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Gaucher disease type 1 (GD1)
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Paroxysmal atrial fribulation
Just another question all whilst I was on verapamil and digoxin my heart rate just raced away for no reason not afib but just a rapid rate of bpm whilst moving or trying to work doesn't happen with bisoprolol so much
Just another question all whilst I was on verapamil and digoxin my heart rate just raced away for no reason not afib but just a rapid rate of bpm whilst moving or trying to work doesn't happen with bisoprolol so much
Aprilla12345
in
Atrial Fibrillation Support
1 month ago
ectopics or extra beats.
I have twice in the past converted to persistent AF which has been sorted both times by cardioversion. However yesterday for the entire day my heart felt like it was having a disco. Ectopics, extra beats, early or skipped beats…..whatever! Should I be worried? I do have a bit of a chesty cough at the
I have twice in the past converted to persistent AF which has been sorted both times by cardioversion. However yesterday for the entire day my heart felt like it was having a disco. Ectopics, extra beats, early or skipped beats…..whatever! Should I be worried? I do have a bit of a chesty cough at the
Fondant
in
Atrial Fibrillation Support
1 month ago
Just diagnosed with 4.0 cm aneurysm of ascending aorta and severe calcification
Hi Friends I cannot express how shocked and dismayed I am finding out that I have severe calcification of my aorta and a 4.0 cm aneurysm. I have read that the aneurysm can be monitored yearly with imaging but there is nothing that can be done for the calcification. In the past 3 years, I have had
Hi Friends I cannot express how shocked and dismayed I am finding out that I have severe calcification of my aorta and a 4.0 cm aneurysm. I have read that the aneurysm can be monitored yearly with imaging but there is nothing that can be done for the calcification. In the past 3 years, I have had
Wewo01
in
MPN Voice
6 months ago
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Post ablation concerns part 2
Hi everyone - last weekend I posted that 10 days after my PFA I went back into AF. Sadly I am still there & now pretty terrified it has completely failed. The hospital did an ECG on Monday then called on Wednesday to say for me to restart the Amiodorone which was stopped after the ablation & they would
Hi everyone - last weekend I posted that 10 days after my PFA I went back into AF. Sadly I am still there & now pretty terrified it has completely failed. The hospital did an ECG on Monday then called on Wednesday to say for me to restart the Amiodorone which was stopped after the ablation & they would
Heartening
in
Atrial Fibrillation Support
1 month ago
Root cause of autoimmune B12 def
Hello- I was just diagnosed with PA and was prescribed injections (cyanocobalamin unfortunately). This was from a hematology referral for low white blood cells. That turned out to be ok, but the doc noticed my B12 was "low" at 310. I was already supplementing B12 so she just said keep doing that.
Hello- I was just diagnosed with PA and was prescribed injections (cyanocobalamin unfortunately). This was from a hematology referral for low white blood cells. That turned out to be ok, but the doc noticed my B12 was "low" at 310. I was already supplementing B12 so she just said keep doing that.
mchimes
in
Pernicious Anaemia Society
6 months ago
Radiation PSA, Orgovyx, Bone density
Rouge clone radiation on 10/31/23 has PSA continuing to drop to 0.85. MO plans to monitor PSA before requesting PSMA scan (insurance) unless it is increasing. Considering switch from Eligard to Orgovyx if PSA looks good in early Feb since Orgovyx apparently has less severe SE and doesn't tie me to
Rouge clone radiation on 10/31/23 has PSA continuing to drop to 0.85. MO plans to monitor PSA before requesting PSMA scan (insurance) unless it is increasing. Considering switch from Eligard to Orgovyx if PSA looks good in early Feb since Orgovyx apparently has less severe SE and doesn't tie me to
alperk
in
Advanced Prostate Cancer
6 months ago
End of Resus Trial
Hi all, The 6mth Resus Trial I was on finished in November and I was awaiting my results.. Bit gutted really. . After having 2 biopsies and 2 MRI scans the results have stayed the same. NAFLD. Fibrosis stage 3/4 verging on Cirrhosis... The trial drugs I was on ( whether placebo or the actual drug) were
Hi all, The 6mth Resus Trial I was on finished in November and I was awaiting my results.. Bit gutted really. . After having 2 biopsies and 2 MRI scans the results have stayed the same. NAFLD. Fibrosis stage 3/4 verging on Cirrhosis... The trial drugs I was on ( whether placebo or the actual drug) were
LolaBow
in
British Liver Trust
6 months ago
Persistent Afib
Thank you to everyone for your replies. This is the best site for info and also advice that I have found. Persistent AFib but HR controlled and stays under 100 most of the time. Now on Eliquis and switched to Digoxin .25mgm a month ago with Lopressor 25mgm/25mgm and trying to wean off Lopressor
Thank you to everyone for your replies. This is the best site for info and also advice that I have found. Persistent AFib but HR controlled and stays under 100 most of the time. Now on Eliquis and switched to Digoxin .25mgm a month ago with Lopressor 25mgm/25mgm and trying to wean off Lopressor
farewelltoarms
in
Atrial Fibrillation Support
1 month ago
Possible urinary biomarkers of lupus nephritis identified in study
Possible urinary biomarkers of lupus nephritis identified in study Biomarkers could aid in monitoring and allow for faster intervention Scientists have identified a number of proteins in the urine with high diagnostic accuracy for identifying kidney involvement in people with systemic lupus erythematosus
Possible urinary biomarkers of lupus nephritis identified in study Biomarkers could aid in monitoring and allow for faster intervention Scientists have identified a number of proteins in the urine with high diagnostic accuracy for identifying kidney involvement in people with systemic lupus erythematosus
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 months ago
AVnode ablation
All,Has anyone out there had an av node ablation? I have been in persistent afib since feb of this year, and meds are not working. My quality of life has been miserable. I have a pacemaker with wires in my ventricles and my heart rate is very well controlled. It's the afib which is so bothersome.
All,Has anyone out there had an av node ablation? I have been in persistent afib since feb of this year, and meds are not working. My quality of life has been miserable. I have a pacemaker with wires in my ventricles and my heart rate is very well controlled. It's the afib which is so bothersome.
N400033
in
Atrial Fibrillation Support
1 month ago
newbie
hello there, I’m Steve. I have been living with auto immune liver disease for 20+ years now and I was recommended to join by a social prescriber at my local doctors surgery today! I’m just looking for support from people with autoimmune hepatitis and other liver conditions, who have found it difficult
hello there, I’m Steve. I have been living with auto immune liver disease for 20+ years now and I was recommended to join by a social prescriber at my local doctors surgery today! I’m just looking for support from people with autoimmune hepatitis and other liver conditions, who have found it difficult
Northernsouthener31
in
British Liver Trust
3 months ago
`psa level
I have now been on Firmagon (hormone therapy) for 23 months .I have stage 4+4 with an original PSA of 375.I had 6 rounds of chemo which killed off the majority of the cancer in bones and lungs.Only a couple of tiny spots in the lungs. My professor tells me i have had a very good result on many trips
I have now been on Firmagon (hormone therapy) for 23 months .I have stage 4+4 with an original PSA of 375.I had 6 rounds of chemo which killed off the majority of the cancer in bones and lungs.Only a couple of tiny spots in the lungs. My professor tells me i have had a very good result on many trips
Brianne07
in
Advanced Prostate Cancer
6 months ago
Hydroxychloroquine toxic retinopathy
Hi. I have had Lupus for 22 years and been on Hydroxychloroquine 400mg daily since then plus 2mg Prednisolone. Recent eye tests have shown that the Hydroxy is affecting the retina. I was warned at the outset, that it can affect eyes, but it still a bit of a shock. Opthamology Consultant says I must
Hi. I have had Lupus for 22 years and been on Hydroxychloroquine 400mg daily since then plus 2mg Prednisolone. Recent eye tests have shown that the Hydroxy is affecting the retina. I was warned at the outset, that it can affect eyes, but it still a bit of a shock. Opthamology Consultant says I must
Juniperm
in
LUPUS UK
3 months ago
Cholesterol level and Q Risk
I don't remember seeing any discussions about the Q Risk with relation to a stroke or heart attack. My last bloods came back normal, no action. My cholesterol was 5.3 and I'm on 2mg pred.I asked the nurse what the Q risk was and it came up as 25% chance of a stroke or heart attack within the next 10
I don't remember seeing any discussions about the Q Risk with relation to a stroke or heart attack. My last bloods came back normal, no action. My cholesterol was 5.3 and I'm on 2mg pred.I asked the nurse what the Q risk was and it came up as 25% chance of a stroke or heart attack within the next 10
diana1998
in
PMRGCAuk
1 month ago
heart rate 134 when out walking
Hi all, I have PAF diagnosed Sept 23, I’m taking 1.25 Bisoprolol and 5mg x 2. I recently had my Bisoprolol reduced from 2.50 as it was making me very lacking in energy. I’m 73. We went out for a walk today, it involved a couples of inclines but nothing major, we stopped for lunch after about two miles
Hi all, I have PAF diagnosed Sept 23, I’m taking 1.25 Bisoprolol and 5mg x 2. I recently had my Bisoprolol reduced from 2.50 as it was making me very lacking in energy. I’m 73. We went out for a walk today, it involved a couples of inclines but nothing major, we stopped for lunch after about two miles
Crumbling
in
Atrial Fibrillation Support
1 month ago
Paul's last day today
Today is Paul Howard's last day at LUPUS UK after 13 years at the charity. Please join us in sending him our very best wishes for the future. Thank you for everything you have done for the lupus community. You will be very much missed!
Today is Paul Howard's last day at LUPUS UK after 13 years at the charity. Please join us in sending him our very best wishes for the future. Thank you for everything you have done for the lupus community. You will be very much missed!
Debbie_kinsey
Administrator
in
LUPUS UK
3 months ago
Trigeminy and Flecainide
I’m a female, 72 and have been in constant Trigeminy for a week now. Can someone tell me if taking 100 mg of Flecainide twice a day will help with the Trigeminy? My EP doctor prescribed the Flecainide in March for Afib however I haven’t started taking it yet because I have not been having problems with
I’m a female, 72 and have been in constant Trigeminy for a week now. Can someone tell me if taking 100 mg of Flecainide twice a day will help with the Trigeminy? My EP doctor prescribed the Flecainide in March for Afib however I haven’t started taking it yet because I have not been having problems with
Debjimmay
in
Atrial Fibrillation Support
1 month ago
Atrial Fibrillation
Hi, I have suffered with AF since 2018 resulting in 4 cardioversions and 3 ablations (the last was on Friday 17th May and was an AV node ablation linked with connection of a previously implanted Pacemaker. I had hoped that I would be feeling great, no breathlessness. Unfortunately that is not the case
Hi, I have suffered with AF since 2018 resulting in 4 cardioversions and 3 ablations (the last was on Friday 17th May and was an AV node ablation linked with connection of a previously implanted Pacemaker. I had hoped that I would be feeling great, no breathlessness. Unfortunately that is not the case
hollyandivy
in
Atrial Fibrillation Support
1 month ago
Exercise induced AF
I’ve had a great 4 years since my AF diagnosis, able to live pretty normally in terms of my choice of exercise with 3 years AF free following my cardioversion and just a few increasing episodes of paroxysmal AF in the last year. Recently I felt that a triathlon bike/run training session set off my AF
I’ve had a great 4 years since my AF diagnosis, able to live pretty normally in terms of my choice of exercise with 3 years AF free following my cardioversion and just a few increasing episodes of paroxysmal AF in the last year. Recently I felt that a triathlon bike/run training session set off my AF
Daisy2908
in
Atrial Fibrillation Support
1 month ago
Statins
I had a call from my GP surgery about taking statins.Apparently my cholesterol is okay but I have a 38% risk of having a stroke or heart attack. Even though I take anticoagulant statins work in a different way and are recommended for me as I am in persistent afib I do not want to take statins but wondered
I had a call from my GP surgery about taking statins.Apparently my cholesterol is okay but I have a 38% risk of having a stroke or heart attack. Even though I take anticoagulant statins work in a different way and are recommended for me as I am in persistent afib I do not want to take statins but wondered
Swimsyroke
in
Atrial Fibrillation Support
1 month ago
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