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Experiences with
Functional neurological disorder (FND)
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New user of NDT
Hi I was diagnosed with an underactivity Thyroid in Sept 2006 and since then have been taking 100 mcg Levothyroxine. Over the years I have been feeling very tired, and escalting weight gain. My GP is always telling me that my Thyroid blood tests are normal. Through consulting with a private UK based
Hi I was diagnosed with an underactivity Thyroid in Sept 2006 and since then have been taking 100 mcg Levothyroxine. Over the years I have been feeling very tired, and escalting weight gain. My GP is always telling me that my Thyroid blood tests are normal. Through consulting with a private UK based
Georgie2386
in
Thyroid UK
17 days ago
Getting No Help and feeling desperate
I have severe restless legs and am going around in circles with my doctor and neurologist. Being waiting months for a CPAP machine but now my doctor wants me to do another sleep study. I have been using kratom for years but now it's not really working for me and am close to packing it all in. I live
I have severe restless legs and am going around in circles with my doctor and neurologist. Being waiting months for a CPAP machine but now my doctor wants me to do another sleep study. I have been using kratom for years but now it's not really working for me and am close to packing it all in. I live
Jezee
in
Restless Legs Syndrome
4 months ago
Kidney disease scare
Hi. Got a renal function test done a week ago. Blood and urine. All the results came out fine except for low calcium, 1.91mmol/l. Does this indicate kidney disease?Creatinine is within normal range Urea is within normal range Urinalysis is good. No blood or protein. But calcium is 1.91mmol/l. Should
Hi. Got a renal function test done a week ago. Blood and urine. All the results came out fine except for low calcium, 1.91mmol/l. Does this indicate kidney disease?Creatinine is within normal range Urea is within normal range Urinalysis is good. No blood or protein. But calcium is 1.91mmol/l. Should
SurvivorA
in
Kidney Disease
18 days ago
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Just a quick update, Endo appointment šæ
went to Royal Liverpool Endo dept , was hoping to see the consultant who is on TUK Uk list. Unfortunately this did not happen, the person I saw was less than helpful, see I can be tactful, sometimes. Introduced herself as diabetes consultant and she lived up to that name. The first thing she said
went to Royal Liverpool Endo dept , was hoping to see the consultant who is on TUK Uk list. Unfortunately this did not happen, the person I saw was less than helpful, see I can be tactful, sometimes. Introduced herself as diabetes consultant and she lived up to that name. The first thing she said
Polo22
in
Thyroid UK
28 days ago
Effects of Traditional Japanese Massage Therapy on Various Symptoms in Patients with Parkinsonās Disease:A Case-Series Study
Effects of Traditional Japanese Massage Therapy on Various Symptoms in Patients with Parkinsonās Disease:A Case-Series Study 2012 https://sci-hub.st/10.1089/acm.2011.0148
Abstract:
Objectives:
Massage therapy is one of the most commonly used complementary therapies for patients
Effects of Traditional Japanese Massage Therapy on Various Symptoms in Patients with Parkinsonās Disease:A Case-Series Study 2012 https://sci-hub.st/10.1089/acm.2011.0148
Abstract:
Objectives:
Massage therapy is one of the most commonly used complementary therapies for patients
Bolt_Upright
in
Cure Parkinson's
4 months ago
Sleep apnea and PMR
Over the last year my sleep has been poor, and finally I had an overnight sleep study, which revealed severe apnea. I'm pretty sure this is new to me and I did some reading. Apparently there is a nasty connection between apnea and PMR (and RA). One source: "The co-existence of sleep apnoea in rheumatic
Over the last year my sleep has been poor, and finally I had an overnight sleep study, which revealed severe apnea. I'm pretty sure this is new to me and I did some reading. Apparently there is a nasty connection between apnea and PMR (and RA). One source: "The co-existence of sleep apnoea in rheumatic
papadapadoo
in
PMRGCAuk
4 months ago
Suggestions For Reducing 'Off' Time
I sent this message to my Neurologist from Mayo Clinic who works under Eric Ahlskog who wrote āThe New Parkinsonās Disease Treatment Bookā. I am looking for any suggestions regarding how I can reduce my āoffā times that are becoming more and more severe. Iām trying to hold off on the DBS surgery and
I sent this message to my Neurologist from Mayo Clinic who works under Eric Ahlskog who wrote āThe New Parkinsonās Disease Treatment Bookā. I am looking for any suggestions regarding how I can reduce my āoffā times that are becoming more and more severe. Iām trying to hold off on the DBS surgery and
tandolino
in
Cure Parkinson's
4 months ago
Suboxone works!
As I stated in my first post, in May, 2023, I have had severe RLS for many years. I suffered augmentation after taking 4 mg Mirapex daily. In September, 2023, my sleep study doctor, at The University of Michigan, prescribed Suboxone. Also known as Buprenorphine and Naloxone 2 mg/0.5 mg. It is a sublingual
As I stated in my first post, in May, 2023, I have had severe RLS for many years. I suffered augmentation after taking 4 mg Mirapex daily. In September, 2023, my sleep study doctor, at The University of Michigan, prescribed Suboxone. Also known as Buprenorphine and Naloxone 2 mg/0.5 mg. It is a sublingual
Happygrandmother
in
Restless Legs Syndrome
4 months ago
Decrease Nubeqa?
I'm 83, prostate cancer(PSA 30) with negative bone scan, negative MRI, but PET shows multiple small mets throughout both lungs and multiple lymph nodes throughout the chest. Started with 600 mgm bid of Nubeqa, and Orgovyx 120 mgm once a day. I also received radiation to the prostate approx. 6 months
I'm 83, prostate cancer(PSA 30) with negative bone scan, negative MRI, but PET shows multiple small mets throughout both lungs and multiple lymph nodes throughout the chest. Started with 600 mgm bid of Nubeqa, and Orgovyx 120 mgm once a day. I also received radiation to the prostate approx. 6 months
Sweetjessie
in
Advanced Prostate Cancer
1 month ago
WARNING: If you have FND and live in UK
When I explained that whilst Conservation
Disorder
is a
Functional
Neurological
Disorder
, not all
Functional
Neurological
Disorders are Conservation
Disorder
, she found a way of tricking it into saying FND, but she said I should check it regularly because she isn't confident it won't happen again.
When I explained that whilst Conservation
Disorder
is a
Functional
Neurological
Disorder
, not all
Functional
Neurological
Disorders are Conservation
Disorder
, she found a way of tricking it into saying FND, but she said I should check it regularly because she isn't confident it won't happen again.
sykgirl
in
Functional Neurological Disorder - FND Hope
1 year ago
New Blood Results - help please
Iāve received my latest blood results and they seem quite random compared to my last set of results. My GP has asked to speak to me and review them but wanted to ask for some advice from the brilliant people here firstā¦ For ref, my levo was increased from 125 to 150mcg in February 24. Iāve been feeling
Iāve received my latest blood results and they seem quite random compared to my last set of results. My GP has asked to speak to me and review them but wanted to ask for some advice from the brilliant people here firstā¦ For ref, my levo was increased from 125 to 150mcg in February 24. Iāve been feeling
SleepingDisco
in
Thyroid UK
2 months ago
Can you help with observations.
I guess my question is : is my daughter being weighed down by unnecessary medications which are being prescribed to her so that a box can be ticked. I am concerned about the health of her liver etc. She is 45 and has been suffering since the age of 15. It is a form of BPD . The problem as I see it is
I guess my question is : is my daughter being weighed down by unnecessary medications which are being prescribed to her so that a box can be ticked. I am concerned about the health of her liver etc. She is 45 and has been suffering since the age of 15. It is a form of BPD . The problem as I see it is
m1946
in
Anxiety and Depression Support
6 months ago
does anyone have experience of Benzatropine?
My doctor prescribed Benzatropine for dystonia, he didnāt have time to explain at my visiting. Also I know what he prescribed until I see it at CVS pharmacy. I googled it, seems I should stop taking other med include Amantadine and Rasagiline . Does anyone have knowledge and experience of Benzatropine
My doctor prescribed Benzatropine for dystonia, he didnāt have time to explain at my visiting. Also I know what he prescribed until I see it at CVS pharmacy. I googled it, seems I should stop taking other med include Amantadine and Rasagiline . Does anyone have knowledge and experience of Benzatropine
Grandsonlover
in
Cure Parkinson's
4 months ago
borderline renal function, my MD cut my Nubeqa in half--thoughts?
Borderline renal function, mets to pelvis, and multiple lymph nodes in lungs, but seen only on PET, not on MRI . age 83
Borderline renal function, mets to pelvis, and multiple lymph nodes in lungs, but seen only on PET, not on MRI . age 83
Sweetjessie
in
Advanced Prostate Cancer
2 months ago
Hubby's MOT
So my husband, aged 79, was called into GP surgery for MOT as not been seen since before COVID. Bloods taken, BP, weight etc. so I suggested he get a printout+ low+ behold lots of tests taken not discussed (even tho told all ok) - it was a phone call. One test was thyroid function test : TSH, T4 but
So my husband, aged 79, was called into GP surgery for MOT as not been seen since before COVID. Bloods taken, BP, weight etc. so I suggested he get a printout+ low+ behold lots of tests taken not discussed (even tho told all ok) - it was a phone call. One test was thyroid function test : TSH, T4 but
Lottyplum
in
Thyroid UK
2 months ago
Farmed salmon and PLMD
Hi everyone I would again be grateful for your help on this wonderful site I have severe RLS and severe PLMD. I take 1500 mgs gaberpentin and 750 micros clonazepam every night .Normally i wake up twice a night,,twitching away, go for a 30 minutes walk, and, if i am lucky, I can get back to
Hi everyone I would again be grateful for your help on this wonderful site I have severe RLS and severe PLMD. I take 1500 mgs gaberpentin and 750 micros clonazepam every night .Normally i wake up twice a night,,twitching away, go for a 30 minutes walk, and, if i am lucky, I can get back to
thorp
in
Restless Legs Syndrome
4 months ago
Duloxetine to Mirtazapine
I been on Gabapentin from 23.02.24 and was previously on Pramipexole but had compulsive eating so asked to change. I stopped Pramipexole straight away and moved to Gabapentin and went from 300mg three times a day to 900mg three times a day and not really helped me. Spoke to Dr today whoās decided I should
I been on Gabapentin from 23.02.24 and was previously on Pramipexole but had compulsive eating so asked to change. I stopped Pramipexole straight away and moved to Gabapentin and went from 300mg three times a day to 900mg three times a day and not really helped me. Spoke to Dr today whoās decided I should
Puggy1910
in
Restless Legs Syndrome
4 months ago
This New Year's Eve is Weird!!!
I plan to have a party somehow for 2024 going into 2025 because this one SUCKS A**!! Ok, so I am alive and breathing, I have a roof over my head and food to eat so by goodness I am thankful šš½šš½, buttt.... because I'm in a trauma filled situation mentally and financially, this day ain't it!! I remember
I plan to have a party somehow for 2024 going into 2025 because this one SUCKS A**!! Ok, so I am alive and breathing, I have a roof over my head and food to eat so by goodness I am thankful šš½šš½, buttt.... because I'm in a trauma filled situation mentally and financially, this day ain't it!! I remember
Cat_cat44
in
Anxiety and Depression Support
7 months ago
First Post from New Member
Hi everyone!, My name is Lisa. I can't believe there's a group of people who I can reach out to that know the hell I live with. I was diagnosed about RLS & PLMD about 25 years ago. I was 32. I've had 3 sleep studies done. I guess as with everyone, it was a bunch of trials and errors with
Hi everyone!, My name is Lisa. I can't believe there's a group of people who I can reach out to that know the hell I live with. I was diagnosed about RLS & PLMD about 25 years ago. I was 32. I've had 3 sleep studies done. I guess as with everyone, it was a bunch of trials and errors with
Leeserann
in
Restless Legs Syndrome
4 months ago
How much more can I take ?
Its a year now since I started the worst journey of my life getting off Ropinrole but I did it and Im proud . Yes daytime and evenings are much better but nights are still pure hell . I have had one nights sleep in a year and that was 1til 6am .Interestingly I was out that evening and only had 600 mgs
Its a year now since I started the worst journey of my life getting off Ropinrole but I did it and Im proud . Yes daytime and evenings are much better but nights are still pure hell . I have had one nights sleep in a year and that was 1til 6am .Interestingly I was out that evening and only had 600 mgs
Huntingleroy
in
Restless Legs Syndrome
4 months ago
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