Mental Health

[Littlebug77]

Being in uni with endo is probably the worst Experience of my life. At only 20 years old ive been in and out of hospital on morphine since 2021 in constant pain. I recently just got the coil inserted and I’m in agony.

I have missed so many classes, exams, content and labs. I feel so depressed because I can’t do the best I want to do as when I have flare ups I’m in bed I chronic pain.

I was thinking of leaving and staying again in September but my family boyfriend and myself believe if I get a full time job with money I’ll never go back to being a poor student.

I’ve had to move back home quiet my job and hobbies because of the pain. I’m constantly exhausted and on antidepressants as well as painkillers just to survive but each day my depression gets worse.

I am at the point where it’s taking over my youth and I don’t think I can care any longer.

Please I really need advice anything a quote or a hi would be fine. I feel so alone with this diagnosis and them saying this might now work but it will take 6 months to a year before we know

Thank you

[EternalSunshine87]

You are not alone. Hang in there. It may take time to find what works for you, but every day is a day closer to finding what helps you.

[Ggrif]

Hi!! Please please please keep on and on at your dr. You need more help by the sound of it?

And also by the sound of it you have a great support network behind you with your parents and boyfriend. I also agree that if you can keep pushing on with uni then that would be ideal, with the pain your in, you don't want to go and get yourself a full time job anyway as it will be far to hard.

I can't help ease the pain but please know that your not alone, I went thorough everything, I know I'm alot older than you but I've been where you are now, there are many things to help you, it's a case of them finding whats right. You really must keep pushing your gyne, in the end I got on the phone and email every single day and say how much pain I was in. And it worked, I got heard finally. Good luck Mia.

[pinkminido]

mia1803 it is a bit drastic but could you try Lupron shots? I am double your age so nearing menopause-so for me it isn't such a drastic decision. But maybe worth exploring?

[Littlebug77 in reply to pinkminido]

I’m too fat I have a BMI of about 40 but I am exceptionally tall and of African descent but they don’t take that into account 😃

[pinkminido in reply to Littlebug77]

It is so frustrating for you. I understand your pain-Ive gone through agony and fluctuating symptoms for 2 years... and still no definitive answers or proper diagnosis. It is really awful-but you are not alone... thinking of you..

[Random789]

Hey, I’d recommend talking to your doctor about the impact it’s having on your life. I’m in the same situation but asking for help can make it more manageable for sure

If you’d like to talk I think there’s a dm feature on here? If so, you can send me a message

[Cailleach]

Have you made use of the services your uni can offer for people with health issues? They will be probably be able to give you help and support in studying while dealing with all this. Have a read of what people have written on here about the coil. Personally I could not cope with it and had it removed after a month, but I had never been warned that it could take a while to settle. It seems great for some people, not for others.

I think right now you need to just rest and deal with the day to day health issues and not worry too much about your job/ studies till you are in a better place pain wise,

I really hope things improve for you.

[Littlebug77 in reply to Cailleach]

Yes my uni are aware but I feel so behind. I’m missing all my labs and tutorials and then when submissions come I have no idea what to do. I have like a permenat extension on all course work but I’m not performing as best as I can.I had the coil before and it gave me a cysts and the gun is where persistent for me to try again so here I am - keep having these intense sharp pains and spotting with large clots :/

Hopefully it will be alright soon thank you

[Dee_EndoUK Moderator Endometriosis UK]

Hi Mia1803

I'm really sorry to hear about how you've been suffering with endometriosis - it sounds like you've had a really tough time.

If you need someone to talk to, we do have a network of support services that are available to anyone affected by endometriosis. Our free helpline (0808 808 2227) is run by volunteers who have personal experience of endometriosis. The helpline is available most days - the times it is open can be found here: endometriosis-uk.org/helpline.

You may also find our support groups useful as a place where you can discuss endometriosis and the issues you are facing with other sufferers. Please visit endometriosis-uk.org/find-a...

Please know that you're certainly not on your own in this and it's lovely to see that so many of our forum users have reached out to you with support.

You may also want to take a look at our endometriosis treatment pack on our website. This can be downloaded from endometriosis-uk.org/endome... to look at the options that are available to you with regards to pain management.

Please reach out to your GP if you are in agony with the coil to discuss possible alternatives. If you're not already speaking with an endometriosis specialist, I would encourage you to ask for a referral.

Wishing you all the best. Take care x

[Littlebug77 in reply to Dee_EndoUK]

Thank you I ended up going to one of their sessions it was a great help - I don’t feel so alone anymore

[Dee_EndoUK Moderator Endometriosis UK in reply to Littlebug77]

Really pleased to hear that Mia1803. All the best x

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Trust me a job is tough to do with the pain I'm managing on a lot of painkillers. How long have you been on anti depressant because they make you worse for the first three weeks before you feel better.

[ThomasGates42]

I feel sorry for your condition. The only way is to control the pain with pain killers, but yes, excessive pain killers. This condition is also managed with surgery. Consult your health professional again if you are dealing with immense difficulty.

[JustLiLi]

Hey love I have same situation just I took out my Coil.after 2 years pain didn't change was worse with coil I think for me anyway, but stay strong! I'm with you at the moment In bed without motivation for even Christmas Xxx