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Experiences with
Gaucher disease type 2 (GD2)
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Here We Go Again
Four days ago, I reported that after 4 ‘failed’ ablations, I had undergone a ‘successful’ cardioversion for what my EP said was atrial tachycardia. For four days, I enjoyed normal sinus rhythm and a heart rate of between 50 and 70bpm. However, my joy was short lived. This evening, whilst watching a
Four days ago, I reported that after 4 ‘failed’ ablations, I had undergone a ‘successful’ cardioversion for what my EP said was atrial tachycardia. For four days, I enjoyed normal sinus rhythm and a heart rate of between 50 and 70bpm. However, my joy was short lived. This evening, whilst watching a
frankiec5
in
Atrial Fibrillation Support
3 months ago
1600 to 100 and counting
Hi All In the summer of 2023 I was diagnosed with Stage 4 prostate cancer. My PSA test came in at 1634. I was told it was in my bones had three years to live and put on Zolodex. Since then my PSA in December 2023 is at 109 and my CT scan shows no bone or organ problems. Each test gets lower and I
Hi All In the summer of 2023 I was diagnosed with Stage 4 prostate cancer. My PSA test came in at 1634. I was told it was in my bones had three years to live and put on Zolodex. Since then my PSA in December 2023 is at 109 and my CT scan shows no bone or organ problems. Each test gets lower and I
Whiskeyriver
in
Advanced Prostate Cancer
7 months ago
thyroid results
Could someone please help me understand my blood results which I had done by Medichecks (home testing kit) I have had underactive thyroid for the past 25years The doctors are always changing the brands I take I hadn’t had my thyroid levels tested for nearly 5 years with my GP, it’s as if they’d
Could someone please help me understand my blood results which I had done by Medichecks (home testing kit) I have had underactive thyroid for the past 25years The doctors are always changing the brands I take I hadn’t had my thyroid levels tested for nearly 5 years with my GP, it’s as if they’d
Horsemadlindy21
in
Thyroid UK
5 months ago
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please some help here, end stage liver cancer.
Dear BLT people, I hope you are all doing reasonably well. After my story 1.5 year ago about my misdiagnosed liver cirrhosis its kind of weird to say that I found out that my dad was diagnosed with liver cancer today. (he was never a drinker or fat or what so ever, he is quite old though, he is
Dear BLT people, I hope you are all doing reasonably well. After my story 1.5 year ago about my misdiagnosed liver cirrhosis its kind of weird to say that I found out that my dad was diagnosed with liver cancer today. (he was never a drinker or fat or what so ever, he is quite old though, he is
Jimmy777
in
British Liver Trust
7 months ago
Bas Bloem: “Is there an upside to having PD?“
https://www.mediflix.com/topics/parkinsons-disease/video/silver-linings-with-pd https://m.facebook.com/mediflixtv/videos/bas-bloem-md-phd-silver-lining-mediflix-news/ A team of researchers, including four individuals with lived experience and two scientists, posted a call on social media for experiences
https://www.mediflix.com/topics/parkinsons-disease/video/silver-linings-with-pd https://m.facebook.com/mediflixtv/videos/bas-bloem-md-phd-silver-lining-mediflix-news/ A team of researchers, including four individuals with lived experience and two scientists, posted a call on social media for experiences
Esperanto
in
Cure Parkinson's
7 months ago
Faecal loading
I have been given so many laxatives, stool softeners by my gp I am thoroughly confused and still haven’t got rid of it from September! I have Laxido, went up to 8 sachets for 2 days. Like soup. Docusate. Ispaghula Husk half a sachet a day. I have used syrup of figs, senakot, I don’t know if I
I have been given so many laxatives, stool softeners by my gp I am thoroughly confused and still haven’t got rid of it from September! I have Laxido, went up to 8 sachets for 2 days. Like soup. Docusate. Ispaghula Husk half a sachet a day. I have used syrup of figs, senakot, I don’t know if I
Laxido21
in
IBS Network
7 months ago
What were your first symptoms?
Over the last couple of months I've been getting pain in my fingers and toes, it happens several times a day but only lasts a minute or two at a time at the moment. I have autoimmune thyroid disease, and suspected autoimmune cause for my early menopause, and I'm acutely aware that autoimmune diseases
Over the last couple of months I've been getting pain in my fingers and toes, it happens several times a day but only lasts a minute or two at a time at the moment. I have autoimmune thyroid disease, and suspected autoimmune cause for my early menopause, and I'm acutely aware that autoimmune diseases
WitchingHour2point0
in
NRAS
5 months ago
Digoxin
Can I start Digoxin while still weaning off of Lopressor? Doc said stop lopressor and start dig no weaning needed I am a little nervous after all I read Thanks for Comments
Can I start Digoxin while still weaning off of Lopressor? Doc said stop lopressor and start dig no weaning needed I am a little nervous after all I read Thanks for Comments
farewelltoarms
in
Atrial Fibrillation Support
4 months ago
Luteolin, ellagic acid and punicic acid and prostate cancer metastasis
Ok here we go again, excuse me if this was already gone over. I know Pomegranate has stated benefits, but in combo with these other supps may increase the benefits according to this study done on patients and our favored friends, the mice- lol. For me if it can't harm and may help then why not.
Ok here we go again, excuse me if this was already gone over. I know Pomegranate has stated benefits, but in combo with these other supps may increase the benefits according to this study done on patients and our favored friends, the mice- lol. For me if it can't harm and may help then why not.
85745
in
Advanced Prostate Cancer
7 months ago
Maybe because of "careful" patient selection, but still great: PSA Undetectable in First Patient Cu-67 SAR-bisPSMA
Positive results for mCRPC, very positive. Sorry if I have already posted this (my mind is not so sharp lately...was it ever??). "The first patient with prostate cancer dosed with 2 cycles of 8GBq of 67Cu-SAR-bisPSMA has reached undetectable prostate specific antigen (PSA) levels using PET" https:/
Positive results for mCRPC, very positive. Sorry if I have already posted this (my mind is not so sharp lately...was it ever??). "The first patient with prostate cancer dosed with 2 cycles of 8GBq of 67Cu-SAR-bisPSMA has reached undetectable prostate specific antigen (PSA) levels using PET" https:/
Maxone73
in
Advanced Prostate Cancer
7 months ago
drug induced lupus
Hi, My husband has drug induced lupus from inflixmab infusions which he was having for Chrohns disease. He has been in hospital twice from the lupus and they suspected the lupus was causing pericarditis. They also suspect he has psoriatic arthritis. He has been on steroids to control the drug induced
Hi, My husband has drug induced lupus from inflixmab infusions which he was having for Chrohns disease. He has been in hospital twice from the lupus and they suspected the lupus was causing pericarditis. They also suspect he has psoriatic arthritis. He has been on steroids to control the drug induced
Denny39
in
LUPUS UK
5 months ago
nausea and vomiting
my husband has been on dialysis for just over 12 months now but suffers with severe nausea and vomiting. He is unable to keep food down or even attempt to eat some days . Is this a normal side effect of dialysis please and if so is there any treatment. We went to our GP but he was useless and unable
my husband has been on dialysis for just over 12 months now but suffers with severe nausea and vomiting. He is unable to keep food down or even attempt to eat some days . Is this a normal side effect of dialysis please and if so is there any treatment. We went to our GP but he was useless and unable
Matilda6146
in
Early CKD Support
7 months ago
Advice
Hi! I have Srogrens, which lead to Rheumatoid Arthritis, which had resulted in ILD. on methotrexate but now in addition been offered Nintedanib. ANY advice please as the only thing I'm worried about is pooping myself😂! many thanks, elaine
Hi! I have Srogrens, which lead to Rheumatoid Arthritis, which had resulted in ILD. on methotrexate but now in addition been offered Nintedanib. ANY advice please as the only thing I'm worried about is pooping myself😂! many thanks, elaine
elainenorman
in
Lung Conditions Community Forum
5 months ago
Ventricular ectopic runs
Just been to the GP over the palpitations I've been having for a year or so and he said they are (from the way I described them to him) "ventricular ectopic runs" and I'm wondering what this community has to say about them...? They do feel ectopic as I get a 'missed' beat followed by a bigger one and
Just been to the GP over the palpitations I've been having for a year or so and he said they are (from the way I described them to him) "ventricular ectopic runs" and I'm wondering what this community has to say about them...? They do feel ectopic as I get a 'missed' beat followed by a bigger one and
stoneyhouse
in
Atrial Fibrillation Support
4 months ago
Skin ulcers
Hi fellow lupus warriors I have had a wound on my leg for at least 6 weeks that is growing and won't scab or heal. I am not on steroids at the moment (just plaquenil) and don't have any other signs of a possible flare. Has anyone ever had something like this? Is it related to Lupus or just a coincidence
Hi fellow lupus warriors I have had a wound on my leg for at least 6 weeks that is growing and won't scab or heal. I am not on steroids at the moment (just plaquenil) and don't have any other signs of a possible flare. Has anyone ever had something like this? Is it related to Lupus or just a coincidence
lupus_paradise
in
LUPUS UK
5 months ago
May - Vasculitis awareness month
May - Day 3 #vasculitis awareness month. Granulomatosis of Polyangiitis or GPA (former Wegener's) is an ANCA assosiated vasculitis and can be severe, even fatal if not treated early and correctly. Nothing is more empowering than #patient stories. This is Emma's story. To donate to #VasculitisUK
May - Day 3 #vasculitis awareness month. Granulomatosis of Polyangiitis or GPA (former Wegener's) is an ANCA assosiated vasculitis and can be severe, even fatal if not treated early and correctly. Nothing is more empowering than #patient stories. This is Emma's story. To donate to #VasculitisUK
zoe69
Vasculitis UK
in
Vasculitis UK
4 months ago
Electric shock treatment
I was diagnosed with AF Nov 2022 but have beeb pretty good since then with no further arrhythmia (as far as I am aware). Recently had echocardiogram and the technician thought everything looked fine. Now had letter saying I would be given an appointment for electric shock treatment to improve my energy
I was diagnosed with AF Nov 2022 but have beeb pretty good since then with no further arrhythmia (as far as I am aware). Recently had echocardiogram and the technician thought everything looked fine. Now had letter saying I would be given an appointment for electric shock treatment to improve my energy
Lynthebin
in
AF Association
6 months ago
Adding second line hormonal therapy?
Hello everyone. My father's treatment from diagnosis consisted of ADT (Zoladex, 3-month injections as of now) and 6 courses of Docetaxel chemotherapy. PSA nadir was 0.89 after 7 months of treatment but after that the last 3 PSA tests show increase (PSA 2.310 on 24 Oct. 2023, PSA 6.81 on 24 Nov. 2023
Hello everyone. My father's treatment from diagnosis consisted of ADT (Zoladex, 3-month injections as of now) and 6 courses of Docetaxel chemotherapy. PSA nadir was 0.89 after 7 months of treatment but after that the last 3 PSA tests show increase (PSA 2.310 on 24 Oct. 2023, PSA 6.81 on 24 Nov. 2023
gio2x
in
Advanced Prostate Cancer
7 months ago
frustrated
another frustrating night…intermittent heart palpitations from 5-530 pm and then more from 11pm until 1245am…nothing fast but all skipping, like every other beat to every 20th beat….had bad day at work as I am an er nurse….wondering if that cause the arrhythmia today….im currently on no medications and
another frustrating night…intermittent heart palpitations from 5-530 pm and then more from 11pm until 1245am…nothing fast but all skipping, like every other beat to every 20th beat….had bad day at work as I am an er nurse….wondering if that cause the arrhythmia today….im currently on no medications and
Rdiehl01
in
Atrial Fibrillation Support
4 months ago
Dumb Question about rising PSA after initial RT.
If you still have a prostate after RT treatment 7 years ago ( NO ADT), could a slowly rising PSA just be 'natural' as you age? Have always been curious, as when initial biopsy was ordered, the doctor said, "if you were a few months older (70), your PSA level would not have prompted further investigation
If you still have a prostate after RT treatment 7 years ago ( NO ADT), could a slowly rising PSA just be 'natural' as you age? Have always been curious, as when initial biopsy was ordered, the doctor said, "if you were a few months older (70), your PSA level would not have prompted further investigation
Researcher50
in
Advanced Prostate Cancer
7 months ago
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