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Gaucher disease type 1 (GD1)
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Predicting AF 30 mins before it happens
Researchers at the University of Luxembourg (LCSB) have developed an AI which is able to predict an episode of afib 30 minutes ahead of time with around 80% accuracy. https://www.sciencedaily.com/releases/2024/04/240422120707.htm [i]Prof. Jorge Goncalves, head of the Systems Control group at
Researchers at the University of Luxembourg (LCSB) have developed an AI which is able to predict an episode of afib 30 minutes ahead of time with around 80% accuracy. https://www.sciencedaily.com/releases/2024/04/240422120707.htm [i]Prof. Jorge Goncalves, head of the Systems Control group at
Barny12
in
Atrial Fibrillation Support
1 month ago
biopsy report, still waiting to see consultant.
hi all, had an email with the below conclusion of my biopsy, I have a very minuscule left lobe which they want to biopsy but were unable to due to the size. So the right lobe was biopsied. Until I see the consultant I don’t really understand the results, I know none of you are specialist or doctors
hi all, had an email with the below conclusion of my biopsy, I have a very minuscule left lobe which they want to biopsy but were unable to due to the size. So the right lobe was biopsied. Until I see the consultant I don’t really understand the results, I know none of you are specialist or doctors
Goneinsixtyseconds
in
British Liver Trust
6 months ago
Today our fragmented NHS
I have been struggling with vibrating feet and balance issues my ESR is raised and MCV so emailed Rheumatoid nurse already had a routine telephone conversation this week. She rung me about 6pm today obviously at home I don't think she had access to my bloods didn't really listen told me to go to walk
I have been struggling with vibrating feet and balance issues my ESR is raised and MCV so emailed Rheumatoid nurse already had a routine telephone conversation this week. She rung me about 6pm today obviously at home I don't think she had access to my bloods didn't really listen told me to go to walk
welsh12
in
NRAS
3 months ago
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10 year PMR anniversary! A new drug for me called Etanercept being advised.
Originally 'diagnosed' with PMR in 2014, initially controlled with prednisolone and then Methotrexate introduced in 2018 after I queried my diagnosis and treatment plan. A PET scan in 2018 by my new Rheumatologist satisfied him that I had PMR. Leflunomide trialled but did not work for me. My aim is
Originally 'diagnosed' with PMR in 2014, initially controlled with prednisolone and then Methotrexate introduced in 2018 after I queried my diagnosis and treatment plan. A PET scan in 2018 by my new Rheumatologist satisfied him that I had PMR. Leflunomide trialled but did not work for me. My aim is
MC60
in
PMRGCAuk
3 months ago
Update to Feeling overwhelmed
Apologies for the long post. I was referred to the Rapid Access Chest Pain clinic by my GP as she is unsure if my chest pain and breathlessness is down to my lung conditions or if I have angina. I attended the clinic 2 weeks ago and was referred for a heart CT angiogram where they inject a contrast
Apologies for the long post. I was referred to the Rapid Access Chest Pain clinic by my GP as she is unsure if my chest pain and breathlessness is down to my lung conditions or if I have angina. I attended the clinic 2 weeks ago and was referred for a heart CT angiogram where they inject a contrast
Roxdale
in
Lung Conditions Community Forum
1 month ago
Lupus and Fibromyalgia with Sjogren syndrome
I have been dealing with Lupus for 11 years and it has been a day by day experience for me I have a lot of pain and anxiety but I am taking turmeric 3 times a day to get rid of the inflammation but I am still feeling better with a lot of pain but not as bad . My back hurts so bad and I found out I have
I have been dealing with Lupus for 11 years and it has been a day by day experience for me I have a lot of pain and anxiety but I am taking turmeric 3 times a day to get rid of the inflammation but I am still feeling better with a lot of pain but not as bad . My back hurts so bad and I found out I have
Denise1219
in
LUpus Patients Understanding and Support
3 months ago
New to all this
76 years old, no heart problems as far as I knew, just had one of my better games of golf for a couple of years and started to get an ache in my chest in the evening. So phoned the Healthline (I live in NZ) and they had a 30 minute wait, so tried the ambulance service, who operate a triage service.
76 years old, no heart problems as far as I knew, just had one of my better games of golf for a couple of years and started to get an ache in my chest in the evening. So phoned the Healthline (I live in NZ) and they had a 30 minute wait, so tried the ambulance service, who operate a triage service.
ParrotY
in
Atrial Fibrillation Support
1 month ago
Help and advice for mum
Hey All, My mum has hidden her drinking, liver issues and cirrorsis for 15 years as I’ve been living in a different country. She was taken into hospital last winter, and I was told it was related to her liver, but no real further detail. Attending a consultant appointment with her last week has unearthed
Hey All, My mum has hidden her drinking, liver issues and cirrorsis for 15 years as I’ve been living in a different country. She was taken into hospital last winter, and I was told it was related to her liver, but no real further detail. Attending a consultant appointment with her last week has unearthed
PerpetuallySad
in
British Liver Trust
6 months ago
Anticoagulation treatment stop
I’m 72 ,I have had persistent slow AF now for 9 years I have been taking warfarin now for the last 10 years I have moderate weakness of the heart muscles ,enlarged heart ,my ejection fraction was 40% last year . I have received a letter saying my consultant wants me to stop taking warfarin straight
I’m 72 ,I have had persistent slow AF now for 9 years I have been taking warfarin now for the last 10 years I have moderate weakness of the heart muscles ,enlarged heart ,my ejection fraction was 40% last year . I have received a letter saying my consultant wants me to stop taking warfarin straight
jsheard
in
Atrial Fibrillation Support
1 month ago
Compensated liver
I have went from ddcompensatd to compensated liver disease since being diagnosed in August 2023. I keep seeing prognosis is 9 to 12 years. Is this correct or can you live past 12 years. I haven't had any alcohol since diagnosed
I have went from ddcompensatd to compensated liver disease since being diagnosed in August 2023. I keep seeing prognosis is 9 to 12 years. Is this correct or can you live past 12 years. I haven't had any alcohol since diagnosed
Oasisman
in
British Liver Trust
6 months ago
Confused and seeking clarification
Hi folks . . . I have attached a letter from Hepatology which (to me anyway!) appears to contradict itself? In summary . . . a US in September 2021 showed increased parenchymal echogenicity (PE) due to fatty liver. Follow up bloods and a CT in April 2022 revealed nothing further. I then had a telephone
Hi folks . . . I have attached a letter from Hepatology which (to me anyway!) appears to contradict itself? In summary . . . a US in September 2021 showed increased parenchymal echogenicity (PE) due to fatty liver. Follow up bloods and a CT in April 2022 revealed nothing further. I then had a telephone
HouseHead
in
British Liver Trust
6 months ago
pumpkin seeds for cholesterol
I have under active thyroid and high blood pressure and my cholesterol is high taking a ounce of pumpkin seeds can lower blood pressure and cholesterol I am going to try these and see the outcome
I have under active thyroid and high blood pressure and my cholesterol is high taking a ounce of pumpkin seeds can lower blood pressure and cholesterol I am going to try these and see the outcome
Harmitage
in
Thyroid UK
1 month ago
ischaemic heart disease with E/T
hi all I’m 68 male had splenectomy in 2014 started hydroxycarbamide in 2015 high risk E/T and PV I’m on lots medication and 1500 mg daily Hydroxycarbamide I recently had a heart angiogram which shown high calcification in my main LAD heart artery moderate to severe They put me on Apixiban and atorvastatin
hi all I’m 68 male had splenectomy in 2014 started hydroxycarbamide in 2015 high risk E/T and PV I’m on lots medication and 1500 mg daily Hydroxycarbamide I recently had a heart angiogram which shown high calcification in my main LAD heart artery moderate to severe They put me on Apixiban and atorvastatin
Phil1955
in
MPN Voice
1 month ago
Is it my lungs or PMR
I have gone back in my memory trying to figure out when my issues all began and in what order. I believe my PMR started in early 2019 when preparing for a dog show (possibly sooner and I just blamed it on old age LOL). Muscle weakness and shortness of breath were new to me. Over the next several months
I have gone back in my memory trying to figure out when my issues all began and in what order. I believe my PMR started in early 2019 when preparing for a dog show (possibly sooner and I just blamed it on old age LOL). Muscle weakness and shortness of breath were new to me. Over the next several months
Dydee
in
PMRGCAuk
1 month ago
What is an ablasion procedure is it safe?
Diagnosed with AFIB, cardiologist has suggested for me to look into ablasion proceedure. Taking Eliquis but an expensive drug to be on. Research shows this proceedure with ablasion only 70% successful to put heart back in a normal rhythem? Has anyone had this proceedure done?
Diagnosed with AFIB, cardiologist has suggested for me to look into ablasion proceedure. Taking Eliquis but an expensive drug to be on. Research shows this proceedure with ablasion only 70% successful to put heart back in a normal rhythem? Has anyone had this proceedure done?
Kallen32-missyou
in
Heart Rhythm Disorders Support
1 month ago
Amiodarone again...loading dose?
I'm reluctantly back on Amiodarone ahead of a cardioversion in the next few weeks. I had an ablation five weeks ago and have been in AF for the duration.When I was originally on Amiodarone (before a successful carioversion) I started on a high loading dose. This time its 200mg once a day, the maintenance
I'm reluctantly back on Amiodarone ahead of a cardioversion in the next few weeks. I had an ablation five weeks ago and have been in AF for the duration.When I was originally on Amiodarone (before a successful carioversion) I started on a high loading dose. This time its 200mg once a day, the maintenance
JoDogBlue
in
Atrial Fibrillation Support
1 month ago
Lupus participants needed for a study with The University of Edinburgh!
Do you have Systemic Lupus and currently experience disordered eating? If you're 18+ years old, we want to hear about your experience. For more information, please contact: l.bruha@sms.ed.ac.uk by email or via Instagram @thelupusexperience Thank you for your time.
Do you have Systemic Lupus and currently experience disordered eating? If you're 18+ years old, we want to hear about your experience. For more information, please contact: l.bruha@sms.ed.ac.uk by email or via Instagram @thelupusexperience Thank you for your time.
michaellasmith
Administrator
in
LUPUS UK
3 months ago
Blood test Results AST/GGT
Hi all.I have a history of pancreatitis and liver issues. I did a private blood test in the week and it's come back that my AST and GGT are both high. GGT is worse. Should I be concerned? I'm going to ring my GP tomorrow for another blood test but wondering if I should go to A+E? I'm in pain and managing
Hi all.I have a history of pancreatitis and liver issues. I did a private blood test in the week and it's come back that my AST and GGT are both high. GGT is worse. Should I be concerned? I'm going to ring my GP tomorrow for another blood test but wondering if I should go to A+E? I'm in pain and managing
Koswecan
in
British Liver Trust
6 months ago
ET Increase in Platelets Linear or Random?
I've had ET since my early 30s and my platelets seem to be increasing by a set amount each year, I'm now in my 40s and platelets are at 900. It seems like I should be able to plot that and figure out when its going to get to a worrying level. So I guess I'd like to know at what level will I need to
I've had ET since my early 30s and my platelets seem to be increasing by a set amount each year, I'm now in my 40s and platelets are at 900. It seems like I should be able to plot that and figure out when its going to get to a worrying level. So I guess I'd like to know at what level will I need to
Jpn4
in
MPN Voice
1 month ago
liver transplant : build up
hi everyone I’m really in need of some support. I’m 37 and have liver failure . I went to see my consultant in Belfast a few weeks ago and was my doctor when I attended Antrim hospital hospital. She was extremely direct and blunt with myself. She said my score is is high but didn’t tell me the range.
hi everyone I’m really in need of some support. I’m 37 and have liver failure . I went to see my consultant in Belfast a few weeks ago and was my doctor when I attended Antrim hospital hospital. She was extremely direct and blunt with myself. She said my score is is high but didn’t tell me the range.
Meanies
in
British Liver Trust
6 months ago
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