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Gaucher disease type 3 (GD3)
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MTHFR and Lupus
I noticed that some members have both of these diagnosis as well as Sjogrens. No one ever checked my homocysteine level until after I had Complete Heart Block and was implanted with a Pacemaker/defibulator. I have always felt that if the MTHFR was diagnosed before all the other autoimmune diseases, I
I noticed that some members have both of these diagnosis as well as Sjogrens. No one ever checked my homocysteine level until after I had Complete Heart Block and was implanted with a Pacemaker/defibulator. I have always felt that if the MTHFR was diagnosed before all the other autoimmune diseases, I
DogHospiceMom
in
LUPUS UK
2 months ago
Arrhythmia Checklist
Do you or a family member experience unexplained chest pain, a rapid or irregular pulse, breathlessness, or light-headedness, these are all symptoms that should not be ignored and could be the early warning signs of an underlying heart rhythm disorder/ For further guidance, download the Arrhythmia
Do you or a family member experience unexplained chest pain, a rapid or irregular pulse, breathlessness, or light-headedness, these are all symptoms that should not be ignored and could be the early warning signs of an underlying heart rhythm disorder/ For further guidance, download the Arrhythmia
TracyAdmin
Partner
in
Sudden Cardiac Arrest & Heart Attack
2 months ago
Parkinson's disease breakthrough
The following article claims that the majority of "Parkinson's Disease" is started by just a simple bacteria called Desulfovibrio, and the rest about 10 percent is caused by individual genes. Parkinson's disease could be prevented in the future after scientists discovered that a certain strain of bacteria
The following article claims that the majority of "Parkinson's Disease" is started by just a simple bacteria called Desulfovibrio, and the rest about 10 percent is caused by individual genes. Parkinson's disease could be prevented in the future after scientists discovered that a certain strain of bacteria
Baron1
in
Cure Parkinson's
7 months ago
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Nebivolol 2.5mg
I started Nebivolol for my AFIB about one month ago for my heart rate! I like the drug but seem to have a lot of gas on my stomach! Has anyone else had this problem?
I started Nebivolol for my AFIB about one month ago for my heart rate! I like the drug but seem to have a lot of gas on my stomach! Has anyone else had this problem?
BaileyC57
in
Atrial Fibrillation Support
2 months ago
new immune therapy phase 1-2 trial: targeting NK cells
The first patient with metastatic castration-resistant prostate cancer (mCRPC) has been dosed in the phase 1/2 CaRe PC trial (NCT06056791) evaluating INKmune, a biologic therapy https://www.targetedonc.com/view/first-patient-dosed-with-inkmune-therapy-in-phase-1-2-trial-for-mcrpc
The first patient with metastatic castration-resistant prostate cancer (mCRPC) has been dosed in the phase 1/2 CaRe PC trial (NCT06056791) evaluating INKmune, a biologic therapy https://www.targetedonc.com/view/first-patient-dosed-with-inkmune-therapy-in-phase-1-2-trial-for-mcrpc
Maxone73
in
Advanced Prostate Cancer
7 months ago
Update On Eclipse Trial-another failure. Has LU-177 worked for anyone?
In 2010 at the age of 59, I had Da Vinci surgery with a Gleason 4+5=9 and PSA of 9. Post surgical biopsy showed all margins clear with no seminal vesicle involvement and Gleason post-op score was changed to a 4+3=7. Subsequent PSA was non-detectable as tested every three months for the first two years
In 2010 at the age of 59, I had Da Vinci surgery with a Gleason 4+5=9 and PSA of 9. Post surgical biopsy showed all margins clear with no seminal vesicle involvement and Gleason post-op score was changed to a 4+3=7. Subsequent PSA was non-detectable as tested every three months for the first two years
SViking
in
Advanced Prostate Cancer
7 months ago
Diagnoses
Has anyone been diagnosed with an autoimmune condition without having positive blood tests? I've been trying in vain since 2006, got most of lupus symptoms but Ana either 1:180 or negative and other tests negative .
Has anyone been diagnosed with an autoimmune condition without having positive blood tests? I've been trying in vain since 2006, got most of lupus symptoms but Ana either 1:180 or negative and other tests negative .
catblue1865
in
LUPUS UK
4 months ago
Haematologists consultant
Hi I’ve been trying to get help with my Pernicious anemia diagnosis which my mum & sister had they have both passed away now, but the drs are not helping I only got diagnosed through me asking for further tests after they initially told me my B12 was high 2000 so I wasn’t deficient!! , my dr didn’t
Hi I’ve been trying to get help with my Pernicious anemia diagnosis which my mum & sister had they have both passed away now, but the drs are not helping I only got diagnosed through me asking for further tests after they initially told me my B12 was high 2000 so I wasn’t deficient!! , my dr didn’t
Windyway
in
Pernicious Anaemia Society
4 months ago
Predicting AF 30 mins before it happens
Researchers at the University of Luxembourg (LCSB) have developed an AI which is able to predict an episode of afib 30 minutes ahead of time with around 80% accuracy. https://www.sciencedaily.com/releases/2024/04/240422120707.htm [i]Prof. Jorge Goncalves, head of the Systems Control group at
Researchers at the University of Luxembourg (LCSB) have developed an AI which is able to predict an episode of afib 30 minutes ahead of time with around 80% accuracy. https://www.sciencedaily.com/releases/2024/04/240422120707.htm [i]Prof. Jorge Goncalves, head of the Systems Control group at
Barny12
in
Atrial Fibrillation Support
2 months ago
Recent PSA test result no longer “undetectable.” What’s next?
After 5+ years of measuring “undetectable” with my PSA results I recently measured 0.24 NG/ML which I’m assuming my PCA is becoming active again. I see my oncologist on Monday, 8 Jan for a follow-up appt. Can anyone share with me what the likely next course of action will be?
After 5+ years of measuring “undetectable” with my PSA results I recently measured 0.24 NG/ML which I’m assuming my PCA is becoming active again. I see my oncologist on Monday, 8 Jan for a follow-up appt. Can anyone share with me what the likely next course of action will be?
Woodman33
in
Advanced Prostate Cancer
7 months ago
Rheumatoid arthritis
Hi I'm on prednisone and leflunomide vid d and jyseleca I have come up with a high temp and a fever, please tell me can I take any pain killers my body is killing me
Hi I'm on prednisone and leflunomide vid d and jyseleca I have come up with a high temp and a fever, please tell me can I take any pain killers my body is killing me
Alisa123
in
NRAS
4 months ago
How maternal lupus affects the child
All moms, please fill out this survey. It won't take long and you'll be the part of a research aimed at determining how maternal lupus may be related to the development of allergies in the child.Your help will be very appreciated. Thank you! ☺ https://forms.gle/kRVd79WSpzA6Gf3n9
All moms, please fill out this survey. It won't take long and you'll be the part of a research aimed at determining how maternal lupus may be related to the development of allergies in the child.Your help will be very appreciated. Thank you! ☺ https://forms.gle/kRVd79WSpzA6Gf3n9
gabriele_klim
in
LUPUS UK
4 months ago
Is it harmful if you have an autoimmune disease and take Low Dose Naltrexone (LDN) twice a day?
Is it harmful if you have an autoimmune disease and take Low Dose Naltrexone (LDN) twice a day? Answered by Michelle Kilmer Moser RPh https://youtu.be/Wtr69oDmM7Q
Is it harmful if you have an autoimmune disease and take Low Dose Naltrexone (LDN) twice a day? Answered by Michelle Kilmer Moser RPh https://youtu.be/Wtr69oDmM7Q
Shewulf
Administrator
in
LDN Research Trust
4 months ago
Rising PSA … Clear PSMA SCAN
My husband sees Dr. Rahul Aggarwal at UCSF. I’m surprised by his treatment plan. hubby has been on Lupron & NUBEQA since April. At first it brought PSA down but now it is up to 6.5 His last PSMA SCAN was in October when PSA was 4.3 Next PSMA scan is mid January. Aggarwal says PSA # is no longer of
My husband sees Dr. Rahul Aggarwal at UCSF. I’m surprised by his treatment plan. hubby has been on Lupron & NUBEQA since April. At first it brought PSA down but now it is up to 6.5 His last PSMA SCAN was in October when PSA was 4.3 Next PSMA scan is mid January. Aggarwal says PSA # is no longer of
JolleySprings
in
Advanced Prostate Cancer
7 months ago
Update to Feeling overwhelmed
Apologies for the long post. I was referred to the Rapid Access Chest Pain clinic by my GP as she is unsure if my chest pain and breathlessness is down to my lung conditions or if I have angina. I attended the clinic 2 weeks ago and was referred for a heart CT angiogram where they inject a contrast
Apologies for the long post. I was referred to the Rapid Access Chest Pain clinic by my GP as she is unsure if my chest pain and breathlessness is down to my lung conditions or if I have angina. I attended the clinic 2 weeks ago and was referred for a heart CT angiogram where they inject a contrast
Roxdale
in
Lung Conditions Community Forum
2 months ago
New to all this
76 years old, no heart problems as far as I knew, just had one of my better games of golf for a couple of years and started to get an ache in my chest in the evening. So phoned the Healthline (I live in NZ) and they had a 30 minute wait, so tried the ambulance service, who operate a triage service.
76 years old, no heart problems as far as I knew, just had one of my better games of golf for a couple of years and started to get an ache in my chest in the evening. So phoned the Healthline (I live in NZ) and they had a 30 minute wait, so tried the ambulance service, who operate a triage service.
ParrotY
in
Atrial Fibrillation Support
2 months ago
Anticoagulation treatment stop
I’m 72 ,I have had persistent slow AF now for 9 years I have been taking warfarin now for the last 10 years I have moderate weakness of the heart muscles ,enlarged heart ,my ejection fraction was 40% last year . I have received a letter saying my consultant wants me to stop taking warfarin straight
I’m 72 ,I have had persistent slow AF now for 9 years I have been taking warfarin now for the last 10 years I have moderate weakness of the heart muscles ,enlarged heart ,my ejection fraction was 40% last year . I have received a letter saying my consultant wants me to stop taking warfarin straight
jsheard
in
Atrial Fibrillation Support
2 months ago
pumpkin seeds for cholesterol
I have under active thyroid and high blood pressure and my cholesterol is high taking a ounce of pumpkin seeds can lower blood pressure and cholesterol I am going to try these and see the outcome
I have under active thyroid and high blood pressure and my cholesterol is high taking a ounce of pumpkin seeds can lower blood pressure and cholesterol I am going to try these and see the outcome
Harmitage
in
Thyroid UK
2 months ago
ischaemic heart disease with E/T
hi all I’m 68 male had splenectomy in 2014 started hydroxycarbamide in 2015 high risk E/T and PV I’m on lots medication and 1500 mg daily Hydroxycarbamide I recently had a heart angiogram which shown high calcification in my main LAD heart artery moderate to severe They put me on Apixiban and atorvastatin
hi all I’m 68 male had splenectomy in 2014 started hydroxycarbamide in 2015 high risk E/T and PV I’m on lots medication and 1500 mg daily Hydroxycarbamide I recently had a heart angiogram which shown high calcification in my main LAD heart artery moderate to severe They put me on Apixiban and atorvastatin
Phil1955
in
MPN Voice
2 months ago
Is it my lungs or PMR
I have gone back in my memory trying to figure out when my issues all began and in what order. I believe my PMR started in early 2019 when preparing for a dog show (possibly sooner and I just blamed it on old age LOL). Muscle weakness and shortness of breath were new to me. Over the next several months
I have gone back in my memory trying to figure out when my issues all began and in what order. I believe my PMR started in early 2019 when preparing for a dog show (possibly sooner and I just blamed it on old age LOL). Muscle weakness and shortness of breath were new to me. Over the next several months
Dydee
in
PMRGCAuk
2 months ago
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