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Experiences with
Functional neurological disorder (FND)
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32 public communities
Functional Neurological Disorder - FND Hope
5,756 members
FND Hope supports patients and families impacted by Functional Neurological Disorder. We advocate for the men, women, and children who have had their lives turned upside down with physical and often debilitating symptoms. Many of which, were sent home with little information and the reassurance that it will go away on its own. We give FND patients a voice, we lend them our ear. We give everyone a place to call their own and a place to feel secure. We give our members the courage to keep going and the strength they need to endure each day. Most of all… We give them hope.
FND Action
661 members
History has created a lot of misconception of Functional Neurological Disorders which has led to poor treatment and care of those diagnosed, which includes men, women and children of all ages. It is positive that the increase in awareness is slowly helping, but there is still a long way to go to ensure all those diagnosed are supported and cared for appropriately. FND Action is a charity registered in the UK that has been set up by a handful of people who themselves have been diagnosed with FND and/or NEAD. Our aim is to help those across the UK by providing a peer support network, ongoing advice and current information, and to work in collaboration with healthcare professionals to ensure the best care is offered for recovery and long term health management.
Neuro Support
1,994 members
Welcome to the Neuro Support Community. This community exists to improve the quality of life of people affected by any neurological condition, including: ALS, Alzheimer’s disease, Back pain, Bell's palsy, birth defects of the brain and spinal cord, brain aneurysm, brain injury, brain tumors, cerebral palsy, chronic fatigue syndrome, concussion, dementia, disk disease of neck and lower back, epilepsy, Guillain-Barré syndrome, migraine, multiple sclerosis, muscular dystrophy, neuralgia, neuropathy, neuromuscular and related diseases, Parkinson's disease, scoliosis, seizures, spinal cord injury, spinal deformity, spinal disorder, spine tumors and stroke. Whether you're affected directly, caring for someone or know someone affected, everyone is welcome. Join today to share your experiences, receive support and exchange advise in a community of people who truly understand. Introduce yourself today: https://healthunlocked.com/neuro-support/write
South West Wales Neurological Alliance
293 members
We are community that supports individuals, groups and organisations that represent Neurological Conditions and those associated with their care; in Neath Port Talbot, Swansea and Bridgend, Wales.
SWEDA
616 members
Having an eating disorder, or supporting someone who has, can be a distressing and bewildering experience. Somerset and Wessex Eating Disorders Association (SWEDA) offers a range of services throughout Somerset and the surrounding area.
My OCD Community
9,349 members
Welcome to My OCD Community! We’re glad you’ve chosen to join us! My OCD Community is a safe, supportive, informative, and friendly community for all people affected by OCD. It also supports all people affected by OCD related disorders such as Hoarding Disorder (HD), Body Dysmorphic Disorder (BDD) and the BFRB’s (body-focused repetitive behaviors, such as skin picking and hair pulling). The group is moderated by the International OCD Foundation (IOCDF) and HealthUnlocked (HU). The members of this group are vulnerable in sharing their triumphs and struggles and receive immense support from one another. In that same spirit, we welcome you to share your story and encourage others. Lastly, we urge you to get familiar with our Community Guidelines: https://healthunlocked.com/my-ocd/posts/138741516/community-guidelines. Once again, a huge welcome to your OCD Community :)
Dystonia Society
600 members
We are an online community providing support, advocacy and information for anyone affected by the neurological movement condition known as dystonia. Join us to share your experiences, ask for advice and support each other! The Dystonia Society Helpline is available Tue - Fri, 10-4, on 020 7793 3650 or support@dystonia.org.uk
BWS Support
711 members
A community dedicated to supporting those with Beckwith-Wiedemann Syndrome (BWS), which is an overgrowth disorder.
Haemochromatosis Society UK
563 members
The Haemochromatosis Society was established in 1990 in order to help, support and provide information for those affected by Haemochromatosis (Iron Overload Disorder).
Action on Pre-eclampsia
709 members
Action on Pre-eclampsia (also known as APEC) aims to raise awareness of pre-eclampsia - which is a pregnancy disorder characterized by high blood pressure and protein in the urine.
Canadian Organization for Rare Disorders
196 members
CORD is Canada's national network for organizations representing all those with rare disorders. CORD provides a strong common voice to advocate for health policy and a healthcare system that works for those with rare disorders. CORD works with governments, researchers, clinicians and industry to promote research, diagnosis, treatment and services for all rare disorders in Canada. 1 in 12 Canadians has a rare disorder. Many others are affected or at risk but remain undiagnosed and unaware. CORD provides information to individuals, and links to other rare disorder support groups and organizations from Prince Rupert, British Columbia to St. Johns, Newfoundland.
Major Depressive Disorder (MDD) Support
2,098 members
This is a safe space for those affected by major depressive disorder to share and talk with others who truly understand. ADAA is an international nonprofit dedicated to the prevention, treatment, & cure of anxiety, depression, OCD, PTSD and co-occurring disorders through education, practice, & research. www.adaa.org offers free educational resources for more than 7 million annual visitors; a Find-a-Therapist database; webinars, blog posts, podcasts & videos; support groups, and more. ADAA also hosts separate Anxiety and Depression as well as a Spanish-language support communities. ADAA does not provide psychiatric, psychological, or medical advice, diagnosis, or treatment. Please note: You may be contacted by one of our administrators to invite you to serve as a volunteer administrator or to share your story. If we do reach out to you, your anonymity is not compromised unless you agree to share personal contact information with us. If you do not wish to engage with us, simply do not respond.
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