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Gaucher disease type 1 (GD1)
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Haemophilus influenzae
When I get a chest infection it is alway with the HIB bacteria, usually Doxycycline taken for two weeks rids it ,this time two weeks of Doxycycline plus another two weeks of Amoxicillin still hasn't gone had results of sputum test yesterday saying I've still got Hib.My gp has given me another two weeks
When I get a chest infection it is alway with the HIB bacteria, usually Doxycycline taken for two weeks rids it ,this time two weeks of Doxycycline plus another two weeks of Amoxicillin still hasn't gone had results of sputum test yesterday saying I've still got Hib.My gp has given me another two weeks
Alice70
in
Lung Conditions Community Forum
7 months ago
Forum Updates from 29 February 2024
Hello I would like to share the news with you all that our Charity Forums have recently been rebranded and renamed to reflect the condition to which each Forum provides information and support with. The Health Unlocked Team have assured us that all existing members will be unaffected by these changes
Hello I would like to share the news with you all that our Charity Forums have recently been rebranded and renamed to reflect the condition to which each Forum provides information and support with. The Health Unlocked Team have assured us that all existing members will be unaffected by these changes
TracyAdmin
ArrhythmiaAlliance
in
Heart Rhythm Disorders Support
4 months ago
Can you help me with an advice, please
Hello everyone! I am diagnosed with hypothyroidism and take Levothyroxine 100mg. I don't feel well at all, but I also have other health problems: lupus, Sjogren's, Henoch's purpura, neutropenia... I have a lot of symptoms and pains that I don't know where they are coming from, but fibromyalgia and depression
Hello everyone! I am diagnosed with hypothyroidism and take Levothyroxine 100mg. I don't feel well at all, but I also have other health problems: lupus, Sjogren's, Henoch's purpura, neutropenia... I have a lot of symptoms and pains that I don't know where they are coming from, but fibromyalgia and depression
Geoegeta
in
Thyroid UK
5 months ago
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AUTOIMMUNE LIVER BLOODS
I am new to this community and have found some useful information here. I was diagnosed with B12 deficiency of 158 last August, had various tests plus B12 repeated on 17 January and this time my B12 came back at 147. My GP says it’s borderline but from what I’ve read hear it’s low, he did further bloods
I am new to this community and have found some useful information here. I was diagnosed with B12 deficiency of 158 last August, had various tests plus B12 repeated on 17 January and this time my B12 came back at 147. My GP says it’s borderline but from what I’ve read hear it’s low, he did further bloods
Frenchbetty
in
Pernicious Anaemia Society
5 months ago
Moderate Calcification
Good morning all, I was recently invited for a lung check and have been recalled as the scan showed moderate Calcification. As I like to be proactive and believe this is due to fatty diet, are there any recommendations for menus that will halt (improve?) This condition. My brother dies with this condition
Good morning all, I was recently invited for a lung check and have been recalled as the scan showed moderate Calcification. As I like to be proactive and believe this is due to fatty diet, are there any recommendations for menus that will halt (improve?) This condition. My brother dies with this condition
1AnneMcC
in
Healthy Eating
4 months ago
Post Amiodarone and waiting for ablation
I was on Amiodarone for 12 months after diagnosis of persistent AF post Covid and stopped taking it in October '23. I had a cardioversion in June and as far as I'm aware I'm still in sinus rhythm. I'm on the list for an ablation at the John Radcliffe in Oxford. I had a couple of blood tests, at my
I was on Amiodarone for 12 months after diagnosis of persistent AF post Covid and stopped taking it in October '23. I had a cardioversion in June and as far as I'm aware I'm still in sinus rhythm. I'm on the list for an ablation at the John Radcliffe in Oxford. I had a couple of blood tests, at my
JoDogBlue
in
Atrial Fibrillation Support
4 months ago
Pressure onback causing AF
I lay on my left side today and nasty afib came on within a couple minutes same on back. I then tried lying on right side and i felt ok with my EMAY ecg saying bradycardia. I qent to GP and she will book me in for xray back and front.Colin
I lay on my left side today and nasty afib came on within a couple minutes same on back. I then tried lying on right side and i felt ok with my EMAY ecg saying bradycardia. I qent to GP and she will book me in for xray back and front.Colin
Alphakiwi
in
Atrial Fibrillation Support
4 months ago
multaq and increased heart beat
Hi everyone haven’t posted for a while,but reading the site daily. Had my third ablation in October 2023 mostly for atypical flutter,procedure wasn’t long but quite extensive judging from post procedure troponin elevations over 20,000.Placed on Multaq afterwards as I already failed all other meds and
Hi everyone haven’t posted for a while,but reading the site daily. Had my third ablation in October 2023 mostly for atypical flutter,procedure wasn’t long but quite extensive judging from post procedure troponin elevations over 20,000.Placed on Multaq afterwards as I already failed all other meds and
55zuzanka61
in
AF Association
4 months ago
New blood pressure procedure is ‘game-changing’ for people with uncontrolled hypertension, say doctors
New blood pressure procedure is ‘game-changing’ for people with uncontrolled hypertension, say doctors. Procedure reduces blood pressure without medications, say experts:‘Important step forward’ People with treatment-resistant hypertension could benefit from a new procedure that the FDA recently approved
New blood pressure procedure is ‘game-changing’ for people with uncontrolled hypertension, say doctors. Procedure reduces blood pressure without medications, say experts:‘Important step forward’ People with treatment-resistant hypertension could benefit from a new procedure that the FDA recently approved
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
6 months ago
Liver cirrhosis and diabetes type 2
Hi.I was diagnosed with a enlarged liver in 2019..By 2020 I was diagnosed with fatty liver disease and in less than 3 years I now have liver cirrhosis.. Only found out 5 days ago and I've been in tears.. Had fibroscan and it came back as f4 and 23.5kpa. My ggt blood test was raised Haven't drank alcohol
Hi.I was diagnosed with a enlarged liver in 2019..By 2020 I was diagnosed with fatty liver disease and in less than 3 years I now have liver cirrhosis.. Only found out 5 days ago and I've been in tears.. Had fibroscan and it came back as f4 and 23.5kpa. My ggt blood test was raised Haven't drank alcohol
Ringlet48
in
British Liver Trust
7 months ago
Can IBS lead to other conditions?
HiAfter having ibs most of my adult life it has, I believe led to an autoimmune condition. Leaky gut then migraines and all the time the link was gluten. Gluten free now and have been for over 3 years, dairy free too for over 2 years, private tests have led to this very restrictive diet. FODMAPDIET didn't
HiAfter having ibs most of my adult life it has, I believe led to an autoimmune condition. Leaky gut then migraines and all the time the link was gluten. Gluten free now and have been for over 3 years, dairy free too for over 2 years, private tests have led to this very restrictive diet. FODMAPDIET didn't
penelope2
in
IBS Network
5 months ago
eye sight affected with af
hello again to all, been off the site for a long while but like to check in now and again. My af usually only lasts a few seconds several times a day but I do get what I call bad episodes where it really affects my daily life I.e very tired more than a fair bit. The other night while moving from settee
hello again to all, been off the site for a long while but like to check in now and again. My af usually only lasts a few seconds several times a day but I do get what I call bad episodes where it really affects my daily life I.e very tired more than a fair bit. The other night while moving from settee
rubble4356
in
AF Association
4 months ago
prostate metastasis
hello - please excuse me if I don’t use correct medical terms - I’m learning! My husband was diagnosed almost a year ago with stage 4 (via prostate biopsy) prostate cancer that had metastasized….. multiple bone areas affected per his 2 Nuclear Bone Scans, Cat Scans etc - his PSA was off the rails = 1343
hello - please excuse me if I don’t use correct medical terms - I’m learning! My husband was diagnosed almost a year ago with stage 4 (via prostate biopsy) prostate cancer that had metastasized….. multiple bone areas affected per his 2 Nuclear Bone Scans, Cat Scans etc - his PSA was off the rails = 1343
Myshadowgirl1
in
Advanced Prostate Cancer
7 months ago
Lynne
Hi,My name is Lynne and I am new to the Forum and to Asthma! Looking back I have been breathless going up two flights of stairs at home for a while,but another respiratory virus in November left me with fatigue,cough and breathlessness. My G.P started me on inhalers while waiting for a Spiro test.
Hi,My name is Lynne and I am new to the Forum and to Asthma! Looking back I have been breathless going up two flights of stairs at home for a while,but another respiratory virus in November left me with fatigue,cough and breathlessness. My G.P started me on inhalers while waiting for a Spiro test.
Budd1ngart1st
in
Asthma Community Forum
4 months ago
Advice
Just started chemo again mastactiic high grade serious carcidoma on ovarian mass after 18m break recurrence had letter saying it spread I have chronic kidney disease ca123 195 right enlarged mass on ovary may have to have spleen removed not good read I am trying to decide as the letter says chemo
Just started chemo again mastactiic high grade serious carcidoma on ovarian mass after 18m break recurrence had letter saying it spread I have chronic kidney disease ca123 195 right enlarged mass on ovary may have to have spleen removed not good read I am trying to decide as the letter says chemo
PaumicB123
in
My Ovacome
7 months ago
Donepezil as an aid for PSP
Hi all you good people, A couple of weeks ago a fellow traveller here wrote about her husband with PSP that as his cognition and swallowing declined, his Doctor prescribed Donepezil. Originally, he was on 10 mg of Donepezil which improved his swallowing, alertness and cognition. Two years later when
Hi all you good people, A couple of weeks ago a fellow traveller here wrote about her husband with PSP that as his cognition and swallowing declined, his Doctor prescribed Donepezil. Originally, he was on 10 mg of Donepezil which improved his swallowing, alertness and cognition. Two years later when
Richard33
in
PSP Association
7 months ago
B6 - advice
I’m confused about B6. is the advice with Co-Careldopa not to take, at all. Or to take after Co-Careldopa has been absorbed. my recent blood tests showed me deficient in B6. thanks
I’m confused about B6. is the advice with Co-Careldopa not to take, at all. Or to take after Co-Careldopa has been absorbed. my recent blood tests showed me deficient in B6. thanks
Nb11
in
Cure Parkinson's
7 months ago
vitamin d advice please
I’m sub clinic apparently. I plan to start V D but my first look at what’s available is confusing. Is there more than one V D as I see some are called D3? Is the RDA amount available or do you just take lots to make it up. I’m 61 female with AI rheumatoid conditions and veggie.
I’m sub clinic apparently. I plan to start V D but my first look at what’s available is confusing. Is there more than one V D as I see some are called D3? Is the RDA amount available or do you just take lots to make it up. I’m 61 female with AI rheumatoid conditions and veggie.
Stills
in
Thyroid UK
5 months ago
Adrenal cortisol expertise needed
Hi! I was diagnosed with adrenal fatigue / low cortisol 10-plus years ago and take 10 mg of hydrocortisone (tablet) in the morning and at noon. I just received results of diurnal saliva cortisol test and am surprised/confused at the results. Does this group help with adrenal issues, or is there a different
Hi! I was diagnosed with adrenal fatigue / low cortisol 10-plus years ago and take 10 mg of hydrocortisone (tablet) in the morning and at noon. I just received results of diurnal saliva cortisol test and am surprised/confused at the results. Does this group help with adrenal issues, or is there a different
Rileyfloof
in
Thyroid UK
7 months ago
Zytiga - Lupron
I was on Zytiga ( now Abi) with lup for several years and it kept my PSA to undetectable. I am now on 0rg0vyx instead of lup and my PSA remains undetectable after 6 years. Sode effects have been tolerable EXCEPT the I developed osteoporosis of the spin and now have multiple collapsed vertebrae and
I was on Zytiga ( now Abi) with lup for several years and it kept my PSA to undetectable. I am now on 0rg0vyx instead of lup and my PSA remains undetectable after 6 years. Sode effects have been tolerable EXCEPT the I developed osteoporosis of the spin and now have multiple collapsed vertebrae and
Schnab
in
Advanced Prostate Cancer
7 months ago
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