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Gaucher disease type 3 (GD3)
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Update on heart problems
Thank you all for your input last week re my 2 leaky valves and pulmonary hypertension diagnosis. Forgot to mention also have very low heart beat, low 40s , of which I was already aware but thought that was healthy, however, bradycardia at my age is apparently not good.I did a lot of phoning around
Thank you all for your input last week re my 2 leaky valves and pulmonary hypertension diagnosis. Forgot to mention also have very low heart beat, low 40s , of which I was already aware but thought that was healthy, however, bradycardia at my age is apparently not good.I did a lot of phoning around
JP1952
in
MPN Voice
3 months ago
Rickyfish56 "Introduction"
Reviewed my "Bio" and it said I needed to "introduce" myself? Mostly just read postings and try to gather information. But, here is my " introduction", family history of Prostate cancer, Dad diagnosed at 59, removed prostate old fashion slice and dice, never regained any sexual function, but alive today
Reviewed my "Bio" and it said I needed to "introduce" myself? Mostly just read postings and try to gather information. But, here is my " introduction", family history of Prostate cancer, Dad diagnosed at 59, removed prostate old fashion slice and dice, never regained any sexual function, but alive today
rickyfish56
in
Advanced Prostate Cancer
7 months ago
JAK2 V617F Allele Burden and Thrombotic Events in Patients w/ JAK2 V617F Positive PCV/ET @ High Risk of Thrombosis
Background
: The goal of therapy of polycythemia vera (PV) and essential thrombocythemia (ET) is primarily to prevent vascular events that are the leading cause of morbidity and mortality. Patients older than 60 years or with a previous history of thrombotic complications are considered at high
Background
: The goal of therapy of polycythemia vera (PV) and essential thrombocythemia (ET) is primarily to prevent vascular events that are the leading cause of morbidity and mortality. Patients older than 60 years or with a previous history of thrombotic complications are considered at high
PhysAssist
in
MPN Voice
3 months ago
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5 Days Post Ablation and getting an ECG
After three days of being extremely breathless and light headed following a cryo ablation at the JR last Friday I'm now feeling more settled, my pulse still fast and irregular but not as extreme. I had a call from an arrhythmia nurse (at last) at the JR who was very helpful. The next step is an ECG
After three days of being extremely breathless and light headed following a cryo ablation at the JR last Friday I'm now feeling more settled, my pulse still fast and irregular but not as extreme. I had a call from an arrhythmia nurse (at last) at the JR who was very helpful. The next step is an ECG
JoDogBlue
in
Atrial Fibrillation Support
3 months ago
No one died from A F
I posted earlier today . I am not now being negative , I am trying to be pragmatic . On this brilliant forum we are constantly told “ no one dies of AF “. I was wondering what actually brought on the first bout of A F to people here. Mine came on years after Mitral Valve repair . 2 long ablations
I posted earlier today . I am not now being negative , I am trying to be pragmatic . On this brilliant forum we are constantly told “ no one dies of AF “. I was wondering what actually brought on the first bout of A F to people here. Mine came on years after Mitral Valve repair . 2 long ablations
Luludean
in
Atrial Fibrillation Support
3 months ago
What is a cardioversion?
If you have AF you may have been offered a cardioversion, but may be unsure of what to expect? A
cardioversion
is a procedure to convert your heart from AF back into normal (sinus) rhythm. This is achieved by administering a rhythm control medication (antiarrhythmic drug) by mouth or through
If you have AF you may have been offered a cardioversion, but may be unsure of what to expect? A
cardioversion
is a procedure to convert your heart from AF back into normal (sinus) rhythm. This is achieved by administering a rhythm control medication (antiarrhythmic drug) by mouth or through
TracyAdmin
Partner
in
Atrial Fibrillation Support
3 months ago
Lopressor dose titration
Permanent afib 100mgm of Lopressor am & 50 pm plus eliquis. Decided to cut back to 50 in am because of blurred vision and now have had upset stomach times 1 week plus HR back up to low 100's. Thought I felt better on lower dose but maybe not??
Permanent afib 100mgm of Lopressor am & 50 pm plus eliquis. Decided to cut back to 50 in am because of blurred vision and now have had upset stomach times 1 week plus HR back up to low 100's. Thought I felt better on lower dose but maybe not??
farewelltoarms
in
Atrial Fibrillation Support
3 months ago
pernicious anaemia
Hi I had the results of my intrinsic test and I have pernicious anaemia I start loading doses on Monday ,Do you think it is likely to affect my INR and if so up or down Thanks
Hi I had the results of my intrinsic test and I have pernicious anaemia I start loading doses on Monday ,Do you think it is likely to affect my INR and if so up or down Thanks
mully
in
Hughes Syndrome APS Forum
4 months ago
Statins with an under active thyroid.
Hi everyone. I've recently found out that my thyroid is under active. Because my LDL is elevated, the doctor decided I needed to see a specialist. They won't give me an appointment and have said I need to take a statin while they get to me. The NHS website says you don't give statins to people with an
Hi everyone. I've recently found out that my thyroid is under active. Because my LDL is elevated, the doctor decided I needed to see a specialist. They won't give me an appointment and have said I need to take a statin while they get to me. The NHS website says you don't give statins to people with an
MauveMouse
in
Thyroid UK
4 months ago
Request for advice looking for possible new diagnosis
Hi, this is my first time back on the forum after a few years break just bimbling along whilst struggling as we all do. But I've really hit a wall. I've also posted this on the Fibromyalgia and Lupus communities.I don't want to write too long a post so will try and keep the background brief. Basically
Hi, this is my first time back on the forum after a few years break just bimbling along whilst struggling as we all do. But I've really hit a wall. I've also posted this on the Fibromyalgia and Lupus communities.I don't want to write too long a post so will try and keep the background brief. Basically
Wispymisty
in
NRAS
4 months ago
Request for advice looking for possible new diagnosis
Hi, this is my first time back on the forum after a few years break just bimbling along whilst struggling as we all do. But I've really hit a wall. I've also posted this on the Fibromyalgia/Rheumatoid Arthritis communities.I don't want to write too long a post so will try and keep the background brief
Hi, this is my first time back on the forum after a few years break just bimbling along whilst struggling as we all do. But I've really hit a wall. I've also posted this on the Fibromyalgia/Rheumatoid Arthritis communities.I don't want to write too long a post so will try and keep the background brief
Wispymisty
in
LUPUS UK
4 months ago
Nubeqa Vs Abiraterone
Which is more effective my PSA rising after being placed on Nubeqa. Prostate cancer metastasized to the bone
Which is more effective my PSA rising after being placed on Nubeqa. Prostate cancer metastasized to the bone
willie334
in
Advanced Prostate Cancer
7 months ago
Happy but not really
Hello.i was so excited when I found this post but not really after seeing that no one has really gotten over it. Apparently it's permanent for the most part.i just got my 6k bill from hospital because I couldn't take it I thought it was a serious lung or heart problem but I'm cleared.i have the same
Hello.i was so excited when I found this post but not really after seeing that no one has really gotten over it. Apparently it's permanent for the most part.i just got my 6k bill from hospital because I couldn't take it I thought it was a serious lung or heart problem but I'm cleared.i have the same
EliezerCan2
in
Pain Concern
3 months ago
Fitbit versus Apple watch
Thank you to everyone who replied to my post re Apple watch and Kardia. I decided on the Kardia 6 as part of the kit mainly because cardiologists seem to think they are accurate. I am still not decided on the watch yet. I havnt been diag with AF yet as some may remember , Ectopics yes , and they are
Thank you to everyone who replied to my post re Apple watch and Kardia. I decided on the Kardia 6 as part of the kit mainly because cardiologists seem to think they are accurate. I am still not decided on the watch yet. I havnt been diag with AF yet as some may remember , Ectopics yes , and they are
ainslie
in
Atrial Fibrillation Support
3 months ago
Brain lesion
anybody here who experienced brain lesions that might be from PCa? Current PSA is 0.025. It’s just confusing that after ADT works to remove all the symptoms including bone pain from bone mets, my dad was diagnosed with brain lesion after an MRI since he had mild stroke symptoms(slurred speech). Does
anybody here who experienced brain lesions that might be from PCa? Current PSA is 0.025. It’s just confusing that after ADT works to remove all the symptoms including bone pain from bone mets, my dad was diagnosed with brain lesion after an MRI since he had mild stroke symptoms(slurred speech). Does
dnmrk
in
Advanced Prostate Cancer
7 months ago
Updated diagnosis of autoimmune thyroid disorder
Just an update. Unsurprisingly with elevated thyroid antibodies I have been diagnosed with an autoimmune thyroid disorder. As I currently have some hyper symptoms as well as hypo ones, the private GO who’s diagnosed me very sensibly, imo, wants to test again to ensure she gets the diagnosis and treatment
Just an update. Unsurprisingly with elevated thyroid antibodies I have been diagnosed with an autoimmune thyroid disorder. As I currently have some hyper symptoms as well as hypo ones, the private GO who’s diagnosed me very sensibly, imo, wants to test again to ensure she gets the diagnosis and treatment
Fizzwhizz
in
Thyroid UK
4 months ago
Gut analysis
I recently provided a sample for analysis and received the results last week. I had a follow up appointment with Gemma my Funtional Health Practitioner (in training) yesterday. I wanted to share some of the info I have learned here. I have Helicobacter Pylori, unsurprising as around 50% of the population
I recently provided a sample for analysis and received the results last week. I had a follow up appointment with Gemma my Funtional Health Practitioner (in training) yesterday. I wanted to share some of the info I have learned here. I have Helicobacter Pylori, unsurprising as around 50% of the population
IdasMum
in
PMRGCAuk
4 months ago
⁹Newbie: can anybody help with local support to me? Surrey/Sussex/South London
Hello! I was diagnosed with UCTD 3 years ago after contracting awful covid. However during routine check-up bloods last month, for the first time, my Rheu picked up positive Lupus screen, ANA, rheumatoid factor alongside others i cant remember. (I have always had a negative autoimmune panel, but high
Hello! I was diagnosed with UCTD 3 years ago after contracting awful covid. However during routine check-up bloods last month, for the first time, my Rheu picked up positive Lupus screen, ANA, rheumatoid factor alongside others i cant remember. (I have always had a negative autoimmune panel, but high
Gm131987
in
LUPUS UK
4 months ago
Thyroid blood test results
I have been on thyroxine since 2017 to treat my underactive thyroid (confirmed Hashimotos).My bloods from this week are in the attached screenshot. I haven't felt like me for many years. I wondered what peples thoughts were on my results?
I have been on thyroxine since 2017 to treat my underactive thyroid (confirmed Hashimotos).My bloods from this week are in the attached screenshot. I haven't felt like me for many years. I wondered what peples thoughts were on my results?
SusieR68
in
Thyroid UK
4 months ago
Is atrial enlargement serious.
hi guys and girls. Just had a phone appointment over the phone with cardiologist. I think it went well.? But it seemed to be a rushed appointment and I didn’t have time to ask him all the questions i wanted to unfortunately.! but the main thing im worried about is that he mentioned my ECHO in December
hi guys and girls. Just had a phone appointment over the phone with cardiologist. I think it went well.? But it seemed to be a rushed appointment and I didn’t have time to ask him all the questions i wanted to unfortunately.! but the main thing im worried about is that he mentioned my ECHO in December
Jetcat
in
Atrial Fibrillation Support
3 months ago
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