Pee problems: Lately my hypochondria has... - Cure Parkinson's

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Pee problems

kaypeeoh profile image
26 Replies

Lately my hypochondria has been in over-drive. I have incontinence. That is, when I feel like I'm done , and zip -up, I shortly see fluid has soaked into my denims.

I use Myrbetriq, a drug to lessen bladder spasms. It works, that is, when I'm done I don't feel the urge to continue peeing, But the trade-off is that pee continues to dribble out and if I'm not watching it it soaks into my shorts and jeans. If I watch and wait for the dribble to go from a steady dribble to a drip and ultimately stop, I still can have urine exiting the bladder. But it feels like I'm done. There's no sense of fluid waiting to come out. So I zip up and later find urine soaking into my shorts.

The Myrbetriq was added because I whined about needing to get up at 3AM. So the medication stopped that but this dripping business is not a great trade-off. In the past I tried other drugs such as beta-sitosterol but that led to gynecomastia.

So I can buy absorbent pads to stuff under my shorts or live with 3AM bathroom trips. Anyone know whether kegels would help this? A friend with the same problem says he developed a yeast infection from the chronic dampness.

Another problem is my weight gain but that needs a separate post.

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kaypeeoh
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26 Replies
parkie13 profile image
parkie13

3 o'clock trade off is better.

Gcf51 profile image
Gcf51 in reply toparkie13

What's "3 o'clock trade off"?

parkie13 profile image
parkie13 in reply toGcf51

Kaypeeoh said that He wanted medication to stop getting up at 3 am.However his experience with prescription drugs is worse than getting up.

Gcf51 profile image
Gcf51

I tried 25mg Myrbetriq and basically did not help me. Asked for 50mg and with 50mg I could not hold my Pee.

JayPwP profile image
JayPwP

Kegel exercises are said to help. Why don't you try adult diapers till benefit from kegel is achieved?

kaypeeoh profile image
kaypeeoh in reply toJayPwP

Pads are the same as adult diapers but 'absorbent pads' sounds better. The neuro recommended a rubber ball. I found a rubber dodge ball. I hold it between my knees and compress it to increase muscle tone.

shaken-not-stirred profile image
shaken-not-stirred in reply tokaypeeoh

I am assuming males and females have similar bladder structures - try stopping your flow by engaging your bladder sphincter several times a day - make sure it is not your anal sphincter - you will know when you have the right one when you can interrupt flow . My PWP was given a drug to relax his bladder and got into trouble with it - so I helped him get some control this way. I have lumbar nerve damage and had problems with control especially in cold weather and found that this has helped me as well. It takes time but worth it and we both have to get up approx 3-4 hours after going to bed and we have had to accept that ( combo of pd and advancing years and cranky nerves) So I do understand where you are coming from - ain't life a hoot?

kaypeeoh profile image
kaypeeoh in reply toJayPwP

The medication relaxes the bladder enough that there's less sensation of 'fullness' at 3AM but at the same time the urethra is less able to hold urine back.

Scout222 profile image
Scout222 in reply tokaypeeoh

Doing research on similar topic and found the article on this link interesting, michiganmedicine.org/health...

Biblelover profile image
Biblelover

you can try legal but they're normally performed incorrectly. You will get the best results if you see a pelvic floor physical therapist who will determine if your symmetrically contracting the pelvic floor muscles. PT trained in ISM is good or I can give you a great podcast where there are two episodes on the pelvic floor..

Biblelover profile image
Biblelover in reply toBiblelover

Legal not legal. Typing on the phone has its challenges. Haha

SuuSuu profile image
SuuSuu in reply toBiblelover

Kegel - I get it :-)

I'd be interested in the pelvic floor podcasts. Can you share the links.

Biblelover profile image
Biblelover in reply toSuuSuu

Http://franklinMethodFellowship.Podbean.com episode 3 and 4 and 10 when it is loaded in 4 weeks.

Biblelover profile image
Biblelover in reply toSuuSuu

the podcast had a better approach to pelvic floor strengthening, it's more functional

Shumbah profile image
Shumbah

I’m not sure if this will be helpful to you

I am female and been having a laser treatment called Mona Lisa it’s painless and quick 3 visits 4 weeks apart then a review for top up laser .

Also you can see GP OVESTIN it’s an internal hormone and I can personally vouch for it helping me , I am still using it whilst I’m doing the laser

I have severe atrophy internally effects my bowels and bladder

I feel for you all the best

Fed1000 profile image
Fed1000

But wouldn’t it be more correct to see a urologist?

Biblelover profile image
Biblelover in reply toFed1000

A pelvic floor therapist/WCS who's ISM trained will be better. Urologist will do some medical lab tests but the PT will be mower specific with muscle symmetry, nerves, fascia, ....

Fed1000 profile image
Fed1000 in reply toBiblelover

Yes perhaps, in any case it is the responsability of a specialist doctor.

MomoP profile image
MomoP

when are you taking Myrbetriq? I was taking 25mg every morning. I was up at least 2-3 during the night to go. ( I understand you have a different issue). I switched when I was taking it. Now I take 50mg every night around 8pm. I sleep through the night now. It’s great to have uninterrupted sleep!

Sydney75 profile image
Sydney75

Get pelvic floor therapy. The dampness could also lead to UTIs. Change frequently and shower the privates everyday.

drumhead profile image
drumhead

When you are done peeing stay squated over the toilet and try pressing on your taint. You may be able to "mechanically" get those last remnants of pee out so they don't end up in your shorts. And for gadzooks, wash your hand when you're done 😆

kaypeeoh profile image
kaypeeoh in reply todrumhead

AIUI, pressing on the lower left side stimulates the colon. Pressing on the right lower side stimulates the bladder. Gadzooks indeed.

kaypeeoh profile image
kaypeeoh

Thanks for all the advice. Kegels plus squeezing a big rubber dodge-ball ball between my knees seems to be the way to go.

Ley0 profile image
Ley0

I went through the urology tests which was uncomfortable and expensive. Results- I have a teeny tiny bladder. I take OxyContin which helps. She also told me when you urinate and think you are done, stay seated for 30 seconds and push harder to see if there is more urine which there almost always is. Wearing a long length pad will give you some peace of mind.

Juliegrace profile image
Juliegrace in reply toLey0

A doctor prescribed OxyContin for bladder issues?

Ley0 profile image
Ley0 in reply toJuliegrace

Sorry word replacement changed it. Oxybutynin is the med.

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