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Experiences with
Functional neurological disorder (FND)
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Functional neurological disorder: Engaging patients in treatment
Apologises if posted somewhere before, but it was the date of this article and the recommended Care Model that caught my eye, I was searching for "rule in" signs for FND to post. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8633865/ Hopefully now the medical professional are beginning to see the light
Apologises if posted somewhere before, but it was the date of this article and the recommended Care Model that caught my eye, I was searching for "rule in" signs for FND to post. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8633865/ Hopefully now the medical professional are beginning to see the light
Lady4
in
Functional Neurological Disorder - FND Hope
5 months ago
New to this group/been dealing with FND for a few years
I'm Angie and have been battling with weird physical symptoms for 3 1/2 years to Finally get a
Functional
Neurological
Disorder
/
Functional
Movement Disorder diagnosis.
I'm Angie and have been battling with weird physical symptoms for 3 1/2 years to Finally get a
Functional
Neurological
Disorder
/
Functional
Movement Disorder diagnosis.
eclipsetucker
in
Functional Neurological Disorder - FND Hope
3 months ago
Evidence-Based Mind-Body Interventions for Children and Adolescents with Functional Neurological Disorder
The bit that caught my attention: Full resolution of FND symptoms occurs in 63%–95% of children if diagnosis and treatment are promptly delivered using a multidisciplinary, biopsychosocial, stepped-care approach. Despite this need, pediatric FND services are scarce worldwide. The link to the article
The bit that caught my attention: Full resolution of FND symptoms occurs in 63%–95% of children if diagnosis and treatment are promptly delivered using a multidisciplinary, biopsychosocial, stepped-care approach. Despite this need, pediatric FND services are scarce worldwide. The link to the article
Lady4
in
Functional Neurological Disorder - FND Hope
5 months ago
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FND and scared of future.
(
Functional
Neurological
Disorder
) I'm waiting for the next saga in my life to unfold. ( Sorry I sound so gloom and doom guys) It's just exploding in my mind/thoughts all the time.
(
Functional
Neurological
Disorder
) I'm waiting for the next saga in my life to unfold. ( Sorry I sound so gloom and doom guys) It's just exploding in my mind/thoughts all the time.
Arlo31
in
Fibromyalgia Action UK
3 months ago
Small fiber polynueropathy, often misdiagnosed as FND, a personal story:
A tweet from a Specialist, Zach London: Saw another patient with sensory neuronopathy who had been misdiagnosed with
functional
neurological
disorder
.
A tweet from a Specialist, Zach London: Saw another patient with sensory neuronopathy who had been misdiagnosed with
functional
neurological
disorder
.
Lady4
in
Functional Neurological Disorder - FND Hope
6 months ago
Newly diagnosed with FND
Neurologist finally confirms diagnosis of
Functional
Neurological
Disorder
(FND) with paroxysmal non-epileptic events. Being referred for CBT . Anyone had same diagnosis ? Any useful information on how to manage condition whilst waiting for CBT appt would be appreciated. TIA
Neurologist finally confirms diagnosis of
Functional
Neurological
Disorder
(FND) with paroxysmal non-epileptic events. Being referred for CBT . Anyone had same diagnosis ? Any useful information on how to manage condition whilst waiting for CBT appt would be appreciated. TIA
Hidden
in
FND Action
1 year ago
raised prolactin, low free T4 in 15 year old
Current diagnosis’ : Tourette’s, FND (
functional
neurological
disorder
), depression Current medication: fluoxetine 20mg Strong family history of thyroid problems - paternal nan, aunt and female cousin, maternal nan and great aunt I’m aware that fluoxetine can increase prolactin but with her other
Current diagnosis’ : Tourette’s, FND (
functional
neurological
disorder
), depression Current medication: fluoxetine 20mg Strong family history of thyroid problems - paternal nan, aunt and female cousin, maternal nan and great aunt I’m aware that fluoxetine can increase prolactin but with her other
Lec1977
in
Thyroid UK
1 year ago
Tinnitus and Cognitive effects (continued). Is anyone's Tinnitus/Hyperacusis linked to cognitive disorders?
I wrote a post on cognitive disorders a few weeks ago, following a diagnosis of FND (
Functional
Neurological
Disorder
) - although I may have only mentioned it in passing. I was very sceptical. In fact, I still remain quite unsure, but there are a number of symptoms that do make it plausible.
I wrote a post on cognitive disorders a few weeks ago, following a diagnosis of FND (
Functional
Neurological
Disorder
) - although I may have only mentioned it in passing. I was very sceptical. In fact, I still remain quite unsure, but there are a number of symptoms that do make it plausible.
daverussell
in
Tinnitus UK
8 months ago
Fibro and FND (Functional Neurological Disorder)
I was diagnosed with fibromyalgia last year and referred to a neurologist this year after experience increasing episodes of involuntary facial movements, slurred speech and jerky limb movements. The neurologist said she thinks I probably have symptoms of FND. I am getting referred for an MRI scan to
I was diagnosed with fibromyalgia last year and referred to a neurologist this year after experience increasing episodes of involuntary facial movements, slurred speech and jerky limb movements. The neurologist said she thinks I probably have symptoms of FND. I am getting referred for an MRI scan to
mollyxsue
in
Fibromyalgia Action UK
1 year ago
Just saw this on Facebook. Looks like an interesting research project.
This is for people who have a diagnosis of
Functional
Neurological
Disorder
. The purpose of the study is to understand some of the factors impacting on an individual’s quality of life, in order to think about ways to improve services and support available.
This is for people who have a diagnosis of
Functional
Neurological
Disorder
. The purpose of the study is to understand some of the factors impacting on an individual’s quality of life, in order to think about ways to improve services and support available.
210272
in
Functional Neurological Disorder - FND Hope
1 year ago
Change of diagnosis!
They have now decided that it’s no longer MSA but FND )
Functional
neurological
disorder
. He feels even though I have. Some extra issues such as Hyperflexia & postural hypertension I haven’t detoriated fast enough’ After 2 years it’s good to have a confirmed diagnosis but on overload now. x
They have now decided that it’s no longer MSA but FND )
Functional
neurological
disorder
. He feels even though I have. Some extra issues such as Hyperflexia & postural hypertension I haven’t detoriated fast enough’ After 2 years it’s good to have a confirmed diagnosis but on overload now. x
Bizzyissy
in
Multiple System Atrophy Trust
1 year ago
Years Long Battle
When I went to the ER for these days long episodes, a doctor gave me the golden words, "
Functional
Neurological
Disorder
."
When I went to the ER for these days long episodes, a doctor gave me the golden words, "
Functional
Neurological
Disorder
."
SSV11
in
Functional Neurological Disorder - FND Hope
10 months ago
Incurable Neuro Diseases
Functional
Neurological
Disorder
, Complex Regional Pain Syndrome, and ME-CFS are all difficult to deal with. I am always in extreme pain and there is no medication that can help. I have started trying different things: chiropractor, massage, weight training, and plan to attempt accupunture.
Functional
Neurological
Disorder
, Complex Regional Pain Syndrome, and ME-CFS are all difficult to deal with. I am always in extreme pain and there is no medication that can help. I have started trying different things: chiropractor, massage, weight training, and plan to attempt accupunture.
Tbrue74
in
Anxiety and Depression Support
1 year ago
My Functional Neurological disorder
Hello! My name is Liza. when I was 14 I was put in the hospital by a boy that liked me but got carried away, and he slammed me down. I tried to stop the fall with my leg. It’s got jammed and it started to hurt like hell. And four days later I started to limp on it. I woke up and took my dog out. It
Hello! My name is Liza. when I was 14 I was put in the hospital by a boy that liked me but got carried away, and he slammed me down. I tried to stop the fall with my leg. It’s got jammed and it started to hurt like hell. And four days later I started to limp on it. I woke up and took my dog out. It
FNDfighter2005
in
Functional Neurological Disorder - FND Hope
1 year ago
CBT Therapist
I’ve been diagnosed with
Functional
Neurological
Disorder
, more specifically
Functional
Movement Disorder. Does anyone know of any therapist that’s done CBT (Cognitive Behavioral Therapy) with FND/FMD patients in Hawaii? Thank you!
I’ve been diagnosed with
Functional
Neurological
Disorder
, more specifically
Functional
Movement Disorder. Does anyone know of any therapist that’s done CBT (Cognitive Behavioral Therapy) with FND/FMD patients in Hawaii? Thank you!
Brieze
in
Functional Neurological Disorder - FND Hope
1 year ago
spouse support
hello all. Not sure if anyone can see my post from last year but long story short my husband had his first manic episode in April of 2023 requiring me to 302 him. The worst possible experience of my life. He has since been much better and stabilized on medications and our life has been pretty joyous.
hello all. Not sure if anyone can see my post from last year but long story short my husband had his first manic episode in April of 2023 requiring me to 302 him. The worst possible experience of my life. He has since been much better and stabilized on medications and our life has been pretty joyous.
Toula223
in
Anxiety and Depression Support
10 days ago
A Comprehensive Review of the Role of Stem Cells in Neuroregeneration: Potential Therapies for Neurological Disorders
This review provides a comprehensive analysis of the role of stem cells in neuroregeneration, exploring different types of stem cells, including embryonic stem cells (ESCs), induced pluripotent stem cells (iPSCs), and adult stem cells, and their mechanisms of action in neural repair. It examines current
This review provides a comprehensive analysis of the role of stem cells in neuroregeneration, exploring different types of stem cells, including embryonic stem cells (ESCs), induced pluripotent stem cells (iPSCs), and adult stem cells, and their mechanisms of action in neural repair. It examines current
Farooqji
in
Cure Parkinson's
27 days ago
One more post
I don't want to sound like a record that keeps skipping but I have to get this out. I am three months out from withdrawing from an SSRI that I had to stop taking and about two months from amitriptyline which I only took for two weeks. I was on the SSRI for a short time, and at a low dose. I did genesight
I don't want to sound like a record that keeps skipping but I have to get this out. I am three months out from withdrawing from an SSRI that I had to stop taking and about two months from amitriptyline which I only took for two weeks. I was on the SSRI for a short time, and at a low dose. I did genesight
Greatskies
in
Anxiety and Depression Support
28 days ago
hallucinations
TRIGGER WARNING I had some really scary/traumatising hallucinations around my daughter after she was born. When I would look at her, her skin would look blue/purple in tone like she was not able to breath or dead. At the worst of it before I was given Olanzapine her eyes were going full black along
TRIGGER WARNING I had some really scary/traumatising hallucinations around my daughter after she was born. When I would look at her, her skin would look blue/purple in tone like she was not able to breath or dead. At the worst of it before I was given Olanzapine her eyes were going full black along
Unicorn23
in
Action on Postpartum Psychosis
1 month ago
Feelings of disappointment
With having Lupus and a few other conditions, being on steroids and suffering from anxiety and depression, not having a job or voluntary job, I find that I just can’t stop feelings of disappointment from arising when ‘things go wrong’. People cancelling meet ups, people cancelling coming to your birthday
With having Lupus and a few other conditions, being on steroids and suffering from anxiety and depression, not having a job or voluntary job, I find that I just can’t stop feelings of disappointment from arising when ‘things go wrong’. People cancelling meet ups, people cancelling coming to your birthday
LilyMistri2
in
LUPUS UK
1 month ago
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