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Experiences with
Functional neurological disorder (FND)
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Bad dreams - does it ever end - fed up!
I have gone from one thing to another since my ablation on the 26th March! Thanks to you lovely people who have helped me through the physical and emotional side effects, I couldn't have done this without you. I am fed up - am I expecting too much? I am awake often hourly through the night, have vivid
I have gone from one thing to another since my ablation on the 26th March! Thanks to you lovely people who have helped me through the physical and emotional side effects, I couldn't have done this without you. I am fed up - am I expecting too much? I am awake often hourly through the night, have vivid
Karendeena
in
Atrial Fibrillation Support
3 months ago
Lopressor dose titration
Permanent afib 100mgm of Lopressor am & 50 pm plus eliquis. Decided to cut back to 50 in am because of blurred vision and now have had upset stomach times 1 week plus HR back up to low 100's. Thought I felt better on lower dose but maybe not??
Permanent afib 100mgm of Lopressor am & 50 pm plus eliquis. Decided to cut back to 50 in am because of blurred vision and now have had upset stomach times 1 week plus HR back up to low 100's. Thought I felt better on lower dose but maybe not??
farewelltoarms
in
Atrial Fibrillation Support
3 months ago
Can you help with observations.
I guess my question is : is my daughter being weighed down by unnecessary medications which are being prescribed to her so that a box can be ticked. I am concerned about the health of her liver etc. She is 45 and has been suffering since the age of 15. It is a form of BPD . The problem as I see it is
I guess my question is : is my daughter being weighed down by unnecessary medications which are being prescribed to her so that a box can be ticked. I am concerned about the health of her liver etc. She is 45 and has been suffering since the age of 15. It is a form of BPD . The problem as I see it is
m1946
in
Anxiety and Depression Support
6 months ago
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I am returning as my health is not good. I have lipodema and have been told to lose weight. Have always had a weight problem but now none to organise my time better to eat proper meals at the right times. Weight now - 12 stone 10llbs
I am returning as my health is not good. I have lipodema and have been told to lose weight. Have always had a weight problem but now none to organise my time better to eat proper meals at the right times. Weight now - 12 stone 10llbs
anja8
in
Weight Loss Support
3 months ago
Improvement of Blood Plasmalogens and Clinical Symptoms in Parkinson's Disease by Oral Administration of Ether Phospholipids:
You got plasmalogen? Any one likes scallops? It is a lengthy article, but our HU scientists will give us their opinion. I have to find the supplement now! https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7049862/
You got plasmalogen? Any one likes scallops? It is a lengthy article, but our HU scientists will give us their opinion. I have to find the supplement now! https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7049862/
Despe
in
Cure Parkinson's
3 months ago
First Post
I had heard of
functional
neurological
disorder
before but my doctors always wrote it off as “mental”.
I had heard of
functional
neurological
disorder
before but my doctors always wrote it off as “mental”.
dumbo2003
in
Functional Neurological Disorder - FND Hope
1 year ago
New GP unilaterally changed diagnosis on medical records
When I explained that whilst Conservation
Disorder
is a
Functional
Neurological
Disorder
, not all
Functional
Neurological
Disorders are Conservation
Disorder
, she found a way of tricking it into saying FND, but she said I should check it regularly because she isn't confident it won't happen again.
When I explained that whilst Conservation
Disorder
is a
Functional
Neurological
Disorder
, not all
Functional
Neurological
Disorders are Conservation
Disorder
, she found a way of tricking it into saying FND, but she said I should check it regularly because she isn't confident it won't happen again.
sykgirl
in
Functional Neurological Disorder - FND Hope
1 year ago
am i relasping?
i had been recovered from anorexia since 2016 but since i had surgery for an infection in my back and have lost weight, i cant stop focusing on calories, loosing weight, and exercising. im not underweight infact im probably abit over, i feel like ana is creeping back in, but i dont feel i can as for
i had been recovered from anorexia since 2016 but since i had surgery for an infection in my back and have lost weight, i cant stop focusing on calories, loosing weight, and exercising. im not underweight infact im probably abit over, i feel like ana is creeping back in, but i dont feel i can as for
Horsemad1
in
Talk ED (eating disorders)
3 months ago
Getting No Help and feeling desperate
I have severe restless legs and am going around in circles with my doctor and neurologist. Being waiting months for a CPAP machine but now my doctor wants me to do another sleep study. I have been using kratom for years but now it's not really working for me and am close to packing it all in. I live
I have severe restless legs and am going around in circles with my doctor and neurologist. Being waiting months for a CPAP machine but now my doctor wants me to do another sleep study. I have been using kratom for years but now it's not really working for me and am close to packing it all in. I live
Jezee
in
Restless Legs Syndrome
3 months ago
Effects of Traditional Japanese Massage Therapy on Various Symptoms in Patients with Parkinson’s Disease:A Case-Series Study
Effects of Traditional Japanese Massage Therapy on Various Symptoms in Patients with Parkinson’s Disease:A Case-Series Study 2012 https://sci-hub.st/10.1089/acm.2011.0148
Abstract:
Objectives:
Massage therapy is one of the most commonly used complementary therapies for patients
Effects of Traditional Japanese Massage Therapy on Various Symptoms in Patients with Parkinson’s Disease:A Case-Series Study 2012 https://sci-hub.st/10.1089/acm.2011.0148
Abstract:
Objectives:
Massage therapy is one of the most commonly used complementary therapies for patients
Bolt_Upright
in
Cure Parkinson's
3 months ago
Sleep apnea and PMR
Over the last year my sleep has been poor, and finally I had an overnight sleep study, which revealed severe apnea. I'm pretty sure this is new to me and I did some reading. Apparently there is a nasty connection between apnea and PMR (and RA). One source: "The co-existence of sleep apnoea in rheumatic
Over the last year my sleep has been poor, and finally I had an overnight sleep study, which revealed severe apnea. I'm pretty sure this is new to me and I did some reading. Apparently there is a nasty connection between apnea and PMR (and RA). One source: "The co-existence of sleep apnoea in rheumatic
papadapadoo
in
PMRGCAuk
3 months ago
This New Year's Eve is Weird!!!
I plan to have a party somehow for 2024 going into 2025 because this one SUCKS A**!! Ok, so I am alive and breathing, I have a roof over my head and food to eat so by goodness I am thankful 🙏🏽🙏🏽, buttt.... because I'm in a trauma filled situation mentally and financially, this day ain't it!! I remember
I plan to have a party somehow for 2024 going into 2025 because this one SUCKS A**!! Ok, so I am alive and breathing, I have a roof over my head and food to eat so by goodness I am thankful 🙏🏽🙏🏽, buttt.... because I'm in a trauma filled situation mentally and financially, this day ain't it!! I remember
Cat_cat44
in
Anxiety and Depression Support
6 months ago
Suggestions For Reducing 'Off' Time
I sent this message to my Neurologist from Mayo Clinic who works under Eric Ahlskog who wrote “The New Parkinson’s Disease Treatment Book”. I am looking for any suggestions regarding how I can reduce my ‘off’ times that are becoming more and more severe. I’m trying to hold off on the DBS surgery and
I sent this message to my Neurologist from Mayo Clinic who works under Eric Ahlskog who wrote “The New Parkinson’s Disease Treatment Book”. I am looking for any suggestions regarding how I can reduce my ‘off’ times that are becoming more and more severe. I’m trying to hold off on the DBS surgery and
tandolino
in
Cure Parkinson's
3 months ago
Suboxone works!
As I stated in my first post, in May, 2023, I have had severe RLS for many years. I suffered augmentation after taking 4 mg Mirapex daily. In September, 2023, my sleep study doctor, at The University of Michigan, prescribed Suboxone. Also known as Buprenorphine and Naloxone 2 mg/0.5 mg. It is a sublingual
As I stated in my first post, in May, 2023, I have had severe RLS for many years. I suffered augmentation after taking 4 mg Mirapex daily. In September, 2023, my sleep study doctor, at The University of Michigan, prescribed Suboxone. Also known as Buprenorphine and Naloxone 2 mg/0.5 mg. It is a sublingual
Happygrandmother
in
Restless Legs Syndrome
3 months ago
does anyone have experience of Benzatropine?
My doctor prescribed Benzatropine for dystonia, he didn’t have time to explain at my visiting. Also I know what he prescribed until I see it at CVS pharmacy. I googled it, seems I should stop taking other med include Amantadine and Rasagiline . Does anyone have knowledge and experience of Benzatropine
My doctor prescribed Benzatropine for dystonia, he didn’t have time to explain at my visiting. Also I know what he prescribed until I see it at CVS pharmacy. I googled it, seems I should stop taking other med include Amantadine and Rasagiline . Does anyone have knowledge and experience of Benzatropine
Grandsonlover
in
Cure Parkinson's
3 months ago
Farmed salmon and PLMD
Hi everyone I would again be grateful for your help on this wonderful site I have severe RLS and severe PLMD. I take 1500 mgs gaberpentin and 750 micros clonazepam every night .Normally i wake up twice a night,,twitching away, go for a 30 minutes walk, and, if i am lucky, I can get back to
Hi everyone I would again be grateful for your help on this wonderful site I have severe RLS and severe PLMD. I take 1500 mgs gaberpentin and 750 micros clonazepam every night .Normally i wake up twice a night,,twitching away, go for a 30 minutes walk, and, if i am lucky, I can get back to
thorp
in
Restless Legs Syndrome
3 months ago
Duloxetine to Mirtazapine
I been on Gabapentin from 23.02.24 and was previously on Pramipexole but had compulsive eating so asked to change. I stopped Pramipexole straight away and moved to Gabapentin and went from 300mg three times a day to 900mg three times a day and not really helped me. Spoke to Dr today who’s decided I should
I been on Gabapentin from 23.02.24 and was previously on Pramipexole but had compulsive eating so asked to change. I stopped Pramipexole straight away and moved to Gabapentin and went from 300mg three times a day to 900mg three times a day and not really helped me. Spoke to Dr today who’s decided I should
Puggy1910
in
Restless Legs Syndrome
4 months ago
First Post from New Member
Hi everyone!, My name is Lisa. I can't believe there's a group of people who I can reach out to that know the hell I live with. I was diagnosed about RLS & PLMD about 25 years ago. I was 32. I've had 3 sleep studies done. I guess as with everyone, it was a bunch of trials and errors with
Hi everyone!, My name is Lisa. I can't believe there's a group of people who I can reach out to that know the hell I live with. I was diagnosed about RLS & PLMD about 25 years ago. I was 32. I've had 3 sleep studies done. I guess as with everyone, it was a bunch of trials and errors with
Leeserann
in
Restless Legs Syndrome
4 months ago
Just a quick update, Endo appointment 👿
went to Royal Liverpool Endo dept , was hoping to see the consultant who is on TUK Uk list. Unfortunately this did not happen, the person I saw was less than helpful, see I can be tactful, sometimes. Introduced herself as diabetes consultant and she lived up to that name. The first thing she said
went to Royal Liverpool Endo dept , was hoping to see the consultant who is on TUK Uk list. Unfortunately this did not happen, the person I saw was less than helpful, see I can be tactful, sometimes. Introduced herself as diabetes consultant and she lived up to that name. The first thing she said
Polo22
in
Thyroid UK
8 days ago
How much more can I take ?
Its a year now since I started the worst journey of my life getting off Ropinrole but I did it and Im proud . Yes daytime and evenings are much better but nights are still pure hell . I have had one nights sleep in a year and that was 1til 6am .Interestingly I was out that evening and only had 600 mgs
Its a year now since I started the worst journey of my life getting off Ropinrole but I did it and Im proud . Yes daytime and evenings are much better but nights are still pure hell . I have had one nights sleep in a year and that was 1til 6am .Interestingly I was out that evening and only had 600 mgs
Huntingleroy
in
Restless Legs Syndrome
4 months ago
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