Dienogest or Hysterectomy?

[Deemctee]

Hi everyone, thank you for sharing your journeys. I've said this before, but this forum is a massive support for me. I don't post often but it's the first thing I open in the morning and would be lost without the feeling g of support I get from you all.

I was wondering if anyone has been on Dienogest and if so did it help? I have chosen not to have all hormone treatment since my daughter was born (nearly 24 years ago) as my mum died of a brain haemmorage and didnt want to temp fate by adding risk. I've had the copper coil all my life but had it removed as my husband and I would love a baby ( unlikely at my age i know) I've had my Lap, endo excision, removal of endometriomas and been diagnosed with adenomyosis...all the usual, but I'm no better, in fact the pain is worse! My surgeon wants me to at least try dienogest but in my head I feel, if I'm going to go on a contraceptive (i know its not Registered in the UK as one) I may as well just have a hysterectomy now as ultimately that's where im headed. Feel like I'm clinging onto my fertility and putting my body & mind through hell for it. I'm just not ready to give up my womb yet but I don't see any other way.

[Davdsouza]

Hello. My surgeon put me on Dienogest after my Laproscopy post-op meeting in October 2021. I was hesitant to take it as the last pill sent me into worse pain. I thought I would give it a try as I have stopped trying to conceive now after 10 years of trying and 3 failed IVF rounds.

My husband and I think the ivf hormones messed up my body and ultimately made my endometriosis and subsequent Adenomyosis a whole nightmare to live with.

I have been on Dienogest for close to 4 months and after my body adjusted to the pill, I am pleased to say that I have no painful heavy periods (I used to call in sick each month and lie in bed for 2-4 days at a time). I am living a very normal life. I do feel like I am dreaming as I used to dread my periods and the misery that came with them. I now appreciate the doctor listening to me and giving me a chance at a pain free life and not having a hysterectomy that I thought I would have to get by my mid-forties, I’m only 41 though.

Much love.

[Tapa in reply to Davdsouza]

hey… did you experience any side effects with dienogest?