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Update following meeting with MO
For those following my journey, I had a face-to-face meeting with my MO today and learnt a few things I didn't know. Firstly, the genetic test of the liver tumour the NHS do only tests for BRCA - no other genes. The reason appears to be that the only treatment they would offer is a Parp inhibitor so
For those following my journey, I had a face-to-face meeting with my MO today and learnt a few things I didn't know. Firstly, the genetic test of the liver tumour the NHS do only tests for BRCA - no other genes. The reason appears to be that the only treatment they would offer is a Parp inhibitor so
Benkaymel
in
Advanced Prostate Cancer
6 months ago
depression
after receiving my TBI and spending time in several hospitals and rehabilitation, there was a period of time when I felt really positive about the world and especially people. It wasn’t until many years later I read that this is a normal experience following brain injury. I don’t know how long it lasted
after receiving my TBI and spending time in several hospitals and rehabilitation, there was a period of time when I felt really positive about the world and especially people. It wasn’t until many years later I read that this is a normal experience following brain injury. I don’t know how long it lasted
Steveau
in
Headway
5 months ago
Counselling
Hi everyone, After suffering a HA and then recently a TIA (all in the space of 12 months) then aswell as my health taking a bit of a pounding, my mental health has too. It’s a bit of a cliche, but us “blokes” tend to bottle everything up and suffer in silence which makes things a million times worse
Hi everyone, After suffering a HA and then recently a TIA (all in the space of 12 months) then aswell as my health taking a bit of a pounding, my mental health has too. It’s a bit of a cliche, but us “blokes” tend to bottle everything up and suffer in silence which makes things a million times worse
ROBBO36
in
British Heart Foundation
6 months ago
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how long have your enzymes been elevated?
Dr had suggested
genetic
counseling
to see why my numbers remain a few points from normal since it’s been about 9 years. Has anyone done this type of testing,,.
Dr had suggested
genetic
counseling
to see why my numbers remain a few points from normal since it’s been about 9 years. Has anyone done this type of testing,,.
mtk0925
in
British Liver Trust
1 year ago
Genetic testing and Second Opinion – A result!
Following on from my post last week about docetaxel not working, I had a frank conversation with my MO during which I said I strongly believe that genetic testing of my liver biopsy sample should be the next step and after some debate, to my surprise, he agreed and has put through the request. It’s still
Following on from my post last week about docetaxel not working, I had a frank conversation with my MO during which I said I strongly believe that genetic testing of my liver biopsy sample should be the next step and after some debate, to my surprise, he agreed and has put through the request. It’s still
Benkaymel
in
Advanced Prostate Cancer
6 months ago
Genetic Testing for cholesterol and insurance
Hi The only test I have outstanding is a genetic test for familial hypercholeserolmia (high cholesterol) . I was told that insurers shouldn’t ask for genetic testing but looking into it FH is considered to be an illness and diagnostic tests can be disclosed. I know travel insurance companies are funny
Hi The only test I have outstanding is a genetic test for familial hypercholeserolmia (high cholesterol) . I was told that insurers shouldn’t ask for genetic testing but looking into it FH is considered to be an illness and diagnostic tests can be disclosed. I know travel insurance companies are funny
Coffeelover2
in
British Heart Foundation
6 months ago
GAZYVA & VENCLEXTA…I thought it wasn’t working. Apparently it was, extremely well
Had PET scan yesterday, read the report today. I haven’t spoken to my Doc yet. But according to this report there are no signs of enlarged lymph nodes anywhere. Kind of blows my mind, the main reason I started treatment was because of my abdominal pain (which I still have). I am considered high risk
Had PET scan yesterday, read the report today. I haven’t spoken to my Doc yet. But according to this report there are no signs of enlarged lymph nodes anywhere. Kind of blows my mind, the main reason I started treatment was because of my abdominal pain (which I still have). I am considered high risk
Corgidad
in
CLL Support
6 months ago
Endometriosis Symptoms?
hey everyone. So I was diagnosed with endometriosis in September after having a swollen fallopian tube removed and since have been told it’s on my left side… but nothing else. I’ve not really been told much about the other symptoms of endo apart from chronic pelvis pain (which I am getting) My other
hey everyone. So I was diagnosed with endometriosis in September after having a swollen fallopian tube removed and since have been told it’s on my left side… but nothing else. I’ve not really been told much about the other symptoms of endo apart from chronic pelvis pain (which I am getting) My other
EmilyKindon
in
Endometriosis UK
6 months ago
Genetic test
Got a copy of my Tempest test. My MO says "No actionable results" meaning plan of action doesn't change (Triplet Therapy). He also stated I had nothing to pass on to my son as far as hereditary gene problems. I have no clue what any of it means. DNA mismatch expression (normal) Homologous recombination
Got a copy of my Tempest test. My MO says "No actionable results" meaning plan of action doesn't change (Triplet Therapy). He also stated I had nothing to pass on to my son as far as hereditary gene problems. I have no clue what any of it means. DNA mismatch expression (normal) Homologous recombination
APK3
in
Advanced Prostate Cancer
6 months ago
anxiety
I’ve never done this before ,writing in a group ,I’m 60 I’ve now had anxiety for 3 years ,lately it really bad and shed many tears ,,my heart is constantly racing and take beater blocker that helps ,it’s so bad now I’ve just started taking floxatine ,4 days in ,I’m praying they take the sharp edges off
I’ve never done this before ,writing in a group ,I’m 60 I’ve now had anxiety for 3 years ,lately it really bad and shed many tears ,,my heart is constantly racing and take beater blocker that helps ,it’s so bad now I’ve just started taking floxatine ,4 days in ,I’m praying they take the sharp edges off
Guzzi63
in
Anxiety and Depression Support
6 months ago
Post brain injury hallucinations?
My son, following meningitis and a craniotomy last month, has informed me that he has started seeing a large black figure at the end of his bed whilst he is awake and it's making him fearful to sleep. He has been on anti seizure medication since the incident. So along with possible side effects of the
My son, following meningitis and a craniotomy last month, has informed me that he has started seeing a large black figure at the end of his bed whilst he is awake and it's making him fearful to sleep. He has been on anti seizure medication since the incident. So along with possible side effects of the
Team-MJ4
in
Headway
6 months ago
Wendy
heart attack April 2023 stent fitted . Struggling to move on considering counselling
heart attack April 2023 stent fitted . Struggling to move on considering counselling
treya
in
British Heart Foundation
6 months ago
Clear Cell - Endometrial vs Genetic
Hello Me again. Sorry I will probably post quite a bit as I'm still so new to all this. I am told that they believe my CCOC was caused by endemetriosis so I am not being offered a genetic test. If I don't have BRACA1 or 2 gene, does that mean treatment is limited should I recur? I'm getting ahead of
Hello Me again. Sorry I will probably post quite a bit as I'm still so new to all this. I am told that they believe my CCOC was caused by endemetriosis so I am not being offered a genetic test. If I don't have BRACA1 or 2 gene, does that mean treatment is limited should I recur? I'm getting ahead of
Emcee71
in
My Ovacome
6 months ago
Adding Docetaxel to T3b?
My husband is 63, stage T3b N0M0. His biopsy showed all 12 cores positive with 80%+ cancer, GL 4+5 with
intraductal carcinoma
and original PSA was 12. According to PSMA pet scan 12 months ago, he has additional risk factors such as
ECE, SVI, PNI
, but no other spread. He has completed 39
My husband is 63, stage T3b N0M0. His biopsy showed all 12 cores positive with 80%+ cancer, GL 4+5 with
intraductal carcinoma
and original PSA was 12. According to PSMA pet scan 12 months ago, he has additional risk factors such as
ECE, SVI, PNI
, but no other spread. He has completed 39
Adendino
in
Advanced Prostate Cancer
6 months ago
Depression
Hi. I was first put on anti depressants when I was 16, but when I was 19 I came off them. In 2023, unfortuantely multiple 'bad' things happened - I've dealt with grief of the passing of so many family members and I was put through sexual and physical abuse. I got EDMR for PSTD. I went through the
Hi. I was first put on anti depressants when I was 16, but when I was 19 I came off them. In 2023, unfortuantely multiple 'bad' things happened - I've dealt with grief of the passing of so many family members and I was put through sexual and physical abuse. I got EDMR for PSTD. I went through the
burgerbun01
in
Mental Health Support
6 months ago
Temporomandibular joint dysfunction - I am miserable
Hi All, I'm not sure if this is the right place to post this but I've really been struggling to be "happy" over the festive period. It all started in August 2023 when I had my wisdom tooth removed. It started off with dry socket then a major infection which was misdiagnosed by my dentist. I was never
Hi All, I'm not sure if this is the right place to post this but I've really been struggling to be "happy" over the festive period. It all started in August 2023 when I had my wisdom tooth removed. It started off with dry socket then a major infection which was misdiagnosed by my dentist. I was never
Sk8inpancake
in
PTSD Support
6 months ago
adult Dad with ADHD who has tried stimulant meds for the last time!
I recently after many years decided to try Vyvanse, after not using meds since my twenties due to terrible side effects, long enough ago were there was no Vyvanse. I’ve been in it for a week, and the anger, and irritability on only 30 mg’s is just too much to consider messing with it any longer. If you
I recently after many years decided to try Vyvanse, after not using meds since my twenties due to terrible side effects, long enough ago were there was no Vyvanse. I’ve been in it for a week, and the anger, and irritability on only 30 mg’s is just too much to consider messing with it any longer. If you
Chelseaguy76
in
CHADD's Adult ADHD Support
7 months ago
Genetic testing for female when using donor sperm
I am in the process of ordering donor straws for IUI treatment and finding it really hard to find donors who are CMV negative in the UK and Europe. I have found a few US samples that match what I am after but there is no genetics testing/matching available on the site for buyers outside the US or Canada
I am in the process of ordering donor straws for IUI treatment and finding it really hard to find donors who are CMV negative in the UK and Europe. I have found a few US samples that match what I am after but there is no genetics testing/matching available on the site for buyers outside the US or Canada
Lostinmaze
in
Fertility Network UK
7 months ago
Never too late to seek help
Hi all, although I don't post very often, I still follow others progress and take reassurance when one of us hearties reports good results. I wanted to share the next chapter of my story and progress, following on from a Stemi heart attack back in Feb 22, which resulted in 7 stents fitted into 2 arteries
Hi all, although I don't post very often, I still follow others progress and take reassurance when one of us hearties reports good results. I wanted to share the next chapter of my story and progress, following on from a Stemi heart attack back in Feb 22, which resulted in 7 stents fitted into 2 arteries
Cruiser25
in
British Heart Foundation
6 months ago
Donor eggs
Hello, Recently me and my husband went to a fertility clinic abroad to investigate the cause of recurrent failure implantation. I had 3 IVF fresh cycles and 1 frozen transfer. Our genetic test results came back good but my AMH is very low (0.26- I am 41 years old). Doctor explanation for the failure
Hello, Recently me and my husband went to a fertility clinic abroad to investigate the cause of recurrent failure implantation. I had 3 IVF fresh cycles and 1 frozen transfer. Our genetic test results came back good but my AMH is very low (0.26- I am 41 years old). Doctor explanation for the failure
Simovici
in
Fertility Network UK
7 months ago
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