully it was surgically removed and later no chemo was given. However in my scans there was a lung lesion that was there is scans but it was missed and left untreated till it reached stage 4. Now that I have been
Hassan786
in
Lung Cancer Support
7 months ago
Taste Issues and finger neuropathy on Xtandi( enzalutamide) ?
In order to participate in a clinical trial (FOR46 at UCSF) I had to switch from Nubeqa (darolutamide) to enzalutamide. Previously on abiraterone. Did really well on both medications. Now 4 months on enzalutamide and my 5th research infusion, I'm experiencing some side effects. Trying to determine
In order to participate in a clinical trial (FOR46 at UCSF) I had to switch from Nubeqa (darolutamide) to enzalutamide. Previously on abiraterone. Did really well on both medications. Now 4 months on enzalutamide and my 5th research infusion, I'm experiencing some side effects. Trying to determine
bandgeek
in
Advanced Prostate Cancer
7 months ago
my cancer comic…
I’m a graphic designer who has done autobiographical comics for around 16 years, mostly about medical stuff (detached retina, thyroid surgery, a bad fall, gallbladder surgery…). Late last year I was diagnosed with prostate cancer. Just my prostate and some pelvic lymph nodes at this point, and awaiting
I’m a graphic designer who has done autobiographical comics for around 16 years, mostly about medical stuff (detached retina, thyroid surgery, a bad fall, gallbladder surgery…). Late last year I was diagnosed with prostate cancer. Just my prostate and some pelvic lymph nodes at this point, and awaiting
Jpburns
in
Advanced Prostate Cancer
7 months ago
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TSAT low but Ferritin fine/maybe high
Hi everyone, I do appreciate reading all of your posts and am sorry for how much suffering is connected to RLS. It's very encouraging to read about a number of people finding solutions to their RLS. I am seeing improvement but have some questions that I hope you can help me with: RLS has been a
Hi everyone, I do appreciate reading all of your posts and am sorry for how much suffering is connected to RLS. It's very encouraging to read about a number of people finding solutions to their RLS. I am seeing improvement but have some questions that I hope you can help me with: RLS has been a
b1interest
in
Restless Legs Syndrome
4 months ago
Tall Cell Aggressive Papillary Thyroid Cancer
Interested in speaking with other Tall Cell Papillary Thyroid Cancer adults diagnosed in late that have both the BRAF V 600 and TERT gene. I have had a total thyroidechtomy 2/3 para thyroid out 85 nodes removed. RAI 150. Daily radiation for 8 weeks with one day a week chemo, 6 proton therapy. Now
Interested in speaking with other Tall Cell Papillary Thyroid Cancer adults diagnosed in late that have both the BRAF V 600 and TERT gene. I have had a total thyroidechtomy 2/3 para thyroid out 85 nodes removed. RAI 150. Daily radiation for 8 weeks with one day a week chemo, 6 proton therapy. Now
Portugal-2
in
Thyroid UK
7 months ago
Tall Cell Agressive Papillary Thyroid Cancer
Interested in speaking with other Tall Cell Papillary Thyroid Cancer adults diagnosed in late that have both the BRAF V 600 and TERT gene. I have had a total thyroidechtomy 2/3 para thyroid out 85 nodes removed. RAI 150. Daily radiation for 8 weeks with one day a week chemo, 6 proton therapy. Now have
Interested in speaking with other Tall Cell Papillary Thyroid Cancer adults diagnosed in late that have both the BRAF V 600 and TERT gene. I have had a total thyroidechtomy 2/3 para thyroid out 85 nodes removed. RAI 150. Daily radiation for 8 weeks with one day a week chemo, 6 proton therapy. Now have
Portugal-2
in
Thyroid Cancer Support
7 months ago
Badminton Bolt 10K Race Report ⚡️😎👍
I had to do this one. It’s on my doorstep, the funds go to support a local school, the location is beautiful and it was my first 10K race since December 2021!!! Oh, and there was going to be bling 🤩 I didn’t find out until this morning that this was the very first Bolt 10K. There has been a 5K before
I had to do this one. It’s on my doorstep, the funds go to support a local school, the location is beautiful and it was my first 10K race since December 2021!!! Oh, and there was going to be bling 🤩 I didn’t find out until this morning that this was the very first Bolt 10K. There has been a 5K before
Irishprincess
Administrator
in
Fun Beyond 10K & Race Support
3 months ago
does anyone out there have histamine intolerance?
hi I’ve just changed from hydroxicarbamide to interferon. Seems ok, fingers crossed, but I also have histamine intolerance amd the absence of Hydroxicarbamide seems to be allowing my mast cells to have a high old time churning out histamine. Has anyone else experienced this? Louise
hi I’ve just changed from hydroxicarbamide to interferon. Seems ok, fingers crossed, but I also have histamine intolerance amd the absence of Hydroxicarbamide seems to be allowing my mast cells to have a high old time churning out histamine. Has anyone else experienced this? Louise
Loubprv
Volunteer
in
MPN Voice
4 months ago
lutonchoralsociety
hi can I join please I’m obese and considering the gastric band surgery ? I could really do with some help please. X
hi can I join please I’m obese and considering the gastric band surgery ? I could really do with some help please. X
Lutonchoralsociety
in
Weight Loss Support
3 months ago
Help with results!
Hi everyone! Hoping that I can get some advice here. I was diagnosed 3 years ago with endo via laparoscopy. Most of the endo was found on my pouch of douglas and ureteral sacral ligaments. Unfortunately the operation wasn’t done by an endo specialist! I recently got referred to an endo centre as
Hi everyone! Hoping that I can get some advice here. I was diagnosed 3 years ago with endo via laparoscopy. Most of the endo was found on my pouch of douglas and ureteral sacral ligaments. Unfortunately the operation wasn’t done by an endo specialist! I recently got referred to an endo centre as
LJC1416
in
Endometriosis UK
4 months ago
Update and advice needed x
Thank you all for your lovely comments. CT scan result shows a small area on the outside of the bowel which needs further investigation. Really shocked to hear this! After the procedure had been told cancer removed. Has anybody had a similar experience? Oncologist unable to say if it’s ovarian/bowel
Thank you all for your lovely comments. CT scan result shows a small area on the outside of the bowel which needs further investigation. Really shocked to hear this! After the procedure had been told cancer removed. Has anybody had a similar experience? Oncologist unable to say if it’s ovarian/bowel
ORGM
in
My Ovacome
7 months ago
Lansoprazole /Prolia
In my Sunday newspaper today the usual GP column has a question put to the GP about Lansoprazole use. Following a mini stroke this lady was put on various tablets one of which was Lansoprazole, and she developed pains in her legs and hips, had a scan and was told she had early-stage osteoporosis. She
In my Sunday newspaper today the usual GP column has a question put to the GP about Lansoprazole use. Following a mini stroke this lady was put on various tablets one of which was Lansoprazole, and she developed pains in her legs and hips, had a scan and was told she had early-stage osteoporosis. She
Purplegloss
in
PMRGCAuk
4 months ago
Bladder Cancer, biopsy and operation.
I all happened so quickly,next week pre-op discussion and operation on Friday. I would like to receive response from people who have had urinary bladder biopsy operation. Thanka a lot in advance.
I all happened so quickly,next week pre-op discussion and operation on Friday. I would like to receive response from people who have had urinary bladder biopsy operation. Thanka a lot in advance.
sandybrown
in
Lung Conditions Community Forum
7 months ago
Provider “B”-ware: Using Methylmalonic Acid Levels to Diagnose B12-deficiency Neuropathy
[i]"We present a patient with findings of subacute combined degeneration (SCD) in the setting of a mild B12 deficiency, with a normal methylmalonic acid level."[/i] https://www.neurology.org/doi/abs/10.1212/WNL.0000000000208306 Although this will not be news to old-timers here, it's important to note
[i]"We present a patient with findings of subacute combined degeneration (SCD) in the setting of a mild B12 deficiency, with a normal methylmalonic acid level."[/i] https://www.neurology.org/doi/abs/10.1212/WNL.0000000000208306 Although this will not be news to old-timers here, it's important to note
Technoid
in
Pernicious Anaemia Society
4 months ago
Abdominal and decending aorta aneurysms
Back in June 2023 I had a PET Scan. The results were negative, no matastisim, no other findings except divertculosis which I have had for years.Early January 2024, I had another PET Scan. No matastisism was found but, this time they found an abdominal Aorta Aneurysm 3.5 cm and an the makings of a decending
Back in June 2023 I had a PET Scan. The results were negative, no matastisim, no other findings except divertculosis which I have had for years.Early January 2024, I had another PET Scan. No matastisism was found but, this time they found an abdominal Aorta Aneurysm 3.5 cm and an the makings of a decending
woppaginny
in
Advanced Prostate Cancer
7 months ago
Leo 2327
Hi to all the ladies on this journey I am 3c ovarian cancer since May 2022 had 8 lots of chemo and debulking surgery and stoma then been on avastin for over a year last one next Friday and also take olaparib I am NED at the moment but I am suffering realy bad with hot sweats and tiredness is anyone else
Hi to all the ladies on this journey I am 3c ovarian cancer since May 2022 had 8 lots of chemo and debulking surgery and stoma then been on avastin for over a year last one next Friday and also take olaparib I am NED at the moment but I am suffering realy bad with hot sweats and tiredness is anyone else
Leo2327
in
My Ovacome
7 months ago
scheduled for Botox and tag removal. Possible hemrrhoidectomy
hey everyone! I’ve been dealing with anal fissures on and off ever since giving birth back in 2016. I used to be able to go months and months before having a retear. Then I started noticing I’d tear around my period. Then in 2023 I stopped working out and I noticed I got fissures every month!!! It’s
hey everyone! I’ve been dealing with anal fissures on and off ever since giving birth back in 2016. I used to be able to go months and months before having a retear. Then I started noticing I’d tear around my period. Then in 2023 I stopped working out and I noticed I got fissures every month!!! It’s
Sufferedtoolong
in
Pelvic Pain Support Network
4 months ago
Tests
How do you all get these tests done. I've had IBS for over 10 years and no test has ever been offered to me . I suffer every other day . And even going to my GP all she said is take probiotics, mebeverine and cut down on fibre , as I have IBS (D) and sometimes mixed . Every morning is a battle going
How do you all get these tests done. I've had IBS for over 10 years and no test has ever been offered to me . I suffer every other day . And even going to my GP all she said is take probiotics, mebeverine and cut down on fibre , as I have IBS (D) and sometimes mixed . Every morning is a battle going
Ceasersalad
in
IBS Network
4 months ago
Bowel inflammation trigger
Has anyone had their endo trigger with unbelievable pain when you have Diarrhoea? The pain was so bad I have been vomiting all night and I've now come out in hives.
Has anyone had their endo trigger with unbelievable pain when you have Diarrhoea? The pain was so bad I have been vomiting all night and I've now come out in hives.
Theodora2016
in
Endometriosis UK
4 months ago
The Big C
Hello friends: After 3 and 1/2 years of GCA and prednisone, I think I’m pretty much free. I’m down to 1 mg every other day. As providence has dictated, I was just diagnosed with triple negative breast cancer, which is an aggressive and unforgiving cancer. My question regards my current Immune state
Hello friends: After 3 and 1/2 years of GCA and prednisone, I think I’m pretty much free. I’m down to 1 mg every other day. As providence has dictated, I was just diagnosed with triple negative breast cancer, which is an aggressive and unforgiving cancer. My question regards my current Immune state
Snerd
in
PMRGCAuk
7 months ago
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