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Stage 4 endometriosis
Hi everyone I'm wanting some advise, I went in for keyhole surgery to check for endo and when they have went in they found I am covered in it, they got rid of some but it's all stuck to bowel, ovaries and bladder and they need to go back in which waiting for surgery which will be 6 month or so, I'm currently
Hi everyone I'm wanting some advise, I went in for keyhole surgery to check for endo and when they have went in they found I am covered in it, they got rid of some but it's all stuck to bowel, ovaries and bladder and they need to go back in which waiting for surgery which will be 6 month or so, I'm currently
Bry1991
in
Endometriosis UK
2 years ago
hysterectomy advice
due for 2nd removal of endo tissue, and removal of coil as this didn't work. I had been given the decapeptyl injection which was wonderful and I was pain free for the first time in 10yrs. have asked for this injection again and refused due to my age (42) looking to see if anyone has fought for a hysterectomy
due for 2nd removal of endo tissue, and removal of coil as this didn't work. I had been given the decapeptyl injection which was wonderful and I was pain free for the first time in 10yrs. have asked for this injection again and refused due to my age (42) looking to see if anyone has fought for a hysterectomy
Mrsmcgrogan
in
Endometriosis UK
2 years ago
feeling sick everytime i try and eat had coil fitted 3 months ago
hi I had an operation to remove endo then they fitted a coil but i ve been in pain since and have lost weight as i carnt eat as i feel sick everytime i try which is getting worse the doctors have said there isnt a connection between the coil and feeling sick has anyone else had this thankyou
hi I had an operation to remove endo then they fitted a coil but i ve been in pain since and have lost weight as i carnt eat as i feel sick everytime i try which is getting worse the doctors have said there isnt a connection between the coil and feeling sick has anyone else had this thankyou
mousey14
in
Endometriosis UK
2 years ago
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Tramadol - Anxiety
Hi for my endo pain and pelvic pain I’ve been taking tramadol with paracetamol. I’ve been on this since getting the coil fitted but the pain has been more frequent. This may be stupid but I take 50mg x 1 or 2 tablets 2/3/4 times a day depending on my pain. I definitely wake up in agony in the mornings
Hi for my endo pain and pelvic pain I’ve been taking tramadol with paracetamol. I’ve been on this since getting the coil fitted but the pain has been more frequent. This may be stupid but I take 50mg x 1 or 2 tablets 2/3/4 times a day depending on my pain. I definitely wake up in agony in the mornings
Littlebug77
in
Endometriosis UK
2 years ago
Found out my consultant may have been negligent…
Hi all, Some of you might have seen me post on here before about my journey. I had a laparoscopy with a general gynae back in October who left a two sentence report on my file saying she had removed endometriosis spots. She told me that that removal (via heat) was the treatment along with the coil they
Hi all, Some of you might have seen me post on here before about my journey. I had a laparoscopy with a general gynae back in October who left a two sentence report on my file saying she had removed endometriosis spots. She told me that that removal (via heat) was the treatment along with the coil they
DalmatianGirl
in
Endometriosis UK
2 years ago
Endometriosis help!?
Hi all, I haven’t posted for awhile. I was finally diagnosed with stage 2 endometriosis in august 2021 after 9 years of suffering. Pain and bleeding just got worse after the lap. Heavy bleeds for up to 30 days. I’ve tried combined pills, mini pills, coil etc and nothing helps. I bleed and bleed and
Hi all, I haven’t posted for awhile. I was finally diagnosed with stage 2 endometriosis in august 2021 after 9 years of suffering. Pain and bleeding just got worse after the lap. Heavy bleeds for up to 30 days. I’ve tried combined pills, mini pills, coil etc and nothing helps. I bleed and bleed and
chloe6897
in
Endometriosis UK
2 years ago
Levosert Question's
So two weeks ago today I had a smear, a biopsy and the Levosert coil fitted all at the same appointment, last week I went back to the doctors to get it checked as I had been suffering with stomach aches every time I did something strenuous, the day I went to the doctors my period started but I had already
So two weeks ago today I had a smear, a biopsy and the Levosert coil fitted all at the same appointment, last week I went back to the doctors to get it checked as I had been suffering with stomach aches every time I did something strenuous, the day I went to the doctors my period started but I had already
Suzybluer
in
Endometriosis UK
2 years ago
Finally got a follow up appointment …
After having my lap in October , another 5cm cyst was found 3 weeks later on ultrasound and I’ve been waiting for an app with the gynae ever since I’ve finally been given a last minute appointment for Thursday with a locum gynae, and I’m so nervous he won’t take me seriously as my last gynae told me
After having my lap in October , another 5cm cyst was found 3 weeks later on ultrasound and I’ve been waiting for an app with the gynae ever since I’ve finally been given a last minute appointment for Thursday with a locum gynae, and I’m so nervous he won’t take me seriously as my last gynae told me
DalmatianGirl
in
Endometriosis UK
2 years ago
Tissue chunks Mirena Coil
This is my second time around with the coil the first time I was bleeding insanely with large chunks of my uterus coming out. I needed up getting the coil removed as I developed a cyst that popped and was rushed to hospital. Currently I had the coil inserted a 2 months ago I haven’t stopped spotting
This is my second time around with the coil the first time I was bleeding insanely with large chunks of my uterus coming out. I needed up getting the coil removed as I developed a cyst that popped and was rushed to hospital. Currently I had the coil inserted a 2 months ago I haven’t stopped spotting
Littlebug77
in
Endometriosis UK
2 years ago
Help with managing pain and day to day life? :(
Hi I've recently been diagnosed with Endometriosis and am waiting for an appointment in March.... I've been put on the contraceptive pill that stops your periods. I've been asked to get a coil but to be honest I don't want it. One of my close friends has endo and shes had the surgery to get tissue removed
Hi I've recently been diagnosed with Endometriosis and am waiting for an appointment in March.... I've been put on the contraceptive pill that stops your periods. I've been asked to get a coil but to be honest I don't want it. One of my close friends has endo and shes had the surgery to get tissue removed
Nikid1991
in
Endometriosis UK
2 years ago
Potential endo and non-hormonal IUD
I think I have endo, or something similar. I've been on painkillers, NSAIDs and have had an ultrasound that was normal. I am now waiting for my referral to the gyno. I was recommended the birth control pill when I was younger to reduce the symptoms but I don't want anything hormonal. I got the non-hormonal
I think I have endo, or something similar. I've been on painkillers, NSAIDs and have had an ultrasound that was normal. I am now waiting for my referral to the gyno. I was recommended the birth control pill when I was younger to reduce the symptoms but I don't want anything hormonal. I got the non-hormonal
hurtinginside
in
Endometriosis UK
2 years ago
Dienogest or Hysterectomy?
Hi everyone, thank you for sharing your journeys. I've said this before, but this forum is a massive support for me. I don't post often but it's the first thing I open in the morning and would be lost without the feeling g of support I get from you all. I was wondering if anyone has been on Dienogest
Hi everyone, thank you for sharing your journeys. I've said this before, but this forum is a massive support for me. I don't post often but it's the first thing I open in the morning and would be lost without the feeling g of support I get from you all. I was wondering if anyone has been on Dienogest
Deemctee
in
Endometriosis UK
2 years ago
Mental Health
Being in uni with endo is probably the worst Experience of my life. At only 20 years old ive been in and out of hospital on morphine since 2021 in constant pain. I recently just got the coil inserted and I’m in agony. I have missed so many classes, exams, content and labs. I feel so depressed because
Being in uni with endo is probably the worst Experience of my life. At only 20 years old ive been in and out of hospital on morphine since 2021 in constant pain. I recently just got the coil inserted and I’m in agony. I have missed so many classes, exams, content and labs. I feel so depressed because
Littlebug77
in
Endometriosis UK
2 years ago
Mirna coil
Does anyone have this, foes help bleeding I have fibroids the Dr is wanting this
Does anyone have this, foes help bleeding I have fibroids the Dr is wanting this
Bluelady-sing
in
PCOS UK (Verity)
2 years ago
Miena coil
Is this going to damage my fertility I had a large bleed large had to be transfused. H.b 6.4 dl, 2 units now 7.8 d/ L
Is this going to damage my fertility I had a large bleed large had to be transfused. H.b 6.4 dl, 2 units now 7.8 d/ L
Bluelady-sing
in
Women's Health
2 years ago
No one is offering any answewers or help
Hey, just wanted some advice or similar stories. I've had endo for around 10 years 4 laparoscapys later and I've been told I can't have any more as it could cause too much damage. I use the contraceptive pill to manage the endo as I've tried pretty much everything else. They don't really want to help
Hey, just wanted some advice or similar stories. I've had endo for around 10 years 4 laparoscapys later and I've been told I can't have any more as it could cause too much damage. I use the contraceptive pill to manage the endo as I've tried pretty much everything else. They don't really want to help
jjmurph1234
in
Endometriosis UK
2 years ago
When to start oestrogen patch and mirena coil
Hi. I am having a coil fitted next week as the progesterone part of hrt. I have the oestrogen patches waiting. Can I start the patches a few days before having the coil?
Hi. I am having a coil fitted next week as the progesterone part of hrt. I have the oestrogen patches waiting. Can I start the patches a few days before having the coil?
fitwithgail
in
Menopause and Perimenopause Support
2 years ago
When is surgery necessary?
For the last few years I've had very heavy periods - annoying, but manageable. For the last 12 months I've had really bad bloating in my stomach on and off - annoying, but manageable. For most of last year I had an on/off dull ache near my left ovary - annoying but manageable. Since November the dull
For the last few years I've had very heavy periods - annoying, but manageable. For the last 12 months I've had really bad bloating in my stomach on and off - annoying, but manageable. For most of last year I had an on/off dull ache near my left ovary - annoying but manageable. Since November the dull
Jenn2022
in
Endometriosis UK
2 years ago
Mirena or endo pain?
Hi all, I had my laparoscopy in December 2020 to remove endo. During the op I had the mirena coil inserted. Now 14 months later, I’m still having pain most days. I finally have a gyno appt coming up in a few weeks and I think they’re going to suggest having my coil taken out, which feels like a really
Hi all, I had my laparoscopy in December 2020 to remove endo. During the op I had the mirena coil inserted. Now 14 months later, I’m still having pain most days. I finally have a gyno appt coming up in a few weeks and I think they’re going to suggest having my coil taken out, which feels like a really
LondonEndo325
in
Endometriosis UK
2 years ago
I'm new here
Hi everyone, I'm so glad I came across this page as I feel reassured and more educated already. I went on the pill at 15, to stop my extremely heavy and painful periods and since then everything was fine - periods were regular, a normal amount of pain etc. A year ago, at 22, I decided I no longer wanted
Hi everyone, I'm so glad I came across this page as I feel reassured and more educated already. I went on the pill at 15, to stop my extremely heavy and painful periods and since then everything was fine - periods were regular, a normal amount of pain etc. A year ago, at 22, I decided I no longer wanted
cbradbury
in
Endometriosis UK
2 years ago
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