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Good news
Hello ladies, My mother was diagnosed with OC stage 4a in December 2019 ( her story is in my bio.) After a debulking surgery, pleural infusion drainage, and chemo, she started taking Olaparib and the disease has been stable since. I just wanted to share the good news with you, as she had a PET scan
Hello ladies, My mother was diagnosed with OC stage 4a in December 2019 ( her story is in my bio.) After a debulking surgery, pleural infusion drainage, and chemo, she started taking Olaparib and the disease has been stable since. I just wanted to share the good news with you, as she had a PET scan
Uniquem
in
My Ovacome
9 months ago
TAPUR study
Following up on a genomics report (47 pages ! Plus 54 min consult) and came across this study (phase 2 basket trial) in the US. Essentially when exhausting, or before, standard of care options, allows patients to trial off label approved drugs using genomics to identify specific targetable variations
Following up on a genomics report (47 pages ! Plus 54 min consult) and came across this study (phase 2 basket trial) in the US. Essentially when exhausting, or before, standard of care options, allows patients to trial off label approved drugs using genomics to identify specific targetable variations
muzzatron
in
SHARE Metastatic Breast Cancer
10 months ago
Feeling a bit nervous. What next?
Dear ladies, advice sought Am stage 4a and have had debulking surgery and chemo. Took Niraparib for a year but it stopped working and I had spread to my liver. I finished 6 rounds of chemo late Oct and had bloods and a CT scan. Chemo has shrunk the cancer in my liver so that was good news. My oncologist
Dear ladies, advice sought Am stage 4a and have had debulking surgery and chemo. Took Niraparib for a year but it stopped working and I had spread to my liver. I finished 6 rounds of chemo late Oct and had bloods and a CT scan. Chemo has shrunk the cancer in my liver so that was good news. My oncologist
Skyeplus
in
My Ovacome
10 months ago
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Next steps after radiotherapy
Hi, In Oct 2023, My dad's MRI revealed that cancer had spread to few vertebral bones and has reached a rib bone. He got a PET scan and then underwent ~20 days of radiotherapy in Nov 2023. But his doctor has not asked him to do any follow-up tests after the radiotherapy ended. Is this the norm? Should
Hi, In Oct 2023, My dad's MRI revealed that cancer had spread to few vertebral bones and has reached a rib bone. He got a PET scan and then underwent ~20 days of radiotherapy in Nov 2023. But his doctor has not asked him to do any follow-up tests after the radiotherapy ended. Is this the norm? Should
QuestionsAbtMyDad
in
Prostate Cancer Network
10 months ago
Update on Cancer Diagnosis
Correction to recent post: I should have stated that I have been recently diagnosed with Lung Cancer. I could not see anywhere that I could edit my Post.
Correction to recent post: I should have stated that I have been recently diagnosed with Lung Cancer. I could not see anywhere that I could edit my Post.
cpt13
in
NRAS
10 months ago
Continued Journey
Getting my forth chemo treatment today. This has been much easier than the O CHOP. It has been smooth sailing especially with the surgically implanted port.( I forgot to mention). I am starting to notice some fatigue and energy slow down which is quite natural. One more chemo treatment tomorrow then
Getting my forth chemo treatment today. This has been much easier than the O CHOP. It has been smooth sailing especially with the surgically implanted port.( I forgot to mention). I am starting to notice some fatigue and energy slow down which is quite natural. One more chemo treatment tomorrow then
FiArt12X
in
CLL Support
3 months ago
SE's on Cabazitaxel/Carboplatin Combo
Fellow chemo warriors: I'm hoping your experiences can shed some light on my latest treatment variation. Long story short: I had 3 docetaxel infusions with zero side effects. Unfortunately, the response was only partial, so last week I started on Cab/Carboplatin combo. This has been a very different
Fellow chemo warriors: I'm hoping your experiences can shed some light on my latest treatment variation. Long story short: I had 3 docetaxel infusions with zero side effects. Unfortunately, the response was only partial, so last week I started on Cab/Carboplatin combo. This has been a very different
CrocodileShoes
in
Advanced Prostate Cancer
10 months ago
PMR again ?
I stopped pred on 8th October after 4 years and was OK until now. I have developed stiffness and aching in hips down to knees and am wondering whether the PMR has come again due to stress. I was diagnosed with breast cancer on 11th October and am currently on Letrozole to (hopefully !) shrink the tumour
I stopped pred on 8th October after 4 years and was OK until now. I have developed stiffness and aching in hips down to knees and am wondering whether the PMR has come again due to stress. I was diagnosed with breast cancer on 11th October and am currently on Letrozole to (hopefully !) shrink the tumour
Retallack
in
PMRGCAuk
10 months ago
Restart
I completed couch to 5k a few years ago & loved the experience - I was then addicted to running, to the freedom, how it helped clear my mind, distressed me, made me fitter, I could go on . However in November 2022 I got the worst news ever- I had cancer - by December 25th I was laid in hospital after
I completed couch to 5k a few years ago & loved the experience - I was then addicted to running, to the freedom, how it helped clear my mind, distressed me, made me fitter, I could go on . However in November 2022 I got the worst news ever- I had cancer - by December 25th I was laid in hospital after
MissTwiggy
Graduate
in
Couch to 5K
10 months ago
Myelofibrosis- GVHD graft, versus, host, disease.
Hi, thanks for accepting me onto your site. My name is Gary, I am 64 years old and was diagnosed with Myelofibrosis in July, 2024. It all started when I began to feel lethargic and very tired, I had no inspiration to do anything. I was a taxi driver and was only managing to work one or two days a week
Hi, thanks for accepting me onto your site. My name is Gary, I am 64 years old and was diagnosed with Myelofibrosis in July, 2024. It all started when I began to feel lethargic and very tired, I had no inspiration to do anything. I was a taxi driver and was only managing to work one or two days a week
FreemanSaviors
in
MPN Voice
3 months ago
Myelofibrosis - GVHD - graft, versus, host, disease
Hi, thanks for accepting me onto the site. My name is Gary, I am 64 years old and was diagnosed with Myelofibrosis in July, 2024. It all started when I began to feel lethargic and very tired, I had no inspiration to do anything. I was a taxi driver and was only managing to work one or two days a week
Hi, thanks for accepting me onto the site. My name is Gary, I am 64 years old and was diagnosed with Myelofibrosis in July, 2024. It all started when I began to feel lethargic and very tired, I had no inspiration to do anything. I was a taxi driver and was only managing to work one or two days a week
FreemanSaviors
in
MPN Voice
3 months ago
thrush in mouth
I have had antibiotics lately and have thrush in my mouth. I have been prescribed Nystan to take 4 times a day. The nurse /practioner said also rinse my mouth after using my steroid inhaler.The problem is do I rinse and spit or rinse and swallow? Swallowing is so much easier
I have had antibiotics lately and have thrush in my mouth. I have been prescribed Nystan to take 4 times a day. The nurse /practioner said also rinse my mouth after using my steroid inhaler.The problem is do I rinse and spit or rinse and swallow? Swallowing is so much easier
Karate-Kid1
in
Lung Conditions Community Forum
6 months ago
Bile Acid Diarrhoea
I have this condition and take colestyramine daily which controls it well. I recently asked my GP to have my fat soluble vitamins checked (A,D and K, I believe) in a blood test as this has not been checked in a long time. The email! came back saying there was no indication for this. The literature
I have this condition and take colestyramine daily which controls it well. I recently asked my GP to have my fat soluble vitamins checked (A,D and K, I believe) in a blood test as this has not been checked in a long time. The email! came back saying there was no indication for this. The literature
Whitesugar
in
IBS Network
8 months ago
Rosacea due to B12 deficiency?
Hi, I have been diagnosed with vitamin b12 deficiency and starting the loading doses after firstly being prescribed oral. I had felt unwell for at least a year and had lots of the usual symptoms but I developed a rare form of rosacea (rosacea fulminans) at the end of last year which the GPs had not ever
Hi, I have been diagnosed with vitamin b12 deficiency and starting the loading doses after firstly being prescribed oral. I had felt unwell for at least a year and had lots of the usual symptoms but I developed a rare form of rosacea (rosacea fulminans) at the end of last year which the GPs had not ever
Bebe74
in
Pernicious Anaemia Society
8 months ago
Anxiety
Good evening all, last week I faced panic attack, after anytime In my mind thinking my heart is palpitations and there is something worng with my heart after that I went gp for consult and I shared him everything , after gp told me you have anxiety and he suggested me cipralex medicine, I want knows
Good evening all, last week I faced panic attack, after anytime In my mind thinking my heart is palpitations and there is something worng with my heart after that I went gp for consult and I shared him everything , after gp told me you have anxiety and he suggested me cipralex medicine, I want knows
Rajlover
in
Anxiety and Depression Support
6 months ago
Prostatic Artery Embolization
I’m 67 year old and have been suffering with BPH for years. Don’t want to do TURP or lasers. I’m interested in doing PAE. Has anyone had this procedure done. Does it work. I had a cystoscope and the urologist found a medial lobe at the neck of the bladder. Would PAE work if the blockage is located there
I’m 67 year old and have been suffering with BPH for years. Don’t want to do TURP or lasers. I’m interested in doing PAE. Has anyone had this procedure done. Does it work. I had a cystoscope and the urologist found a medial lobe at the neck of the bladder. Would PAE work if the blockage is located there
Roenken
in
Men's Health Forum
10 months ago
WHAT ARE THE CURRENT EFFECTIVE SALVAGE TREATMENTS IN CASE OF A REOCCURRENCE IF YOU HAVE HAD SBRT,IMRT, WITH PLACEMENT OF GOLD BARS?
It appears that if you had SBRT or like myself IMRT and you were given
gold markers
you cannot do any of the following
salvage treatments in case of a reoccurrence
: Proton therapy, Hifu, Tulsa Pro , Etc. Is this true???? Again a significant fact left out before treatment...
In addition
It appears that if you had SBRT or like myself IMRT and you were given
gold markers
you cannot do any of the following
salvage treatments in case of a reoccurrence
: Proton therapy, Hifu, Tulsa Pro , Etc. Is this true???? Again a significant fact left out before treatment...
In addition
JWS13
in
Advanced Prostate Cancer
10 months ago
anyone else feel wierd after discontinuing Piqray / Faslodex?
Hi all, my docs took me off Piqray and Faslodex a week ago. Since then I’ve had worse night sweats and diarrhea then when I was on the drugs! Plus a lingering headache and overall yucky feeling. I assumed it would resolve after a couple days but it’s been a full week. Has anyone else experienced that
Hi all, my docs took me off Piqray and Faslodex a week ago. Since then I’ve had worse night sweats and diarrhea then when I was on the drugs! Plus a lingering headache and overall yucky feeling. I assumed it would resolve after a couple days but it’s been a full week. Has anyone else experienced that
LDR1
in
SHARE Metastatic Breast Cancer
10 months ago
Reacting to piqray.
Don’t want to worry anyone, but just wanting to know if anyone has had this reaction to Piqray. I’m into my second week. On Piqray and Fulvestrant. At first I thought it was only my bottom, (left side) near site of injection, that was itchy. Then I started feeling a prickly feeling all over my body.
Don’t want to worry anyone, but just wanting to know if anyone has had this reaction to Piqray. I’m into my second week. On Piqray and Fulvestrant. At first I thought it was only my bottom, (left side) near site of injection, that was itchy. Then I started feeling a prickly feeling all over my body.
Timtam56
in
SHARE Metastatic Breast Cancer
10 months ago
double up
I have now seen a Gp re the bleeding piles and she’s confirmed they look sore I can confirm they feel sore I was incredibly anxious waiting to go into see her but calmed down a bit now I’am home so my question is doctor has now doubled up my fybogel to 2 a day that would help on days when I’am constipated
I have now seen a Gp re the bleeding piles and she’s confirmed they look sore I can confirm they feel sore I was incredibly anxious waiting to go into see her but calmed down a bit now I’am home so my question is doctor has now doubled up my fybogel to 2 a day that would help on days when I’am constipated
Poppyseed8
in
IBS Network
8 months ago
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