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Gaucher disease type 1 (GD1)
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Hashimoto's and pain in muscles and joints
Hi I am new to the group.I am reaching out as I have a couple of questions.I have Hashimotos disease and on an alternating dose of 125mg to 150mg each other day of levothyroxin. I have experienced muscle aches and pains over the last 7 or so years not really sure why but I believe it's my Hashimoto's.My
Hi I am new to the group.I am reaching out as I have a couple of questions.I have Hashimotos disease and on an alternating dose of 125mg to 150mg each other day of levothyroxin. I have experienced muscle aches and pains over the last 7 or so years not really sure why but I believe it's my Hashimoto's.My
Hashiskip18
in
Thyroid UK
3 months ago
Digoxin + Lopresspor
Is anyone on Digoxin plus Lopressor long term for chronic persistent afib and how do you feel? Thanks
Is anyone on Digoxin plus Lopressor long term for chronic persistent afib and how do you feel? Thanks
farewelltoarms
in
Atrial Fibrillation Support
2 months ago
Lupus or another Autoimmune Disease?
I’m 50 yr old female with issues, RLS, Hashimotos, Autoimmune Atrophic Chronic Gastritis, intestinal Metaplasia, Iron Deficiency Anemia w/transfusions, B12 deficiency, and now this horrible hip and joint pain. I know if you have one Autoimmune Disease you’re likely to have more. I’ve had a full work
I’m 50 yr old female with issues, RLS, Hashimotos, Autoimmune Atrophic Chronic Gastritis, intestinal Metaplasia, Iron Deficiency Anemia w/transfusions, B12 deficiency, and now this horrible hip and joint pain. I know if you have one Autoimmune Disease you’re likely to have more. I’ve had a full work
Milescircus
in
LUPUS UK
3 months ago
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Malar Rash
Hi guys I was wondering what your opinion of this rash is? Does it look like a lupus rash? I’m in the MCTD and I’m on methotrexate and hydroxychloroquine. I get these rashes in a variety of different ways, always driven by sun, heat, stress or medications. Are there any other autoimmune disorders
Hi guys I was wondering what your opinion of this rash is? Does it look like a lupus rash? I’m in the MCTD and I’m on methotrexate and hydroxychloroquine. I get these rashes in a variety of different ways, always driven by sun, heat, stress or medications. Are there any other autoimmune disorders
Tonkie
in
LUPUS UK
3 months ago
blood tests
hi lovely people, I was wondering if you could give me any advice. I’m relatively new to all of this and I’ve had a very bad experience at my last hospital. I was misdiagnosed most of last year with Complex Regional Pain disease. My rheumatologist wouldn’t even consider an autoimmune disease. Anyway
hi lovely people, I was wondering if you could give me any advice. I’m relatively new to all of this and I’ve had a very bad experience at my last hospital. I was misdiagnosed most of last year with Complex Regional Pain disease. My rheumatologist wouldn’t even consider an autoimmune disease. Anyway
Tonkie
in
LUPUS UK
3 months ago
Help on blood test results
Can anyone on here advise on these results? Does this mean I 100% don't have lupus? 🤞🏼Or are there different types of lupus that I havnt been tested for?
Can anyone on here advise on these results? Does this mean I 100% don't have lupus? 🤞🏼Or are there different types of lupus that I havnt been tested for?
Peppermints
in
LUPUS UK
3 months ago
Hypothyroid and loose stools.
Hi, first time posting. Diagnosed with underactive thyroid & high cholesterol in December 23 , started on lowest dose (25mg Eutirox), reviewed in Feb 24 thyroid results improved and cholesterol down a little so continuing on same dose to be reviewed again in August. I have had loose stools for a while
Hi, first time posting. Diagnosed with underactive thyroid & high cholesterol in December 23 , started on lowest dose (25mg Eutirox), reviewed in Feb 24 thyroid results improved and cholesterol down a little so continuing on same dose to be reviewed again in August. I have had loose stools for a while
Hellodoll
in
Thyroid UK
3 months ago
3 years post successful PVI RF Ablation
Had my three year check up, ECG, Holter monitor, PM diagnostic, echo and full bloods.All good. No AFIB since ablation. BP good. PM has many years left. Only meds 15mg zarelto and 40mg micardis. Still have not got back to as much energy as I would like, maybe just getting old.
Had my three year check up, ECG, Holter monitor, PM diagnostic, echo and full bloods.All good. No AFIB since ablation. BP good. PM has many years left. Only meds 15mg zarelto and 40mg micardis. Still have not got back to as much energy as I would like, maybe just getting old.
Geoffa1
in
Atrial Fibrillation Support
2 months ago
May is Vasculitis Awarenes Month
May - Day 6 #vasculitis awareness month. Granulomatosis of Polyangiitis or GPA (former Wegener's) is the most common of the ANCA associated vasculitisdes, but still a rare disease. Maddie is a vasculitis warrior, take a moment to read her story. To donate to #VasculitisUK ‘s campaign this month to
May - Day 6 #vasculitis awareness month. Granulomatosis of Polyangiitis or GPA (former Wegener's) is the most common of the ANCA associated vasculitisdes, but still a rare disease. Maddie is a vasculitis warrior, take a moment to read her story. To donate to #VasculitisUK ‘s campaign this month to
zoe69
Vasculitis UK
in
Vasculitis UK
2 months ago
Muscle wasting?
Is this a PD sign? It happens anyway with age so how do you know what the root problem is? A few days ago I finished a treadmill workout in our shed and as I was walking away my legs gave out. Suddenly I was on the ground. Ultimately I was able to get up and shuffle into the house. I posted
Is this a PD sign? It happens anyway with age so how do you know what the root problem is? A few days ago I finished a treadmill workout in our shed and as I was walking away my legs gave out. Suddenly I was on the ground. Ultimately I was able to get up and shuffle into the house. I posted
kaypeeoh
in
Cure Parkinson's
6 months ago
Here We Go Again
Four days ago, I reported that after 4 ‘failed’ ablations, I had undergone a ‘successful’ cardioversion for what my EP said was atrial tachycardia. For four days, I enjoyed normal sinus rhythm and a heart rate of between 50 and 70bpm. However, my joy was short lived. This evening, whilst watching a
Four days ago, I reported that after 4 ‘failed’ ablations, I had undergone a ‘successful’ cardioversion for what my EP said was atrial tachycardia. For four days, I enjoyed normal sinus rhythm and a heart rate of between 50 and 70bpm. However, my joy was short lived. This evening, whilst watching a
frankiec5
in
Atrial Fibrillation Support
2 months ago
Positive results after five months
I hope it’s ok that I share my good news? I finally went to the hospital to a nephrologist - 6 months after realizing I had CKD stage 3.. my eGFR was about 50-53. No other symptoms.. My doctor showed me my test results that went way back - and they showed above normal creatinine and below normal eGFR
I hope it’s ok that I share my good news? I finally went to the hospital to a nephrologist - 6 months after realizing I had CKD stage 3.. my eGFR was about 50-53. No other symptoms.. My doctor showed me my test results that went way back - and they showed above normal creatinine and below normal eGFR
Pisces101
in
Early CKD Support
6 months ago
Newsystem23
Not posted for a while, hope everyone is managing their lupus symptoms as best they can. I did think that using 50spf sun screen and taking hydroxychloroquine would keep my skin lupus at bay. However, I'm beginning to realise it is not just the sun and artificial light that my skin is sensitive to.
Not posted for a while, hope everyone is managing their lupus symptoms as best they can. I did think that using 50spf sun screen and taking hydroxychloroquine would keep my skin lupus at bay. However, I'm beginning to realise it is not just the sun and artificial light that my skin is sensitive to.
Newsystem23
in
LUPUS UK
3 months ago
Digoxin
Can I start Digoxin while still weaning off of Lopressor? Doc said stop lopressor and start dig no weaning needed I am a little nervous after all I read Thanks for Comments
Can I start Digoxin while still weaning off of Lopressor? Doc said stop lopressor and start dig no weaning needed I am a little nervous after all I read Thanks for Comments
farewelltoarms
in
Atrial Fibrillation Support
2 months ago
Just saw my first rheumatologist yesterday, very confused by diagnosis?
Can you have negative rheumatoid factor, negative CCP antibodies, no pain, stiffness, swelling or symptoms in the small joints (hands, feet etc) & it still be possible to have rheumatoid arthritis? All of my symptoms for the past 5 and 1/2 months seem to be classical PMR (before I started taking prednisone
Can you have negative rheumatoid factor, negative CCP antibodies, no pain, stiffness, swelling or symptoms in the small joints (hands, feet etc) & it still be possible to have rheumatoid arthritis? All of my symptoms for the past 5 and 1/2 months seem to be classical PMR (before I started taking prednisone
LarMarge6
in
PMRGCAuk
3 months ago
RA and lymphoedema
Hi, just wondering if anyone has secondary lymphoedema and rheumatoid arthritis and if so what RA medication you are on, I am waiting to find out what medication I can be prescribed as I am currently having a flare up, I have had RA for over 35 years and been on various medications but the last ones
Hi, just wondering if anyone has secondary lymphoedema and rheumatoid arthritis and if so what RA medication you are on, I am waiting to find out what medication I can be prescribed as I am currently having a flare up, I have had RA for over 35 years and been on various medications but the last ones
Keb22
in
NRAS
3 months ago
Ventricular ectopic runs
Just been to the GP over the palpitations I've been having for a year or so and he said they are (from the way I described them to him) "ventricular ectopic runs" and I'm wondering what this community has to say about them...? They do feel ectopic as I get a 'missed' beat followed by a bigger one and
Just been to the GP over the palpitations I've been having for a year or so and he said they are (from the way I described them to him) "ventricular ectopic runs" and I'm wondering what this community has to say about them...? They do feel ectopic as I get a 'missed' beat followed by a bigger one and
stoneyhouse
in
Atrial Fibrillation Support
2 months ago
May - Vasculitis awareness month
May - Day 3 #vasculitis awareness month. Granulomatosis of Polyangiitis or GPA (former Wegener's) is an ANCA assosiated vasculitis and can be severe, even fatal if not treated early and correctly. Nothing is more empowering than #patient stories. This is Emma's story. To donate to #VasculitisUK
May - Day 3 #vasculitis awareness month. Granulomatosis of Polyangiitis or GPA (former Wegener's) is an ANCA assosiated vasculitis and can be severe, even fatal if not treated early and correctly. Nothing is more empowering than #patient stories. This is Emma's story. To donate to #VasculitisUK
zoe69
Vasculitis UK
in
Vasculitis UK
2 months ago
frustrated
another frustrating night…intermittent heart palpitations from 5-530 pm and then more from 11pm until 1245am…nothing fast but all skipping, like every other beat to every 20th beat….had bad day at work as I am an er nurse….wondering if that cause the arrhythmia today….im currently on no medications and
another frustrating night…intermittent heart palpitations from 5-530 pm and then more from 11pm until 1245am…nothing fast but all skipping, like every other beat to every 20th beat….had bad day at work as I am an er nurse….wondering if that cause the arrhythmia today….im currently on no medications and
Rdiehl01
in
Atrial Fibrillation Support
2 months ago
TSH Level
hiya( again 😏) Got a call from the receptionist on Wednesday my TSH level is 5 and I have been advised to stop my Carbimazole 5mg immediately, she was unable to offer any other advise other than I’m to continue having my bloods every 4 weeks . Am I correct does the level of 5 now bring me into the
hiya( again 😏) Got a call from the receptionist on Wednesday my TSH level is 5 and I have been advised to stop my Carbimazole 5mg immediately, she was unable to offer any other advise other than I’m to continue having my bloods every 4 weeks . Am I correct does the level of 5 now bring me into the
Forumjunkie
in
Thyroid UK
3 months ago
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