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Gaucher disease type 1 (GD1)
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bilirubin
i have pbc/aih …. my 3 monthly blood test is back and the bilirubin levels are way up ….. just wondering if anyone knows what this may indicate?
i have pbc/aih …. my 3 monthly blood test is back and the bilirubin levels are way up ….. just wondering if anyone knows what this may indicate?
She-66
in
British Liver Trust
6 months ago
Low O2
CAPS survivor here. Lately my O2 has been consistently between 87% -93% resting and walking. A trip to the ER the other day showed no PE and clear lungs. They want to follow up with pulmonologist but I think it's my blood flow. My lungs feel fine! I'm on warfarin. Anybody else going through this?
CAPS survivor here. Lately my O2 has been consistently between 87% -93% resting and walking. A trip to the ER the other day showed no PE and clear lungs. They want to follow up with pulmonologist but I think it's my blood flow. My lungs feel fine! I'm on warfarin. Anybody else going through this?
grandmagigitovivi
in
Hughes Syndrome APS Forum
1 month ago
Two weeks after ablation and I'm on the list for a cardioversion
It's two weeks today since I had an ablation for AF. I wasn't in AF before or immediately after the procedure but felt bad on day two with racing irregular pulse, dizziness etc. I had an ecg last week which showed me to be in AF and the arrhythmia nurse has called to let me know and tell me that I've
It's two weeks today since I had an ablation for AF. I wasn't in AF before or immediately after the procedure but felt bad on day two with racing irregular pulse, dizziness etc. I had an ecg last week which showed me to be in AF and the arrhythmia nurse has called to let me know and tell me that I've
JoDogBlue
in
Atrial Fibrillation Support
1 month ago
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Steroid injection in the Bum
Hi , I had a steroid shot as I have rheumatoid Arthrits which I've had for 14 years But 2 days ago I had the steroid shot in my bottom I've had them before but that was maybe 8 years ago .2 days later I'm in pain again ..I can't remember if this is normal .
Hi , I had a steroid shot as I have rheumatoid Arthrits which I've had for 14 years But 2 days ago I had the steroid shot in my bottom I've had them before but that was maybe 8 years ago .2 days later I'm in pain again ..I can't remember if this is normal .
Trishfrog1
in
NRAS
3 months ago
Active b12 levels normal - can it still be PA??
Hello everyone, I am wondering if you can have normal or high active b12 levels but still have pernicious anemia?
Hello everyone, I am wondering if you can have normal or high active b12 levels but still have pernicious anemia?
Suffering_sunny
in
Pernicious Anaemia Society
3 months ago
Can anyone shed some light on Anti CCP antibodies result?
Hi everyone, my name is Claire. I’ve just received back some blood test results (Rheumatoid Factor and Anti CCP antibodies). The Rheumatoid Factor came back negative but the Anti CCP came back as 10.4 K/UL. The test states that normal range is under 2.9 K/Ul yet mine is over 3 times higher. The last
Hi everyone, my name is Claire. I’ve just received back some blood test results (Rheumatoid Factor and Anti CCP antibodies). The Rheumatoid Factor came back negative but the Anti CCP came back as 10.4 K/UL. The test states that normal range is under 2.9 K/Ul yet mine is over 3 times higher. The last
Cheshirecatz
in
NRAS
3 months ago
Orgovyx and its side effects on the heart's electrical system
I've been taking Orgovyx for over two years with few side effects. But I have been experiencing episodes of dizziness and light-headedness over the last few months. My cardiologist has diagnosed bradycardia (a slow heart beat that can cause such episodes). I will need a pacemaker. I know a side effect
I've been taking Orgovyx for over two years with few side effects. But I have been experiencing episodes of dizziness and light-headedness over the last few months. My cardiologist has diagnosed bradycardia (a slow heart beat that can cause such episodes). I will need a pacemaker. I know a side effect
Boonster
in
Advanced Prostate Cancer
1 month ago
INR meter
Hi all, I had a stroke when I was 27 years old and 10 years later I got diagnosed with Palindromic Rheumatism, a form or Arthritis. With both, current medication is Warfarin and X is required. I feel limited about the regular INR control lead by coagulation variability. Thinking to get an INR meter
Hi all, I had a stroke when I was 27 years old and 10 years later I got diagnosed with Palindromic Rheumatism, a form or Arthritis. With both, current medication is Warfarin and X is required. I feel limited about the regular INR control lead by coagulation variability. Thinking to get an INR meter
HectorManzanoDiaz
in
Anticoagulation Support
1 month ago
Bevacizumab v Niraparib
I've had chemo/debulking surgery/ chemo, and have just come to the end of the post surgery chemo. I've been told all along that I will continue with Bevacizumab as a maintenance treatment (I've had 3 rounds of it alongside chemo, 2 before the surgery and 1 after). I caught COVID towards the end of
I've had chemo/debulking surgery/ chemo, and have just come to the end of the post surgery chemo. I've been told all along that I will continue with Bevacizumab as a maintenance treatment (I've had 3 rounds of it alongside chemo, 2 before the surgery and 1 after). I caught COVID towards the end of
LovemyJackRussell
in
My Ovacome
1 month ago
chemo and genetic testing questions
My husband’s genetic testing of the biopsies came back. It’s 19 pages and I am having a super difficult time interpreting. His Oncologist Urologist is overwhelmed with duties and we probably won’t get reviewed at the level we need. attaching the executive summary. They said he tests positive for SPOP
My husband’s genetic testing of the biopsies came back. It’s 19 pages and I am having a super difficult time interpreting. His Oncologist Urologist is overwhelmed with duties and we probably won’t get reviewed at the level we need. attaching the executive summary. They said he tests positive for SPOP
Sunnysailor
in
Advanced Prostate Cancer
1 month ago
bilirubin
i have pbc/aih …. my 3 monthly blood test is back and the bilirubin levels are way up ….. just wondering if anyone knows what this may indicate?
i have pbc/aih …. my 3 monthly blood test is back and the bilirubin levels are way up ….. just wondering if anyone knows what this may indicate?
She-66
in
PBC Foundation
6 months ago
high heart rate at night
Anyone else out there experience something like this at night and have any idea if this is AFib or something else? Currently on 2.5mg bisoprolol daily thanks
Anyone else out there experience something like this at night and have any idea if this is AFib or something else? Currently on 2.5mg bisoprolol daily thanks
Craneguy83
in
Atrial Fibrillation Support
1 month ago
Is inflammatory arthritis affecting your daily life?
Researchers led by Dr Sam Norton at King's College London would like to invite you to take part in research exploring the impact of inflammatory arthritis on daily life. People with inflammatory arthritis (such as rheumatoid arthritis, psoriatic arthritis, and spondylarthritis) typically experience
Researchers led by Dr Sam Norton at King's College London would like to invite you to take part in research exploring the impact of inflammatory arthritis on daily life. People with inflammatory arthritis (such as rheumatoid arthritis, psoriatic arthritis, and spondylarthritis) typically experience
Aribah-NRAS
NRAS
in
NRAS
3 months ago
I have hypothyroidism…have I got autoimmune pancreatitis?
Thanks in advance to all you good people, who’ve already been so helpful. Since 2012, when diagnosed with Hypothyroidism after years of illness, I was never referred to an Endo. I assume I have Hashimoto’s… From childhood, I’ve had recurrent GI symptoms to alcohol and fatty foods. Last August, I had
Thanks in advance to all you good people, who’ve already been so helpful. Since 2012, when diagnosed with Hypothyroidism after years of illness, I was never referred to an Endo. I assume I have Hashimoto’s… From childhood, I’ve had recurrent GI symptoms to alcohol and fatty foods. Last August, I had
BlueMoon65
in
Thyroid UK
3 months ago
any tips/advice
Hello, I’m new here. I came upon this sit while trying to search for ways to lower my thyroid antibodies as my latest bloods have come back abnormal. But was told that my iron, ferritin and vitamin d was ok. I was wondering if there was any advice on how to feel a bit healthier.? I was as diagnosed
Hello, I’m new here. I came upon this sit while trying to search for ways to lower my thyroid antibodies as my latest bloods have come back abnormal. But was told that my iron, ferritin and vitamin d was ok. I was wondering if there was any advice on how to feel a bit healthier.? I was as diagnosed
Margiepargie
in
Thyroid UK
1 month ago
Warfarin
Hi i m taking warfarin now for one month for LV thrombus. The warfrin level is not going up. I m following the right diet for warfarin. Please help me.
Hi i m taking warfarin now for one month for LV thrombus. The warfrin level is not going up. I m following the right diet for warfarin. Please help me.
neomiferdy
in
Atrial Fibrillation Support
1 month ago
Ablation/S-ICD Recovery Time - why is it taking so long?
Bit of a long one… Hi all, I’m currently recovering from a 4 week hospital stay and struggling with the recovery period. I was admitted for investigation due to a high burden of PVCs which were making me very symptomatic. I had a previous diagnosis of low burden of PVCs, as well as mild dilated cardiomyopathy
Bit of a long one… Hi all, I’m currently recovering from a 4 week hospital stay and struggling with the recovery period. I was admitted for investigation due to a high burden of PVCs which were making me very symptomatic. I had a previous diagnosis of low burden of PVCs, as well as mild dilated cardiomyopathy
AspiringVet
in
Heart Rhythm Disorders Support
1 month ago
Watching House
I am off on a long weekend (tomorrow I go back to work), and watching House on Netflix. Funny how they focus on positive ANA for lupus on this. Of course it is never lupus, but the irony is, when you don’t tests positive on ANA - it can’t be lupus. BUT, if people test positive for ANA, you are told
I am off on a long weekend (tomorrow I go back to work), and watching House on Netflix. Funny how they focus on positive ANA for lupus on this. Of course it is never lupus, but the irony is, when you don’t tests positive on ANA - it can’t be lupus. BUT, if people test positive for ANA, you are told
Willow7733
in
LUPUS UK
3 months ago
Is the rhythm of your heart regular?
A simple pulse check only takes 30 seconds! Atrial fibrillation, also known as AF or AFib is a quivering or irregular heart rhythm (arrhythmia) that can lead to an AF-related stroke or heart failure if left untreated. If you have AF, your heart beats in an irregular rhythm causing the blood to not
A simple pulse check only takes 30 seconds! Atrial fibrillation, also known as AF or AFib is a quivering or irregular heart rhythm (arrhythmia) that can lead to an AF-related stroke or heart failure if left untreated. If you have AF, your heart beats in an irregular rhythm causing the blood to not
TracyAdmin
Partner
in
Atrial Fibrillation Support
1 month ago
What is an ICM?
An Insertable Cardiac Monitor (ICM) is a small thin device that is inserted under the skin on your breastbone to record the activity of your heart. It can remain in place for up to 3 years. The device will capture and record 'episodes'. The recorded data will be collated and assessed and help to diagnose
An Insertable Cardiac Monitor (ICM) is a small thin device that is inserted under the skin on your breastbone to record the activity of your heart. It can remain in place for up to 3 years. The device will capture and record 'episodes'. The recorded data will be collated and assessed and help to diagnose
TracyAdmin
ArrhythmiaAlliance
in
Heart Rhythm Disorders Support
1 month ago
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