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Gaucher disease type 1 (GD1)
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Worried
I am a 41 year old male. I have always drank but only ever lager. Maybe 2 cans a night after work each night in the week and 7 or 8 cans on a Friday and a Saturday. Was getting little twinges under my right ribs and in my side so haven't drank for 2 months but the twinges are still there. Not painful
I am a 41 year old male. I have always drank but only ever lager. Maybe 2 cans a night after work each night in the week and 7 or 8 cans on a Friday and a Saturday. Was getting little twinges under my right ribs and in my side so haven't drank for 2 months but the twinges are still there. Not painful
urzz1871
in
British Liver Trust
6 months ago
Unusual prescription?
Hi all, I'm 73 with no weight, diabetes or BP ailments. A CT scan at a Targeted Lung Check last year revealed mild emphysema and "coronary artery calcification". The ensuing ECG indicated heart block (LAFB). Following an ultrasound last Thursday (during which I was told that there was an anomaly that
Hi all, I'm 73 with no weight, diabetes or BP ailments. A CT scan at a Targeted Lung Check last year revealed mild emphysema and "coronary artery calcification". The ensuing ECG indicated heart block (LAFB). Following an ultrasound last Thursday (during which I was told that there was an anomaly that
Globus
in
Anticoagulation Support
1 month ago
Lightheadedness after AFib episode
A few weeks ago I posted about not being given any medication to shorten my AFib attacks and received many useful replies. Thank you all.. Since then I have sent my ECG readings to my cardiologist and 2 weeks ago I was started on 50 mg Flecanide twice a day with instructions to take another 50 mg one
A few weeks ago I posted about not being given any medication to shorten my AFib attacks and received many useful replies. Thank you all.. Since then I have sent my ECG readings to my cardiologist and 2 weeks ago I was started on 50 mg Flecanide twice a day with instructions to take another 50 mg one
Jomaur
in
Atrial Fibrillation Support
1 month ago
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Walking round the close....
Well i went for my first walk round the close and felt like i had ran a marathon. I am exhausted now. I keep forgetting i have had major heart surgery. I was only in theatre for an hour yet in that time they repaired my heart. The trouble is i forget i have other health problems to deal with. I want
Well i went for my first walk round the close and felt like i had ran a marathon. I am exhausted now. I keep forgetting i have had major heart surgery. I was only in theatre for an hour yet in that time they repaired my heart. The trouble is i forget i have other health problems to deal with. I want
sylvi
in
NRAS
1 month ago
Electric shock treatment
I was diagnosed with AF Nov 2022 but have beeb pretty good since then with no further arrhythmia (as far as I am aware). Recently had echocardiogram and the technician thought everything looked fine. Now had letter saying I would be given an appointment for electric shock treatment to improve my energy
I was diagnosed with AF Nov 2022 but have beeb pretty good since then with no further arrhythmia (as far as I am aware). Recently had echocardiogram and the technician thought everything looked fine. Now had letter saying I would be given an appointment for electric shock treatment to improve my energy
Lynthebin
in
AF Association
5 months ago
Becoming mCRPC despite falling PSA
Hey guys, I got a question regarding my dad. He was diagnosed in summer 2022 with stage 4, Gleason 4+4, PSA of 122 and many osteoblastic bone metastases throughout the whole skeleton (very high volume) He did the triplet therapy, which lowered his PSA to 0.4 (January 2023). Scans afterwards stated
Hey guys, I got a question regarding my dad. He was diagnosed in summer 2022 with stage 4, Gleason 4+4, PSA of 122 and many osteoblastic bone metastases throughout the whole skeleton (very high volume) He did the triplet therapy, which lowered his PSA to 0.4 (January 2023). Scans afterwards stated
kennycool
in
Advanced Prostate Cancer
6 months ago
Suspect I have Addison's
I had a blood test yesterday and my serum cortisol was 330 nm/l.I have some hyperpigmentation & vitaligo. I think my GP was checking for Addison's. Hopefully now I can see an endocrinologist
I had a blood test yesterday and my serum cortisol was 330 nm/l.I have some hyperpigmentation & vitaligo. I think my GP was checking for Addison's. Hopefully now I can see an endocrinologist
antiloquax
in
Thyroid UK
3 months ago
My introduction Hi
Hiya everyone. Here, as I have recently, by accident really, been to the doctor to see if I might qualify for weight loss drugs, having heard such good things about ozempic or the tablet version Rybelsus. Dr said no, I don't qualify for it. But BP was 185/172 which shows hypertensive crisis, heading
Hiya everyone. Here, as I have recently, by accident really, been to the doctor to see if I might qualify for weight loss drugs, having heard such good things about ozempic or the tablet version Rybelsus. Dr said no, I don't qualify for it. But BP was 185/172 which shows hypertensive crisis, heading
Halcyondaze
in
British Liver Trust
1 month ago
Stomach issues
Morning all, So I am just about at my wits end with chronic gastric reflux and chronic wind up and down without much smell. Sometimes I vomit with it, and now I can only eat jasmine rice and even struggle to get water down at the moment. My stomach feels like I have been beat up from the inside
Morning all, So I am just about at my wits end with chronic gastric reflux and chronic wind up and down without much smell. Sometimes I vomit with it, and now I can only eat jasmine rice and even struggle to get water down at the moment. My stomach feels like I have been beat up from the inside
M0wnt
in
LUPUS UK
3 months ago
All kidney tests normal EXCEPT albumin/ creatinine ratio
hi. Haven't posted in while. My duff went up from 40 to 70!! But now test just came back that my albumin/creatinine ratio is slightly above normal. Should I be concerned?
hi. Haven't posted in while. My duff went up from 40 to 70!! But now test just came back that my albumin/creatinine ratio is slightly above normal. Should I be concerned?
Cobalt2sister
in
Early CKD Support
6 months ago
Echo results.
Hi I have afib, not usually too often but have had a few episodes this year. On all the usual meds. Have just been given an inhaler as hyperinflated patches were found on my lungs in a chest x ray. Anyway had the results of my latest echocardiogram yesterday and was wondering if you good people can interpret
Hi I have afib, not usually too often but have had a few episodes this year. On all the usual meds. Have just been given an inhaler as hyperinflated patches were found on my lungs in a chest x ray. Anyway had the results of my latest echocardiogram yesterday and was wondering if you good people can interpret
Lupaal
in
Atrial Fibrillation Support
1 month ago
Basal Cortisol Test Result
I have recently had a basal cortisol test and my serum cortisol level is 296 nmol/L. I have an appointment with my GP on Wednesday to discuss. My test results says that this is normal but on reading information on the Internet I’m not too sure that this is entirely correct. I have found the following
I have recently had a basal cortisol test and my serum cortisol level is 296 nmol/L. I have an appointment with my GP on Wednesday to discuss. My test results says that this is normal but on reading information on the Internet I’m not too sure that this is entirely correct. I have found the following
Floridafan
in
PMRGCAuk
6 months ago
Three Distinct MS Subtypes Identified
From MDedge/neurology 09April 2024
https://www.mdedge.com/neurology/article/268641/multiple-sclerosis/three-distinct-ms-subtypes-identified?ecd=WNL_EVE_240411_mdedge&icd=login_success_email_match_norm&print=1
From MDedge/neurology 09April 2024
https://www.mdedge.com/neurology/article/268641/multiple-sclerosis/three-distinct-ms-subtypes-identified?ecd=WNL_EVE_240411_mdedge&icd=login_success_email_match_norm&print=1
BettysMom
in
My MSAA Community
3 months ago
low resting heart rate
Hi All, I have Low resting heart rate, regardless of upping dose. I’ve upped my T3 meds from 20mcg to 25mcg and I take 100mcg of Levo and my resting hr stays at 52/51bpm my resting heart rate was the same at 15mcg T3 too. Initially when I up the dose for 2-3 days resting heart rate will increase to
Hi All, I have Low resting heart rate, regardless of upping dose. I’ve upped my T3 meds from 20mcg to 25mcg and I take 100mcg of Levo and my resting hr stays at 52/51bpm my resting heart rate was the same at 15mcg T3 too. Initially when I up the dose for 2-3 days resting heart rate will increase to
Thyroid_mum
in
Thyroid UK
1 month ago
Advice about experts at London Bridge Hospital
I have an unusual history. In 2007, I recovered from several months in hospital with hypoxia and very severe chest pain only when I was put on heparin. I have a very severe history of clotting on my Mum's side of the family and family and friends begged the doctors to try anticoagulation because
I have an unusual history. In 2007, I recovered from several months in hospital with hypoxia and very severe chest pain only when I was put on heparin. I have a very severe history of clotting on my Mum's side of the family and family and friends begged the doctors to try anticoagulation because
Annslack
in
Hughes Syndrome APS Forum
1 month ago
Doccla Home Monitoring
Hi All Its been a while since I last posted but basically my AF kicked in again over a year ago and it was problematic, after swapping and changing my medication i am now on amiodarone which seems to be keeping it under control but I'm told this is not a long term fix because of the side affects of
Hi All Its been a while since I last posted but basically my AF kicked in again over a year ago and it was problematic, after swapping and changing my medication i am now on amiodarone which seems to be keeping it under control but I'm told this is not a long term fix because of the side affects of
Bauldy
in
Atrial Fibrillation Support
1 month ago
Afib and Bone density supplements
I have had afib for about four years now. My latest bone density test shows osteoporosis. My primary wants me to take Prolia or some other prescription medication. My research indicates "causes arrhyhtmia" as the number one side effect. Clearly a problem for me. I have looked at several bone density
I have had afib for about four years now. My latest bone density test shows osteoporosis. My primary wants me to take Prolia or some other prescription medication. My research indicates "causes arrhyhtmia" as the number one side effect. Clearly a problem for me. I have looked at several bone density
ijregner
in
Atrial Fibrillation Support
1 month ago
Any treatment after Lu-177 (Pluvicto)?
I have metastatic prostate cancer and have taken two Pluvicto infusions, but my PSA has gone UP from 2,000 to 3,000. I understand this is the end of the line...unless anyone online has information on where to go from here. Frank.
I have metastatic prostate cancer and have taken two Pluvicto infusions, but my PSA has gone UP from 2,000 to 3,000. I understand this is the end of the line...unless anyone online has information on where to go from here. Frank.
fsiefert
in
Advanced Prostate Cancer
6 months ago
No more appointments
I had an appointment yesterday to discuss results of recent echo. Was seen by a specialist (can’t remember official title) who is a level below cardiologist - apparently does all the ground work and liases with cardiologist. He advised that as well as afib, I now have 2 slightly leaky valves and also
I had an appointment yesterday to discuss results of recent echo. Was seen by a specialist (can’t remember official title) who is a level below cardiologist - apparently does all the ground work and liases with cardiologist. He advised that as well as afib, I now have 2 slightly leaky valves and also
Puzzled8
in
Atrial Fibrillation Support
1 month ago
Return of Armpit Odor - Yikes!!!
For almost two years, I (and others! 😃) have noticed the absence of male armpit odor. Attributable to full ADT (for metastatic PCa) and suppression of testosterone. (I'm on Triplet Therapy.) This morning I was surprised to notice odor for the first time since diagnosis. Due shortly for blood panel including
For almost two years, I (and others! 😃) have noticed the absence of male armpit odor. Attributable to full ADT (for metastatic PCa) and suppression of testosterone. (I'm on Triplet Therapy.) This morning I was surprised to notice odor for the first time since diagnosis. Due shortly for blood panel including
JohnInTheMiddle
in
Advanced Prostate Cancer
6 months ago
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