lung ca and Crizotinib

[Hassan786]

hi I had been actually diagnosed with leimyosarcoma in calf muscle two years ago and successfully it was surgically removed and later no chemo was given. However in my scans there was a lung lesion that was there is scans but it was missed and left untreated till it reached stage 4. Now that I have been asked file pet and other molecular level tests for adenocarcinona lung and it is advanced nsclc and I have to start medicine today . Kindly guide what precautions should I take while Crizotinib and what About the phlegm cough that I have. Is it ok ..as per the tests there is ros 1 positive mutation thatz why have been .now have started the medicine I need to know about the diet to bear the dose and about the precautions as well.

[Bow-19]

There is a ROS1 support group which it might be worth joining google.com/url?sa=t&rct=j&q...

[Bow-19]

theros1ders.org/connect-to-...

[Miranda_GO2 Partner]

Thanks for moving your post to this community. The SCLC community is great, but you probably won't meet anyone on that medication there because it's not approved for that type of cancer.

I want to second Bow-19's suggestion for the ROS1 group, it's a group of patients and caregivers who have experience with a lot of different types of ROS1 treatments and the members of the group are from all around the world. They also hold virtual support groups twice a month if you want to join. Posting the link again: theros1ders.org/connect-to-...

Let me know if you have any questions.

Warmly,

Miranda from GO2 for Lung Cancer

[CandaceGene]

Hello Hassan! I do not take Crizotinib but I take Tagrisso which is also an kinase inhibitor. When first diagnosed( April 2020, stage IV NSCLC) I asked my oncologist if there was a special diet to follow and he responded with 'eat a balance diet'. I found out later I should stay away from grapefruit. The pharmacist is another good resource to ask what may conflict with Crizotinib. Also, going on the Crizotinib web site will inform you of anything that may conflict with the medicine. It is also a good source for information regarding possible side-effects. The thing I just did recently was to ask my oncologist to refer me to the hospital's Registered Dietitian(RD). This was a big help for me as one of my side effects is diarrhea. The dietitian caught immediately some of the foods I was eating could be adding to my side effect of diarrhea. I found the hospital's RD to be very informative and extremely helpful for cancer patients. Shortly after I was diagnosed in 2020, I went to a RD in my local town, and unfortunately she was not helpful at all. So for the next couple of years I did nothing more about exploring a RD. Until my daughter suggested me to seek out the hospital RD. She works for GO2 for Lung Cancer and thus hears lots of helpful information. Be sure and take advantage of the GO2 for Lung Cancer website and services. The monthly Living Room video's are very informative. I highly recommend you sign up for a Phone Buddy. Go2 will match you with someone of similar diagnosis and treatment and you can talk on the phone with them personally. They will share with you what they have done to help navigate the cancer path we find ourselves on. It is so wonderful and refreshing to talk to someone who has the same cancer and treatment that you have. The Go2 for Lung cancer's Help Line is: 1-800-298-2436 or you can email them at: [e-mail]. If you are interested in a Phone Buddy they will be able to help you get started with that. The medical field has come a long way for those of us with cancer, I know you will find a lot of Hope along your new journey. Hugs to you!!

[Hassan786]

thank u dear for beautiful reply