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INVOLVEMENT OPPORTUNITY: Have you been diagnosed with hepatitis C and interested in sharing your story? (England)
Have you been diagnosed with hepatitis C and would you be interested in sharing your story with the national press to promote an NHS campaign? The NHS has launched a new service for people to test at home for hepatitis C. To help make more people aware, we are looking for individuals in England who
Have you been diagnosed with hepatitis C and would you be interested in sharing your story with the national press to promote an NHS campaign? The NHS has launched a new service for people to test at home for hepatitis C. To help make more people aware, we are looking for individuals in England who
BritishLiverTrust1
Partner
in
British Liver Trust
5 months ago
How do you get diagnosed on the NHS
Hello all. I've just joined this forum and have a bit of a perplexing question. For years I've suffered from food intolerances and mild allergies. I have had (and still have) various autoimmune issues. Post Covid in 2020, I developed hay fever along with an increasing number of food intolerances qand
Hello all. I've just joined this forum and have a bit of a perplexing question. For years I've suffered from food intolerances and mild allergies. I have had (and still have) various autoimmune issues. Post Covid in 2020, I developed hay fever along with an increasing number of food intolerances qand
Treetop33
in
The UK Mastocytosis Support Group
2 months ago
Covid, covid test and tapering
Very slow tapering (DL style and working well) currently at 5mg prednisolone. Just into my 3rd year PMR diagnosis, when I contracted covid. Staying put at 5 mg now. PMR bouts of fatigue and sleepiness much worse this time though just starting to improve a little. not the case on my previous covid infection
Very slow tapering (DL style and working well) currently at 5mg prednisolone. Just into my 3rd year PMR diagnosis, when I contracted covid. Staying put at 5 mg now. PMR bouts of fatigue and sleepiness much worse this time though just starting to improve a little. not the case on my previous covid infection
waltztherapy
in
PMRGCAuk
2 months ago
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Steroid injection worn off?
Hope everyone is having the best day they can.I am newly diagnosed with inflammatory arthritis, already having osteoarthritis and recently diagnosed with fibromyalgia, so have a lot going on right now. After an initial consultation with the rheumatologist, I was given a steroid injection to tied me
Hope everyone is having the best day they can.I am newly diagnosed with inflammatory arthritis, already having osteoarthritis and recently diagnosed with fibromyalgia, so have a lot going on right now. After an initial consultation with the rheumatologist, I was given a steroid injection to tied me
hazelcats
in
NRAS
3 months ago
Colds/flu/viruses and Thyroxine
Just wondering is there any link to having Hashimotos and not having any colds/flu/viruses. The reason I ask is that I never got sick, with the usual colds etc for many years. I just started thyroxine a few months ago. Now I have a really horrible virus, coughing, temperature, flu like symptoms. This
Just wondering is there any link to having Hashimotos and not having any colds/flu/viruses. The reason I ask is that I never got sick, with the usual colds etc for many years. I just started thyroxine a few months ago. Now I have a really horrible virus, coughing, temperature, flu like symptoms. This
Sunflower535
in
Thyroid UK
10 months ago
psoriasis flair and adalimumab
hi all, I am looking for some advice. I had severe psoriasis which was almost gone thanks to adalimumab. I saw my dermatology team back in April for my 6 monthly check where my psoriasis was flairing up. so I had an adalimumab blood test to see if it was meant to work. I got the results back a
hi all, I am looking for some advice. I had severe psoriasis which was almost gone thanks to adalimumab. I saw my dermatology team back in April for my 6 monthly check where my psoriasis was flairing up. so I had an adalimumab blood test to see if it was meant to work. I got the results back a
katienewland
in
Beyond Psoriasis
2 months ago
Steroid Injection
Hi All, I'm feeling very confused after my last Rheumatology appointment. I first saw the Rheumatologist in February and was diagnosed Sjorgen's and possible PMR. I was put on 15mg prednisolone and had managed to taper to 13mg. I saw a different rheumatologist at my appt this week who threw me a complete
Hi All, I'm feeling very confused after my last Rheumatology appointment. I first saw the Rheumatologist in February and was diagnosed Sjorgen's and possible PMR. I was put on 15mg prednisolone and had managed to taper to 13mg. I saw a different rheumatologist at my appt this week who threw me a complete
Hidden
in
PMRGCAuk
3 months ago
QUICK TAPER; CRP RISING STEADILY; FLARING
As suspected, the very quick taper rheumy thought up (2.5 mg per week til I get to 10, then reducing 1 mg per month), has caused a flare and I'm in pre-PMR pain - almost). Currently at 12 mg but should be down to 9 by now, if I was to go with her guidelines. GP refuses to let me up the pred saying "it's
As suspected, the very quick taper rheumy thought up (2.5 mg per week til I get to 10, then reducing 1 mg per month), has caused a flare and I'm in pre-PMR pain - almost). Currently at 12 mg but should be down to 9 by now, if I was to go with her guidelines. GP refuses to let me up the pred saying "it's
Missus835
in
PMRGCAuk
5 months ago
what antibiotics can I take with methotrexate and sulphursalazine I’m in India right now and have got a flu going on for a few days now.
what antibiotics can I take with methotrexate and sulphursalazine I’m in India right now and have got a flu going on for a few days now.
what antibiotics can I take with methotrexate and sulphursalazine I’m in India right now and have got a flu going on for a few days now.
mickyb
in
NRAS
10 months ago
Travel Vaccinations
Hi. I have already emailed my Rheumatology Team but thought I would also ask for others experiences. I am considering travelling to countries which recommend vaccinations for things like Polio, Diphtheria, Hep A and B, Cholera, Tetanus etc. Now, I have had some of these in the past but longer than 10
Hi. I have already emailed my Rheumatology Team but thought I would also ask for others experiences. I am considering travelling to countries which recommend vaccinations for things like Polio, Diphtheria, Hep A and B, Cholera, Tetanus etc. Now, I have had some of these in the past but longer than 10
grumpygirl
in
NRAS
5 months ago
Experience of Covid Vaccines and Adrenals
I know the covid vaccines are a hot topic here. I don’t know if mum’s experience is helpful to share. Last years jabs were both a nightmare - led to weakness, temperature, light headedness loss of mobility and a significant down step in her dementia. Despite being a real advocate for the jabs I was
I know the covid vaccines are a hot topic here. I don’t know if mum’s experience is helpful to share. Last years jabs were both a nightmare - led to weakness, temperature, light headedness loss of mobility and a significant down step in her dementia. Despite being a real advocate for the jabs I was
RT18
in
PMRGCAuk
2 months ago
Fibro fog or long Covid?
hi 👋 Hope you’re all doing as well as u can has anyone had both Fibro fog and long covid? I don’t know which is affecting me I have more issues with word finding and when speaking and writing how long does it last goes then affects me random I had issues trying to read consultants pain score thing
hi 👋 Hope you’re all doing as well as u can has anyone had both Fibro fog and long covid? I don’t know which is affecting me I have more issues with word finding and when speaking and writing how long does it last goes then affects me random I had issues trying to read consultants pain score thing
Geeforce99
in
LUPUS UK
2 months ago
Live vaccine for dengue fever
My son lives in Bali. He is in the middle of a very severe bout of dengue fever. I am going to visit him for 3 weeks in July. He has suggested I should have a vaccine before I go. I can find that it is called a " live attenuated dengue tetravalent vaccine". Even the vaccine side effects can be pretty
My son lives in Bali. He is in the middle of a very severe bout of dengue fever. I am going to visit him for 3 weeks in July. He has suggested I should have a vaccine before I go. I can find that it is called a " live attenuated dengue tetravalent vaccine". Even the vaccine side effects can be pretty
Graham64
in
CLL Support
5 months ago
Running with angina
prior to contracting Covid in April 23 I was very fit and regularly ran up mountains and 2/3 hour runs was my usual at least once a week plus some kind of activity every day.With COVID I developed chest tightness and breathlessness, particularly worse on exertion. I repeatedly said that it felt like
prior to contracting Covid in April 23 I was very fit and regularly ran up mountains and 2/3 hour runs was my usual at least once a week plus some kind of activity every day.With COVID I developed chest tightness and breathlessness, particularly worse on exertion. I repeatedly said that it felt like
Ayecan
in
British Heart Foundation
2 months ago
My husband still on sedation after 30 days going in for a peritonitis
Hello my husband went in the ER for stomach pains and could not really breath .He was admitted immediately with the diagnosis peritonitis which leaked in his stomach so he got surgery soon after surgery he started septic shock and next thing we knew he wasn't able to get off the ventilator and in the
Hello my husband went in the ER for stomach pains and could not really breath .He was admitted immediately with the diagnosis peritonitis which leaked in his stomach so he got surgery soon after surgery he started septic shock and next thing we knew he wasn't able to get off the ventilator and in the
CarlMc116
in
ICUsteps
5 months ago
MSK Community Care
Hello All Just had my latest check up at the Hospital. After a terrible flare about a year and a half ago, which took ages to get under control, Sulfa was finally added to my Mthx and has really been a game changer. I have also been lucky enough to have an absolutely amazing Rheumatologist and I have
Hello All Just had my latest check up at the Hospital. After a terrible flare about a year and a half ago, which took ages to get under control, Sulfa was finally added to my Mthx and has really been a game changer. I have also been lucky enough to have an absolutely amazing Rheumatologist and I have
Chockyuk
in
NRAS
3 months ago
Teeth sensitivity at the dentist
I have been diagnosed with SLE Lupus for a year now. Does anyone find their teeth really sensitive during ordinary dental treatment such as cleaning? I’m also having a problem with the injections to numb the mouth not working . Is this Lupus related or is it just me? Any advice on the problem would
I have been diagnosed with SLE Lupus for a year now. Does anyone find their teeth really sensitive during ordinary dental treatment such as cleaning? I’m also having a problem with the injections to numb the mouth not working . Is this Lupus related or is it just me? Any advice on the problem would
Chocolate1956
in
LUPUS UK
7 months ago
Does asthma severity tend to reflect that of sinuses?
I wasn’t sure where to post this but please tell me if it’s out of place as I’l move it. Basically I’ve had chronic sinusitis with polyps for over a decade. It is more chronic inflammation that’s the issue, with meds the polyps are only small/secondary to the inflammation. I don’t have asthma but
I wasn’t sure where to post this but please tell me if it’s out of place as I’l move it. Basically I’ve had chronic sinusitis with polyps for over a decade. It is more chronic inflammation that’s the issue, with meds the polyps are only small/secondary to the inflammation. I don’t have asthma but
Unfocusedarrow
in
Asthma Community Forum
5 months ago
Covid Vaccination
Good Morning. In 2021 I had Covid my CA125 went down.A fortnight ago I had my Covid Vaccination ,I had a blood test on Wednesday and got the result yesterday My CA125 have gone down 70 .Has any one else experienced this ? Thank you
Good Morning. In 2021 I had Covid my CA125 went down.A fortnight ago I had my Covid Vaccination ,I had a blood test on Wednesday and got the result yesterday My CA125 have gone down 70 .Has any one else experienced this ? Thank you
Inchellon
in
My Ovacome
3 months ago
Covid vaccine or not
A retired cardiologist’s advice is very simple - Covid can kill steroids cannot.
A retired cardiologist’s advice is very simple - Covid can kill steroids cannot.
Porridgeandgrapes
in
PMRGCAuk
3 months ago
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